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Home > Archive > Kidney Failure > March 2005 > Question about my Dad and his dialysis...Help! :(
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Question about my Dad and his dialysis...Help! :(
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| tanner.jones@gmail.com 2005-03-19, 6:25 pm |
| I think that my dad has been going through peritaneal dialysis for
about 9 years now. Everything was fine until about a month ago when he
came down with peritonitus. Ever since, he has been very weak, and has
been on hemodialysis. We are hoping and praying for him to be able to
go back on pd since hd is so tough on him, but the doctor said that
because the peritonitus was so bad, that he may not be able to. They
took him off the transplant list and will not put him back on until he
gets better again. My question is this ... if that is true, then will
he not be able to get a transplant since I think they insert the new
kidney in the stomach? This will be his second transplant. He is 50,
and has been very weak lately. Any help greatly appreciated!
| |
| MeadowlandsNJ 2005-03-19, 6:25 pm |
|
<tanner.jones@gmail.com> wrote in message
news:1109441904.082403.109890@z14g2000cwz.googlegroups.com...
>I think that my dad has been going through peritaneal dialysis for
> about 9 years now. Everything was fine until about a month ago when he
> came down with peritonitus. Ever since, he has been very weak, and has
> been on hemodialysis. We are hoping and praying for him to be able to
> go back on pd since hd is so tough on him, but the doctor said that
> because the peritonitus was so bad, that he may not be able to. They
> took him off the transplant list and will not put him back on until he
> gets better again. My question is this ... if that is true, then will
> he not be able to get a transplant since I think they insert the new
> kidney in the stomach? This will be his second transplant. He is 50,
> and has been very weak lately. Any help greatly appreciated!
>
It seems like they want to wait until all traces of the infection are gone.
| |
|
| Once he is free of infection and able to withstand the surgery they will put
him back on the list. Peritonitis is a serious infection and it may take
quite a while till he is back to himself again.
Celeste
<tanner.jones@gmail.com> wrote in message
news:1109441904.082403.109890@z14g2000cwz.googlegroups.com...
> I think that my dad has been going through peritaneal dialysis for
> about 9 years now. Everything was fine until about a month ago when he
> came down with peritonitus. Ever since, he has been very weak, and has
> been on hemodialysis. We are hoping and praying for him to be able to
> go back on pd since hd is so tough on him, but the doctor said that
> because the peritonitus was so bad, that he may not be able to. They
> took him off the transplant list and will not put him back on until he
> gets better again. My question is this ... if that is true, then will
> he not be able to get a transplant since I think they insert the new
> kidney in the stomach? This will be his second transplant. He is 50,
> and has been very weak lately. Any help greatly appreciated!
>
| |
|
| Are u in the UK? My partner is on hemo permanently after getting
peritonis and his stomach cannot be used anymore. We are getting the
runaround from the transplant team who tell us that the cut off point
for a transplant is 45. My partner is 42. Considering is takes up to
2 years to get a transplant it doesnt leave a lot of time. I would be
interested on your comments.
On 26 Feb 2005 10:18:24 -0800, tanner.jones@gmail.com wrote:
>I think that my dad has been going through peritaneal dialysis for
>about 9 years now. Everything was fine until about a month ago when he
>came down with peritonitus. Ever since, he has been very weak, and has
>been on hemodialysis. We are hoping and praying for him to be able to
>go back on pd since hd is so tough on him, but the doctor said that
>because the peritonitus was so bad, that he may not be able to. They
>took him off the transplant list and will not put him back on until he
>gets better again. My question is this ... if that is true, then will
>he not be able to get a transplant since I think they insert the new
>kidney in the stomach? This will be his second transplant. He is 50,
>and has been very weak lately. Any help greatly appreciated!
| |
| Richard Archer 2005-03-19, 6:25 pm |
|
"Chris" <thame@dialstart.net> wrote in message
news:f5i321pe6ntjrfs801s562k10shv0812dk@4ax.com...
