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Home > Archive > Kidney Failure > June 2005 > Recipes for people on dialysis
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Recipes for people on dialysis
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| Funkytowngirl 2005-06-10, 11:54 am |
| My father has been on dialysis for about a month now and cooking for him
is getting harder. Is there a cookbook for people on dialysis? Any help
would be appreciated.
Nee
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| Sheree & Rick 2005-06-10, 10:57 pm |
| My husband was just put at stage 4 and we will be seeing a dietian for a low
protein/low sodium diet. I will share any that I might get. But would also
like a cookbook too.
Sheree
"Funkytowngirl" <FUNKYTOWNGIRL@webtv.net> wrote in message
news:28867-42A9AC7F-319@storefull-3315.bay.webtv.net...
> My father has been on dialysis for about a month now and cooking for him
> is getting harder. Is there a cookbook for people on dialysis? Any help
> would be appreciated.
>
>
> Nee
>
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| Lizz Parsons 2005-06-13, 8:55 am |
| There should be a dietician at his clinic who can help out with
recipes.
Mine had assembled a cookbook that she gave me... it also had some
great substitution ideas.
(To reduce sodium in BBQ sauce, cut it with pineapple juice instead of
water so the flavor doesn't get watered down.
Use "aminos" instead of say sauce... tastes just the same with no
salt. Ask at a health food store)
These are the only things I remember at the moment... but ask his
dietician!
~Lizz
Kidney Tx 8/23/04
UCSF
On Fri, 10 Jun 2005 11:06:39 -0400, FUNKYTOWNGIRL@webtv.net
(Funkytowngirl) wrote:
>My father has been on dialysis for about a month now and cooking for him
>is getting harder. Is there a cookbook for people on dialysis? Any help
>would be appreciated.
>
>
> Nee
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| Personally, I've tried a number of renal/dialysis cookbooks, and to be
honest, there hasn't been too many recipes I've actually liked enough to
keep using them. I just eat normal food, just less of certain things.
If you don't have access to a renal dietician, the local chapter of the
Kidney Foundation should have some or, at least a list.
Pierre
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| Larry Krzewinski 2005-06-13, 5:51 pm |
| On Mon, 13 Jun 2005 12:12:59 -0400, "Pete" <nospam@hotmail.com> wrote:
>Personally, I've tried a number of renal/dialysis cookbooks, and to be
>honest, there hasn't been too many recipes I've actually liked enough to
>keep using them. I just eat normal food, just less of certain things.
>
>If you don't have access to a renal dietician, the local chapter of the
>Kidney Foundation should have some or, at least a list.
>
>Pierre
That's what I did, Pierre, when I was on dialysis. Once I discovered
that "Bowes & Church's Food Values of Portions Commonly Used" listed
the amounts of potassium, phosphorus, sodium and other nutritional
data of just about everything I ate I was able to eat anything but had
to watch portion size. I asked the dietician at dialysis what my
daily limits of potassium, phosphorus, and sodium were and as long as
I stayed under those limits I was able to pretty much throw my renal
diet out the window. Knowledge is power.
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| plz.spam.here@gmail.com 2005-06-13, 5:51 pm |
| Here's the best online database of foods that I know of:
http://www.nal.usda.gov/fnic/foodcomp/search/
The database must be quite huge and it lists the mineral, vitamin,
protein, etc content for all the foods in it.
> That's what I did, Pierre, when I was on dialysis. Once I discovered
> that "Bowes & Church's Food Values of Portions Commonly Used" listed
> the amounts of potassium, phosphorus, sodium and other nutritional
> data of just about everything I ate I was able to eat anything but had
> to watch portion size. I asked the dietician at dialysis what my
> daily limits of potassium, phosphorus, and sodium were and as long as
> I stayed under those limits I was able to pretty much throw my renal
> diet out the window. Knowledge is power.
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| Tom Gower 2005-06-15, 12:20 pm |
| I'm with you guys, I eat almost anything I want. Of course I
limit things like tomatoes, cantaloupe, Coke and Pepsi. What I do is eat
these things in moderation, then I see how my labs look every month, and
if my potassium or phosphorous is starting to increase, I cut out those
foods. But I must say, that for the past year, all my labs have been
very good, with the exception of having low calcium. So the dietician
told me to eat two Tums evey night before I went to bed.
