Only come out in winter was Re: Newbie Checking In

On or about Fri, 14 Jul 2006 10:46:28 GMT, an entity identified as "Wanderer" <littlejazzywafer@hotmail.com> proudly proclaimed: >Hello Monkkey. Well I really hope that it will disappear for you. Sooner t han later of course. > >I am ready to chuck in the towel at this point I can hardly stand myself be cause of this condition. I hate going out anywhere. Instead of a gun, I pack a vacuum on my hip. It is like "Have Vacuum, Will Travel". > >I know there are other conditions that are much worse but right now my qual ity of life is pretty bad. I only come out in the winter. > >I am praying for you Monkkey that you will not have it long. Sometimes a sh ock to the body will bring this on. > >Hugs, L.J. <snip> Dude (or dudette)! Why are you so ashamed of your condition? It is nothing to be ashamed of! It is not a punishment for bad thoughts or actions by an evil god. It is not your fault! I choose to sunbathe nude at nudist camps (social nudism) to control my ps. Nobody thinks the less of me there because of my messed up skin. (Granted nudists are more tolerant of human fralities than are textiles, but still..) Come out of your psoriasis closet & embrace life! This is the only one you've got on earth. Live it! BTW, I'm 50 years old, male and ugly as all get out! Fat too. Nudists treat me like everyone else. You should try it. Frosty P.S. if anyone wants to ask me questions about using nudism for ps treatment, like what to expect at a nudist camp, "male" issues, etc. feel free to respond or email. My address is good as is.

Ha Ha. Well I am 57 and getting fat. Well I wish I could be that comfortable . I have had this for 30 years and I have tried to accept it, love it and le t it go. But for some reason, it just won't leave. If you love something let it go; if it comes back to you; it is yours. Yup!! ! This is mine. It is hard to accept the pain and itchy, bleeding, flaking skin. There isn't a minute go by that it is not doing one or the other. My skin demands my un divided attention. I wish it were different. None of my four sisters got this condition. Just m e.

.. I will get on with life. I come here once in awhile for support and un derstanding and tips. Thanks for your ideas. Actually, we are adding a deck from our bedroom and with a tall fence I could cook out there pretty easily. It is summer here and I have been out in the sun a lot but my skin has just gotten worse. Figure that out??? L.J. "Frosty" <clause39@yahoo.com> wrote in message news:isteb2pvhr12b4e0uc74ia26 6iuic8dju7@4ax.com.. On or about Fri, 14 Jul 2006 10:46:28 GMT, an entity identified as "Wanderer" <littlejazzywafer@hotmail.com> proudly proclaimed: >Hello Monkkey. Well I really hope that it will disappear for you. Sooner t han later of course. > >I am ready to chuck in the towel at this point I can hardly stand myself be cause of this condition. I hate going out anywhere. Instead of a gun, I pack a vacuum on my hip. It is like "Have Vacuum, Will Travel". > >I know there are other conditions that are much worse but right now my qual ity of life is pretty bad. I only come out in the winter. > >I am praying for you Monkkey that you will not have it long. Sometimes a sh ock to the body will bring this on. > >Hugs, L.J. <snip> Dude (or dudette)! Why are you so ashamed of your condition? It is nothing to be ashamed of! It is not a punishment for bad thoughts or actions by an evil god. It is not your fault! I choose to sunbathe nude at nudist camps (social nudism) to control my ps. Nobody thinks the less of me there because of my messed up skin. (Granted nudists are more tolerant of human fralities than are textiles, but still..) Come out of your psoriasis closet & embrace life! This is the only one you've got on earth. Live it! BTW, I'm 50 years old, male and ugly as all get out! Fat too. Nudists treat me like everyone else. You should try it. Frosty P.S. if anyone wants to ask me questions about using nudism for ps treatment, like what to expect at a nudist camp, "male" issues, etc. feel free to respond or email. My address is good as is.

