Well after bleating to you all about how well I've been, I've topped it off
by having a very strange couple of days (well, week or so actually).  For
those who didn't read it earlier, I was bragging about having 2 years being
REALLY well with no symptoms to speak of and how cool that was.  Its also
been 2 years since I've seen my family doc or rheum man (baaaaaad girl) just
been in complete denial and writing my own scripts . I know, I know...

Well in the wee hours of Sat before last (almost 2 weeks ago) I had a
seizure in my sleep.  Short one, maybe 5 mins or less, as with all seizures
I knew nothing about it until I woke up a few hours later feeling like I'd
been hit by a truck with a worried husband hovering over me.  I've done it
before, but not for a long time.  I felt lousy ,most of that week..no
fever, pain or anything, just really tired.

A week passed, then on Saturday I had this sudden onset of dizziness-- more
a off balance kind of feeling.  Not fainty not spinning, just like the whole
world was on about a 30 degree slope to the left.  It wasz very
disconcerting and I stumbled around the house,shops etc until it left as
suddenly as it came on Sunday lunchtime (almost exactly 24 hours later).
Monday and bTuesday all was fine and then Tuesday evening I was sitting
watching TV and suddenly it was back with a vengeance. It was like someone
moved the whole world again but way worse..I tried t get up and fell over,
walked down the hall to the bedroom and kept bouncing off the walls as the
floor rocked and rolled beneath me, then made it to the bedroom and vomited
for an hour.  After four hours, it simply disappeared.

I don't like all this at all.  It certainly not the kind of dizziness I
would expect from a virus, middle ear or anything like that and I have none
of the symptoms to support it.  It is very neurological in nature, and the
short sharp and sudden  onset and departure makes me think I have started
having more TIAs again (bl**dy damn S**t). My TIAs in the past have usually
involved visual loss or speech difficulty rather than balance, but anythings
possible. I have made an appointment to see rheum man in 2 weeks (24th) but
I'm not happy.

Thanks for listening
Lyndal

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Lyndal,

I'm so sorry that your two years of being virtually symptom free has been
broken by the the start up of a seizure and the "off balance" feeling.
Hopefully you will get your answers and a solution on the 24th!

You are in my prayers!

Hugs,
Sherry

"Lyndal" <lyndal_pn@iprimus.com.au> wrote in message
news:44ae1118$1_1@news.iprimus.com.au..
> Well after bleating to you all about how well I've been, I've topped it
> off by having a very strange couple of days (well, week or so actually).
> For those who didn't read it earlier, I was bragging about having 2 years
> being REALLY well with no symptoms to speak of and how cool that was.  Its
> also been 2 years since I've seen my family doc or rheum man (baaaaaad
> girl) just been in complete denial and writing my own scripts . I know, I
> know...
>
> Well in the wee hours of Sat before last (almost 2 weeks ago) I had a
> seizure in my sleep.  Short one, maybe 5 mins or less, as with all
> seizures I knew nothing about it until I woke up a few hours later feeling
> like I'd been hit by a truck with a worried husband hovering over me.
> I've done it before, but not for a long time.  I felt lousy ,most of that
> week..no fever, pain or anything, just really tired.
>
> A week passed, then on Saturday I had this sudden onset of dizziness--
> more a off balance kind of feeling.  Not fainty not spinning, just like
> the whole world was on about a 30 degree slope to the left.  It wasz very
> disconcerting and I stumbled around the house,shops etc until it left as
> suddenly as it came on Sunday lunchtime (almost exactly 24 hours later).
> Monday and bTuesday all was fine and then Tuesday evening I was sitting
> watching TV and suddenly it was back with a vengeance. It was like someone
> moved the whole world again but way worse..I tried t get up and fell
> over, walked down the hall to the bedroom and kept bouncing off the walls
> as the floor rocked and rolled beneath me, then made it to the bedroom and
> vomited for an hour.  After four hours, it simply disappeared.
>
> I don't like all this at all.  It certainly not the kind of dizziness I
> would expect from a virus, middle ear or anything like that and I have
> none of the symptoms to support it.  It is very neurological in nature,
> and the short sharp and sudden  onset and departure makes me think I have
> started having more TIAs again (bl**dy damn S**t). My TIAs in the past
> have usually involved visual loss or speech difficulty rather than
> balance, but anythings possible. I have made an appointment to see rheum
> man in 2 weeks (24th) but I'm not happy.
>
> Thanks for listening
> Lyndal
>

