|
| Hi everyone ~
On Friday, I had a muscle biopsy done. The reason is because shortly
after being diagnosed with Sjogren's Syndrome in addition to the Lupus,
I *forgot* how to walk, and eventually ended up with so much weakness
in my legs and arms that I had to take medical leave from work.
At this point, the best 'guess' is that I have managed to also acquire
a muscle wasting disease. It will take up to six weeks to get the full
results of the biopsy, so here we are with more waiting. In the
meantime, I am not taking any medication nor receiving any treatment
for the Lupus, Sjogren's or this muscle thing, simply because they
don't want to try something without knowing what they are dealing with.
Personally, I still am hoping that this is a reaction to starting
Plaquenil ~ although I have been told that if this is the case, I am
quite 'special' indeed, since according to the doctors, only about 1%
of people on long term treatment develop muscle weakness, and this
began within days of starting the medication. Of course, maybe it
started earlier and I just ignored it, as I was trying so hard to deal
with the overall fatigue.
Anyway, I was wondering if anyone else has had a muscle biopsy, and if
so, how long did it take to get any results? I have been told that some
results will be available in about a week, or ten days, or six weeks,
depending on which doctor I ask.
Currently, my biggest problem is that they did the biopsy on my 'good'
leg, because they did the EMG on the worst leg ... so now I literally
don't have a leg to stand on! This is getting better, but for the first
two days getting up and down was almost impossible.
Hope everyone is doing well ~
Susan
|
|