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Author Good resources for low-protein/kidney disease diet?
jjmoreta

2004-10-03, 10:22 pm

My father has had PKD (polycystic kidney disease) for several years, but
has only recently been recommended to go on a low-protein diet, after
his doctors discovered that he had been on a low-carb diet (he didn't
realize the significance of what it would do to his kidneys, but he did
lose 40 lbs). I'm a little surprised he wasn't sent to a nutritionist,
but we're left to find information out on our own.

Do any of you have any websites or books to recommend on the subject
that you may have found helpful?

Ideally he would like to maintain a lower level of carbs (as much as he
can anyways) since he has felt wonderful on the low-carb diet and felt
horrible trying to go off of it. It's sad that only now are we all
aware of what a huge difference diet can play in the progression of his
disease.

Thank you for any help that you can offer.

- Joanne
Pete

2004-10-03, 10:22 pm

My feeling is that it's irresponsible for a nephrologist to just tell a
patient to go on a low protein diet without a consultation with a renal
dietician or without some specific instructions. People always tend to go
overboard with it. Nevertheless, here are a couple of good sites than can
help you.

http://renux.dmed.ed.ac.uk/EdREN/Ed...#anchor16853690

http://www.diet-i.com/renal-diet.htm

Pierre

"jjmoreta" <jjmoreta@hotmail.com> wrote in message
news:2n5snsFtba4lU1@uni-berlin.de...
> My father has had PKD (polycystic kidney disease) for several years, but
> has only recently been recommended to go on a low-protein diet, after
> his doctors discovered that he had been on a low-carb diet (he didn't
> realize the significance of what it would do to his kidneys, but he did
> lose 40 lbs). I'm a little surprised he wasn't sent to a nutritionist,
> but we're left to find information out on our own.
>
> Do any of you have any websites or books to recommend on the subject
> that you may have found helpful?
>
> Ideally he would like to maintain a lower level of carbs (as much as he
> can anyways) since he has felt wonderful on the low-carb diet and felt
> horrible trying to go off of it. It's sad that only now are we all
> aware of what a huge difference diet can play in the progression of his
> disease.
>
> Thank you for any help that you can offer.
>
> - Joanne



Richard Archer

2004-10-03, 10:22 pm


"jjmoreta" <jjmoreta@hotmail.com> wrote in message
news:2n5snsFtba4lU1@uni-berlin.de...
> My father has had PKD (polycystic kidney disease) for several years, but
> has only recently been recommended to go on a low-protein diet, after
> his doctors discovered that he had been on a low-carb diet (he didn't
> realize the significance of what it would do to his kidneys, but he did
> lose 40 lbs). I'm a little surprised he wasn't sent to a nutritionist,
> but we're left to find information out on our own.
>
> Do any of you have any websites or books to recommend on the subject
> that you may have found helpful?
>
> Ideally he would like to maintain a lower level of carbs (as much as he
> can anyways) since he has felt wonderful on the low-carb diet and felt
> horrible trying to go off of it. It's sad that only now are we all
> aware of what a huge difference diet can play in the progression of his
> disease.
>
> Thank you for any help that you can offer.
>
> - Joanne


You really should seek expert medical advice for this...

I was on a diet of 35 grams of protein per day 20 years ago, and I guess
some expert opinion may have changed and much more information about
nutrition is available nowadays but undertaking the diet without expert help
would be difficult and dangerous.

The concept of a low protein diet is simple enough, but any diet should be
tailored around the individual concerned, with a low protein diet you have
to be careful that the little protein you do eat consists mainly of good
quality protein - there's a differnce between animal and vegetable
protein -and that being too strict or eating the wrong types of thing can
lead to problems - therefore speaking to a dietition really has to be the
first step.

If you are looking at "Renal Diets" on the web be careful not to confuse the
type of Low Protein diet required by your father - which will have a much
reduced daily protein allowance, and Diets for people on Dialysis that are
usually more relaxed about protein intake (1 gram of protein for every
kilogram of bodyweight per day) but focus on limiting Potassium, Sodium
(which everyone should do to some extent) and Phosphate.

Richard Archer


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