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[  Post Follow-up to this message ]

Well, you're the doc but .. It sure sounds like TIA's

Have you had any change in medication in the last few weeks/months?
Is there anything you are on that you would build up a resistance to and
need more of it to work efficiently?
May I suggest not driving for a while? (Or maybe you don't do that anyway
with your past history.)
((((HUGS))))
Bev

"Lyndal" <lyndal_pn@iprimus.com.au> wrote in message
news:44ae1118$1_1@news.iprimus.com.au..
> Well after bleating to you all about how well I've been, I've topped it
off
> by having a very strange couple of days (well, week or so actually).  For
> those who didn't read it earlier, I was bragging about having 2 years
being
> REALLY well with no symptoms to speak of and how cool that was.  Its also
> been 2 years since I've seen my family doc or rheum man (baaaaaad girl)
just
> been in complete denial and writing my own scripts . I know, I know...
>
> Well in the wee hours of Sat before last (almost 2 weeks ago) I had a
> seizure in my sleep.  Short one, maybe 5 mins or less, as with all
seizures
> I knew nothing about it until I woke up a few hours later feeling like I'd
> been hit by a truck with a worried husband hovering over me.  I've done it
> before, but not for a long time.  I felt lousy ,most of that week..no
> fever, pain or anything, just really tired.
>
> A week passed, then on Saturday I had this sudden onset of dizziness--
more
> a off balance kind of feeling.  Not fainty not spinning, just like the
whole
> world was on about a 30 degree slope to the left.  It wasz very
> disconcerting and I stumbled around the house,shops etc until it left as
> suddenly as it came on Sunday lunchtime (almost exactly 24 hours later).
> Monday and bTuesday all was fine and then Tuesday evening I was sitting
> watching TV and suddenly it was back with a vengeance. It was like someone
> moved the whole world again but way worse..I tried t get up and fell
over,
> walked down the hall to the bedroom and kept bouncing off the walls as the
> floor rocked and rolled beneath me, then made it to the bedroom and
vomited
> for an hour.  After four hours, it simply disappeared.
>
> I don't like all this at all.  It certainly not the kind of dizziness I
> would expect from a virus, middle ear or anything like that and I have
none
> of the symptoms to support it.  It is very neurological in nature, and the
> short sharp and sudden  onset and departure makes me think I have started
> having more TIAs again (bl**dy damn S**t). My TIAs in the past have
usually
> involved visual loss or speech difficulty rather than balance, but
anythings
> possible. I have made an appointment to see rheum man in 2 weeks (24th)
but
> I'm not happy.
>
> Thanks for listening
> Lyndal
>
>

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Oh Lyndal
I am so sorry that you are having such a bad time!
good luck with the doc appt and take it easy, very easy till then if you =
can!
Keep us updated?.. wishing you the best.. and yes, right away TIA =
came to my mind .. so sorry!!
my hugs and love,
Shelagh
http://clik.to/lupus


"Lyndal" <lyndal_pn@iprimus.com.au> wrote in message =
news:44ae1118$1_1@news.iprimus.com.au..
> Well after bleating to you all about how well I've been, I've topped =
it off=20
> by having a very strange couple of days (well, week or so actually).  =
For=20
> those who didn't read it earlier, I was bragging about having 2 years =
being=20
> REALLY well with no symptoms to speak of and how cool that was.  Its =
also=20
> been 2 years since I've seen my family doc or rheum man (baaaaaad =
girl) just=20
> been in complete denial and writing my own scripts . I know, I =
know...
>=20
> Well in the wee hours of Sat before last (almost 2 weeks ago) I had a=20
> seizure in my sleep.  Short one, maybe 5 mins or less, as with all =
seizures=20
> I knew nothing about it until I woke up a few hours later feeling like =
I'd=20
> been hit by a truck with a worried husband hovering over me.  I've =
done it=20
> before, but not for a long time.  I felt lousy ,most of that week..no =