Frosty

Re: Only come out in winter was Re: Newbie Checking In

On or about Fri, 14 Jul 2006 11:15:45 GMT, an entity identified as
"Wanderer" <littlejazzywafer@hotmail.com> proudly proclaimed:

>Ha Ha. Well I am 57 and getting fat. Well I wish I could be that comfortabl
e. I have had this for 30 years and I have tried to accept it, love it and l
et it go. But for some reason, it just won't leave.
>
>If you love something let it go; if it comes back to you; it is yours. Yup!
!! This is mine.
>
>It is hard to accept the pain and itchy, bleeding, flaking skin. There isn'
t a minute go by that it is not doing one or the other. My skin demands my u
ndivided attention.
>
>I wish it were different. None of my four sisters got this condition. Just 
me.
>
>.. I will get on with life. I come here once in awhile for support and u
nderstanding and tips. Thanks for your ideas.
> Actually, we are adding a deck from our bedroom and with a tall fence I co
uld cook out there pretty easily.
> It is summer here and I have been out in the sun a lot but my skin has just gotten
 worse. Figure that out???

Well, some people don't respond well to sunshine (just like all other
treatments.)
You gotta build up to it though. Just like building a tan: it can't be
done in one day. Burning is really, really bad!
You know, since our scales are white, they reflect light. So one must
find a way to make them less reflective.
Water, like a swimming pool or hot tub works real well for me, (I see
no difference with or without chlorine, but without invites infections
to broken or compromised skin. I won't swim in a fresh water
lake..ever!)
There's a product called Zim's Crack Creme which is an oily liquid
that works really, really well as makeing the white seem to disappear.
And and smells good too. But it has some alcohol in it, and if you're
like me you don't give a crap what the doctors say: If it itches I'm
gonna damned well scratch it! And I've been burned bad by PUVA so have
been itching REALLY badly for about 16 years! When I scratch there's
no messin' around. I go for the blood! The alcohol stings, but pain
beats itch every time IMO.

Frosty
>
>L.J.
>  "Frosty" <clause39@yahoo.com> wrote in message news:isteb2pvhr12b4e0uc74i
a266iuic8dju7@4ax.com..
>  On or about Fri, 14 Jul 2006 10:46:28 GMT, an entity identified as
>  "Wanderer" <littlejazzywafer@hotmail.com> proudly proclaimed:
> 
>
>  <snip>
>  Dude (or dudette)!
>
>  Why are you so ashamed of your condition?
>  It is nothing to be ashamed of!
>  It is not a punishment for bad thoughts or actions by an evil god.
>  It is not your fault!
>
>  I choose to sunbathe nude at nudist camps (social nudism) to control
>  my ps. Nobody thinks the less of me there because of my messed up
>  skin. (Granted nudists are more tolerant of human fralities than are
>  textiles, but still..)
>
>  Come out of your psoriasis closet & embrace life! This is the only one
>  you've got on earth. Live it!
>
>  BTW, I'm 50 years old, male and ugly as all get out! Fat too. Nudists
>  treat me like everyone else. You should try it.
>
>  Frosty
>
>  P.S. if anyone wants to ask me questions about using nudism for ps
>  treatment, like what to expect at a nudist camp, "male" issues, etc.
>  feel free to respond or email. My address is good as is.

--

Si Hoc Legere Scis Nimium Eruditionis Habes

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07-14-06 09:25 PM

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On Fri, 14 Jul 2006 07:01:24 -0400, Frosty wrote: > Why are you so ashamed of your condition? It is nothing to be ashamed of! > It is not a punishment for bad thoughts or actions by an evil god. It is > not your fault! Hi, Frosty, There have been times where thoughts similar to Wanderer's have crossed my mind, though I have no guilt over having psoriasis. Remember Charlie Brown's friends Lucy and Linus? Or do you remember his other friend Pigpen who always went about followed by a cloud of dust. Well, who would like to go around followed by a cloud of flaking dead skin? I know it is something of an exageration, but I can understand where Wanderer is coming from. -- A Monkkey's Unkle will always prevail.

On Fri, 14 Jul 2006 10:14:44 -0400, Frosty wrote: > Well, some people don't respond well to sunshine (just like all other > treatments.) Please, Please, PLEASE don't tell me that sunshine is good for psoriasis in anybody. After having a zillion cases of basal cell skin cancer, a zillion cases of squamash cell skin cancer and a single brush with malignant melanoma (all of which are caused by the sun), please don't tell me that I may need to actually get out into the sun. YYYYYYUUUUUUKKKK!!!!!! -- By gollie, I'll be a Monkkey's Unkle.

