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| Hi there ~
I am waiting for the Neurologist to figure out why I *forgot* how to
walk about three months ago. His first guess was something called CIDP,
but an EMG revealed that this is not correct. The latest guess is
Multifocal Motor Neuropathy, and on 6/24 I had blood taken to test for
this condition.
It turns out that what needs to happen with this blood sample is
genetic testing, which is supposed to take a month or more. I have an
appointment on 7/27 to see a different neurologist for a second
opinion.
While the waiting is making me nuts, and I continue to be on medical
leave from work, what I really would like to know is what should I be
asking the neurologist when I see him? Also, since I have Lupus and
Sjogren's Syndrome, I am wondering what kind of treatments might be in
store. My neurologist stated that he would not treat me unless my
symptoms got worse, and at this point, I need to use crutches or a
walker to get around without falling. He told me that I will not be
able to return to work, and I am in the process of gathering the
information to apply for SSD.
Any suggestions about what to ask would be greatly appreciated.
Thanks ~
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