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Home > Archive > Lupus Support > September 2006 > Re: Hundreds, in UK, misdiagnosed with MS and could have Hughes Syndrome instead
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Re: Hundreds, in UK, misdiagnosed with MS and could have Hughes Syndrome instead
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| In article <44FD8F7B.E6EB2F6E@execulink.com>, J <freeware@anon.inv>
wrote
>I saw this posted on the MS newsgroup. So no matter what country you're
>in, if you have Lupus like signs or symptoms or MS like signs or symptoms,
>make sure you're (also) properly tested for Hughes Syndrome.
>J-not expert on this. Andy? What do you make of this? that sometimes
>both tests are negative? Keep getting tested? And/or your comments?
>J
>
Can't disagree with Dr H!
http://www.northeastlupus.org.uk/factsheets/faqs18.htm says
Hughes' syndrome (antiphospholipid syndrome): This is often
called "sticky blood" in that patients have a tendency to clots,
both in the veins and arteries. The thrombosis may present
either dramatically, or over a period of time with clots in
major vessels, even including the brain. It is vital that this
diagnosis is made (a simple blood test for antiphospholipid
antibodies is available in most major hospitals). Pregnant women
who have antiphospholipid antibodies have a tendency to clot in
the placenta and develop recurrent miscarriages and these can be
prevented by diagnosis and treatment. Although this syndrome was
first discovered in lupus patients it is now recognised that
many, if not the majority of patients with Hughes' syndrome,
have no other features of lupus nor will they develop lupus in
the future.
My brain's still on holiday, but I think that there are some of the
various tests that can indeed give false negative results; dunno if
that's a test failure or if whatever-it-tests-for is not always present.
(Q: how do I get rid of this nasty rash? A: book an appointment with a
dermatologist, and when you wake up on appointment-day the rash will
have gone!)
--
Andy Taylor [Chair, N E Lupus Group]
See http://www.northeastlupus.org.uk for more!
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