Lupus Support - New To Group,

Author

New To Group,

moonlightonly

2006-07-17, 9:25 pm

Hi my name is Tina, and I have had Lupus/APS,DVT., and P.E. for the
past 5 yrs. now.I am married with 4 grown boys, and live in IN.I am
also 41 yrs. old.I hope to get to know the people in the group and
support them as best I can,and will be looking for support too from
those that have had (The Wolf) longer than I have.Moonlightonly

Beverley

2006-07-17, 9:25 pm

Welcome!

I've got two grown girls and two granddaughters (12 & 10) and a few
step-grandchildren. I've apparently had lupus for ages but was only
diagnosed 6(?) years ago. Before that they said RA or whatever happened to
be that month's local catch word for we don't know.
Bev

"moonlightonly" <tjgarcia1965@yahoo.com> wrote in message
news:1153176446.196218.60800@p79g2000cwp.googlegroups.com...
> Hi my name is Tina, and I have had Lupus/APS,DVT., and P.E. for the
> past 5 yrs. now.I am married with 4 grown boys, and live in IN.I am
> also 41 yrs. old.I hope to get to know the people in the group and
> support them as best I can,and will be looking for support too from
> those that have had (The Wolf) longer than I have.Moonlightonly
>

Sherry

2006-07-18, 2:27 am

Hi Tina,
Welcome to the group. I have one adult son, a husband, a chocolate lab and
a queensland healer, live in CA. Have not been "well" most of my life (it
seems) but have only been dx'ed with Lupus and Fibromyalgia for about 8 yrs
now.

Hugs,
Sherry

Ruth Tay

2006-07-18, 2:27 am

In article <1153176446.196218.60800@p79g2000cwp.googlegroups.com>,

"moonlightonly" <tjgarcia1965@yahoo.com> wrote:

Hi Tina,

Lupus has been with me for 25 years and I still can not accept it. When
reading fairy stories to my Grandchildren I want all the magic wand
stuff that might cure this disease. Lately was diagnosed with
schlerderma too. I work part time now because there are things
that can be done in the house when I can't go out. Sun is my biggest
enemy and despite hats, gloves, sun blocking clothing and sun screen
the sun still causes flares. Live in Northern California on the coast
and we are blessed with cool weather and fog. Still can't go out
because of the high UV rays. There are many in this group who
really do research and have more knowledge than I do. They
have helped through some really tough times. Welcome to the group

ruth
> Hi my name is Tina, and I have had Lupus/APS,DVT., and P.E. for the
> past 5 yrs. now.I am married with 4 grown boys, and live in IN.I am
> also 41 yrs. old.I hope to get to know the people in the group and
> support them as best I can,and will be looking for support too from
> those that have had (The Wolf) longer than I have.Moonlightonly

Shelagh

2006-07-18, 4:26 pm

> Hi my name is Tina, and I have had Lupus/APS,DVT., and P.E. for the
> past 5 yrs. now.I am married with 4 grown boys, and live in IN.I am
> also 41 yrs. old.I hope to get to know the people in the group and
> support them as best I can,and will be looking for support too from
> those that have had (The Wolf) longer than I have.Moonlightonly

Welcome Tina,=20
Hopefully you will be able to find some support and even some comfort =
here with our peeps in this forum; it is a good group of people who =
compliment each other in ways that work for all of us; as some do the =
research and some have the knowledge in their heads from experience with =
the illness and then others are just the real mcCoys who know how to =
comfort and send prayers and then too all the rest of the group who are =
great listeners and posters;
and we all are here for the same reason: support, support and more =
support! lol, so true!!
Any questions or comments you may have are very welcome to all of us and =
you too will probably find yourself on the other end of the equation, =
able to comfort someone else who is newly having symptoms you may have =
had in your past; that is how this group works.... it is symbiotic in =
many ways and I will hope that you can find some solace and peace just =
by reading through our posts, old and new!
Stay well, be very careful with the sun especially at this time of year =
and most of all, I am sending wishes of happiness for you!
hugs from Shelagh
http://clik.to/lupus

moonlightonly

2006-07-20, 4:29 pm

Shelagh wrote:
>
> Welcome Tina,
> Hopefully you will be able to find some support and even some comfort here with our peeps in this forum; it is a good group of people who compliment each other in ways that work for all of us; as some do the research and some have the knowledge in their
heads from experience with the illness and then others are just the real mcCoys who know how to comfort and send prayers and then too all the rest of the group who are great listeners and posters;
> and we all are here for the same reason: support, support and more support! lol, so true!!
> Any questions or comments you may have are very welcome to all of us and you too will probably find yourself on the other end of the equation, able to comfort someone else who is newly having symptoms you may have had in your past; that is how this grou
p works.... it is symbiotic in many ways and I will hope that you can find some solace and peace just by reading through our posts, old and new!
> Stay well, be very careful with the sun especially at this time of year and most of all, I am sending wishes of happiness for you!
> hugs from Shelagh
> http://clik.to/lupus