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First time posting here
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| Hello, my name is James, I am 27 years old and I'm from Ireland.
I have had two kidney transplants in the past, the first in '89 and it
didn't work, but I have had a second transplant since '91 and I have managed
to keep it since that. I should also mention I have spina bifida as well.
My apologies beforehand if this is the wrong place to talk about having a
transplant as I have read for a long time on here and not actually posted,
and know that most of you are still on dialysis. All I wanted to say is
that I'm praying for you all (don't want to sound like an idiot ok) and hope
that you will someday recieve the gift of life. I found on my short time on
haemodialysis that it nearly killed me (literally at one point, I lapsed
into a coma iirc, which is still vivid even after all these years) I admired
many people on the dialysis and since discovering this group I admire you
all and know that you're the truly brave people out there.
Anyways I'll apologise again for my ramblings. Take care and good luck to
you all.
James
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| Jason Johnson 2006-10-08, 9:29 pm |
| In article <egc9vj$t28$1@reader01.news.esat.net>, "JCH"
<noneofyourXXXXingbusiness@all.com> wrote:
Hello, my name is James, I am 27 years old and I'm from Ireland.
I have had two kidney transplants in the past, the first in '89 and it
didn't work, but I have had a second transplant since '91 and I have managed
to keep it since that. I should also mention I have spina bifida as well.
My apologies beforehand if this is the wrong place to talk about having a
transplant as I have read for a long time on here and not actually posted,
and know that most of you are still on dialysis. All I wanted to say is
that I'm praying for you all (don't want to sound like an idiot ok) and hope
that you will someday recieve the gift of life. I found on my short time on
haemodialysis that it nearly killed me (literally at one point, I lapsed
into a coma iirc, which is still vivid even after all these years) I admired
many people on the dialysis and since discovering this group I admire you
all and know that you're the truly brave people out there.
Anyways I'll apologise again for my ramblings. Take care and good luck to
you all.
James
~~~~~~~~~~~~~~~~~~~~~~~~
James,
Thanks for your excellent post. I was pleased to learn from your post that
the second transplant is working out well for you. I hope that continues
to be the case for the rest of your life. I am sorry that your experience
on hemodialysis was a bad one. My neighbor has been on dialysis for over
10 years and is not having any problems. You appear to have a great
attitude related to your situation. Remember these words, "We must learn
to cope." I don't know who said it or wrote it but it is very true. You
have learned to cope.
May God bless you and my prayers are with you. I should note that my
neighbor has Lupus and she is having a very difficult time coping with her
illness. Please pray for her--her name is Sarah.
Jason
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
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"Jason Johnson" <jason@nospam.com> wrote in message
news:jason-0810061918030001@66-52-22-65.lsan.pw-dia.impulse.net...
> In article <egc9vj$t28$1@reader01.news.esat.net>, "JCH"
> <noneofyourXXXXingbusiness@all.com> wrote:
>
> Hello, my name is James, I am 27 years old and I'm from Ireland.
>
> I have had two kidney transplants in the past, the first in '89 and it
> didn't work, but I have had a second transplant since '91 and I have
managed
> to keep it since that. I should also mention I have spina bifida as
well.
>
> My apologies beforehand if this is the wrong place to talk about having a
> transplant as I have read for a long time on here and not actually
posted,
> and know that most of you are still on dialysis. All I wanted to say is
> that I'm praying for you all (don't want to sound like an idiot ok) and
hope
> that you will someday recieve the gift of life. I found on my short time
on
> haemodialysis that it nearly killed me (literally at one point, I lapsed
> into a coma iirc, which is still vivid even after all these years) I
admired
> many people on the dialysis and since discovering this group I admire you
> all and know that you're the truly brave people out there.
>
> Anyways I'll apologise again for my ramblings. Take care and good luck
to
> you all.
>
>
> James
>
> ~~~~~~~~~~~~~~~~~~~~~~~~
>
> James,
> Thanks for your excellent post. I was pleased to learn from your post that
> the second transplant is working out well for you. I hope that continues
> to be the case for the rest of your life. I am sorry that your experience
> on hemodialysis was a bad one. My neighbor has been on dialysis for over
> 10 years and is not having any problems. You appear to have a great
> attitude related to your situation. Remember these words, "We must learn
> to cope." I don't know who said it or wrote it but it is very true. You
> have learned to cope.
> May God bless you and my prayers are with you. I should note that my
> neighbor has Lupus and she is having a very difficult time coping with her
> illness. Please pray for her--her name is Sarah.
> Jason
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Thanks Jason.
I will definitely say a prayer for your neighbour and hope she pulls through
it all. Despite having a great life out of the transplant I have, the docs
put me on a pill called lasix which is meant to put my blood pressure down
and also the most annoying part of it it makes you go to the toilet a lot -
my bladder isn't the best and I do catheterize four to five times daily
anyways. I'm not coping well with that pill.. but other than that, things
are good. I really wish everyone all the best on dialysis. I had met a man
named John from England back when I was on the d, and he had the most
phenomenal attitude to things. He always said to keep smiling no matter
what happens. Well, to keep this story short, I went in a couple of years
ago with a kidney infection (quite scary one too, I've kept good ever since
that scare!) and John was there as well, John wasn't looking too well at the
time but we chatted. Little did I know that 15 minutes after we talked,
John was to pass away. John sadly died, and I was upset, as you would
imagine to see this man that was so joyful even at his worst, to die in so
much pain.