I'm curious about the meds you guys are on. Here is a list of
what I take, perhaps you could share what you're on with the rest of us.
The following were prescriped by my nephrologist.
Renagel-Tabs-------800mg 2/with meals
Protonix---------------40mg 1 a day
Sensipar---------------30mg 1 a day (very expensive. $10.00 a pill)
Glad I have a prescription plan from my former employer.
Nephrocaps------------------1 a day. This is a vitamin...
It's not how many times we have tried and failed that matter, but
whether we tried at all.
TOM G
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| Larry Krzewinski 2005-06-15, 12:20 pm |
| On Tue, 14 Jun 2005 09:51:03 -0400, patriark363@webtv.net (Tom Gower)
wrote:
> I'm with you guys, I eat almost anything I want. Of course I
>limit things like tomatoes, cantaloupe, Coke and Pepsi. What I do is eat
>these things in moderation, then I see how my labs look every month, and
>if my potassium or phosphorous is starting to increase, I cut out those
>foods. But I must say, that for the past year, all my labs have been
>very good, with the exception of having low calcium. So the dietician
>told me to eat two Tums evey night before I went to bed.
>
> I'm curious about the meds you guys are on. Here is a list of
>what I take, perhaps you could share what you're on with the rest of us.
>
> The following were prescriped by my nephrologist.
>
> Renagel-Tabs-------800mg 2/with meals
> Protonix---------------40mg 1 a day
> Sensipar---------------30mg 1 a day (very expensive. $10.00 a pill)
>Glad I have a prescription plan from my former employer.
> Nephrocaps------------------1 a day. This is a vitamin...
Since I'm not on dialysis anymore and have had a liver and a kidney
transplant my meds are very different now. I'm on 15 different
prescriptions plus four prescribed vitamins.
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| I saw the dietician to learn what foods were high in potassium, salt &
phosphorus.
Then my doctor told me, "Look the diet sucks I know that, I don't expect you
to follow it to the tee. I've seen too many people do it and then go off
the deep end and splurge and end up in here with high potassium or fluid
overload. Instead I would rather you eat a bite of what ever it is you are
craving and get it over with. If you are having a chocolate craving have 1
bite of chocolate cake or an Oreo cookie then be sensible and stop. You can
eat your normal foods in moderation and watch those things that are high in
potassium and you'll do just fine.
I did as he instructed and I never found myself in the position of having my
potassium too high where I saw many people who did.
Celeste
"Pete" <nospam@hotmail.com> wrote in message
news:lgire.5315$yU.200554@news20.bellglobal.com...
> Personally, I've tried a number of renal/dialysis cookbooks, and to be
> honest, there hasn't been too many recipes I've actually liked enough to
> keep using them. I just eat normal food, just less of certain things.
>
> If you don't have access to a renal dietician, the local chapter of the
> Kidney Foundation should have some or, at least a list.
>
> Pierre
>
>
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| Larry Krzewinski 2005-06-15, 12:20 pm |
| On Wed, 15 Jun 2005 01:22:44 GMT, "Spot" <NoSpamMe@verizon.net> wrote:
>I saw the dietician to learn what foods were high in potassium, salt &
>phosphorus.
>
>Then my doctor told me, "Look the diet sucks I know that, I don't expect you
>to follow it to the tee. I've seen too many people do it and then go off
>the deep end and splurge and end up in here with high potassium or fluid
>overload. Instead I would rather you eat a bite of what ever it is you are
>craving and get it over with. If you are having a chocolate craving have 1
>bite of chocolate cake or an Oreo cookie then be sensible and stop. You can
>eat your normal foods in moderation and watch those things that are high in
>potassium and you'll do just fine.
>
>I did as he instructed and I never found myself in the position of having my
>potassium too high where I saw many people who did.
>
>Celeste
You know, Celeste, the nephrologist has the option of changing the
potassium bath you use in dialysis. If someone seems to be eating too
much potassium they can lower the concentration to accommodate. Some
nephrologists will do all they can to help you be comfortable while
others are real sticklers. One of the most welcome changes at our
dialysis unit was when the nephrologists decided to change the sodium
modeling and all of a sudden all those effected by severe cramping
stopped getting cramps while on the machine.
