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Home > Archive > Kidney Failure > March 2005 > nearing the end
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| Hi,
Does anyone out there have any experience with what someone goes through
with end stage renal failure? I'm nearing that point and would like to be
able to explain to my wife what to expect. This may not make any sense, my
toxin levels have got to be in the stratosphere, but I thought I would ask.
Any advice or counsel on this would be greatly appreciated.
--
Shawn
(use the "reply feature on your browser to send a private reply via E-Mail.)
| |
| Richard Archer 2005-03-19, 6:25 pm |
|
"Shawn" <me@privacy.net> wrote in message
news:GLqTd.39666$uc.17461@trnddc08...
> Hi,
> Does anyone out there have any experience with what someone goes through
> with end stage renal failure? I'm nearing that point and would like to be
> able to explain to my wife what to expect. This may not make any sense, my
> toxin levels have got to be in the stratosphere, but I thought I would
> ask. Any advice or counsel on this would be greatly appreciated.
> --
> Shawn
> (use the "reply feature on your browser to send a private reply via
> E-Mail.)
>
>
Hi Shawn,
are you going to get dialysis?
Richard
| |
|
| No, dialysis is not an option for me due to the condition of my collapsed
and very abused veins. I'm a liver transplant patient, and they have poked
me to the point that I can't be poked anymore. For any interveinous stuff, I
had to have a "port" installed in my arm through a surgical procedure, it
won't work for dialysis though. Just blood draws and IV's.
--
Shawn
(use the "reply feature on your browser to send a private reply via E-Mail.)
"Richard Archer" <mrrichardarcher@nospam.com> wrote in message
news:cvleud$948$1@newsg4.svr.pol.co.uk...
>
> "Shawn" <me@privacy.net> wrote in message
> news:GLqTd.39666$uc.17461@trnddc08...
>
> Hi Shawn,
>
> are you going to get dialysis?
>
> Richard
>
| |
| Larry Krzewinski 2005-03-19, 6:25 pm |
| On Thu, 24 Feb 2005 22:01:58 GMT, "Shawn" <me@privacy.net> wrote:
>No, dialysis is not an option for me due to the condition of my collapsed
>and very abused veins. I'm a liver transplant patient, and they have poked
>me to the point that I can't be poked anymore. For any interveinous stuff, I
>had to have a "port" installed in my arm through a surgical procedure, it
>won't work for dialysis though. Just blood draws and IV's.
They can do dialysis in your legs if all else fails and they can also
install a carotid access. You may even get put to the top of the list
for an emergency kidney transplant. I've seen that done in the past
when a woman ran out of available access points. She is doing great
with her transplanted kidney. She got the kidney in less than one
week.
Are you listed for a kidney transplant? If not, you should be and the
sooner the better. I have both a liver and a kidney transplant. My
liver failed due to Hepatitis A and my kidneys failed at the same time
due to hepatorenal syndrome. I was on Hemodialysis almost nine years
before I received my kidney transplant. Over four of those years were
due to one doctor that said a kidney transplant would kill me. He was
wrong and I eventually went over his head since six other
nephrologists disagreed with him. You need to talk to a transplant
nephrologist NOW.
Larry
| |
|
| I agree with Larry on this get yourself to a transplant center and do it
fast. Just because one doctor says it won't work doesn't mean that there
are not other options. Leg accesses are not a preferred method but they do
work and I've known a couple of people who have had them without any
problems. For myself if and when this kidney fails don't expect to get a
good working arm graft of any kind and expect that a leg graft is the route
to go for me.
Celeste
"Larry Krzewinski" <Feerless_Freep@madmagazine.com> wrote in message
news:bn0t11dmr15uinbl1ltnn7ht4n0tcevvri@4ax.com...