Monkkey's Unkle wrote: > On Fri, 14 Jul 2006 10:14:44 -0400, Frosty wrote: > > > Please, Please, PLEASE don't tell me that sunshine is good for psoriasis > in anybody. If you don't get C, then it's good for getting rid of P! There are over 500 hits for squamous and P in pubmed. Just looked at around 10 of them. I'm reluctant to go behind your doctor's authority by saying much. :0 But you can, http://www.ncbi.nlm.nih.gov/entrez/.. /> *+squamous Add in keywords to pare it down. ;~/ >After having a zillion cases of basal cell skin cancer, a > zillion cases of squamash cell skin cancer and a single brush with > malignant melanoma (all of which are caused by the sun), please don't tell > me that I may need to actually get out into the sun. > YYYYYYUUUUUUKKKK!!!!!! You could do what ernest did. http://groups.google.com/groups/sea..=Se arch I'm sure you could pass that by your derm and doc. randall. golly good luck monk key > > -- > By gollie, I'll be a Monkkey's Unkle.

On or about Fri, 14 Jul 2006 09:24:36 -0700, an entity identified as Monkkey's Unkle <MonkkeysUnkle@guess.where> proudly proclaimed: >On Fri, 14 Jul 2006 07:01:24 -0400, Frosty wrote: > > >Hi, Frosty, > >There have been times where thoughts similar to Wanderer's have crossed my >mind, though I have no guilt over having psoriasis. Remember Charlie >Brown's friends Lucy and Linus? Or do you remember his other friend >Pigpen who always went about followed by a cloud of dust. Well, who would >like to go around followed by a cloud of flaking dead skin? I know it is >something of an exageration, but I can understand where Wanderer is coming >from. Do you know that everybody sheds skin? That most household dust is mostly dead skin cells? It's bad enough having ignorant people call ps a "yucky" skin condition, but to call it that yourself, and to act as if you should carry a sign and shout "unclean" everywhere you go..Jeez! C'mon! Look, I spend a number of years in the state pen with psoriasis. Y'all, there is NOTHING more valuable than your freedom! To *voluntarily* imprison yourself because your body is not "perfect" is stupid bordering on insane! Go live you lives! You have so much! Quit taking your life for granted. This is it (on earth)! Go out and LIVE! I wonder what Wanderer would do if he gained 150lbs? Would he be equally embarassed/ashamed to appear in public? What if he was, God forbid, in a fire or a horrible accident and lost part or most of his face? People, you are so blessed to be able to walk, or roll your wheelchair, or limp into a drugstore and buy a roll of Scotch tape and some antacid; To be allowed to drive a car; To be able to mow your lawn or wear a pair of red socks.. I could just go on & on. And (some of) you waste that precious gift moping about your non-fatal skin disease?? Hell, I itch TERRIBLY..bleed all over my clothes & bedding. And I'm SO happy to be free and alive! Frosty -- Resistance is futile (if < 1 ohm)

Frosty wrote: > On or about Fri, 14 Jul 2006 09:24:36 -0700, an entity identified as > Monkkey's Unkle <MonkkeysUnkle@guess.where> proudly proclaimed: > Yet, even in the bible going back to prehysterical times, they called it sapachat and it meant you were a BAD person in Gods eyes. Why else would we feel weird as foreign eyes spy our visible P patches like laser beams boring in to our very souls. Cracks me uP now. Yet there was a time. yesterday if i recall correctly. lol [vbcol=seagreen] > > Do you know that everybody sheds skin? Yes. Thanks for reminding me. >That most household dust is > mostly dead skin cells? Yes and ditto. > It's bad enough having ignorant people call ps a "yucky" skin > condition, but to call it that yourself, and to act as if you should > carry a sign and shout "unclean" everywhere you go..Jeez! C'mon! OK. I'm with you. > > Look, I spend a number of years in the state pen with psoriasis. What's your demographics? This is getting good.

