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| redjacket 2006-06-10, 4:27 pm |
| I am on lots of VA pain and high BP meds.
A year ago I was told I now have high
" activity."
They kept on dosing me with liquid Advil
and about 300 Gabapentens pills a month.
200mg ea ? These I see are washed out through the kidney.
I am told its all my fault. I am not a big eater at all, in fact I've been
skinny all my life.
I did smoke allot and Shall stop. I am down to -10 a day. That's about the
place to use the patch.
I have the kit.
My problem is pain from multiple GSW, bone nerve and muscle damage.
Pain>stress>high BP>Kidney failure or some organ must fail ?
Pain and muscle spasms are bad.
Renal in VA will only give you a few minutes of time. No one will tell me
anything.
What are the safe or proper levels of
the Creatine and the GH is it ?
I am told I have about 20% kidney left. I am tired and itchy. I twice had a
swelled up left foot.
It went away. I take allot of Tylenols for pain. My BP was high since 1980
and is now normal.
I can't go find other docs, its VA only due to many overlapping injuries and
SC.
| |
| Jason Johnson 2006-06-10, 9:27 pm |
| In article <od6dndt1g85JuRbZnZ2dnUVZ_oednZ2d@adelphia.com>, "redjacket"
<redjacket@yahoo.com> wrote:
I am on lots of VA pain and high BP meds.
A year ago I was told I now have high
" activity."
They kept on dosing me with liquid Advil
and about 300 Gabapentens pills a month.
200mg ea ? These I see are washed out through the kidney.
I am told its all my fault. I am not a big eater at all, in fact I've been
skinny all my life.
I did smoke allot and Shall stop. I am down to -10 a day. That's about the
place to use the patch.
I have the kit.
My problem is pain from multiple GSW, bone nerve and muscle damage.
Pain>stress>high BP>Kidney failure or some organ must fail ?
Pain and muscle spasms are bad.
Renal in VA will only give you a few minutes of time. No one will tell me
anything.
What are the safe or proper levels of
the Creatine and the GH is it ?
I am told I have about 20% kidney left. I am tired and itchy. I twice had a
swelled up left foot.
It went away. I take allot of Tylenols for pain. My BP was high since 1980
and is now normal.
I can't go find other docs, its VA only due to many overlapping injuries and
SC.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
SC,
I am not a doctor or kidney expert. You should make a list of your
questions and asked your VA doctor to conduct some tests to determine
whether or not you have a kidney disease. If he or she tells you that you
have kidney disease, ask him or her to determine which type of kidney
disease.
You should read this book if you want to avoid dialysis since you may
"have about 20% kidney left".
"Coping With Kidney Disease" by Mackenzie Walser, M.D.
Please keep us updated by telling us what your doctor says.
Jason
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Jason
| |
| redjacket 2006-06-11, 2:29 am |
|
"Jason Johnson" <jason@nospam.com> wrote in message
news:jason-1006061912570001@66-52-22-1.lsan.pw-dia.impulse.net...
> In article <od6dndt1g85JuRbZnZ2dnUVZ_oednZ2d@adelphia.com>, "redjacket"
> <redjacket@yahoo.com> wrote:
>
> I am on lots of VA pain and high BP meds.
> A year ago I was told I now have high
> " activity."
> They kept on dosing me with liquid Advil
> and about 300 Gabapentens pills a month.
> 200mg ea ? These I see are washed out through the kidney.
>
> I am told its all my fault. I am not a big eater at all, in fact I've been
> skinny all my life.
> I did smoke allot and Shall stop. I am down to -10 a day. That's about the
> place to use the patch.
> I have the kit.
>
> My problem is pain from multiple GSW, bone nerve and muscle damage.
> Pain>stress>high BP>Kidney failure or some organ must fail ?
>
> Pain and muscle spasms are bad.
> Renal in VA will only give you a few minutes of time. No one will tell me
> anything.
> What are the safe or proper levels of
> the Creatine and the GH is it ?
>
>
> I am told I have about 20% kidney left. I am tired and itchy. I twice had
> a
> swelled up left foot.
> It went away. I take allot of Tylenols for pain. My BP was high since 1980
> and is now normal.
>
> I can't go find other docs, its VA only due to many overlapping injuries
> and
> SC.
>
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>
> SC,
> I am not a doctor or kidney expert. You should make a list of your
> questions and asked your VA doctor to conduct some tests to determine
> whether or not you have a kidney disease. If he or she tells you that you
> have kidney disease, ask him or her to determine which type of kidney
> disease.
> You should read this book if you want to avoid dialysis since you may
> "have about 20% kidney left".
> "Coping With Kidney Disease" by Mackenzie Walser, M.D.
> Please keep us updated by telling us what your doctor says.
> Jason
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
> Jason
Thanks I will do that. I had a kidney scan, he said I still have time. I
don't understand it.
He said at 10% its dialysis.
I feel bad now and have all week. I am glad to lose 10 pounds tho.
I only have some cereal and toast in me all week. I gag all day/
| |
| Jason Johnson 2006-06-11, 2:29 am |
| In article <zrmdndccI9jIHxbZnZ2dnUVZ_oydnZ2d@adelphia.com>, "redjacket"
<redjacket@yahoo.com> wrote:
"Jason Johnson" <jason@nospam.com> wrote in message
news:jason-1006061912570001@66-52-22-1.lsan.pw-dia.impulse.net...
> In article <od6dndt1g85JuRbZnZ2dnUVZ_oednZ2d@adelphia.com>, "redjacket"
> <redjacket@yahoo.com> wrote:
>
> I am on lots of VA pain and high BP meds.
> A year ago I was told I now have high
> " activity."
> They kept on dosing me with liquid Advil
> and about 300 Gabapentens pills a month.
> 200mg ea ? These I see are washed out through the kidney.
>
> I am told its all my fault. I am not a big eater at all, in fact I've been
> skinny all my life.
> I did smoke allot and Shall stop. I am down to -10 a day. That's about the
> place to use the patch.
> I have the kit.
>
> My problem is pain from multiple GSW, bone nerve and muscle damage.
> Pain>stress>high BP>Kidney failure or some organ must fail ?
>
> Pain and muscle spasms are bad.
> Renal in VA will only give you a few minutes of time. No one will tell me
> anything.
> What are the safe or proper levels of
> the Creatine and the GH is it ?
>
>
> I am told I have about 20% kidney left. I am tired and itchy. I twice had
> a
> swelled up left foot.
> It went away. I take allot of Tylenols for pain. My BP was high since 1980
> and is now normal.
>
> I can't go find other docs, its VA only due to many overlapping injuries
> and
> SC.
>
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>
> SC,
> I am not a doctor or kidney expert. You should make a list of your
> questions and asked your VA doctor to conduct some tests to determine
> whether or not you have a kidney disease. If he or she tells you that you
> have kidney disease, ask him or her to determine which type of kidney
> disease.
> You should read this book if you want to avoid dialysis since you may
> "have about 20% kidney left".
> "Coping With Kidney Disease" by Mackenzie Walser, M.D.
> Please keep us updated by telling us what your doctor says.
> Jason
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Thanks I will do that. I had a kidney scan, he said I still have time. I
don't understand it.
He said at 10% its dialysis.
I feel bad now and have all week. I am glad to lose 10 pounds tho.
I only have some cereal and toast in me all week. I gag all day/
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
SC,
My prayers are with you. The information in the book should help you. I
only wish you had read the book about two years ago or when you first
noticed that you were having kidney problems. You should tell your doctor
that you gag all day--he may want to start you on dialysis as soon as
possible. I found this information in the book that I mentioned:
"...nausia and vomiting are well-known symptoms of severe kidney failure.
Typically they appear when the blood urea concentration gets quite
high..."
If the doctor will not start you on dialysis very soon, tell the doctor to
treat you for anemia since the doctor that wrote the book says that one
study indicated that "anemia may be a significant factor in nausea and
vomiting..."
Jason
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
| |
| redjacket 2006-06-11, 8:26 am |
|
"Jason Johnson" <jason@nospam.com> wrote in message
news:jason-1006062034120001@66-52-22-1.lsan.pw-dia.impulse.net...
> In article <zrmdndccI9jIHxbZnZ2dnUVZ_oydnZ2d@adelphia.com>, "redjacket"
> <redjacket@yahoo.com> wrote:
>
> "Jason Johnson" <jason@nospam.com> wrote in message
> news:jason-1006061912570001@66-52-22-1.lsan.pw-dia.impulse.net...
>
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>
>
> Thanks I will do that. I had a kidney scan, he said I still have time. I
> don't understand it.
> He said at 10% its dialysis.
> I feel bad now and have all week. I am glad to lose 10 pounds tho.
> I only have some cereal and toast in me all week. I gag all day/
>
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>
> SC,
> My prayers are with you. The information in the book should help you. I
> only wish you had read the book about two years ago or when you first
> noticed that you were having kidney problems. You should tell your doctor
> that you gag all day--he may want to start you on dialysis as soon as
> possible. I found this information in the book that I mentioned:
> "...nausia and vomiting are well-known symptoms of severe kidney failure.
> Typically they appear when the blood urea concentration gets quite
> high..."
> If the doctor will not start you on dialysis very soon, tell the doctor to
> treat you for anemia since the doctor that wrote the book says that one
> study indicated that "anemia may be a significant factor in nausea and
> vomiting..."
> Jason
>
Thank you for a come back Jason ! That's what I am looking for, a book.
Its on order !
Another thing I am angry about is the Dr. (I think he still is in school.)
spends my 30 min punching things into the computer. I don't talk when he
works.
I am upset when he answers his beeper every few minutes and makes silly
return calls.
I get little or no discussion.
I ordered a Beeper Jammer that fits in my shirt just for this.
I was not given pamphlets or seen anyone about a diet like others in here
have.
The first Dr, well, all I understood was one out of six words from her. Her
English
was terrible.
Nausea is also a long time thing with me from WAG bug bites ? Its the itchy
part I fear
and being very tried. Backaches are normal, I had fractures of L-4,L-5
w/shrapnel in S-1.
This with the GSW are the reason for pain meds.
I see others have a restless leg problem and if severe take ....*Mirapex.
Its a wonder drug
for the leg problem.
Its too bad its a weekend I can only get a blood test from them. My last
one is a month old.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
| |
| daniel.granot@gmail.com 2006-06-11, 8:26 am |
|
If you WANT to make the most of what you have, other than getting more
out of your Docs, do what YOU can to improve your OWN health and
lifestyle.