> Are u in the UK? My partner is on hemo permanently after getting
> peritonis and his stomach cannot be used anymore. We are getting the
> runaround from the transplant team who tell us that the cut off point
> for a transplant is 45. My partner is 42. Considering is takes up to
> 2 years to get a transplant it doesnt leave a lot of time. I would be
> interested on your comments.
Hi Chris
I've never heard about the 45 year old rule, in the units I've used - where
are you?
This is a quote from the Transplant FAQ of Addenbrookes Hospital in
Cambridge.
http://www.cambridgetransplant.org..../assessment.htm
"Is a transplant right for every body?
No. A transplant involves a major operation, and requires you to take drugs
to stop your body rejecting it. For some people the operation and the side
effects of the drugs are too dangerous, for example if you have bad heart
disease or are very old."
End Quote.
I don't think 45 qualifies as very old!
Also, who has told you it can take up to two years to get a transplant?
Obviously you know where kidneys come from, so its a bit of a lottery
really, this again is from the Addenbrookes site
"How long will I have to wait?
The transplant waiting list is not a queue. Instead we try to match donor
kidneys with our recipients because well-matched kidneys last longer than
poorly matched kidneys, and are less likely to reject. This means that we
don't need to give so much treatment in order to stop rejection, which means
that you will suffer less side effects.
In order to give you the best chance of a good match we are part of a large
network in the United Kingdom which matches kidneys, so potentially your
kidney may come from Aberdeen or Penzance if that is where the best match
is.
In the first year on the waiting list approximately 3 out of 10 new patients
will receive a transplant. However, if you are not lucky in the first year
it may be that you are difficult to match in which case you may have to wait
several years. If you have had a previous transplant, a rare blood group, or
previous blood transfusions it may take longer to find you a kidney. Be
assured that we do our best to find kidneys for everyone on our waiting list
as soon as we can."
End Quote
If I were in your situation, I would confirm if your unit's rule ove 45 is a
hard and fast one with no exceptions, and if it really is the case I would
complain very loudly and publicly (your MP, newspapers etc) as above all
else having an arbitrary cut-off age is age discrimination. I suppose if all
else failed I would just up sticks and move somewhere that weren't so
stupid.
Good luck
Richard Archer
HD 1986-1989, 2003 -?
TX 1990 - 2003
>
> On 26 Feb 2005 10:18:24 -0800, tanner.jones@gmail.com wrote:
>
>
| |
|
| We are under Addenbrookes for the eventual transplant but its the
consultant at Broomfield Hospital who gave us the deadline. We were
turned down by the transplant team at Addenbrookes in November last
for not being fit, drinking too much fluid and being overweight. The
45 year old rules stands and thats what we have got to stick to. Just
out of interest, how much is a private transplant roughly and do you
have to go abroad to have it done?
On Mon, 28 Feb 2005 11:58:32 -0000, "Richard Archer"
<mrrichardarcher@nospam.com> wrote:
>
>"Chris" <thame@dialstart.net> wrote in message
>news:f5i321pe6ntjrfs801s562k10shv0812dk@4ax.com...
>
>Hi Chris
>
>I've never heard about the 45 year old rule, in the units I've used - where
>are you?
>This is a quote from the Transplant FAQ of Addenbrookes Hospital in
>Cambridge.
>http://www.cambridgetransplant.org..../assessment.htm
>
>"Is a transplant right for every body?
>No. A transplant involves a major operation, and requires you to take drugs
>to stop your body rejecting it. For some people the operation and the side
>effects of the drugs are too dangerous, for example if you have bad heart
>disease or are very old."
>
>End Quote.
>
>I don't think 45 qualifies as very old!
>
>Also, who has told you it can take up to two years to get a transplant?
>Obviously you know where kidneys come from, so its a bit of a lottery
>really, this again is from the Addenbrookes site
>
>"How long will I have to wait?
>The transplant waiting list is not a queue. Instead we try to match donor
>kidneys with our recipients because well-matched kidneys last longer than
>poorly matched kidneys, and are less likely to reject. This means that we
>don't need to give so much treatment in order to stop rejection, which means
>that you will suffer less side effects.