> Y'all, there is NOTHING more valuable than your freedom! AMEN! > To *voluntarily* imprison yourself because your body is not "perfect" > is stupid bordering on insane! You want insane? Watch the Korean movie, OLDBOY (2002 by Korean director Chan-wook Park -- a former philosophy student and Hitchcock devotee -- uses his influences to create a mesmerizing psychological drama with a resolution that will leave you speechless) You can get it on Netflix. I doubt anywhere else. > Go live you lives! You have so much! Quit taking your life for > granted. This is it (on earth)! Go out and LIVE! Dude! you rock my world view! > > I wonder what Wanderer would do if he gained 150lbs? Would he be > equally embarassed/ashamed to appear in public? What if he was, God > forbid, in a fire or a horrible accident and lost part or most of his > face? He'd be exactly the same as now. > > People, you are so blessed to be able to walk, or roll your > wheelchair, or limp into a drugstore and buy a roll of Scotch tape and > some antacid; To be allowed to drive a car; To be able to mow your > lawn or wear a pair of red socks.. > I could just go on & on. Me to. I'll walk outside and breathe and go inside now. 15 min's later: That was great. Thanks.. the worries got their rears kicked by the blessings. ;~) > > And (some of) you waste that precious gift moping about your non-fatal > skin disease?? Hell, I itch TERRIBLY..bleed all over my clothes & > bedding. And I'm SO happy to be free and alive! Want to be even free-er? randall.. taking aPPs for apostles! > > Frosty > > -- > > Resistance is futile (if < 1 ohm)

Well Said Frosty. Good on ya. You sure know how to write. Love the red sock part. Wanderer "Frosty" <clause39@yahoo.com> wrote in message news:37cgb2lmj4elj3nsnprtm3d3 bc66qvj744@4ax.com.. On or about Fri, 14 Jul 2006 09:24:36 -0700, an entity identified as Monkkey's Unkle <MonkkeysUnkle@guess.where> proudly proclaimed: >On Fri, 14 Jul 2006 07:01:24 -0400, Frosty wrote: > > >Hi, Frosty, > >There have been times where thoughts similar to Wanderer's have crossed my >mind, though I have no guilt over having psoriasis. Remember Charlie >Brown's friends Lucy and Linus? Or do you remember his other friend >Pigpen who always went about followed by a cloud of dust. Well, who would >like to go around followed by a cloud of flaking dead skin? I know it is >something of an exageration, but I can understand where Wanderer is coming >from. Do you know that everybody sheds skin? That most household dust is mostly dead skin cells? It's bad enough having ignorant people call ps a "yucky" skin condition, but to call it that yourself, and to act as if you should carry a sign and shout "unclean" everywhere you go..Jeez! C'mon! Look, I spend a number of years in the state pen with psoriasis. Y'all, there is NOTHING more valuable than your freedom! To *voluntarily* imprison yourself because your body is not "perfect" is stupid bordering on insane! Go live you lives! You have so much! Quit taking your life for granted. This is it (on earth)! Go out and LIVE! I wonder what Wanderer would do if he gained 150lbs? Would he be equally embarassed/ashamed to appear in public? What if he was, God forbid, in a fire or a horrible accident and lost part or most of his face? People, you are so blessed to be able to walk, or roll your wheelchair, or limp into a drugstore and buy a roll of Scotch tape and some antacid; To be allowed to drive a car; To be able to mow your lawn or wear a pair of red socks.. I could just go on & on. And (some of) you waste that precious gift moping about your non-fatal skin disease?? Hell, I itch TERRIBLY..bleed all over my clothes & bedding. And I'm SO happy to be free and alive! Frosty -- Resistance is futile (if < 1 ohm)

Yes I feel like 'pigpen' alot. When I stand up and flakes are dropping all o ver the place. I am fully aware of the fact that we all shed skin every 28 d ays or so. But every 5 mins is a little too fast forward for me. It would b e nice to overlook the condition but everyone else would have too also. Toda y I was out and had one person recoil from me and say ooooooooo what have yo u got?. And two women speaking about my condition as if I wasn't there and l ooking at me up and down. A third woman asked me in a kind way what was on m y feet. But mostly I am met with fear. Hard to ignore the fear in people's g lances when they think you are infectious. "Monkkey's Unkle" <MonkkeysUnkle@guess.where> wrote in message news:pan.2006 .07.14.16.24.31.630771@guess.where.. On Fri, 14 Jul 2006 07:01:24 -0400, Frosty wrote: > Why are you so ashamed of your condition? It is nothing to be ashamed of! > It is not a punishment for bad thoughts or actions by an evil god. It is > not your fault! Hi, Frosty, There have been times where thoughts similar to Wanderer's have crossed my mind, though I have no guilt over having psoriasis. Remember Charlie Brown's friends Lucy and Linus? Or do you remember his other friend Pigpen who always went about followed by a cloud of dust. Well, who would like to go around followed by a cloud of flaking dead skin? I know it is something of an exageration, but I can understand where Wanderer is coming from. -- A Monkkey's Unkle will always prevail.

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