If your health and life is as important to you as you say it is, kill
the cigarette habit. I know it's easy to say, but you can hardly
criticise your docs when you continue to partake in such an unhealthy
habit.
Your kidneys remove the toxins from your blood.
You're introducing toxins through your cigarette habit.
We too often try to find fault in others in relation to our own
problems, perhaps in your case the doctors. Perhaps it is time to own
your health and:
1. PUSH the Docs for more answers.
2. Stop doing unhealthy things.
3. Research kidney failure - Google
4. Talk to us more.
redjacket wrote:[vbcol=seagreen]
> "Jason Johnson" <jason@nospam.com> wrote in message
> news:jason-1006062034120001@66-52-22-1.lsan.pw-dia.impulse.net...
>
> Thank you for a come back Jason ! That's what I am looking for, a book.
> Its on order !
>
> Another thing I am angry about is the Dr. (I think he still is in school.)
> spends my 30 min punching things into the computer. I don't talk when he
> works.
> I am upset when he answers his beeper every few minutes and makes silly
> return calls.
> I get little or no discussion.
> I ordered a Beeper Jammer that fits in my shirt just for this.
> I was not given pamphlets or seen anyone about a diet like others in here
> have.
> The first Dr, well, all I understood was one out of six words from her. Her
> English
> was terrible.
>
> Nausea is also a long time thing with me from WAG bug bites ? Its the itchy
> part I fear
> and being very tried. Backaches are normal, I had fractures of L-4,L-5
> w/shrapnel in S-1.
> This with the GSW are the reason for pain meds.
>
> I see others have a restless leg problem and if severe take ....*Mirapex.
> Its a wonder drug
> for the leg problem.
>
> Its too bad its a weekend I can only get a blood test from them. My last
> one is a month old.
>
>
>
>
>
>
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
| |
| redjacket 2006-06-11, 4:28 pm |
| There is no smoking.
That's over.
Pain meds are a problem ?
Nothing can be done about that.
<daniel.granot@gmail.com> wrote in message
news:1150029809.925244.296360@u72g2000cwu.googlegroups.com...
>
> If you WANT to make the most of what you have, other than getting more
> out of your Docs, do what YOU can to improve your OWN health and
> lifestyle.
>
> If your health and life is as important to you as you say it is, kill
> the cigarette habit. I know it's easy to say, but you can hardly
> criticise your docs when you continue to partake in such an unhealthy
> habit.
>
> Your kidneys remove the toxins from your blood.
>
> You're introducing toxins through your cigarette habit.
>
> We too often try to find fault in others in relation to our own
> problems, perhaps in your case the doctors. Perhaps it is time to own
> your health and:
> 1. PUSH the Docs for more answers.
> 2. Stop doing unhealthy things.
> 3. Research kidney failure - Google
> 4. Talk to us more.
>
> redjacket wrote:
>
| |
| Jason Johnson 2006-06-11, 4:28 pm |
| In article <NJKdnT6E6bp4VxbZnZ2dneKdnZydnZ2d@adelphia.com>, "redjacket"
<redjacket@yahoo.com> wrote:
"Jason Johnson" <jason@nospam.com> wrote in message
news:jason-1006062034120001@66-52-22-1.lsan.pw-dia.impulse.net...
> In article <zrmdndccI9jIHxbZnZ2dnUVZ_oydnZ2d@adelphia.com>, "redjacket"
> <redjacket@yahoo.com> wrote:
>
> "Jason Johnson" <jason@nospam.com> wrote in message
> news:jason-1006061912570001@66-52-22-1.lsan.pw-dia.impulse.net...
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~[vbcol=seagreen]
>
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>
>
> Thanks I will do that. I had a kidney scan, he said I still have time. I
> don't understand it.
> He said at 10% its dialysis.
> I feel bad now and have all week. I am glad to lose 10 pounds tho.
> I only have some cereal and toast in me all week. I gag all day/
>
>
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>
> SC,
> My prayers are with you. The information in the book should help you. I
> only wish you had read the book about two years ago or when you first
> noticed that you were having kidney problems. You should tell your doctor
> that you gag all day--he may want to start you on dialysis as soon as
> possible. I found this information in the book that I mentioned:
> "...nausia and vomiting are well-known symptoms of severe kidney failure.
> Typically they appear when the blood urea concentration gets quite
> high..."
> If the doctor will not start you on dialysis very soon, tell the doctor to
> treat you for anemia since the doctor that wrote the book says that one
> study indicated that "anemia may be a significant factor in nausea and
> vomiting..."
> Jason
>
Thank you for a come back Jason ! That's what I am looking for, a book.
Its on order !
Another thing I am angry about is the Dr. (I think he still is in school.)
spends my 30 min punching things into the computer. I don't talk when he
works.
I am upset when he answers his beeper every few minutes and makes silly
return calls.
I get little or no discussion.
I ordered a Beeper Jammer that fits in my shirt just for this.
I was not given pamphlets or seen anyone about a diet like others in here
have.
The first Dr, well, all I understood was one out of six words from her. Her
English
was terrible.
Nausea is also a long time thing with me from WAG bug bites ? Its the itchy
part I fear
and being very tried. Backaches are normal, I had fractures of L-4,L-5
w/shrapnel in S-1.
This with the GSW are the reason for pain meds.
I see others have a restless leg problem and if severe take ....*Mirapex.
Its a wonder drug
for the leg problem.
Its too bad its a weekend I can only get a blood test from them. My last
one is a month old.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Redjacket,
I wish that you did not have all of these problems. I also wish that you
had doctor that served your needs. I have heard and read stories for years
related to the lack of proper care related to the V.A. It's my opinion
that we should take excellent are of our veterans since they (and you)
served your country so well. I don't know about WAG bug bites or hardly
anything about back injuries but I know lots of info. about kidney disease
as a result of the reading the book that I mentioned. Of couse, I don't
know as much as a doctor or a kidney specialist. I should note that the
itching problem that you mentioned is probably also being caused by the
kidney disease. I just looked up the word "itching" in the kidney disease
book that I told you about and "itching" is mentioned on 5 different
pages. That means that it's related to kidney disease. You need to call or
see your doctor today or tomorrow. You should also consider reporting to
an emergency room today or tomorrow unless you can hold down some food.
Tell your doctor that you want to either start dialysis today or get
injections of Epogen or Procrit. Those injections (according to the kidney
book) will help treat the anemia which should solve at least some of the
problems that you are now having.
Jason
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
| |
| redjacket 2006-06-11, 4:28 pm |
|
"Jason Johnson" <jason@nospam.com> wrote in message
news:jason-1106060748370001@66-52-22-5.lsan.pw-dia.impulse.net...
> In article <NJKdnT6E6bp4VxbZnZ2dneKdnZydnZ2d@adelphia.com>, "redjacket"
> <redjacket@yahoo.com> wrote:
>
> "Jason Johnson" <jason@nospam.com> wrote in message
> news:jason-1006062034120001@66-52-22-1.lsan.pw-dia.impulse.net...
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>
> Thank you for a come back Jason ! That's what I am looking for, a book.
> Its on order !
>
> Another thing I am angry about is the Dr. (I think he still is in school.)
> spends my 30 min punching things into the computer. I don't talk when he
> works.
> I am upset when he answers his beeper every few minutes and makes silly
> return calls.
> I get little or no discussion.
> I ordered a Beeper Jammer that fits in my shirt just for this.
> I was not given pamphlets or seen anyone about a diet like others in here
> have.
> The first Dr, well, all I understood was one out of six words from her.
> Her
> English
> was terrible.
>
> Nausea is also a long time thing with me from WAG bug bites ? Its the
> itchy
> part I fear
> and being very tried. Backaches are normal, I had fractures of L-4,L-5
> w/shrapnel in S-1.
> This with the GSW are the reason for pain meds.
>
> I see others have a restless leg problem and if severe take ....*Mirapex.
> Its a wonder drug
> for the leg problem.
>
> Its too bad its a weekend I can only get a blood test from them. My last
> one is a month old.
>
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>
> Redjacket,
> I wish that you did not have all of these problems. I also wish that you
> had doctor that served your needs. I have heard and read stories for years
> related to the lack of proper care related to the V.A. It's my opinion
> that we should take excellent are of our veterans since they (and you)
> served your country so well. I don't know about WAG bug bites or hardly
> anything about back injuries but I know lots of info. about kidney disease
> as a result of the reading the book that I mentioned. Of couse, I don't
> know as much as a doctor or a kidney specialist. I should note that the
> itching problem that you mentioned is probably also being caused by the
> kidney disease. I just looked up the word "itching" in the kidney disease
> book that I told you about and "itching" is mentioned on 5 different
> pages. That means that it's related to kidney disease. You need to call or
> see your doctor today or tomorrow. You should also consider reporting to
> an emergency room today or tomorrow unless you can hold down some food.
> Tell your doctor that you want to either start dialysis today or get
> injections of Epogen or Procrit. Those injections (according to the kidney
> book) will help treat the anemia which should solve at least some of the
> problems that you are now having.
> Jason
Lets hope things change now. See, many did try and overlap medical problems,
its called, * Pyramiding.
With the new multiple injuries from IED we are seeing not all are faking
injuries for comp money.
Trust me, there are so many out there faking backs to PTSD it makes us all
sick.
I was in this from 1970. I'm multiple injuries where most vets suffer one
or two injuries I have a host of problems. Its hard for me to separate them
let alone explain to a Dr.
I'll not list muscle, nerve and bone damage here, along with crushed discs.
I'm guessing liquid Advil was the poison that got me. Yet, they continued it
?!
Heavy meds of Gabepenten also are washed out by the kidneys and its not a
proven med yet.
I turned down the narcotics and pain clinic. I felt its the last step and
wanted real treatment first.
No dice here. I still don't like a pain clinic from what I seen of those
with say a rod in the back.
I don't believe narcotics are addicting if needed, I don't care for the lack
of life you end up with
on them. I'm a mover not a sitter. Dope makes me lazy. The Oxycotin/sic/
make me sick anyway.
The weaker Hydrocondone 5's are Ok.
I have allot to sort out, the book and see about getting a shot sounds good
to me.
I ate one hot dog and am not itchy right now. If I scratched I would be, if
you know what I mean.
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
| |
| redjacket 2006-06-11, 4:28 pm |
|
"Jason Johnson" <jason@nospam.com> wrote in message
news:jason-1106060748370001@66-52-22-5.lsan.pw-dia.impulse.net...