> fever, pain or anything, just really tired.
>=20
> A week passed, then on Saturday I had this sudden onset of dizziness-- =
more=20
> a off balance kind of feeling.  Not fainty not spinning, just like the =
whole=20
> world was on about a 30 degree slope to the left.  It wasz very=20
> disconcerting and I stumbled around the house,shops etc until it left =
as=20
> suddenly as it came on Sunday lunchtime (almost exactly 24 hours =
later).=20
> Monday and bTuesday all was fine and then Tuesday evening I was =
sitting=20
> watching TV and suddenly it was back with a vengeance. It was like =
someone=20
> moved the whole world again but way worse..I tried t get up and fell =
over,=20
> walked down the hall to the bedroom and kept bouncing off the walls as =
the=20
> floor rocked and rolled beneath me, then made it to the bedroom and =
vomited=20
> for an hour.  After four hours, it simply disappeared.
>=20
> I don't like all this at all.  It certainly not the kind of dizziness =
I=20
> would expect from a virus, middle ear or anything like that and I have =
none=20
> of the symptoms to support it.  It is very neurological in nature, and =
the=20
> short sharp and sudden  onset and departure makes me think I have =
started=20
> having more TIAs again (bl**dy damn S**t). My TIAs in the past have =
usually=20
> involved visual loss or speech difficulty rather than balance, but =
anythings=20
> possible. I have made an appointment to see rheum man in 2 weeks =
(24th) but=20
> I'm not happy.
>=20
> Thanks for listening
> Lyndal=20
>=20
>

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Lyndal wrote:

> Well in the wee hours of Sat before last (almost 2 weeks ago) I had a
> seizure in my sleep.  Short one, maybe 5 mins or less, as with all seizure
s
> I knew nothing about it until I woke up a few hours later feeling like I'd
> been hit by a truck with a worried husband hovering over me.  I've done it
> before, but not for a long time.  I felt lousy ,most of that week..no
> fever, pain or anything, just really tired.
>
> A week passed, then on Saturday I had this sudden onset of dizziness-- mor
e
> a off balance kind of feeling.  Not fainty not spinning, just like the who
le
> world was on about a 30 degree slope to the left.  It wasz very
> disconcerting and I stumbled around the house,shops etc until it left as
> suddenly as it came on Sunday lunchtime (almost exactly 24 hours later).
> Monday and bTuesday all was fine and then Tuesday evening I was sitting
> watching TV and suddenly it was back with a vengeance. It was like someone
> moved the whole world again but way worse..I tried t get up and fell ove
r,
> walked down the hall to the bedroom and kept bouncing off the walls as the
> floor rocked and rolled beneath me, then made it to the bedroom and vomite
d
> for an hour.  After four hours, it simply disappeared.

4 hours ? vomiting ?
Please get checked.
Hugs
J

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Why wait two weeks, is that the quickest you can get in Lyndal?  I agree
with you it might be TIA's and then again it might be vasculitis.  That
sounds like it too.

time for an MRI and see what is going on in there. I suggest, and take it
for what it is worth.  GET YOUR butt to the ER or call that rheumy and tell
him things are progressing and YOU need to see him or her NOW.  This is not
a WAITING 2 weeks deal.

And about your cussing?   WELL SH*T GO AHEAD LOL.   I had a friend who had
terrible headaches and turned out she did indeed have vasculitis and not
TIA's like they thought.  Meant for her IV's of steriods to counteract that
and lots of REST.

