Lupus Support - Joint pain lupus Dx.

Author

Joint pain lupus Dx.

kassie

2006-06-28, 4:26 pm

Would like to know what others do when they have a Lupus flare up, for pain
and discomfort. What works and doesn't work?

Shelagh

2006-06-29, 2:27 am

Hi kassie:
Just check out my website....=20
http://clik.to/lupus
As it has a section on lupus and pain and treatments for lupus ... all =
the meds are listed and some of us see pain specialists for managing =
chronic pain for various reasons.... There are many choices available =
and no one should have to live day by day with ongoing pain...
Good luck and get back to me personally if you like with any more =
questions you don't want to put out in the public domain... if there are =
any i am here to answer... i have had lupus since being a pre teen and =
am now 54 this year soon!
so know all about it 'all' pretty much.. it has been a rough and rocky =
journey but so far i am living a quality lifestyle in retirement with my =
husband; anything is open for discussion.. just fire away!
Good luck to you too!
--=20
hugs,
Shelagh
http://clik.to/lupus
"kassie" <u23554@uwe> wrote in message news:627693a588951@uwe...
> Would like to know what others do when they have a Lupus flare up, for =
pain
> and discomfort. What works and doesn't work?

Nicole

2006-06-29, 8:28 am

Hi Kassie
Lupus is so different for each of us. I was dx'd 10 yrs ago after having my
first child. I'm 30 now and deal with much more pain now than all those
years before. I see a family physician who practices pain managment.... I'm
using a long acting opioid and then a short acting for break thru pain.
I've only needed this in the last couple of years... before that, I was able
to get by using Darvocet, high doses of NSAIDs, Ultram, T3's or Vicoden.
Eventually, I was using 12 Norco (10mgs hydrocodone/325mgs apap aka
tylenol)... this is when I progressed to the pure opioid.

I refuse to use steroids for pain control as so many rheumatologists do.
I also take muscle relaxers, an anti-depressant, sleep meds, etc, etc,
etc.... it's a nasty circle.

You need a dr who you can work with and who understands you. You deserve a
great doctor.
The American Pain Foundation has great information
www.painfoundation.org
They also have a pain notebook which many find extremely beneficial.
http://www.painfoundation.org/page....ions/Target.htm

More APF Publications
http://www.painfoundation.org/page....tions/Index.htm

If you're new to lupus, I can send you some great info that I've collected
over the years.
Take care
Nicole
"kassie" <u23554@uwe> wrote in message news:627693a588951@uwe...
> Would like to know what others do when they have a Lupus flare up, for
> pain
> and discomfort. What works and doesn't work?