I've never forgotten his motto to keep smiling no matter what happens.
People are truly brave and inspirational when you meet them in those
situations.
James
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| James,
A good attitude can make all the difference. As the man you talked to
said, just keep smiling.
I too have had two transplants, the first in 1989 didn't work past three
weeks (I had an infection in the transplanted kidney). The second was
in 1997. It lasted 3.5 years, but was a problem from the beginning.
My first experiences with dialysis in late 1988 were like yours, I
thought I was dieing. But the treatments have gotten much easier since
that time. It helps to have a better attitude to get over the bumps in
the beginning.
I hope your transplant survives for many more years. With the variety
of drugs available today and with the vast increase in knowledge that
has been developed, you certainly have a good chance of the kidney
surviving.
I suppose the use of lasix and having to catheterize yourself so often
is a real pain, but you must be retaining a little fluid, so the lasix
is for reducing the excess fluid. It sounds like your body responds to
excess fluid by increasing your blood pressure. Do what you have to to
keep your blood pressure under control. If it gets out of control, it
can cause a stroke, which is not very much fun. I have had two strokes,
both as the result of high blood pressure from fluid overload. I have
recovered though.
Good luck,
Dave
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"Dave" <Someboby@someplace.com> wrote in message
news:Xns98574353FC396Somebobysomeplacecom@66.150.105.230...
> James,
>
> A good attitude can make all the difference. As the man you talked to
> said, just keep smiling.
>
> I too have had two transplants, the first in 1989 didn't work past three
> weeks (I had an infection in the transplanted kidney). The second was
> in 1997. It lasted 3.5 years, but was a problem from the beginning.
>
> My first experiences with dialysis in late 1988 were like yours, I
> thought I was dieing. But the treatments have gotten much easier since
> that time. It helps to have a better attitude to get over the bumps in
> the beginning.
>
> I hope your transplant survives for many more years. With the variety
> of drugs available today and with the vast increase in knowledge that
> has been developed, you certainly have a good chance of the kidney
> surviving.
>
> I suppose the use of lasix and having to catheterize yourself so often
> is a real pain, but you must be retaining a little fluid, so the lasix
> is for reducing the excess fluid. It sounds like your body responds to
> excess fluid by increasing your blood pressure. Do what you have to to
> keep your blood pressure under control. If it gets out of control, it
> can cause a stroke, which is not very much fun. I have had two strokes,
> both as the result of high blood pressure from fluid overload. I have
> recovered though.
>
> Good luck,
>
> Dave
Thank you Dave for your words of advice. I should point out though that
there are times when my blood pressure is quite low during the day, and I
almost collapsed on lasix it was so strong (I'm on 40mgs once a day
currently) I have thought about the stroke factor, as my grandfather had one
and unfortunately I never got to meet him. I always get extremely nervous
too at the transplant clinic (they still wonder why this is after all those
years of coming there - albeit I'm not the most punctual of outpatients, let
s be honest.. lol) it's in my blood I suppose. My Dad who died 11 years
ago from angina didn't want hospitals, never went to see a doctor in his
life and absolutely hated as you would imagine to see me in a hospital bed
when I was really sick. So as I say, its in my blood to get nervous at
things like that. People up there in the transplant clinic just shrug and
smile when I explain this as they don't understand.
All the best and thanks again.
James
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| Judanne 2006-10-12, 2:32 am |
| Hi James,
I've had two transplants as well, but often pop back into this group to see
what is going on. You can also find a lot of info on
bit.listserv.transplant. You will meet people there from all over the
planet with all types of transplants, so it makes for interesting reading.
Judanne
Tasmania
P.S. Your return email address had me laughing out loud. Love it!
"JCH" <noneofyourXXXXingbusiness@all.com> wrote in message
news:egc9vj$t28$1@reader01.news.esat.net...
> Hello, my name is James, I am 27 years old and I'm from Ireland.
>
> I have had two kidney transplants in the past, the first in '89 and it
> didn't work, but I have had a second transplant since '91 and I have
> managed
> to keep it since that. I should also mention I have spina bifida as well.
>
> My apologies beforehand if this is the wrong place to talk about having a
> transplant as I have read for a long time on here and not actually posted,
> and know that most of you are still on dialysis. All I wanted to say is
> that I'm praying for you all (don't want to sound like an idiot ok) and
> hope
> that you will someday recieve the gift of life. I found on my short time
> on
> haemodialysis that it nearly killed me (literally at one point, I lapsed
> into a coma iirc, which is still vivid even after all these years) I
> admired
> many people on the dialysis and since discovering this group I admire you
> all and know that you're the truly brave people out there.
>
> Anyways I'll apologise again for my ramblings. Take care and good luck to
> you all.
>
>
> James
>
>
>
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