> In article <NJKdnT6E6bp4VxbZnZ2dneKdnZydnZ2d@adelphia.com>, "redjacket"
> <redjacket@yahoo.com> wrote:
>
> "Jason Johnson" <jason@nospam.com> wrote in message
> news:jason-1006062034120001@66-52-22-1.lsan.pw-dia.impulse.net...
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>
> Thank you for a come back Jason ! That's what I am looking for, a book.
> Its on order !
>
> Another thing I am angry about is the Dr. (I think he still is in school.)
> spends my 30 min punching things into the computer. I don't talk when he
> works.
> I am upset when he answers his beeper every few minutes and makes silly
> return calls.
> I get little or no discussion.
> I ordered a Beeper Jammer that fits in my shirt just for this.
> I was not given pamphlets or seen anyone about a diet like others in here
> have.
> The first Dr, well, all I understood was one out of six words from her.
> Her
> English
> was terrible.
>
> Nausea is also a long time thing with me from WAG bug bites ? Its the
> itchy
> part I fear
> and being very tried. Backaches are normal, I had fractures of L-4,L-5
> w/shrapnel in S-1.
> This with the GSW are the reason for pain meds.
>
> I see others have a restless leg problem and if severe take ....*Mirapex.
> Its a wonder drug
> for the leg problem.
>
> Its too bad its a weekend I can only get a blood test from them. My last
> one is a month old.
>
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>
> Redjacket,
> I wish that you did not have all of these problems. I also wish that you
> had doctor that served your needs. I have heard and read stories for years
> related to the lack of proper care related to the V.A. It's my opinion
> that we should take excellent are of our veterans since they (and you)
> served your country so well. I don't know about WAG bug bites or hardly
> anything about back injuries but I know lots of info. about kidney disease
> as a result of the reading the book that I mentioned. Of couse, I don't
> know as much as a doctor or a kidney specialist. I should note that the
> itching problem that you mentioned is probably also being caused by the
> kidney disease. I just looked up the word "itching" in the kidney disease
> book that I told you about and "itching" is mentioned on 5 different
> pages. That means that it's related to kidney disease. You need to call or
> see your doctor today or tomorrow. You should also consider reporting to
> an emergency room today or tomorrow unless you can hold down some food.
> Tell your doctor that you want to either start dialysis today or get
> injections of Epogen or Procrit. Those injections (according to the kidney
> book) will help treat the anemia which should solve at least some of the
> problems that you are now having.
> Jason
A few things about vets talk.
SC is service connected meaning the gov must deal with it.
WAG is wild XXX guess.
Many of my people had a large fist sized bug bite them.
Small dung colored wings it can't fly and had red eyes with a
hairy body. Think of a nightmare in the mosquito netting.
30 years later we suffer close to malaria symptoms ?
My face swelled up that first time like a vollyball.
Vomiting, sweating, weak and within 2 days to a week are fine again.
Average sickness is once or twice a year. 5 men in one platoon were bit.
Here is where VA makes a pyramiding mistake as this can also be kidney.
I know kidneys as my blood test shows it is. There is no way to separate the
two
complaints outside a blood test.
Even the Smithsonian has no idea what the nightmare bug is.
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
| |
| Jason Johnson 2006-06-11, 4:28 pm |
| In article <BPidncSJLfV6wBHZnZ2dnUVZ_o6dnZ2d@adelphia.com>, "redjacket"
<redjacket@yahoo.com> wrote:
"Jason Johnson" <jason@nospam.com> wrote in message
news:jason-1106060748370001@66-52-22-5.lsan.pw-dia.impulse.net...
> In article <NJKdnT6E6bp4VxbZnZ2dneKdnZydnZ2d@adelphia.com>, "redjacket"
> <redjacket@yahoo.com> wrote:
>
> "Jason Johnson" <jason@nospam.com> wrote in message
> news:jason-1006062034120001@66-52-22-1.lsan.pw-dia.impulse.net...
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~[vbcol=seagreen]
>
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>
> Thank you for a come back Jason ! That's what I am looking for, a book.
> Its on order !
>
> Another thing I am angry about is the Dr. (I think he still is in school.)
> spends my 30 min punching things into the computer. I don't talk when he
> works.
> I am upset when he answers his beeper every few minutes and makes silly
> return calls.
> I get little or no discussion.
> I ordered a Beeper Jammer that fits in my shirt just for this.
> I was not given pamphlets or seen anyone about a diet like others in here
> have.
> The first Dr, well, all I understood was one out of six words from her.
> Her
> English
> was terrible.
>
> Nausea is also a long time thing with me from WAG bug bites ? Its the
> itchy
> part I fear
> and being very tried. Backaches are normal, I had fractures of L-4,L-5
> w/shrapnel in S-1.
> This with the GSW are the reason for pain meds.
>
> I see others have a restless leg problem and if severe take ....*Mirapex.
> Its a wonder drug
> for the leg problem.
>
> Its too bad its a weekend I can only get a blood test from them. My last
> one is a month old.
>
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>
> Redjacket,
> I wish that you did not have all of these problems. I also wish that you
> had doctor that served your needs. I have heard and read stories for years
> related to the lack of proper care related to the V.A. It's my opinion
> that we should take excellent are of our veterans since they (and you)
> served your country so well. I don't know about WAG bug bites or hardly
> anything about back injuries but I know lots of info. about kidney disease
> as a result of the reading the book that I mentioned. Of couse, I don't
> know as much as a doctor or a kidney specialist. I should note that the
> itching problem that you mentioned is probably also being caused by the
> kidney disease. I just looked up the word "itching" in the kidney disease
> book that I told you about and "itching" is mentioned on 5 different
> pages. That means that it's related to kidney disease. You need to call or
> see your doctor today or tomorrow. You should also consider reporting to
> an emergency room today or tomorrow unless you can hold down some food.
> Tell your doctor that you want to either start dialysis today or get
> injections of Epogen or Procrit. Those injections (according to the kidney
> book) will help treat the anemia which should solve at least some of the
> problems that you are now having.
> Jason
A few things about vets talk.
SC is service connected meaning the gov must deal with it.
WAG is wild XXX guess.
Many of my people had a large fist sized bug bite them.
Small dung colored wings it can't fly and had red eyes with a
hairy body. Think of a nightmare in the mosquito netting.
30 years later we suffer close to malaria symptoms ?
My face swelled up that first time like a vollyball.
Vomiting, sweating, weak and within 2 days to a week are fine again.
Average sickness is once or twice a year. 5 men in one platoon were bit.
Here is where VA makes a pyramiding mistake as this can also be kidney.
I know kidneys as my blood test shows it is. There is no way to separate the
two
complaints outside a blood test.
Even the Smithsonian has no idea what the nightmare bug is.
>
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Redjacket,
You should be able to figure out if you have kidney disease after you read
the book. It would help if you had copies of your blood tests. If you
don't have them, try to get copies of them and keep them with you while
you are reading the book. When you first get the book, read pages 46 to
48. For example, if your
hematocrit is less than 30%--that's a good sign you have severe anemia.
Most people that have a kidney disease have anemia.
If your blood test indicates that your creatinine level is 2 mg per dl or
higher, you probably have chronic kidney failure and require medical care.
There are several more things on blood tests other than hematocrit and
creatinine that are mentioned on pages 46 to 48. Are you a patient in a
VA hospital or getting treatment at a VA clinic?
I will continue to pray for you.
Jason
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
| |
| redjacket 2006-06-11, 9:26 pm |
|
"Jason Johnson" <jason@nospam.com> wrote in message
news:jason-1106061311080001@66-52-22-98.lsan.pw-dia.impulse.net...
> In article <BPidncSJLfV6wBHZnZ2dnUVZ_o6dnZ2d@adelphia.com>, "redjacket"
> <redjacket@yahoo.com> wrote:
>
> "Jason Johnson" <jason@nospam.com> wrote in message
> news:jason-1106060748370001@66-52-22-5.lsan.pw-dia.impulse.net...
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>
> A few things about vets talk.
> SC is service connected meaning the gov must deal with it.
> WAG is wild XXX guess.
> Many of my people had a large fist sized bug bite them.
> Small dung colored wings it can't fly and had red eyes with a
> hairy body. Think of a nightmare in the mosquito netting.
> 30 years later we suffer close to malaria symptoms ?
> My face swelled up that first time like a vollyball.
> Vomiting, sweating, weak and within 2 days to a week are fine again.
> Average sickness is once or twice a year. 5 men in one platoon were bit.
> Here is where VA makes a pyramiding mistake as this can also be kidney.
> I know kidneys as my blood test shows it is. There is no way to separate
> the
> two
> complaints outside a blood test.
>
> Even the Smithsonian has no idea what the nightmare bug is.
>
>
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>
>
> Redjacket,
> You should be able to figure out if you have kidney disease after you read
> the book. It would help if you had copies of your blood tests. If you
> don't have them, try to get copies of them and keep them with you while
> you are reading the book. When you first get the book, read pages 46 to
> 48. For example, if your
> hematocrit is less than 30%--that's a good sign you have severe anemia.
> Most people that have a kidney disease have anemia.
> If your blood test indicates that your creatinine level is 2 mg per dl or
> higher, you probably have chronic kidney failure and require medical care.
>
> There are several more things on blood tests other than hematocrit and
> creatinine that are mentioned on pages 46 to 48. Are you a patient in a
> VA hospital or getting treatment at a VA clinic?
> I will continue to pray for you.
> Jason
Thank you Jason, prayer and good thoughts are the best healers.
I see a Renal Dr. now and then. I do not get many blood tests.
The BUN is up as is the Creatnine.
I called, but the Telecare RN refused me the info. I called last night.
I next see renal on the 25th. I must call for a Primary visit.
I think you know as much as I do now.
I had high BP in 1980 and I bitched until I got meds in 1990 !
For two years I complained of a * funny feeling in my right leg,
they gave me pain meds and valiums.
The blood shut off from the knee down ,I had dry gangrene. A stent was put
in
since the old RPG injurie had caused an 8" blockage 6" compacted.
I felt like I was reborn. WOW !
This is the reason I stay skinny, my legs were broken and I can't carry
weight.
I am about 15 pounds too heavy now, for a person with only one R. thigh
muscle
left its hard to walk. I only have an Intermedius muscle and that is a
pulley action muscle.
The Medial is for stability and the Vastus is for strength. Both are wasted
or atrophied along
with a hole 3" in the R. femur. Skin over bone.
I had a great family Dr. he was a vet and told me never feel like a cripple.
If not for his sayings and thinking..............I would of gave up.
