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Home > Archive > Lupus Support > June 2006 > SSI...HELP
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| Hi Everyone,
I have learned a lot by reading all of your post and it has help me a
great deal.
Does anyone have a site or information on how to go about getting ssi
for lupus?
I have not been able to hold a job in 6 years and I am tried of not
having money to pay for pills and dr...so I am not on pills or going to
see a dr any more. We don't have insurance either.
Can anyone help me on this?
Thank you,
Linda
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| Sherry 2006-06-15, 4:26 pm |
| Linda,
I'm not sure how the SSI works and their are several who will reply soon who
have been there and done that. I know that when I got around to applying
for social security disability I was told that I no longer had enough
"points" to qualify. I had stopped working several years before I found the
energy and strength to start the process. I had worked since I was in High
School with a few years taken off after marriage and coming to CA but
started working again when my son started school. So had worked most of my
"adult" life. I didn't look into it any further.
Good luck!!!!
Hugs,
Sherry
"Linda" <nina422@webtv.net> wrote in message
news:15528-44918C67-181@storefull-3217.bay.webtv.net...
> Hi Everyone,
>
> I have learned a lot by reading all of your post and it has help me a
> great deal.
>
> Does anyone have a site or information on how to go about getting ssi
> for lupus?
>
> I have not been able to hold a job in 6 years and I am tried of not
> having money to pay for pills and dr...so I am not on pills or going to
> see a dr any more. We don't have insurance either.
>
> Can anyone help me on this?
>
> Thank you,
> Linda
>
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| janers 2006-06-15, 4:26 pm |
| Hi Linda
If you worked under SS then you accumulate points and with that they
determine HOW much if any you get on SSD.
To begin, you need to contact you SS office near you or go on line. I
suggest you contact the local. Works a little easier.
They will either set up an appointment with you or want to interview you one
the phone sometimes.
once you find you quality for SSD and have enough points or credit, don't
know what they call it now a days LOL.
But they will tell you there are forms to fill out. All your meds and
Have handy a LIST of doctors you have seen and are seeing, that is everyone
you can remember. make that list. Also make that list of hospitalizations,
and office visits and xrays, tests and what not. They will need all the
informattion you can give them. I mean a lot of it.
IF you go to the office, you will be asked to fill them papers out and You
write all you can think of.
Then they ask you what you did for a living before you became disabled and
why you can not function. THis is a must on how you word it and what you
put down now, remember that. More the better they told me. even if you
fill out some back pages on what you write.
Some questions may seem easy and stupid but they mean a lot. Again the
more you write is good.
Even though you are not seeing a doc now, write the last one you saw and
why. If you can remember diagnosis that is good too. IF not call them docs
and get it from them....
Most of the time a case worker will help you on this, so that helps.
They will tell you that you need to put down a date that you became disabled
and you said 6 yrs?? so write that.
Talk talk talk to them. IF you do not get SSD on the first try, try again.
If you are not on meds for lupus, what are you doing? Are you not seeing a
doc due to insurance??
hope this helps some
good luck, let us know
janers
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| In article <T9udnVLkVOCSXAzZnZ2dnUVZ_q-dnZ2d@bright.net>, janers
<rojakort@bright.net> wrote
[]
>Then they ask you what you did for a living before you became disabled and
>why you can not function. THis is a must on how you word it and what you
>put down now, remember that. More the better they told me. even if you
>fill out some back pages on what you write.
>
It's probably similar to the UK system, in that on those forms you must
say how bad you are when you're bad, not how good on a good day. Paint
it black; it's their job to whiten it.
--
Andy Taylor [Chair, N E Lupus Group]
See http://www.northeastlupus.org.uk for more!
| |
| Sherry 2006-06-15, 9:26 pm |
| Love it! reminds me of a song cept colors are red and black.
> Paint it black; it's their job to whiten it.
> --
> Andy Taylor [Chair, N E Lupus Group]
> See http://www.northeastlupus.org.uk for more!
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| SuperLupus@gmail.com 2006-06-15, 9:26 pm |
| SSI can notoriously take a very long time (they say 6mo but count on
9ish), so get your paperwork rolling ASAP. If approved they'll back pay
from date of application.
Don't know your geographical situation, but in CA we have county health
care seperate from State and Federal (SSI being federal and Disability
is genereally managed by state). It's set up as a clinic for your
primary but they also contract with specialists like rheumys to take
care of the good stuff like us! They will generally have a dispensery
that can provide medications either free or very low cost.
I know it's not as appealing as your own insurance/docs, but if it gets
you through the application process healthy... Well, good luck. Might
be woth a meander through the Gov. section in the phone book.
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| Thank you for all your reply, I have a long way to go and right now they
are telling me I don't have enough credit cause I haven't been working
so now I have to go for ssdi I think that is what it called.
I live in Shippensburg Pa anyone else around this area?
Again thanks,
Linda
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