> On Thu, 24 Feb 2005 22:01:58 GMT, "Shawn" <me@privacy.net> wrote:
>
poked[vbcol=seagreen]
stuff, I[vbcol=seagreen]
it[vbcol=seagreen]
>
> They can do dialysis in your legs if all else fails and they can also
> install a carotid access. You may even get put to the top of the list
> for an emergency kidney transplant. I've seen that done in the past
> when a woman ran out of available access points. She is doing great
> with her transplanted kidney. She got the kidney in less than one
> week.
>
> Are you listed for a kidney transplant? If not, you should be and the
> sooner the better. I have both a liver and a kidney transplant. My
> liver failed due to Hepatitis A and my kidneys failed at the same time
> due to hepatorenal syndrome. I was on Hemodialysis almost nine years
> before I received my kidney transplant. Over four of those years were
> due to one doctor that said a kidney transplant would kill me. He was
> wrong and I eventually went over his head since six other
> nephrologists disagreed with him. You need to talk to a transplant
> nephrologist NOW.
>
> Larry
| |
| Richard Archer 2005-03-19, 6:25 pm |
|
"Shawn" <me@privacy.net> wrote in message
news:q9sTd.17037$uc.16314@trnddc09...
> No, dialysis is not an option for me due to the condition of my collapsed
> and very abused veins. I'm a liver transplant patient, and they have poked
> me to the point that I can't be poked anymore. For any interveinous stuff,
> I had to have a "port" installed in my arm through a surgical procedure,
> it won't work for dialysis though. Just blood draws and IV's.
>
Shawn,
There is also another kind of dialysis called capd or just pd - where you
use the lining of part of yr stomach to dialyse out impurities - this is
done by filling another part of yr chest with fluid 3 times a day or so -
you don't need blood access, all you need is a small tube being inserted
into your stomach - myself I do heamodialysis and don't know much about the
pd process but if heamodialysis is really not an option (I have a problem
believing the Dr is going to let you die for want of a decent vein) then
maybe pd will work for you.
If I were you I would do a web search on pd\peritoneal dialysis in your
area.
good luck
Richard Archer
> --
> Shawn
> (use the "reply feature on your browser to send a private reply via
> E-Mail.)
>
> "Richard Archer" <mrrichardarcher@nospam.com> wrote in message
> news:cvleud$948$1@newsg4.svr.pol.co.uk...
>
>
| |
| Chuk Goodin 2005-03-19, 6:25 pm |
| On Fri, 25 Feb 2005 12:06:38 -0000, "Richard Archer" <mrrichardarcher@nospam.com> wrote:
>There is also another kind of dialysis called capd or just pd - where you
>use the lining of part of yr stomach to dialyse out impurities - this is
>done by filling another part of yr chest with fluid 3 times a day or so -
>you don't need blood access, all you need is a small tube being inserted
>into your stomach - myself I do heamodialysis and don't know much about the
>pd process but if heamodialysis is really not an option (I have a problem
>believing the Dr is going to let you die for want of a decent vein) then
>maybe pd will work for you.
>If I were you I would do a web search on pd\peritoneal dialysis in your
>area.
My daughter did PD at home for about six months (here in BC, kids go to the
head of the waiting list for transplants). We just hooked her up at 8pm
bedtime and unhooked her at 8am -- it was pretty simple. Definitely something
to look into.
--
chuk
| |
| Lizz Parsons 2005-03-19, 6:25 pm |
| I spent almost three years on PD before getting my transplant this
past August.
Please, please ask for more information about it!
In my experience, doctors are not very open in offering it to patients
who are facing dialysis... in fact, I spent a year on hemo before I
finally got fed up and did more research about PD on my own.
I felt great, had all sorts of freedom, and held steady until my time
came.
Feel free to email me if you want more info. It's just my first and
last name at yahoo dot com. (No spaces in the name)
Don't give up too easily! There are lots of options out there for you!
~Lizz Parsons
On Fri, 25 Feb 2005 12:06:38 -0000, "Richard Archer"
<mrrichardarcher@nospam.com> wrote:
>
>"Shawn" <me@privacy.net> wrote in message
>news:q9sTd.17037$uc.16314@trnddc09...