Doing this tho, leads to more work and of course more pain that has to be
delt with.
My refusing narcotics was wrong I see now.
I should of balanced myself better. This leads to needing to sit down at
work, then people
who do not know me think I'm lazy. I refuse to explain to boss's and co
workers the real problem.
Its not smart, but what can you do ?
Later I went into my own business, but the damage was done.
All is from the original injuries, bad planning by me and not well informed
medical people.
So, here I am.
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
| |
| Jason Johnson 2006-06-11, 9:26 pm |
| In article <AoadnXJQfeUGAxHZnZ2dnUVZ_qKdnZ2d@adelphia.com>, "redjacket"
<redjacket@yahoo.com> wrote:
"Jason Johnson" <jason@nospam.com> wrote in message
news:jason-1106061311080001@66-52-22-98.lsan.pw-dia.impulse.net...
> In article <BPidncSJLfV6wBHZnZ2dnUVZ_o6dnZ2d@adelphia.com>, "redjacket"
> <redjacket@yahoo.com> wrote:
>
> "Jason Johnson" <jason@nospam.com> wrote in message
> news:jason-1106060748370001@66-52-22-5.lsan.pw-dia.impulse.net...
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~[vbcol=seagreen]
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~[vbcol=seagreen]
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~[vbcol=seagreen]
>
> A few things about vets talk.
> SC is service connected meaning the gov must deal with it.
> WAG is wild XXX guess.
> Many of my people had a large fist sized bug bite them.
> Small dung colored wings it can't fly and had red eyes with a
> hairy body. Think of a nightmare in the mosquito netting.
> 30 years later we suffer close to malaria symptoms ?
> My face swelled up that first time like a vollyball.
> Vomiting, sweating, weak and within 2 days to a week are fine again.
> Average sickness is once or twice a year. 5 men in one platoon were bit.
> Here is where VA makes a pyramiding mistake as this can also be kidney.
> I know kidneys as my blood test shows it is. There is no way to separate
> the
> two
> complaints outside a blood test.
>
> Even the Smithsonian has no idea what the nightmare bug is.
>
>
>
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>
>
> Redjacket,
> You should be able to figure out if you have kidney disease after you read
> the book. It would help if you had copies of your blood tests. If you
> don't have them, try to get copies of them and keep them with you while
> you are reading the book. When you first get the book, read pages 46 to
> 48. For example, if your
> hematocrit is less than 30%--that's a good sign you have severe anemia.
> Most people that have a kidney disease have anemia.
> If your blood test indicates that your creatinine level is 2 mg per dl or
> higher, you probably have chronic kidney failure and require medical care.
>
> There are several more things on blood tests other than hematocrit and
> creatinine that are mentioned on pages 46 to 48. Are you a patient in a
> VA hospital or getting treatment at a VA clinic?
> I will continue to pray for you.
> Jason
Thank you Jason, prayer and good thoughts are the best healers.
I see a Renal Dr. now and then. I do not get many blood tests.
The BUN is up as is the Creatnine.
I called, but the Telecare RN refused me the info. I called last night.
I next see renal on the 25th. I must call for a Primary visit.
I think you know as much as I do now.
I had high BP in 1980 and I bitched until I got meds in 1990 !
For two years I complained of a * funny feeling in my right leg,
they gave me pain meds and valiums.
The blood shut off from the knee down ,I had dry gangrene. A stent was put
in
since the old RPG injurie had caused an 8" blockage 6" compacted.
I felt like I was reborn. WOW !
This is the reason I stay skinny, my legs were broken and I can't carry
weight.
I am about 15 pounds too heavy now, for a person with only one R. thigh
muscle
left its hard to walk. I only have an Intermedius muscle and that is a
pulley action muscle.
The Medial is for stability and the Vastus is for strength. Both are wasted
or atrophied along
with a hole 3" in the R. femur. Skin over bone.
I had a great family Dr. he was a vet and told me never feel like a cripple.
If not for his sayings and thinking..............I would of gave up.
Doing this tho, leads to more work and of course more pain that has to be
delt with.
My refusing narcotics was wrong I see now.
I should of balanced myself better. This leads to needing to sit down at
work, then people
who do not know me think I'm lazy. I refuse to explain to boss's and co
workers the real problem.
Its not smart, but what can you do ?
Later I went into my own business, but the damage was done.
All is from the original injuries, bad planning by me and not well informed
medical people.
So, here I am.
>
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Redjacket,
It must be difficult to deal with the pain and suffering. Lots of people
don't understand what it is like to be handicapped which is the reason
they have problems understanding why you are sitting down while they are
doing all the work. It's normal for them to think that it's because you
lazy since they don't understand your situation. That's one of the reasons
that handicapped people have a difficult time finding a great paying job.
The managers and owners don't want to have to deal with the problems
related to having handicapped employees.
They want employees that don't have any medical problems.
If I was in your shoes, I would take the pain medication since I hate
pain. However, everyone is different. I had a relative that became
addicted to morphine. He was also a vet. He died at a young age. We don't
know if it was because of an overdose of morphine or as a result of his
war injuries.
You should stop taking a pain related medication if you notice that you
are becoming addicted to it.
Go the ER if you are not able to hold down food for 3 days in a row. They
will know what to do. My prayers are with you.
Jason
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
| |
| redjacket 2006-06-11, 9:26 pm |
|
"Jason Johnson" <jason@nospam.com> wrote in message
news:jason-1106061651110001@66-52-22-20.lsan.pw-dia.impulse.net...
> In article <AoadnXJQfeUGAxHZnZ2dnUVZ_qKdnZ2d@adelphia.com>, "redjacket"
> <redjacket@yahoo.com> wrote:
>
> "Jason Johnson" <jason@nospam.com> wrote in message
> news:jason-1106061311080001@66-52-22-98.lsan.pw-dia.impulse.net...
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>
> Thank you Jason, prayer and good thoughts are the best healers.
>
> I see a Renal Dr. now and then. I do not get many blood tests.
> The BUN is up as is the Creatnine.
> I called, but the Telecare RN refused me the info. I called last night.
> I next see renal on the 25th. I must call for a Primary visit.
> I think you know as much as I do now.
>
> I had high BP in 1980 and I bitched until I got meds in 1990 !
> For two years I complained of a * funny feeling in my right leg,
> they gave me pain meds and valiums.
> The blood shut off from the knee down ,I had dry gangrene. A stent was put
> in
> since the old RPG injurie had caused an 8" blockage 6" compacted.
> I felt like I was reborn. WOW !
>
> This is the reason I stay skinny, my legs were broken and I can't carry
> weight.
> I am about 15 pounds too heavy now, for a person with only one R. thigh
> muscle
> left its hard to walk. I only have an Intermedius muscle and that is a
> pulley action muscle.
> The Medial is for stability and the Vastus is for strength. Both are
> wasted
> or atrophied along
> with a hole 3" in the R. femur. Skin over bone.
>
> I had a great family Dr. he was a vet and told me never feel like a
> cripple.
> If not for his sayings and thinking..............I would of gave up.
> Doing this tho, leads to more work and of course more pain that has to be
> delt with.
> My refusing narcotics was wrong I see now.
> I should of balanced myself better. This leads to needing to sit down at
> work, then people
> who do not know me think I'm lazy. I refuse to explain to boss's and co
> workers the real problem.
> Its not smart, but what can you do ?
> Later I went into my own business, but the damage was done.
> All is from the original injuries, bad planning by me and not well
> informed
> medical people.
> So, here I am.
>
>
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>
>
> Redjacket,
> It must be difficult to deal with the pain and suffering. Lots of people
> don't understand what it is like to be handicapped which is the reason
> they have problems understanding why you are sitting down while they are
> doing all the work. It's normal for them to think that it's because you
> lazy since they don't understand your situation. That's one of the reasons
> that handicapped people have a difficult time finding a great paying job.
> The managers and owners don't want to have to deal with the problems
> related to having handicapped employees.
> They want employees that don't have any medical problems.
> If I was in your shoes, I would take the pain medication since I hate
> pain. However, everyone is different. I had a relative that became
> addicted to morphine. He was also a vet. He died at a young age. We don't
> know if it was because of an overdose of morphine or as a result of his
> war injuries.
> Go the ER if you are not able to hold down food for 3 days in a row. They
> will know what to do. My prayers are with you.
> Jason>
You should stop taking a pain related medication if you notice that you
> are becoming addicted to it.
I am taking this separate.
We with Chronic pain know how the DEA is screwing up lives more than
helping.
Its a long story, but they must be taken control of.
They have arrested VA doctors for giving pain meds out.
Only VA pain clinic Dr. can do so with no legal problems on a regular basis.
Over 30 days.
Your relation, if on morphine died from his injuries not morphine.
Chronic pain has a high point, let it go and you need more meds to come down
to
pain management. You take pain meds even if you feel no need for them.
Perhaps a lower dose will do. The scale is 1 to 10. I've been burned and
only debriding is
a 10. A back is a 9 anything else is 8 or lower. You are at say a six,
take the meds to come down
to a four. If you do not then you may hit an eight and need more meds to
come to four or
you will come down to a six instead of a four.
Think that one over.
I posted before, pain=stress=high blood pressure=organ failure.
The stronger the pain meds the better since less is needed.
[Witness my use of liquid Advil ! I tell you since it worked, I figured I
was ahead of the game.
I screwed up big time eh ? How I hated the taste of that Advil too.]
I know this not the way the DEA wants us to think, but its how pain
management
now works. This is only in chronic pain patients. Its not for a short term
problem.
Break a leg and you get 30 days of meds, maybe a little more if you beg.
I learned this too late as you know. I hope others see this and avoid a
kidney problem.
When the Advil first came out VA had us all on so many it could stop an
elephant from feeling pain.
No one knew what it was going to do to us.
Do you know I still am tempted to take an Advil pill
now and then ? They work is why, in fact just as well as any narcotic
for me.
Our thinking has to change.
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
| |
| Jason Johnson 2006-06-12, 2:31 am |
|
> Redjacket,
> It must be difficult to deal with the pain and suffering. Lots of people
> don't understand what it is like to be handicapped which is the reason
> they have problems understanding why you are sitting down while they are
> doing all the work. It's normal for them to think that it's because you
> lazy since they don't understand your situation. That's one of the reasons
> that handicapped people have a difficult time finding a great paying job.
> The managers and owners don't want to have to deal with the problems
> related to having handicapped employees.
> They want employees that don't have any medical problems.
