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Home > Archive > Lupus Support > September 2006 > Help
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My girlfriend was jsut told she may have Lupus
She has muscle problems..swelling with pain "flare ups" and then
disappears
I dont knopw what to do or what to say?? But Im falling apart.
I researched it on the web.
Where do I go from here?
--
"6"
"Sorry I'm not your cup of tea,but I dont mind"
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| In article <MPG.1f722fe39323fd9989d19@news-server.hvc.rr.com>, 6
<none@none.non> wrote
>
>My girlfriend was jsut told she may have Lupus
>She has muscle problems..swelling with pain "flare ups" and then
>disappears
>I dont knopw what to do or what to say?? But Im falling apart.
>
>I researched it on the web.
>Where do I go from here?
>
Not everything on the web is true...
If you go to http://www.northeastlupus.org.uk and click on "Information
on Lupus" in the box, then look at the Lupus UK Factsheets, you'll get
medically-approved information.
--
Andy Taylor [Chair, N E Lupus Group]
See http://www.northeastlupus.org.uk for more!
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| Nicole 2006-09-13, 9:27 pm |
| Here's some info that'll help
please go to the Lupus Foundation of America site www.lupus.org and read all
the information they have. It is the most current information available and
you will learn a lot!
Also, either buy or go to the library and get Dr Daniel Wallace's "The Lupus
Book" 3rd Edition and read it cover to cover.
Dr Wallace explains in layman's terms everything you need to know.... just
as the LFA does. The LFA also offers a magazine called Lupus Now which is
full of great info.
The Arthritis Foundation www.arthritis.org also has a lot of helpful
information, a magazine Arthritis Today. There are over 100 forms of
arthritis so there's a lot to learn.
The National Institute of Arthritis and Musculoskeletal and Skin Diseases
offers FREE publications. Take advantage. http://catalog.niams.nih.gov/
There is a wonderful lupus booklet which is completely free. There are many
other pieces of great info also.
Medline: Lupus
offers links to news and resources about the chronic autoimmune disease in
which the immune system, for unknown reasons, becomes hyperactive and
attacks normal tissue.
www.nlm.nih.gov/medlineplus/lupus.html
Glean your information from reliable sites such as those listed above.
I only quote from the above sites but even on this list, there can be
incorrect information and has been.
You have to be your own health care advocate. Your doctor is not going to
sit down and educate you in regards to lupus, fibro, etc. He/she doesn't
have time and most likely doesn't even know where to begin.
"6" <none@none.non> wrote in message
news:MPG.1f722fe39323fd9989d19@news-server.hvc.rr.com...
>
> My girlfriend was jsut told she may have Lupus
> She has muscle problems..swelling with pain "flare ups" and then
> disappears
> I dont knopw what to do or what to say?? But Im falling apart.
>
> I researched it on the web.
> Where do I go from here?
>
> --
> "6"
> "Sorry I'm not your cup of tea,but I dont mind"
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