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| daniel.granot@gmail.com 2005-06-15, 12:20 pm |
| I have to admit that I have trouble sticking to strict diets. I also
have trouble keeping away from fluids.
I'm so used to having lots of fluids (to help the transplant) that I
sometimes have trouble restraining myself. To combat this, I
occassionaly buy the drink and imagine myself drinking it (and the
feeling) without actually drinking it. Thankfully I don't do this often
otherwise I'd be wasting a lot of money.
There are a few things that are VERY high in potassium like chocolate
and bananas. I keep away from both completely. If I eat out and have a
meal that is likely to be high in potassium, I change my diet
accordingly leading up to the next dialysis.
I've found in the past that if I spend too much time worrying about my
diet, then not only do I have greater stress to worry about but that my
mind is more frequently on food (or my requirement to eat less) makes
me more hungry.
This has required a shift to moderating my diet depending on what I eat
and when I eat it (relevant to when the next dialysis is).
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| Luckily, I've retained a better than average residual kidney function since
I started hemodialysis about 3 years ago, and so I've always been able to
eat more phosphorus and more potassium than many other dialysis patients.
It's important for people new or approaching dialysis that it's not usually
a case of going from 10% kidney function when they usually start you on
dialysis, to none all of a sudden. That 10% kidney function may well
continue for some time. Because of this, there are really no blanket
recommendations with regards to diet. It's an individual thing, and you may
find that you can eat a lot more than what you hear about when people talk
about dialysis diets. After you actually start dialysis, you can usually but
cautiously and sensibly experiment a little, on days preceding the monthly
blood work. Eventually, you get to know what you can and can't tolerate as
far as foods go.
Pierre
P.S. I do my own hemodialysis at home now, 6 days a week, and I can eat
almost a normal diet. If that's important to you, you could always see if
daily home hemo is available where you live. I'm not saying it's for
everybody, but it could be one of the options open to you.
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| Larry Krzewinski 2005-06-15, 10:54 pm |
| On Wed, 15 Jun 2005 17:36:16 -0400, "Pete" <nospam@hotmail.com> wrote:
>Luckily, I've retained a better than average residual kidney function since
>I started hemodialysis about 3 years ago, and so I've always been able to
>eat more phosphorus and more potassium than many other dialysis patients.
>It's important for people new or approaching dialysis that it's not usually
>a case of going from 10% kidney function when they usually start you on
>dialysis, to none all of a sudden. That 10% kidney function may well
>continue for some time. Because of this, there are really no blanket
>recommendations with regards to diet. It's an individual thing, and you may
>find that you can eat a lot more than what you hear about when people talk
>about dialysis diets. After you actually start dialysis, you can usually but
>cautiously and sensibly experiment a little, on days preceding the monthly
>blood work. Eventually, you get to know what you can and can't tolerate as
>far as foods go.
>Pierre
>P.S. I do my own hemodialysis at home now, 6 days a week, and I can eat
>almost a normal diet. If that's important to you, you could always see if
>daily home hemo is available where you live. I'm not saying it's for
>everybody, but it could be one of the options open to you.
Pete, by dialyzing six days per week you are able to eat more
electrolytes than someone who only dialyses three times per week. In
general, once a person starts on dialysis their kidneys become "lazy"
due to not having to perform as needed.
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"Larry Krzewinski" <Feerless_Freep@madmagazine.com> wrote in message
news:njc1b1tskvts90knjld6ieaigoi2hc5keq@4ax.com...
>
> Pete, by dialyzing six days per week you are able to eat more
> electrolytes than someone who only dialyses three times per week. In
> general, once a person starts on dialysis their kidneys become "lazy"
> due to not having to perform as needed.
>
Hi Larry.
I've only been on daily hemo for 3 and a half months. I was on regular
3/week in-centre hemo before that for 2-1/2 years. Daily hemo certainly make
life more bearable in terms of diet though, that's true.
Pierre
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| Larry Krzewinski 2005-06-15, 10:54 pm |
| On Wed, 15 Jun 2005 22:01:25 -0400, "Pete" <nospam@hotmail.com> wrote:
>
>Hi Larry.