> If I was in your shoes, I would take the pain medication since I hate
> pain. However, everyone is different. I had a relative that became
> addicted to morphine. He was also a vet. He died at a young age. We don't
> know if it was because of an overdose of morphine or as a result of his
> war injuries.
> Go the ER if you are not able to hold down food for 3 days in a row. They
> will know what to do. My prayers are with you.
> Jason
>You should stop taking a pain related medication if you notice that you
>are becoming addicted to it.
I am taking this separate.
We with Chronic pain know how the DEA is screwing up lives more than
helping.
Its a long story, but they must be taken control of.
They have arrested VA doctors for giving pain meds out.
Only VA pain clinic Dr. can do so with no legal problems on a regular basis.
Over 30 days.
Your relation, if on morphine died from his injuries not morphine.
Chronic pain has a high point, let it go and you need more meds to come down
to
pain management. You take pain meds even if you feel no need for them.
Perhaps a lower dose will do. The scale is 1 to 10. I've been burned and
only debriding is
a 10. A back is a 9 anything else is 8 or lower. You are at say a six,
take the meds to come down
to a four. If you do not then you may hit an eight and need more meds to
come to four or
you will come down to a six instead of a four.
Think that one over.
I posted before, pain=stress=high blood pressure=organ failure.
The stronger the pain meds the better since less is needed.
[Witness my use of liquid Advil ! I tell you since it worked, I figured I
was ahead of the game.
I screwed up big time eh ? How I hated the taste of that Advil too.]
I know this not the way the DEA wants us to think, but its how pain
management
now works. This is only in chronic pain patients. Its not for a short term
problem.
Break a leg and you get 30 days of meds, maybe a little more if you beg.
I learned this too late as you know. I hope others see this and avoid a
kidney problem.
When the Advil first came out VA had us all on so many it could stop an
elephant from feeling pain.
No one knew what it was going to do to us.
Do you know I still am tempted to take an Advil pill
now and then ? They work is why, in fact just as well as any narcotic
for me.
Our thinking has to change.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Redjacket,
My cousin was addicted to morphine for many years. He lived in another
state. We all knew that he was addicted to morphine because he told us
when we visited his home. When he died, we suspected that it was due to a
morphine overdose or as a result of his injuries. Since an autopsy and
blood tests were not done--your guess is as good as my guess as to the
reason he died at a young age. When we viited him (before he died), he did
not appear to have any serious health problems. However, he suffered from
severe depression. That led me to conclude that he may have died of an
overdose. You could say that it was because of the war injuries since
depression is also a war injury so you would be correct if you stated that
he died as a result of a war injury.
It's up to you as to whether or not to take pain medication. If I was in
your shoes, I would take pain medication since I hate pain.
If you do have serious kidney problems, you need to make a decision as to
whether or not to get dialyysis. The book will help you make a decision.
There are hospice centers in every city in case you decide you don't wish
to take dialysis. I have decided NOT to ever take dialysis due to the pain
involved. However, since my neighbor has two young children, he is on
dialysis. He told me that there is high amounts of pain during those three
days per week that he is on dialysis but he has almost no pain during the
other four days of the week. Since I don't have any children, I have
decided not to take dialysis. My GFR scrore is now 75 ml per minute. A
normal man (with no kidney problems) has a GFR score of 100 ml per minute.
Dialysis usually begins when a patient has a GFR score of about 5 ml per
minute. You need to ask your doctor to determine your present GFR score.
Jason
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
| |
| redjacket 2006-06-12, 2:31 am |
|
"Jason Johnson" <jason@nospam.com> wrote in message
news:jason-1106062002050001@66-52-22-20.lsan.pw-dia.impulse.net...
>
I have decided NOT to ever take dialysis due to the pain
> involved. However, since my neighbor has two young children, he is on
> dialysis. He told me that there is high amounts of pain during those three
> days per week that he is on dialysis but he has almost no pain during the
> other four days of the week. Since I don't have any children, I have
> decided not to take dialysis. My GFR scrore is now 75 ml per minute. A
> normal man (with no kidney problems) has a GFR score of 100 ml per minute.
> Dialysis usually begins when a patient has a GFR score of about 5 ml per
> minute. You need to ask your doctor to determine your present GFR score.
> Jason
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
This is new ?
How does one avoid dialysis ? Diet ?
I don't know much about what you are saying, but I'm learning.
Jason, pain comes back at you and could hurt the kidneys more
by causing stress. Be sure on this.
Yes, bury your relation with honor. Allow him a death from combat.
I say that as a fair statement. Pain leads to depression even if I deny it.
And do I ever ! I think it keeps my spirits up.
My last visit was over a month ago, he said I have 1 year or more before
dialysis.In a 30 min visit I only was able to ask two questions.
I asked about Robaxan and OTC sleeping pills. He nodded Ok.
| |
| Jason Johnson 2006-06-12, 4:28 pm |
| In article <EKKdnRVvfsOrfxHZnZ2dnUVZ_vGdnZ2d@adelphia.com>, "redjacket"
<redjacket@yahoo.com> wrote:
"Jason Johnson" <jason@nospam.com> wrote in message
news:jason-1106062002050001@66-52-22-20.lsan.pw-dia.impulse.net...
>
I have decided NOT to ever take dialysis due to the pain
> involved. However, since my neighbor has two young children, he is on
> dialysis. He told me that there is high amounts of pain during those three
> days per week that he is on dialysis but he has almost no pain during the
> other four days of the week. Since I don't have any children, I have
> decided not to take dialysis. My GFR scrore is now 75 ml per minute. A
> normal man (with no kidney problems) has a GFR score of 100 ml per minute.
> Dialysis usually begins when a patient has a GFR score of about 5 ml per
> minute. You need to ask your doctor to determine your present GFR score.
> Jason
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
This is new ?
How does one avoid dialysis ? Diet ?
I don't know much about what you are saying, but I'm learning.
Jason, pain comes back at you and could hurt the kidneys more
by causing stress. Be sure on this.
Yes, bury your relation with honor. Allow him a death from combat.
I say that as a fair statement. Pain leads to depression even if I deny it.
And do I ever ! I think it keeps my spirits up.
My last visit was over a month ago, he said I have 1 year or more before
dialysis.In a 30 min visit I only was able to ask two questions.
I asked about Robaxan and OTC sleeping pills. He nodded Ok.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Redjacket,
The information in the book that I told you about should help you to
avoid dialysis. It mainly involves diet and taking supplements.
Before I read the book, I was vomiting about twice a week. I have
only vomited one time in the past year as a result of changing my
diet.
Yes, we buried our relative with honor.
Various names have been used over the years to describe the depression
and mental problems that some veterans that were involved in war have
once they return home. These are some examples:
Battle Fatique; Delayed Stress Syndrome;
What's the current name for it?
You probably already know that many veterans self medicate by becoming addicted
to alcohol, cocaine and heroin. I once saw some statistics indicating that
many veterans end up in jail or prison. The reason is usually related to
taking drugs (self medication) or selling drugs to earn money to buy drugs
and food for themself. Also: robbing stores or people in order to earn
money to buy drugs and
food. It's my opinion that the V.A. should provide pain medication so that
veterans will not need to self medicate. They should also provide better
medical and pschological treatment. The V.A. is dropping the ball.
You need to ask your doctor to tell you your GFR score. After you find
out, post it in this newsgroup. That will help us determine the condition
of your kidneys.
I continue to pray for you.
Jason
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
| |
|
| jason@nospam.com (Jason Johnson) wrote in
news:jason-1206060934420001@66-52-22-83.lsan.pw-dia.impulse.net:
> In article <EKKdnRVvfsOrfxHZnZ2dnUVZ_vGdnZ2d@adelphia.com>,
> "redjacket" <redjacket@yahoo.com> wrote:
>
> "Jason Johnson" <jason@nospam.com> wrote in message
> news:jason-1106062002050001@66-52-22-20.lsan.pw-dia.impulse.net...
> I have decided NOT to ever take dialysis due to the pain
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~[vbcol=seagreen]
>
> This is new ?
> How does one avoid dialysis ? Diet ?
>
> I don't know much about what you are saying, but I'm learning.
>
> Jason, pain comes back at you and could hurt the kidneys more
> by causing stress. Be sure on this.
>
> Yes, bury your relation with honor. Allow him a death from combat.
> I say that as a fair statement. Pain leads to depression even if I
> deny it. And do I ever ! I think it keeps my spirits up.
>
> My last visit was over a month ago, he said I have 1 year or more
> before dialysis.In a 30 min visit I only was able to ask two
> questions. I asked about Robaxan and OTC sleeping pills. He nodded
> Ok.
>
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
~
> ~~~~
>
> Redjacket,
> The information in the book that I told you about should help you to
> avoid dialysis. It mainly involves diet and taking supplements.
> Before I read the book, I was vomiting about twice a week. I have
> only vomited one time in the past year as a result of changing my
> diet.
>
> Yes, we buried our relative with honor.
>
> Various names have been used over the years to describe the depression
> and mental problems that some veterans that were involved in war have
> once they return home. These are some examples:
> Battle Fatique; Delayed Stress Syndrome;
> What's the current name for it?
>
> You probably already know that many veterans self medicate by becoming
> addicted to alcohol, cocaine and heroin. I once saw some statistics
> indicating that many veterans end up in jail or prison. The reason is
> usually related to taking drugs (self medication) or selling drugs to
> earn money to buy drugs and food for themself. Also: robbing stores or
> people in order to earn money to buy drugs and
> food. It's my opinion that the V.A. should provide pain medication so
> that veterans will not need to self medicate. They should also provide
> better medical and pschological treatment. The V.A. is dropping the
> ball.
>
> You need to ask your doctor to tell you your GFR score. After you find
> out, post it in this newsgroup. That will help us determine the
> condition of your kidneys.
>
> I continue to pray for you.
>
> Jason
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
~
> ~~~
>
What is all this pain you are talking about from dialysis? There is a
little when they stick the needles that lasts for a couple of seconds.
The only other pain you might feel is if you happen to cramp during the
treatment. If a patient has pain for the entire treatment, the needle
may be sticking in the wall of the fistula. Any other pain is not from
the treatment. I am not a doctor, nor do I claim to be. I have been on
dialysis or transplant, mostly dialysis, for 19 years. I am also
considered to be a patient expert on dialysis, as I have addressed the
professionals on a number of occasions, speaking on the patient
experience on dialysis, the rehabilitation process(U.S. Only), Pre-ESRD
management and have written in professional magazines on Nocturnal
Dialysis, my current treatment modality. I am currently working on
another article on the dialysis diet education.