>Shawn,
>
>There is also another kind of dialysis called capd or just pd - where you
>use the lining of part of yr stomach to dialyse out impurities - this is
>done by filling another part of yr chest with fluid 3 times a day or so -
>you don't need blood access, all you need is a small tube being inserted
>into your stomach - myself I do heamodialysis and don't know much about the
>pd process but if heamodialysis is really not an option (I have a problem
>believing the Dr is going to let you die for want of a decent vein) then
>maybe pd will work for you.
>If I were you I would do a web search on pd\peritoneal dialysis in your
>area.
>
>good luck
>
>Richard Archer
>
>
>
| |
|
| So far the only relief and treatment I get is a paracentesis tap every 21
days (fourteen liters drained off at a time!!). I'll bring the idea of a PD
up to them the next time I'm in for treatment. Thanks!!
--
Shawn
(use the "reply feature on your browser to send a private reply via E-Mail.)
"Lizz Parsons" <nospam@yahoo.com> wrote in message
news:ek7021d6lo3q1u6bigoqke507l0mea0q6j@4ax.com...
>I spent almost three years on PD before getting my transplant this
> past August.
> Please, please ask for more information about it!
> In my experience, doctors are not very open in offering it to patients
> who are facing dialysis... in fact, I spent a year on hemo before I
> finally got fed up and did more research about PD on my own.
> I felt great, had all sorts of freedom, and held steady until my time
> came.
> Feel free to email me if you want more info. It's just my first and
> last name at yahoo dot com. (No spaces in the name)
> Don't give up too easily! There are lots of options out there for you!
> ~Lizz Parsons
>
> On Fri, 25 Feb 2005 12:06:38 -0000, "Richard Archer"
> <mrrichardarcher@nospam.com> wrote:
>
>
| |
|
| I have lost my mom at 57 years old and my grandfather (her dad) at 86, both
of end stage R.F.
I sat with both of them to the end.
My BIGGEST concern was that they not suffer. I was emphatic in regards to
their comfort, with everyone on their care team (attending physicians and
nurses). I was assured that they would go quietly, peacefully and without
pain or suffering.
My grandfather passed in 1983 at the VA hospital in St.Petersburg FL. I was
very close to being thrown out of ICU due to my ranting because I was told
that heavy doses of morphine or other numbing drugs would not make him
anymore comfortable. Well, he told me near the very end that he actually
felt euphoric? He went very calmly (to my surprise).
Three years later when my mother passed of Renal Failure I was a little more
prepared as to what to expect concerning her pain and suffering and as with
my grandfather she seemed to go very peacefully also without the need for
heavy narcotics or other drugs. In researching what happens in the human
body when one passes from end stage renal failure, the toxins which build up
in the bloodstream have an extreme sedative/hypnotic effect on the central
nervous system to keep the patient painless and pretty much out of it as to
keep the suffering at a minimum.
I appologize for the way I presented this reply, but I felt that I needed to
state my experiences (with my beloved mom and her father) as truthfully as I
possibly could.
I, myself just found out on February 16th that I am in the beginning stages
of renal failure also.
I'm 53 years old and have had diabetes since 1999. I have had an extremely
hard time controlling my blood sugar and am on 3 different medications for
my diabetes and also take Lipitor for my high cholesterol and Zestril for my
hypertension.
I've been on anti hypertensive medications since 1973 (I've had high
bloodpressure since I was 21 years old).
I made a huge mistake several years ago when I went on the Atkins diet (high
protein). That wreaked havoc with my kidneys and most likely facilitated my
kidney disease sooner than I would have developed it otherwise.
I started his diet in an attempt to try and postpone diabetes and heart
problems. Instead, I probably did the worst thing I could have possibly done
for myself?
May God bless you and others that are facing these situations. I can only
pray that the scientific medical community will soon discover a cure for
these Illnesses.
Rick
"Shawn" <me@privacy.net> wrote in message
news:GLqTd.39666$uc.17461@trnddc08...