Man I hope this is a simple fix for you. But it is quite odd to have seizure
in your sleep unless it is SERIOUS woman..

good luck lady and keep us informed.

janers

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In article <44ae1118$1_1@news.iprimus.com.au>, Lyndal
<lyndal_pn@iprimus.com.au> wrote
>Well after bleating to you all about how well I've been, I've topped it off
>by having a very strange couple of days (well, week or so actually).  For
>those who didn't read it earlier, I was bragging about having 2 years being
>REALLY well with no symptoms to speak of

That's usually a precursor to trouble..

I've forgotten (if I ever knew) - have yo been checked for Hughes
(antiphospholipid) syndrome?
--
Andy Taylor [Chair, N E Lupus Group]
See http://www.northeastlupus.org.uk for more!

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thanks 
"Sherry" <hurst1st@sbcglobal.nospam> wrote in message
news:LPurg.236$2v.56@newssvr25.news.prodigy.net..
> Lyndal,
>
> I'm so sorry that your two years of being virtually symptom free has been
> broken by the the start up of a seizure and the "off balance" feeling.
> Hopefully you will get your answers and a solution on the 24th!
>
> You are in my prayers!
>
> Hugs,
> Sherry
>
> "Lyndal" <lyndal_pn@iprimus.com.au> wrote in message
> news:44ae1118$1_1@news.iprimus.com.au.. 
>
>

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Nope, nothings changed..except my workload / stress level with my new job.
And I havent driven for four years since my first stroke.. I could..but I
don't think I should.
Lyndal
"Beverley" <beverly.brown28@verizon.net> wrote in message
news:aLvrg.14$bd4.12@trnddc01..
> Well, you're the doc but .. It sure sounds like TIA's
>
> Have you had any change in medication in the last few weeks/months?
> Is there anything you are on that you would build up a resistance to and
> need more of it to work efficiently?
> May I suggest not driving for a while? (Or maybe you don't do that anyway
> with your past history.)
> ((((HUGS))))
> Bev
>
> "Lyndal" <lyndal_pn@iprimus.com.au> wrote in message
> news:44ae1118$1_1@news.iprimus.com.au.. 
> off 
> being 
> just 
> seizures 
> more 
> whole 
> over, 
> vomited 
> none 
> usually 
> anythings 
> but 
>
>

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Thanks gang
Unfortunately that is the quickest I can get in without doing the ER
thing..and I hate to say it, but if I appear in ER the rheumy is likely to
admit me,.  I know, maybe thats the right thing to do, but I can't right
now.  I'm not completely insane, if it happens again or gets worse I will,
but I have a huge deadline at work which the future of our medical school
literally depends on and I am a key player (hence the increased stress
lately) It finishes on the 22nd.so I see the specialist on the 24th then
Roman (the rheum) can do whatever he wants with me. Just gotta get through
the next 2 weeks..

IV steroids was the solution for the last lot of dramas I had..maybe time
again
Lyndal
"janers" <rojakort@bright.net> wrote in message
news:c9-dnQQZooPHMjPZnZ2dnUVZ_sidnZ2d@bright.net..
> Why wait two weeks, is that the quickest you can get in Lyndal?  I agree
> with you it might be TIA's and then again it might be vasculitis.  That
> sounds like it too.
>
> time for an MRI and see what is going on in there. I suggest, and take it
> for what it is worth.  GET YOUR butt to the ER or call that rheumy and
> tell
> him things are progressing and YOU need to see him or her NOW.  This is
> not
> a WAITING 2 weeks deal.
>
> And about your cussing?   WELL SH*T GO AHEAD LOL.   I had a friend who had
> terrible headaches and turned out she did indeed have vasculitis and not
> TIA's like they thought.  Meant for her IV's of steriods to counteract
> that
> and lots of REST.
>
> Man I hope this is a simple fix for you. But it is quite odd to have
> seizure
> in your sleep unless it is SERIOUS woman..
>
> good luck lady and keep us informed.
>
> janers
>
>

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