Years ago, this group used to be very active. Then there appeared to be
a couple of posters who decided that they could not be happy to be alive
no matter what was available to them to treat their disease. They then
proceeded to take it out on every other poster in the group, basically
calling everybody a liar, and finally resorting to calling other posters
names, even posting false information.
This group has been and can be again a very good resource for new and
experienced patients. It would be nice if it began to function as a
world wide support group for patients, passing on good information and
generally helping to bring new patients up to speed on what they need to
know.
From time to time, I will respond to querries when I think the need
arises.
Dave
| |
|
| ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>
> Redjacket,
> I wish that you did not have all of these problems. I also wish that
> you had doctor that served your needs. I have heard and read stories
> for years related to the lack of proper care related to the V.A. It's
> my opinion that we should take excellent are of our veterans since
> they (and you) served your country so well. I don't know about WAG
> bug bites or hardly anything about back injuries but I know lots of
> info. about kidney disease as a result of the reading the book that I
> mentioned. Of couse, I don't know as much as a doctor or a kidney
> specialist. I should note that the itching problem that you mentioned
> is probably also being caused by the kidney disease. I just looked up
> the word "itching" in the kidney disease book that I told you about
> and "itching" is mentioned on 5 different pages. That means that it's
> related to kidney disease. You need to call or see your doctor today
> or tomorrow. You should also consider reporting to an emergency room
> today or tomorrow unless you can hold down some food. Tell your
> doctor that you want to either start dialysis today or get injections
> of Epogen or Procrit. Those injections (according to the kidney book)
> will help treat the anemia which should solve at least some of the
> problems that you are now having.
> Jason
Jason...You are diagnosing people and giving them medical advice again (and
you said you were going to stop that in the sci.med group - remember).
Shame on you Jason. I can truly see that you *do* have a problem. I wish
Howard McCollister (who is a doctor in the sci.med group - for all who don't
know him) could read all the ill advice you are spewing out in here. You
have no right to make statements like "Tell your doctor that you want to
either start dialysis today or get injections of Epogen or Procrit", or
"tell the doctor to treat you for anemia" .
You need help Jason. Reading that damn kidney book does not give you the
right to make all the ill advised comments you do. And you have started to
cover your XXX by saying you are not a doctor, and recommend that people go
to see a doctor, but then you still go ahead with the damn ill advice you
give anyway.
Good bye Jason...Pete
| |
| Jason Johnson 2006-06-12, 4:28 pm |
| In article <Xns97E085DA45F2ASomebobysomeplacecom@66.150.105.230>, Dave
<Someboby@someplace.com> wrote:
jason@nospam.com (Jason Johnson) wrote in
news:jason-1206060934420001@66-52-22-83.lsan.pw-dia.impulse.net:
> In article <EKKdnRVvfsOrfxHZnZ2dnUVZ_vGdnZ2d@adelphia.com>,
> "redjacket" <redjacket@yahoo.com> wrote:
>
> "Jason Johnson" <jason@nospam.com> wrote in message
> news:jason-1106062002050001@66-52-22-20.lsan.pw-dia.impulse.net...
> I have decided NOT to ever take dialysis due to the pain
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~[vbcol=seagreen]
>
> This is new ?
> How does one avoid dialysis ? Diet ?
>
> I don't know much about what you are saying, but I'm learning.
>
> Jason, pain comes back at you and could hurt the kidneys more
> by causing stress. Be sure on this.
>
> Yes, bury your relation with honor. Allow him a death from combat.
> I say that as a fair statement. Pain leads to depression even if I
> deny it. And do I ever ! I think it keeps my spirits up.
>
> My last visit was over a month ago, he said I have 1 year or more
> before dialysis.In a 30 min visit I only was able to ask two
> questions. I asked about Robaxan and OTC sleeping pills. He nodded
> Ok.
>
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
~
> ~~~~
>
> Redjacket,
> The information in the book that I told you about should help you to
> avoid dialysis. It mainly involves diet and taking supplements.
> Before I read the book, I was vomiting about twice a week. I have
> only vomited one time in the past year as a result of changing my
> diet.
>
> Yes, we buried our relative with honor.
>
> Various names have been used over the years to describe the depression
> and mental problems that some veterans that were involved in war have
> once they return home. These are some examples:
> Battle Fatique; Delayed Stress Syndrome;
> What's the current name for it?
>
> You probably already know that many veterans self medicate by becoming
> addicted to alcohol, cocaine and heroin. I once saw some statistics
> indicating that many veterans end up in jail or prison. The reason is
> usually related to taking drugs (self medication) or selling drugs to
> earn money to buy drugs and food for themself. Also: robbing stores or
> people in order to earn money to buy drugs and
> food. It's my opinion that the V.A. should provide pain medication so
> that veterans will not need to self medicate. They should also provide
> better medical and pschological treatment. The V.A. is dropping the
> ball.
>
> You need to ask your doctor to tell you your GFR score. After you find
> out, post it in this newsgroup. That will help us determine the
> condition of your kidneys.
>
> I continue to pray for you.
>
> Jason
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
~
> ~~~
>
What is all this pain you are talking about from dialysis? There is a
little when they stick the needles that lasts for a couple of seconds.
The only other pain you might feel is if you happen to cramp during the
treatment. If a patient has pain for the entire treatment, the needle
may be sticking in the wall of the fistula. Any other pain is not from
the treatment. I am not a doctor, nor do I claim to be. I have been on
dialysis or transplant, mostly dialysis, for 19 years. I am also
considered to be a patient expert on dialysis, as I have addressed the
professionals on a number of occasions, speaking on the patient
experience on dialysis, the rehabilitation process(U.S. Only), Pre-ESRD
management and have written in professional magazines on Nocturnal
Dialysis, my current treatment modality. I am currently working on
another article on the dialysis diet education.
Years ago, this group used to be very active. Then there appeared to be
a couple of posters who decided that they could not be happy to be alive
no matter what was available to them to treat their disease. They then
proceeded to take it out on every other poster in the group, basically
calling everybody a liar, and finally resorting to calling other posters
names, even posting false information.
This group has been and can be again a very good resource for new and
experienced patients. It would be nice if it began to function as a
world wide support group for patients, passing on good information and
generally helping to bring new patients up to speed on what they need to
know.
From time to time, I will respond to querries when I think the need
arises.
Dave
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Dave,
Everyone is different. I read some stories about people that have
been on dialysis for many years. Some of those people said that
there was almost no pain and it made them feel better. Others said
they experieced severe pain on those days that they had dialysis.
If I experiece severe pain on those days that I have dialysis, I
have decided not to continue it. That is my choice. I am trying to do
everything that I can do to avoid dialysis. I read Dr. Walser's
book and I am taking his advice in relation to diet and supplements.
According to Dr. Walser, "One in five patients withdraws from dialysis
before death". My question for you is--if dialysis is so great why
does one person in five withdraw from it despite the fact that the
patient knows that it means they will die?
My neighbor has been on dialysis for the past 20 years. He told me
that he feels like a sponge that has been wroung (dried) out after
dialysis. He also said those three days a week that he has to have
dialysis--that he feels terrible pains for most of that day.
Perhaps I would have a different point of view if it not for
the information that I mentioned in this post.
Jason
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
| |
| redjacket 2006-06-12, 4:28 pm |
|
"Pete" <pete@nospam.net> wrote in message
news:e6k98q076g@enews3.newsguy.com...
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>
> Jason...You are diagnosing people and giving them medical advice again
> (and you said you were going to stop that in the sci.med group -
> remember). Shame on you Jason. I can truly see that you *do* have a
> problem. I wish Howard McCollister (who is a doctor in the sci.med
> group - for all who don't know him) could read all the ill advice you are
> spewing out in here. You have no right to make statements like "Tell your
> doctor that you want to either start dialysis today or get injections of
> Epogen or Procrit", or "tell the doctor to treat you for anemia" .
>
> You need help Jason. Reading that damn kidney book does not give you the
> right to make all the ill advised comments you do. And you have started
> to cover your XXX by saying you are not a doctor, and recommend that
> people go to see a doctor, but then you still go ahead with the damn ill
> advice you give anyway.
>
> Good bye Jason...Pete
>
No harm is done. Jason means well and I understand after all I'm a long time
patient.
Not in kidneys, but just about everything else. He knows that and trusts me
with his information.
He helped point me in directions I would not of known.
I know that to understand what a person is saying over the Usenet is not
exactly
what a person means.
I take this as advice, not medical treatment or diagnosis.
I thank you all for the information and weigh it with my past experience.
I hope all consider my info on pain managment the same way. Its my feelings
and others,
many will disagree tho and again I understand.
| |
| Jason Johnson 2006-06-12, 4:28 pm |
| In article <e6k98q076g@enews3.newsguy.com>, "Pete" <pete@nospam.net> wrote:
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>
> Redjacket,
> I wish that you did not have all of these problems. I also wish that
> you had doctor that served your needs. I have heard and read stories
> for years related to the lack of proper care related to the V.A. It's
> my opinion that we should take excellent are of our veterans since
> they (and you) served your country so well. I don't know about WAG
> bug bites or hardly anything about back injuries but I know lots of
> info. about kidney disease as a result of the reading the book that I
> mentioned. Of couse, I don't know as much as a doctor or a kidney
> specialist. I should note that the itching problem that you mentioned
> is probably also being caused by the kidney disease. I just looked up
> the word "itching" in the kidney disease book that I told you about
> and "itching" is mentioned on 5 different pages. That means that it's
> related to kidney disease. You need to call or see your doctor today
> or tomorrow. You should also consider reporting to an emergency room
> today or tomorrow unless you can hold down some food. Tell your
> doctor that you want to either start dialysis today or get injections
> of Epogen or Procrit. Those injections (according to the kidney book)
> will help treat the anemia which should solve at least some of the
> problems that you are now having.
> Jason
Jason...You are diagnosing people and giving them medical advice again (and
you said you were going to stop that in the sci.med group - remember).
Shame on you Jason. I can truly see that you *do* have a problem. I wish
Howard McCollister (who is a doctor in the sci.med group - for all who don't
know him) could read all the ill advice you are spewing out in here. You
have no right to make statements like "Tell your doctor that you want to
either start dialysis today or get injections of Epogen or Procrit", or
"tell the doctor to treat you for anemia" .
You need help Jason. Reading that damn kidney book does not give you the
right to make all the ill advised comments you do. And you have started to
cover your XXX by saying you are not a doctor, and recommend that people go
to see a doctor, but then you still go ahead with the damn ill advice you
give anyway.