>
>In order to give you the best chance of a good match we are part of a large
>network in the United Kingdom which matches kidneys, so potentially your
>kidney may come from Aberdeen or Penzance if that is where the best match
>is.
>
>In the first year on the waiting list approximately 3 out of 10 new patients
>will receive a transplant. However, if you are not lucky in the first year
>it may be that you are difficult to match in which case you may have to wait
>several years. If you have had a previous transplant, a rare blood group, or
>previous blood transfusions it may take longer to find you a kidney. Be
>assured that we do our best to find kidneys for everyone on our waiting list
>as soon as we can."
>
>End Quote
>
>If I were in your situation, I would confirm if your unit's rule ove 45 is a
>hard and fast one with no exceptions, and if it really is the case I would
>complain very loudly and publicly (your MP, newspapers etc) as above all
>else having an arbitrary cut-off age is age discrimination. I suppose if all
>else failed I would just up sticks and move somewhere that weren't so
>stupid.
>
>Good luck
>
>Richard Archer
>
>HD 1986-1989, 2003 -?
>
>TX 1990 - 2003
>
>
>
>
>
>
| |
|
| Under Broomfield Hospital and Addenbrookes for the transplant!
On Mon, 28 Feb 2005 11:58:32 -0000, "Richard Archer"
<mrrichardarcher@nospam.com> wrote:
>
>"Chris" <thame@dialstart.net> wrote in message
>news:f5i321pe6ntjrfs801s562k10shv0812dk@4ax.com...
>
>Hi Chris
>
>I've never heard about the 45 year old rule, in the units I've used - where
>are you?
>This is a quote from the Transplant FAQ of Addenbrookes Hospital in
>Cambridge.
>http://www.cambridgetransplant.org..../assessment.htm
>
>"Is a transplant right for every body?
>No. A transplant involves a major operation, and requires you to take drugs
>to stop your body rejecting it. For some people the operation and the side
>effects of the drugs are too dangerous, for example if you have bad heart
>disease or are very old."
>
>End Quote.
>
>I don't think 45 qualifies as very old!
>
>Also, who has told you it can take up to two years to get a transplant?
>Obviously you know where kidneys come from, so its a bit of a lottery
>really, this again is from the Addenbrookes site
>
>"How long will I have to wait?
>The transplant waiting list is not a queue. Instead we try to match donor
>kidneys with our recipients because well-matched kidneys last longer than
>poorly matched kidneys, and are less likely to reject. This means that we
>don't need to give so much treatment in order to stop rejection, which means
>that you will suffer less side effects.
>
>In order to give you the best chance of a good match we are part of a large
>network in the United Kingdom which matches kidneys, so potentially your
>kidney may come from Aberdeen or Penzance if that is where the best match
>is.
>
>In the first year on the waiting list approximately 3 out of 10 new patients
>will receive a transplant. However, if you are not lucky in the first year
>it may be that you are difficult to match in which case you may have to wait
>several years. If you have had a previous transplant, a rare blood group, or
>previous blood transfusions it may take longer to find you a kidney. Be
>assured that we do our best to find kidneys for everyone on our waiting list
>as soon as we can."
>
>End Quote
>
>If I were in your situation, I would confirm if your unit's rule ove 45 is a
>hard and fast one with no exceptions, and if it really is the case I would
>complain very loudly and publicly (your MP, newspapers etc) as above all
>else having an arbitrary cut-off age is age discrimination. I suppose if all
>else failed I would just up sticks and move somewhere that weren't so
>stupid.
>
>Good luck
>
>Richard Archer
>
>HD 1986-1989, 2003 -?
>
>TX 1990 - 2003
>
>
>
>
>
>
| |
| Ruth McTighe 2005-03-19, 6:25 pm |
| You need to challenge that! In my view that's a load of rubbish. One of
my husband's friends and fellow patients is in her early 50s and on the
waiting list for her third transplant. She is currently on haemodialysis.
