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Home > Archive > Kidney Failure > June 2005 > Well, Hell
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| Last month, I had surprisingly painful surgery (cystoscopy with left
ureteroscopy with Holmium laser and left ureteral stent placement) to
remove a stone from deep within my left kidney that was believed to be
the nidus of the kidney infection I'd had for pretty much over a year.
I'm in early failure from FSGS, and the chronic infection was causing a
lot of scarring which I understand is Not Good, especially with already
funky kidneys. Making things even better, one infectious agent was
Cipro-resistant and the other was Nitrofuratoin-resistant so I was on
one or the other all the time, and neither are super kidney-friendly
(I'm allergic to many antibiotics, too. Of course).
The stent has been out for three weeks and I thought I still felt like
crap because, well, I had had a lot of equipment shoved inside me to
remove the stone, plus that kidney was pretty sore just from having an
infection for so long. Actually, no; I feel so bad because I have
another kidney infection. The culture should be done today and can
finally start taking an antibiotic, providing I can adequately explain
what I need to my urologist's incompetent assistant, who (no kidding)
thinks "incontinent" means "in pain."
I have absolutely no idea what I should even ask about why am I still
getting kidney infections after the surgery that was supposed to cure
that. I am so tired of being this sick and in this much pain, and I'm
getting a little frightened about what all of this is doing to my
not-so-great kidneys.
--
"Did Father shoot him? I will eat Grandfather for dinner."
- Helen Keller, on learning of the death of her grandfather
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| Peter McLeod 2005-06-21, 5:54 pm |
| In article <TeVre.1284$NU5.1090@newssvr13.news.prodigy.com>,
rep@inanna.com (REP) wrote:
> *Subject:* Well, Hell
> *From:* REP <rep@inanna.com>
> *Date:* Wed, 15 Jun 2005 12:33:55 GMT
>
Cannot offer you any advice on this but you have my sympathies, hope
you get it sorted soon
Pete Mc
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|
| In article <memo.20050621232714.2928A@Administrator.cix.co.uk>,
pete@nospam.please (Peter McLeod) wrote:
> In article <TeVre.1284$NU5.1090@newssvr13.news.prodigy.com>,
> rep@inanna.com (REP) wrote:
>
>
> Cannot offer you any advice on this but you have my sympathies, hope
> you get it sorted soon
Thank you! Sympathy is almost better than advice (especially as I've
since gotten my insurance straightened out and am on a course of
antibiotics now).
--
"Did Father shoot him? I will eat Grandfather for dinner."
- Helen Keller, on learning of the death of her grandfather
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| Larry Krzewinski 2005-06-22, 8:55 am |
| On Wed, 22 Jun 2005 07:32:12 GMT, REP <rep@inanna.com> wrote:
>
>Thank you! Sympathy is almost better than advice (especially as I've
>since gotten my insurance straightened out and am on a course of
>antibiotics now).
Best of luck to you, REP.
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|
| In article <ad8ib1db9cfurgdsg0e5thbvcda8enhg5q@4ax.com>,
Larry Krzewinski <Feerless_Freep@madmagazine.com> wrote:
> On Wed, 22 Jun 2005 07:32:12 GMT, REP <rep@inanna.com> wrote:
>
>
> Best of luck to you, REP.
Thanks. After the surgery, I was told the stone was gone; that somehow
the lasering had destroyed it and there were no bits left. Now I'm being
told that it was broken into large bits (about the size of my foot, from
the way it feels) and that those bits are still capable of causing
infection. I think the urologist is just guessing at this point.
--
"Did Father shoot him? I will eat Grandfather for dinner."
- Helen Keller, on learning of the death of her grandfather
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|
| In article <B2kve.117530$VH2.82007@tornado.tampabay.rr.com>,
"Bonnie" <b4dawn@noplaceingeneral.com> wrote:
[vbcol=seagreen]
> "REP" <rep@inanna.com> wrote in message
> news:F8bue.2516$Bx6.1916@newssvr13.news.prodigy.com...
Yes, I know - I've had numerous CTs on this stone, charting its glorious
life in the pelvis if my left kidney, including some mere days before
the surgery. The issue with this stone was not its size - it was a dinky
8mm - but that it was harboring a macrodantin-resistant strain of
enterobacter aerogenes and a Cipro-resistant strain of e. coli (I'm
allergic to almost every other antibiotic). He said that he had
vaporized (his term, not mine) the stone, leaving no chunks to analyze,
so this sudden dx of stone fragments causing pain and infection is,
well, odd.
--
"Did Father shoot him? I will eat Grandfather for dinner."
- Helen Keller, on learning of the death of her grandfather
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| Bonnie 2005-06-27, 11:52 am |
| wow that does sound like a strange stone.
Mine was 8mm but blocked the ureter so had to have it blasted ... now I have
a 4mm fragment waiting to be passed :-(
Bonnie
"REP" <rep@inanna.com> wrote in message
news:bBPve.290$0V3.226@newssvr13.news.prodigy.com...
> In article <B2kve.117530$VH2.82007@tornado.tampabay.rr.com>,
> "Bonnie" <b4dawn@noplaceingeneral.com> wrote:
>
>
> Yes, I know - I've had numerous CTs on this stone, charting its glorious
> life in the pelvis if my left kidney, including some mere days before
> the surgery. The issue with this stone was not its size - it was a dinky
> 8mm - but that it was harboring a macrodantin-resistant strain of
> enterobacter aerogenes and a Cipro-resistant strain of e. coli (I'm
> allergic to almost every other antibiotic). He said that he had
> vaporized (his term, not mine) the stone, leaving no chunks to analyze,
> so this sudden dx of stone fragments causing pain and infection is,
> well, odd.
>
> --
> "Did Father shoot him? I will eat Grandfather for dinner."
> - Helen Keller, on learning of the death of her grandfather
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|
| In article <UYVve.127581$VH2.58799@tornado.tampabay.rr.com>,
"Bonnie" <b4dawn@noplaceingeneral.com> wrote:
> wow that does sound like a strange stone.
> Mine was 8mm but blocked the ureter so had to have it blasted ... now I have
> a 4mm fragment waiting to be passed :-(
I pass 6 to 8 mm stones every 30-45 days, but the one they had to go in
after was 'nesting' (my made-up unscientific term) in me, apparently for
the hell of it! Passing stones isn't fun, but I'd do it every day of the
week rather than go through another ureteroscopy/ureteric stenting again.
--
"Did Father shoot him? I will eat Grandfather for dinner."
- Helen Keller, on learning of the death of her grandfather
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