Good bye Jason...Pete
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Pete,
I doubt that you even read the posts of redjacket. I noticed that you
failed to provide any advice for redjacket.
I noticed that you clipped the posts of redjacket so as to make your
points appear to have more meaning.
I made it clear to redjacket that I was not a doctor or expert related to
kidney disease.
Jason
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
| |
| Jason Johnson 2006-06-12, 4:28 pm |
| In article <zf2dnXGMWM5JLxDZnZ2dnUVZ_tWdnZ2d@adelphia.com>, "redjacket"
<redjacket@yahoo.com> wrote:
"Pete" <pete@nospam.net> wrote in message
news:e6k98q076g@enews3.newsguy.com...
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>
> Jason...You are diagnosing people and giving them medical advice again
> (and you said you were going to stop that in the sci.med group -
> remember). Shame on you Jason. I can truly see that you *do* have a
> problem. I wish Howard McCollister (who is a doctor in the sci.med
> group - for all who don't know him) could read all the ill advice you are
> spewing out in here. You have no right to make statements like "Tell your
> doctor that you want to either start dialysis today or get injections of
> Epogen or Procrit", or "tell the doctor to treat you for anemia" .
>
> You need help Jason. Reading that damn kidney book does not give you the
> right to make all the ill advised comments you do. And you have started
> to cover your XXX by saying you are not a doctor, and recommend that
> people go to see a doctor, but then you still go ahead with the damn ill
> advice you give anyway.
>
> Good bye Jason...Pete
>
No harm is done. Jason means well and I understand after all I'm a long time
patient.
Not in kidneys, but just about everything else. He knows that and trusts me
with his information.
He helped point me in directions I would not of known.
I know that to understand what a person is saying over the Usenet is not
exactly
what a person means.
I take this as advice, not medical treatment or diagnosis.
I thank you all for the information and weigh it with my past experience.
I hope all consider my info on pain managment the same way. Its my feelings
and others,
many will disagree tho and again I understand.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Redjacket,
Thanks for your post. You are more wise than Pete. You realized that
I was not a doctor and was only giving my opinions. I am on your side.
I know from your posts how difficult it is to be in your situation.
Many people in medical newsgroups seem to think that only doctors and
medical experts should be allowed to provide advice. I disagree. I see
nothing wrong with various people sharing their opinions. It's up to
you to decide whether or not to follow my advice or your doctor's advice.
I have full confidence that you will ignore any advice that you disagree
with. You are able to make your own decisions. Did you notice that the
other posters did not provide any advice to you related to your concerns?
Jason
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
| |
|
| Jason Johnson wrote:
> In article <e6k98q076g@enews3.newsguy.com>, "Pete" <pete@nospam.net>
> wrote:
>
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>
> Jason...You are diagnosing people and giving them medical advice
> again (and you said you were going to stop that in the sci.med group
> - remember). Shame on you Jason. I can truly see that you *do* have
> a problem. I wish Howard McCollister (who is a doctor in the sci.med
> group - for all who don't know him) could read all the ill advice you
> are spewing out in here. You have no right to make statements like
> "Tell your doctor that you want to either start dialysis today or get
> injections of Epogen or Procrit", or "tell the doctor to treat you
> for anemia" .
>
> You need help Jason. Reading that damn kidney book does not give you
> the right to make all the ill advised comments you do. And you have
> started to cover your XXX by saying you are not a doctor, and
> recommend that people go to see a doctor, but then you still go ahead
> with the damn ill advice you give anyway.
>
> Good bye Jason...Pete
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>
>
> Pete,
> I doubt that you even read the posts of redjacket. I noticed that you
> failed to provide any advice for redjacket.
> I noticed that you clipped the posts of redjacket so as to make your
> points appear to have more meaning.
> I made it clear to redjacket that I was not a doctor or expert
> related to kidney disease.
> Jason
> ~~
Jason...you are a sick person and need help. You sound like a tape
recorder. You have said (what you just wrote immediately above this) many
times in other ng's. It is your standard canned rebuttal to everyone who
has ever told you that you don't know what the hell you are doing. You need
to stop Jason, before someone takes your ill advice and hurts themselves.
Like Doctor McCollister told you, you need to stop playing doctor, and get
another hobby. How about it Jason, are you going to stop this sick fetish
of yours or not.
| |
| redjacket 2006-06-12, 4:28 pm |
|
"Jason Johnson" <jason@nospam.com> wrote in message
news:jason-1206061148170001@66-52-22-68.lsan.pw-dia.impulse.net...
> In article <zf2dnXGMWM5JLxDZnZ2dnUVZ_tWdnZ2d@adelphia.com>, "redjacket"
> <redjacket@yahoo.com> wrote:
>
> "Pete" <pete@nospam.net> wrote in message
> news:e6k98q076g@enews3.newsguy.com...
> No harm is done. Jason means well and I understand after all I'm a long
> time
> patient.
> Not in kidneys, but just about everything else. He knows that and trusts
> me
> with his information.
> He helped point me in directions I would not of known.
> I know that to understand what a person is saying over the Usenet is not
> exactly
> what a person means.
> I take this as advice, not medical treatment or diagnosis.
> I thank you all for the information and weigh it with my past experience.
> I hope all consider my info on pain managment the same way. Its my
> feelings
> and others,
> many will disagree tho and again I understand.
>
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>
> Redjacket,
> Thanks for your post. You are more wise than Pete. You realized that
> I was not a doctor and was only giving my opinions. I am on your side.
> I know from your posts how difficult it is to be in your situation.
> Many people in medical newsgroups seem to think that only doctors and
> medical experts should be allowed to provide advice. I disagree. I see
> nothing wrong with various people sharing their opinions. It's up to
> you to decide whether or not to follow my advice or your doctor's advice.
> I have full confidence that you will ignore any advice that you disagree
> with. You are able to make your own decisions. Did you notice that the
> other posters did not provide any advice to you related to your concerns?
> Jason
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
After my problem with a PRN with 18 years of experience and my
complaints to her of the * funny feelings in my R. Leg only to be diagnosed
as a
neuropathy problem. Pain and muscle relaxers for treatment with
a, ' learn to live with it' attitude gives me rare insight since all along I
needed
a Stent.
Nah, I know how to be carful now. You sometimes must avoid the best advice
from even the pros. The PRN I had was highly thought of as both a Primary
providor
and in Pain Managment. She was wrong in a big painful way for me.
Dry gangrene is very painful. It was in the tip of # 4 toe.
I was only a little angry, this happens and you can't go back. I talked to
her, I did
not run to any lawyer over it. Its not in me to do that.
Well, Monday is shot, Tuesday I can talk to the Doc and see what they can
do.
I miss my energy. I own a mint 1951 Indian Black Hawk Chief 80 .
I have not ridden that bike all year since I feel too weak.
| |
| Jason Johnson 2006-06-12, 4:28 pm |
| In article <e6kd4l01lcg@enews2.newsguy.com>, "Pete" <pete@nospam.net> wrote:
Jason Johnson wrote:
> In article <e6k98q076g@enews3.newsguy.com>, "Pete" <pete@nospam.net>
> wrote:
>
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>
> Jason...You are diagnosing people and giving them medical advice
> again (and you said you were going to stop that in the sci.med group
> - remember). Shame on you Jason. I can truly see that you *do* have
> a problem. I wish Howard McCollister (who is a doctor in the sci.med
> group - for all who don't know him) could read all the ill advice you
> are spewing out in here. You have no right to make statements like
> "Tell your doctor that you want to either start dialysis today or get
> injections of Epogen or Procrit", or "tell the doctor to treat you
> for anemia" .
>
> You need help Jason. Reading that damn kidney book does not give you
> the right to make all the ill advised comments you do. And you have
> started to cover your XXX by saying you are not a doctor, and
> recommend that people go to see a doctor, but then you still go ahead
> with the damn ill advice you give anyway.
>
> Good bye Jason...Pete
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>
>
> Pete,
> I doubt that you even read the posts of redjacket. I noticed that you
> failed to provide any advice for redjacket.
> I noticed that you clipped the posts of redjacket so as to make your
> points appear to have more meaning.
> I made it clear to redjacket that I was not a doctor or expert
> related to kidney disease.
> Jason
> ~~
Jason...you are a sick person and need help. You sound like a tape
recorder. You have said (what you just wrote immediately above this) many
times in other ng's. It is your standard canned rebuttal to everyone who
has ever told you that you don't know what the hell you are doing. You need
to stop Jason, before someone takes your ill advice and hurts themselves.
Like Doctor McCollister told you, you need to stop playing doctor, and get
another hobby. How about it Jason, are you going to stop this sick fetish
of yours or not.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Pete,
If I posted as "Doctor Jason" or "Doc Jason" or told people in my posts
that I was a doctor--I would STOP doing it . I don't do that. I let people
know that I am not a doctor in my posts. I refer people to their doctors.
You know that doctors will not precribe a medication based upon a post
that I wrote. Doctors make their own decisions in relation to how they
treat their patients. My own doctor would not refer me to a kidney
specialist even when I showed him various blood tests indicating that my
RBC, HCT and HGB levels have been trending in a downward direction for the
past 10 years. Do you think that my doctor would prescribe a medication or
refer me based upon a newsgroup post that I downloaded? I see nothing
wrong with various posters posting their opinions even if they are not
doctors or medical experts. Redjacket made it clear in his post that he
knew that I was not a doctor and that he appreciated my help. I noticed
that you clipped his post to make your points appear to have more meaning.
I also noticed in the other newsgroup that you mentioned that neither
yourself or Howard have posted any messages related to bad advice that
people have posted in that newsgroup in the past 5 days. It appears that
Howard and yourself only attack certain people such as myself. I do
believe that you are now playing the role of a netcop--how sad. Consider
helping people in your posts instead of attacking people that do provide
help. I feel sorry for you.
Jason
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
| |
| Jason Johnson 2006-06-12, 4:28 pm |
| In article <kJCdnUwn34qnXRDZnZ2dnUVZ_ridnZ2d@adelphia.com>, "redjacket"
<redjacket@yahoo.com> wrote:
"Jason Johnson" <jason@nospam.com> wrote in message
news:jason-1206061148170001@66-52-22-68.lsan.pw-dia.impulse.net...
> In article <zf2dnXGMWM5JLxDZnZ2dnUVZ_tWdnZ2d@adelphia.com>, "redjacket"
> <redjacket@yahoo.com> wrote:
>
> "Pete" <pete@nospam.net> wrote in message
> news:e6k98q076g@enews3.newsguy.com...