>I've only been on daily hemo for 3 and a half months. I was on regular
>3/week in-centre hemo before that for 2-1/2 years. Daily hemo certainly make
>life more bearable in terms of diet though, that's true.
>Pierre
And fluid consumption, too, Pierre. You can drink a little more if
you're dialyzing six times a week. It is also much easier on your
heart. The more frequently you dialyze the closer it gets in
approximating what your kidneys would do naturally. How long do you
dialyze each day? I'm guessing at least three hours unless you're
doing nocturnal dialysis.
Larry
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| daniel.granot@gmail.com 2005-06-16, 8:55 am |
| I know a couple of patients at my dialysis centre are dialysing for two
hours six times a week.
I'm considering doing the same.
One of the main "positive" effects is the lack of the "washed-out"
feeling post-dialysis.
Hence the rest of your day is potentially considerably more productive.
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| I've been doing mine for the standard 2 hours 6 days per week since my
training (this is called "short daily hemo"). This equals 12 hours a week,
so the same total treatment time as dialysis for 4 hours 3 times per week.
The difference though is the benefits of greater frequency, since most of
what hemodialysis does (except fluid removal), happens during the first 2
hours of treatment anyway. I will be switching to daily nocturnal next week,
which is 6-8 hours 6 nights per week, running at reduced dialysate and blood
flows. Some people do 4 or 5 days, rather than 6, but this doesn't give you
the full benefit of daily dialysis.
It's a significant time commitment though - but it's almost like getting
15-20% more kidney function. I use a conventional dialysis machine,
identical to the ones in-centre. It takes at least an hour to setup (various
tests, priming, recirculation, etc.), and that's only after you get good at
it. Then there's the 2 hours on treatment, 30 minutes for taking off
(rinseback, remove needles and hold 10 minutes one at a time - you can't
hold both at the same time at home, since there's no way to remove both
needles and hold at the same time), another half hour or so to takedown and
cleanup and put the machine in its disinfection cycle. A 2 hour treatment
easily takes up 4 hours (and that's not counting the time managing supplies,
deliveries). But it's worth it. Nocturnal is better because it uses the
overnight hours while you mostly sleep anyway, plus, it literally throws all
diet restrictions and fluid limits out the window. They usually even have to
*add* phosphorus and potassium to you during dialysis.
The lack of post dialysis wash out is true. When I do my 2 hour treatment
during the day, I'm up and running right after, rather than having to sleep
for a few hours as I did before on regular in-centre hemo. In fact, despite
the big overall time commitment, I seem to gain a lot of actual useful time
because I sleep less.
Pierre
<daniel.granot@gmail.com> wrote in message
news:1118907087.951921.58620@g44g2000cwa.googlegroups.com...
>I know a couple of patients at my dialysis centre are dialysing for two
> hours six times a week.
>
> I'm considering doing the same.
>
> One of the main "positive" effects is the lack of the "washed-out"
> feeling post-dialysis.
>
> Hence the rest of your day is potentially considerably more productive.
>
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| Peter McLeod 2005-06-18, 6:25 pm |
| In article <idqqe.17718$mZ2.6849@fe07.lga>, nospam@nospam.com (Sheree &
Rick) wrote:
> My husband was just put at stage 4 and we will be seeing a dietian for
> a low
> protein/low sodium diet. I will share any that I might get. But would
> also
> like a cookbook too.
very different diet to when on dialysis, on dialysis you want high
protein, low potassium and low a few other things but I am getting a
bit rusty, 11 years since transplant, still going well
Pete Mc
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| Judanne 2005-06-27, 10:04 am |
| Here is a PDF file on nutrition while on dialysis published by Kidney Health
Australia.
http://www.kidney.org.au/assets/doc...y%20Disease.pdf
There is a cookbook, too, but I'm having trouble finding the link.
Judanne
Tasmania
"Funkytowngirl" <FUNKYTOWNGIRL@webtv.net> wrote in message
news:28867-42A9AC7F-319@storefull-3315.bay.webtv.net...
> My father has been on dialysis for about a month now and cooking for him
> is getting harder. Is there a cookbook for people on dialysis? Any help
> would be appreciated.
>
>
> Nee
>
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