| Erina Herrick 2006-07-23, 4:28 pm |
| Gretchen My disease has lasted 47 years it has affected almost everything in
that time. I had a stroke in '81 and severe vasculitis in hands and feet as
well as probably in my brain. Strokes can be a part of lupus Ask for your
daughter to be tested for lupus
Kind Regards
Erina
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"Gretchen" <DGMats@earthlink.net> wrote in message
news:1145656259.241158.310840@i39g2000cwa.googlegroups.com...
> Hi Erina and Candi,
> I have had elevated CPKs and aldolase levels for about 6 months with my
> SLE. Your information about inactivity is interesting. I've noticed
> even in the morning, after being in bed all night, that the muscle pain
> is worse. Myositis can also affect smooth muscle and cause more
> serious problems.
>
> Erina, can you tell me more about your NP lupus? My 14 year old
> daughter is having migraines that look like strokes and last for weeks,
> unless she gets high doses of steroids - then the speech problems and
> partial paralysis clears up within hours of the first dose. This time
> she had some definate personality changes about a week before the
> migraine. She has tested positive for lupus autoantibodies related to
> clotting, but has not been diagnosed with lupus.
>
> Thanks in advance for the info.
>
> Gretchen
>
|