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~[vbcol=seagreen]
> No harm is done. Jason means well and I understand after all I'm a long
> time
> patient.
> Not in kidneys, but just about everything else. He knows that and trusts
> me
> with his information.
> He helped point me in directions I would not of known.
> I know that to understand what a person is saying over the Usenet is not
> exactly
> what a person means.
> I take this as advice, not medical treatment or diagnosis.
> I thank you all for the information and weigh it with my past experience.
> I hope all consider my info on pain managment the same way. Its my
> feelings
> and others,
> many will disagree tho and again I understand.
>
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>
> Redjacket,
> Thanks for your post. You are more wise than Pete. You realized that
> I was not a doctor and was only giving my opinions. I am on your side.
> I know from your posts how difficult it is to be in your situation.
> Many people in medical newsgroups seem to think that only doctors and
> medical experts should be allowed to provide advice. I disagree. I see
> nothing wrong with various people sharing their opinions. It's up to
> you to decide whether or not to follow my advice or your doctor's advice.
> I have full confidence that you will ignore any advice that you disagree
> with. You are able to make your own decisions. Did you notice that the
> other posters did not provide any advice to you related to your concerns?
> Jason
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
After my problem with a PRN with 18 years of experience and my
complaints to her of the * funny feelings in my R. Leg only to be diagnosed
as a
neuropathy problem. Pain and muscle relaxers for treatment with
a, ' learn to live with it' attitude gives me rare insight since all along I
needed
a Stent.
Nah, I know how to be carful now. You sometimes must avoid the best advice
from even the pros. The PRN I had was highly thought of as both a Primary
providor
and in Pain Managment. She was wrong in a big painful way for me.
Dry gangrene is very painful. It was in the tip of # 4 toe.
I was only a little angry, this happens and you can't go back. I talked to
her, I did
not run to any lawyer over it. Its not in me to do that.
Well, Monday is shot, Tuesday I can talk to the Doc and see what they can
do.
I miss my energy. I own a mint 1951 Indian Black Hawk Chief 80 .
I have not ridden that bike all year since I feel too weak.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Redjacket,
Ignore the other posters that want to engage in a battle with me. I have
had to deal with such people (I call them "netcops") for the past two
years. I feel sorry for them.
When I was a teenager I had a small Honda motorcycle and loved it. You
must miss riding your motorcycle.
I was aware that you know when to ignore bad advice --even from doctors.
I also ignore bad advice--even from doctors. When I was younger, I viewed
Doctors as special people that never provided bad advice and never made
mistakes or errors. I now realize that doctors make mistakes on a regular
basis. I subscribe to several medical newsgroups and have read lots of
posts related to bad doctors. Lots of their patients of bad doctors have
told their stories in newsgroup posts. I no longer have full trust in
doctors. It appears that you have come to the same conclusion.
When you see the doctor, ask the doctor to determine your present GFR
score--that should help you figure out the present condition of your
kidneys.
Also, prepare a list of questions for the doctor. I do that since I
learned from experience that I always forget certain questions if I rely
only on my memory to remember the questions. I've enjoyed responding to
your posts but did not enjoy dealing with the netcop. I don't like cops.
Jason
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
| |
|
| jason@nospam.com (Jason Johnson) wrote in news:jason-1206061127480001@
66-52-22-68.lsan.pw-dia.impulse.net:
> In article <Xns97E085DA45F2ASomebobysomeplacecom@66.150.105.230>, Dave
> <Someboby@someplace.com> wrote:
>
> jason@nospam.com (Jason Johnson) wrote in
> news:jason-1206060934420001@66-52-22-83.lsan.pw-dia.impulse.net:
>
is[vbcol=seagreen]
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~[vbcol=seagreen]
> ~
depression[vbcol=seagreen]
have[vbcol=seagreen]
becoming[vbcol=seagreen]
is[vbcol=seagreen]
to[vbcol=seagreen]
or[vbcol=seagreen]
so[vbcol=seagreen]
provide[vbcol=seagreen]
find[vbcol=seagreen]
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~[vbcol=seagreen]
> ~
>
> What is all this pain you are talking about from dialysis? There is
a
> little when they stick the needles that lasts for a couple of
seconds.
> The only other pain you might feel is if you happen to cramp during
the
> treatment. If a patient has pain for the entire treatment, the
needle
> may be sticking in the wall of the fistula. Any other pain is not
from
> the treatment. I am not a doctor, nor do I claim to be. I have been
on
> dialysis or transplant, mostly dialysis, for 19 years. I am also
> considered to be a patient expert on dialysis, as I have addressed
the
> professionals on a number of occasions, speaking on the patient
> experience on dialysis, the rehabilitation process(U.S. Only), Pre-
ESRD
> management and have written in professional magazines on Nocturnal
> Dialysis, my current treatment modality. I am currently working on
> another article on the dialysis diet education.
>
> Years ago, this group used to be very active. Then there appeared to
be
> a couple of posters who decided that they could not be happy to be
alive
> no matter what was available to them to treat their disease. They
then
> proceeded to take it out on every other poster in the group,
basically
> calling everybody a liar, and finally resorting to calling other
posters
> names, even posting false information.
>
> This group has been and can be again a very good resource for new and
> experienced patients. It would be nice if it began to function as a
> world wide support group for patients, passing on good information
and
> generally helping to bring new patients up to speed on what they need
to
> know.
>
> From time to time, I will respond to querries when I think the need
> arises.
>
> Dave
>
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>
> Dave,
> Everyone is different. I read some stories about people that have
> been on dialysis for many years. Some of those people said that
> there was almost no pain and it made them feel better. Others said
> they experieced severe pain on those days that they had dialysis.
> If I experiece severe pain on those days that I have dialysis, I
> have decided not to continue it. That is my choice. I am trying to do
> everything that I can do to avoid dialysis. I read Dr. Walser's
> book and I am taking his advice in relation to diet and supplements.
> According to Dr. Walser, "One in five patients withdraws from dialysis
> before death". My question for you is--if dialysis is so great why
> does one person in five withdraw from it despite the fact that the
> patient knows that it means they will die?
> My neighbor has been on dialysis for the past 20 years. He told me
> that he feels like a sponge that has been wroung (dried) out after
> dialysis. He also said those three days a week that he has to have
> dialysis--that he feels terrible pains for most of that day.
> Perhaps I would have a different point of view if it not for
> the information that I mentioned in this post.
> Jason
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Jason,
I fully believe every patient has to make the decision to continue or
not for himself. What I have observed over the years is that every
patient has a period of depression, whether mild or severe, in the
beginning of treatment for Kidney disease. This makes sense, as losing
ones kidney function can be equated to losing a family member. The
patients who overcome the depression are the ones that do the best. If
you have the attitude that 'This is the pits, I'll never feel well
again', then you won't. I did very poorly in the beginning. When I
finally came out of that feeling of total uselessness, my health
improved dramatically. Those that never get over this don't survive.
Another thing people have a problem with is the tendacy of Humans,
Americans in particular, to resist authority. They approach the
treatment regimen as the professionals are trying to take something away
from them. The reality is that they are giving you the information you
need to stay alive, and any 'cheating' you may do is only fooling
yourself.
As to your neighbor feeling 'wrung out' after treatment, I suggest that
he talk with his nephrologist about possibly increasing his dry weight.
I used to feel this way for at least 4 or 5 hours after treatment, but
just increasing my dry weight by 0.5 KG brought my blood pressure up to
a point where i didn't experience that feeling for nearly as long. Now
that I am on Nocturnal Hemodialysis, which is eight hours of treatment
three times a week. My recovery time is less than 0.5 hours.
Another possibility for the bad feeling could be excess weight(fluid)
gain between treatments, meaning too much has to be removed in a short
period of time. The only solution for this case is to not drink so
much. I know it is hard, but each patient really needs to take
responsibility for there own behavior, and this includes following the
diet restrictions. The problems that can develope from not behaving are
too severe, and will make you feel even worse.
Now, after having read a number of your posts, I am confident that you
are an intelligent person who has done some research into dialysis. You
are entitled to decide for yourself if dialysis is for you or not. The
book you keep advertising like you are the author, and this is not a
criticism, may be a very good book, but there is tons more information
out there. One book cannot possibly give you possible perspectives, and
I doubt if any book written for patients will cover very much about the
way patients deal with the whole overwhelming situation of having to
start dialysis. There are other books, written by patients for
patients, that will cover these rather personal experiences far better.
A Professional in the Kidney industry, no matter how long they have been
in the industry, can ever really know what patients experience. Believe
me, I know that not all patients experience the same thing, but dialysis
today is a far cry better than it was 20 years ago. You get out of
dialysis is what you expect to get out of dialysis, with some effort on
your part.
A suggestion to get some different points of view is to talk to your
doctor, and see if it can be arranged for you to talk face to face with
some patients. You should talk to Peritoneal Dialysis patients,
Hemodialysis patients and Transplant patients. You will probably find
some patients, such as myself, who have experience with all these
modalities. All the different modalities have their pluses and minuses,
and some are a better fir for some people than for others.
One word on transplants. Despite the way they are presented in the
media, A kidney transplant is not a cure for kidney disease. It is
every bit as intrusive on your life as dialysis, just in a different
way. Experiences do differ dramatically, but generally speaking, a
transplant patient has to take far more medication, owing to the various
possible side effects of the immuno-suppressant meds. The side effects
differ from patient to patient, and can't be predicted ahead of time.
Transplant patients are far more likely to get ill because of the
compromised immune system. I state this from experience and
observation. There are occasionally transplant patients who have almost
no problems with side effects, but they are few and far between. Also,
you have to have blood work drawn every month for the entire time you
have the transplant, and depending on what is going on with you
physically, the doses of the meds have to be changed all the time.
Having said all that, I am on the list for my third transplant, even
though neither of my prior transplants worked very well. I have enough
faith that the next time may be the right one. Like you can probably
figure from my statements, I am doing fantastic on Dialysis, but I still
want to try another transplant, as I believe in the long run, dialysis
is harder on your body.
As I stated in my previous posts, I am not a doctor, just a very well
informed patient, with 19 years of experience and observation. Always
discuss your plans to chage anything to do with your medical care with
your doctor. A please give the professionals a break, as they are for
the most part just trying to help you. The best way to prevent somebody
from not helping you is to be the most informed you can be. Take
ownership of your own care. You will be surprised how much | | |