> Hi,
> Does anyone out there have any experience with what someone goes through
> with end stage renal failure? I'm nearing that point and would like to be
> able to explain to my wife what to expect. This may not make any sense, my
> toxin levels have got to be in the stratosphere, but I thought I would
> ask. Any advice or counsel on this would be greatly appreciated.
> --
> Shawn
> (use the "reply feature on your browser to send a private reply via
> E-Mail.)
>
>
| |
|
| In article <WLOdnQFJ16Ph4LvfRVn-sg@comcast.com>,
"rick" <gorwell1984@comcast.net> wrote:
> I, myself just found out on February 16th that I am in the beginning stages
> of renal failure also.
> I'm 53 years old and have had diabetes since 1999. I have had an extremely
> hard time controlling my blood sugar and am on 3 different medications for
> my diabetes and also take Lipitor for my high cholesterol and Zestril for my
> hypertension.
> I've been on anti hypertensive medications since 1973 (I've had high
> bloodpressure since I was 21 years old).
>
> I made a huge mistake several years ago when I went on the Atkins diet (high
> protein). That wreaked havoc with my kidneys and most likely facilitated my
> kidney disease sooner
Probably not, though. I became diabetic in 2000 after a course of
prednisone, and have maintained excellent control of my glucose ever
since (HbA1C 6%). When I had a kidney biopsy two years later for the
proteinuria that began before I was diabetic, I was found to have very
early diabetic nephropathy in addition to the advanced FSGS that is
causing my kidney failure. With diabetes, you can do everything right
but that only *reduces* the risk of complications, not eliminates the
risk. Diabetes and high blood pressure are the two leading causes of
kidney disease and renal failure, not fad diets.
Additonally, several studies my nephrologist showed me (but I don't have
on hand) show that low-protein diets do not delay the progress of kidney
disease, and Atkins-like diets do not cause renal failure (they can lead
to uric acid stones in some, though).
--
"Did Father shoot him? I will eat Grandfather for dinner."
- Helen Keller, on learning of the death of her grandfather
| |
| Larry Krzewinski 2005-03-19, 6:25 pm |
| On Wed, 02 Mar 2005 18:22:26 GMT, "Shawn" <me@privacy.net> wrote:
>So far the only relief and treatment I get is a paracentesis tap every 21
>days (fourteen liters drained off at a time!!). I'll bring the idea of a PD
>up to them the next time I'm in for treatment. Thanks!!
Shawn,
Unless things have changed a lot people who have had a liver
transplant are usually not considered eligible for peritoneal dialysis
due to excess scarring of the peritoneum caused by the liver
transplant surgery. It won't hurt to inquire about it, of course, but
I was told I wasn't a candidate for that very reason.
Larry
| |
| superdude77777@hotmail.com 2005-03-19, 6:25 pm |
| 1. You piss a great deal (every 1/2 hour or so)
2. You get nose bleeds (anemia)
3. You get extremely lethargic
4. You slur your speech
5. You stop eating, and when you do, it comes back up.
6. You get unexplained balck and blue marks (anemia again)
7. You fell dizzy all the time
8. You pray for the sweet,sweet embrace of death on a minute to minute
basis
Hope this was a help
| |
|
| Yeah, thanks.
--
Shawn
(use the "reply feature on your browser to send a private reply via E-Mail.)
<superdude77777@hotmail.com> wrote in message
news:1110251197.132514.261200@g14g2000cwa.googlegroups.com...
> 1. You piss a great deal (every 1/2 hour or so)
> 2. You get nose bleeds (anemia)
> 3. You get extremely lethargic
> 4. You slur your speech
> 5. You stop eating, and when you do, it comes back up.
> 6. You get unexplained balck and blue marks (anemia again)
> 7. You fell dizzy all the time
> 8. You pray for the sweet,sweet embrace of death on a minute to minute
> basis
>
> Hope this was a help
>
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