My husband had his fourth transplant at the age of 49 (in 1999), and
there were certainly no suggestion that he would be taken off the list
when he got older. They are both at St Georges Hospital in London.
Also, is the consultant at Broomfield a renal consultant? If not, he may
well not know enough about transplant surgery to give you accurate
information. My husband and I would only accept medical information about
renal matters from the renal team (and I speak as a consultant
paediatrician).
However I'd guess that the issue is far more likely to be that he is unfit
for the reasons that he was turned down last year.
You should also have a look at, and maybe talk to the National Kidney
Federation. http://www.kidney.org.uk/Medical-In...ant/txhave.html
This is what their FAQ says:
Who can have a transplant?
About 50% (one in two) of people with kidney failure are suitable for a
transplant, provided a suitable donor kidney can be found. People who will
probably not be considered suitable include those with serious heart
disease or who have recently had cancer.
Most renal units do not have an age limit for kidney transplantation.
People are considered on merit (ie their suitability for a transplant),
rather than age. However, having said that, most units would think very
seriously before transplanting someone over 65 years old. The main reason
is that older people often do not tolerate the transplant operation very
well. Also, the drugs that are needed after a transplant are often too
strong for older people.
Doctors do not feel that transplants can be given to anyone who wants one,
whatever the risks. This is because there is a shortage of kidneys for
transplants, and so transplants should not be wasted. Also, a kidney given
by a donor family should be used as carefully as possible, respecting
their gift. Therefore, if someone with kidney failure wanted a transplant,
even knowing there would be a high chance of dying after a risky
operation, doctors may feel this is not ethical and can refuse to put
someone on the transplant list.
-------------------------------------------------------------------------
Ruth McTighe
London UK
In article <cvv0vr$517$1@news6.svr.pol.co.uk>, mrrichardarcher@nospam.com
(Richard Archer) wrote:
> *From:* "Richard Archer" <mrrichardarcher@nospam.com>
> *Date:* Mon, 28 Feb 2005 11:58:32 -0000
>
>
> "Chris" <thame@dialstart.net> wrote in message
> news:f5i321pe6ntjrfs801s562k10shv0812dk@4ax.com...
>
> Hi Chris
>
> I've never heard about the 45 year old rule, in the units I've used -
> where are you?
> This is a quote from the Transplant FAQ of Addenbrookes Hospital in
> Cambridge.
> http://www.cambridgetransplant.org..../assessment.htm
>
> "Is a transplant right for every body?
> No. A transplant involves a major operation, and requires you to take
> drugs to stop your body rejecting it. For some people the operation and
> the side effects of the drugs are too dangerous, for example if you
> have bad heart disease or are very old."
>
> End Quote.
| |
|
| I wish it was a load of rubbish! This consultant is Dr Ali at
Broomfield and my partner was told this before he even started on PD
and when that failed went on to hemo. Broomfield made a big mistake
by not putting my partner on sliding scale insulin drip before a
routine op for a fistula. He was Nil By Mouth from midnight and didnt
go down till late morning, in the meantime potassium levels rose thru
lack of insulin and stopped his heart as soon as the op started.
(Dead for five minutes) Ended up in ICU. Every op after that has
been under local as they wont take the chance. But Broomfield had a
meeting straight after this happened and now, every diabetic that goes
down to theatre goes on a sliding scale and pottasium levels are
checked just before op. Thru no fault of his own they wont take the
chance and that is why I beleive they are sticking to no transplant
over 45. They are coming up with every excuse possible not to put him
on the transplant list. I am wondering whether I can sue and go
private but I know its not easy to sue a hospital.
On Wed, 2 Mar 2005 08:00:05 +0000 (UTC), smctighe@cix.co.uk (Ruth
McTighe) wrote:
[vbcol=seagreen]
>You need to challenge that! In my view that's a load of rubbish. One of
>my husband's friends and fellow patients is in her early 50s and on the
>waiting list for her third transplant. She is currently on haemodialysis.
