Lupus Support - And today's guess ....

Author

And today's guess ....

Zuska

2006-09-13, 2:25 am

Thanks for the kind messages regarding my muscle biopsy, which was
determined to be 'inconclusive.' The neurologist went back and looked
at all the tests that have been done, and called today ~ the latest
contestant for What' Wrong With This Picture is (drum roll) Myasthenia
Gravis!

In the next two weeks, I will have another EMG (this will be my third!)
and also a 'diagnostic medication.' I was told that if I respond to
this medication, that will prove that I have MG. If not, I suppose they
will spin the Wheel of Ill Fortune to see what other possibility this
might be.

At this point, since I know that whatever is wrong is going to be a bad
thing, I believe that I hope it is MG ... after all, there is
treatments for that, and I am tired of all these tests that prove
nothing as I continue to physically waste away.

I will let you all know what the next chapter reveals ...

Susan

William R Thompson

2006-09-13, 8:25 am

"Zuska" wrote:

> Thanks for the kind messages regarding my muscle biopsy, which was
> determined to be 'inconclusive.' The neurologist went back and looked
> at all the tests that have been done, and called today ~ the latest
> contestant for What' Wrong With This Picture is (drum roll) Myasthenia
> Gravis!

Did the doctor give you any information on MG? Or ask you
about specific symptoms? The NIH site

http://www.ninds.nih.gov/disorders/...enia_gravis.htm

has this to say about symptoms:

"What are the symptoms of myasthenia gravis?

"Although myasthenia gravis may affect any voluntary muscle,
muscles that control eye and eyelid movement, facial expression,
and swallowing are most frequently affected. The onset of the
disorder may be sudden. Symptoms often are not immediately
recognized as myasthenia gravis.

"In most cases, the first noticeable symptom is weakness of the
eye muscles. In others, difficulty in swallowing and slurred
speech may be the first signs. The degree of muscle weakness
involved in myasthenia gravis varies greatly among patients,
ranging from a localized form, limited to eye muscles (ocular
myasthenia), to a severe or generalized form in which many
muscles - sometimes including those that control breathing -
are affected. Symptoms, which vary in type and severity, may
include a drooping of one or both eyelids (ptosis), blurred or
double vision (diplopia) due to weakness of the muscles that
control eye movements, unstable or waddling gait, weakness in
arms, hands, fingers, legs, and neck, a change in facial
expression, difficulty in swallowing and shortness of breath,
and impaired speech (dysarthria)."

I hope the doctor comes up with the right diagnosis.

--Bill Thompson

Zuska

2006-09-14, 8:23 am

William R Thompson wrote:

> Did the doctor give you any information on MG? Or ask you
> about specific symptoms? The NIH site
>
> I hope the doctor comes up with the right diagnosis.
>
> --Bill Thompson

Thanks Bill ~

Actually, he did not tell me what to expect other than the testing.
And, I think the reason for that is because we have already been down
that road preparing for first CIDP and then for the Multifocal Motor
Neuropathy. It is my impression that *if* this diagnosis is correct,
then we will talk about what comes next.

I did, however do a search on line, and as luck would have it, the main
office of the MG Society is right here in my area. Funny thing ...
about 15 years ago I interviewed for a job there!

So, I have an idea of some of the resources out there, and knowing that
there is an office of the MG Association within about half an hour's
drive is very reassuring.

Thanks ~

Susan aka Snowey95@aol.com

janers

2006-09-14, 9:25 pm

Prayers with you hon. I wish you the best and control of this disease. I
know a woman who has MG and did very well after having treatment and her
thymus gland removed.

YOU too will have good luck with this and God Bless you too

janers