> My husband had his fourth transplant at the age of 49 (in 1999), and
>there were certainly no suggestion that he would be taken off the list
>when he got older. They are both at St Georges Hospital in London.
>
>Also, is the consultant at Broomfield a renal consultant? If not, he may
>well not know enough about transplant surgery to give you accurate
>information. My husband and I would only accept medical information about
>renal matters from the renal team (and I speak as a consultant
>paediatrician).
>
>However I'd guess that the issue is far more likely to be that he is unfit
>for the reasons that he was turned down last year.
>
>You should also have a look at, and maybe talk to the National Kidney
>Federation. http://www.kidney.org.uk/Medical-In...ant/txhave.html
>
>This is what their FAQ says:
>Who can have a transplant?
>About 50% (one in two) of people with kidney failure are suitable for a
>transplant, provided a suitable donor kidney can be found. People who will
>probably not be considered suitable include those with serious heart
>disease or who have recently had cancer.
>
>Most renal units do not have an age limit for kidney transplantation.
>People are considered on merit (ie their suitability for a transplant),
>rather than age. However, having said that, most units would think very
>seriously before transplanting someone over 65 years old. The main reason
>is that older people often do not tolerate the transplant operation very
>well. Also, the drugs that are needed after a transplant are often too
>strong for older people.
>
>Doctors do not feel that transplants can be given to anyone who wants one,
>whatever the risks. This is because there is a shortage of kidneys for
>transplants, and so transplants should not be wasted. Also, a kidney given
>by a donor family should be used as carefully as possible, respecting
>their gift. Therefore, if someone with kidney failure wanted a transplant,
>even knowing there would be a high chance of dying after a risky
>operation, doctors may feel this is not ethical and can refuse to put
>someone on the transplant list.
>-------------------------------------------------------------------------
>Ruth McTighe
>London UK
>
>In article <cvv0vr$517$1@news6.svr.pol.co.uk>, mrrichardarcher@nospam.com
>(Richard Archer) wrote:
>
| |
| Homefinders 2005-03-23, 5:44 pm |
| Why not donate one of your kidneys if you are the same blood type? First
I've ever heard of transplant cut off age of 45. Usually its around the 60
to 65 age group.
My "transplant twin" was a bloke in his 60's.
Judanne
Tasmania
"Chris" <thame@dialstart.net> wrote in message
news:f5i321pe6ntjrfs801s562k10shv0812dk@4ax.com...
> Are u in the UK? My partner is on hemo permanently after getting
> peritonis and his stomach cannot be used anymore. We are getting the
> runaround from the transplant team who tell us that the cut off point
> for a transplant is 45. My partner is 42. Considering is takes up to
> 2 years to get a transplant it doesnt leave a lot of time. I would be
> interested on your comments.
>
> On 26 Feb 2005 10:18:24 -0800, tanner.jones@gmail.com wrote:
>
>
| |
|
| Judanne,
This a reply to a message from 4 weeks ago, Is email that slow to/from
Tasmania ??? :-)
Alan
Homefinders wrote:
> Why not donate one of your kidneys if you are the same blood type? First
> I've ever heard of transplant cut off age of 45. Usually its around the 60
> to 65 age group.
>
> My "transplant twin" was a bloke in his 60's.
>
> Judanne
> Tasmania
>
> "Chris" <thame@dialstart.net> wrote in message
> news:f5i321pe6ntjrfs801s562k10shv0812dk@4ax.com...
>
>
>
| |
| Homefinders 2005-03-23, 5:44 pm |
| No, I just don't check in that often.
Judanne
"Alan" <usuk@nyc.rr.com> wrote in message
news:3qU%d.50626$534.35060@twister.nyc.rr.com...[vbcol=seagreen]
> Judanne,
> This a reply to a message from 4 weeks ago, Is email that slow to/from
> Tasmania ??? :-)
> Alan
>
>
> Homefinders wrote:
|
| |
|
|