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Home > Archive > Lupus Support > June 2006 > went to the doc, finally
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went to the doc, finally
|
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| Nicole 2006-06-09, 4:27 pm |
| As you know, I've been having water retention problems.... pain management
doctor blew it off, saying it was the opioids. I wasn't satisfied w/this
answer. Said no diuretic would be rx'd until water was weeping from my
pores. HOLY COW!
See my primary doc and he's not happy. He's limited my sodium intake to
2000mg/day, put me on a diuretic and we're waiting for blood work.
Happy happy joy joy.
Let you know what I find out
Nicole
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| Steveo 2006-06-09, 4:27 pm |
|
Good monrning Nicole, I have this problem also. My legs and feet got
so big that they hurt and I could only wear sneakers without laces and
large sweat pants. MY rhumy put me on Furosimite at 40mg immediately
and it did not work very well so my Kidney doc put me on 80-120mg and
that finally took off the water weight. I lost 28lbs from diaretics
alone in the last two months. I would not be happy if my doc had told
me he was going to wait until the water is coming out of my pores
before he would do something. The pain in the legs is bad enough let
alone the self esteem issues. I hope you get what you need and feel
better soon. Remeber it is your body not theirs and you have a right
to demand treatment, sometimes being an educated PITA is just what the
doctors need 
-Steve
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| Steveo 2006-06-09, 4:27 pm |
|
Good monrning Nicole, I have this problem also. My legs and feet got
so big that they hurt and I could only wear sneakers without laces and
large sweat pants. MY rhumy put me on Furosimite at 40mg immediately
and it did not work very well so my Kidney doc put me on 80-120mg and
that finally took off the water weight. I lost 28lbs from diaretics
alone in the last two months. I would not be happy if my doc had told
me he was going to wait until the water is coming out of my pores
before he would do something. The pain in the legs is bad enough let
alone the self esteem issues. I hope you get what you need and feel
better soon. Remeber it is your body not theirs and you have a right
to demand treatment, sometimes being an educated PITA is just what the
doctors need
-Steve
| |
| Shelagh 2006-06-09, 4:27 pm |
| Nicole get yourself to another doc! or something!
I just went through all that too, well last xmass but it has lasted till =
now; and still i am on the diuretic and 3 cardiac pills... it wasn't a =
fun episode and my bp was zooming along with tachycardia going on and =
very short of breath.... it may not be your heart... but it may be your =
renal system and that is just as crucial ... and if not that then it =
just may be meds and joints from the illness you are living with... =
regardless it should be treated!!... all that fluid.. (I had over 12 =
pounds and more come off with the pills and I still have about 7 pounds =
to go by the looks of it!)... my cardiac function is much better since =
seeing the specialist, undergoing all his testing and onto the new meds =
and I am not short of breath now.. BUT i am still on the diuretic with a =
watchful PCP on my bp and my retention as well as lab values like sodium =
and all... i am also on a sodium restrictive diet and h2O restricted =
intake! these things do matter and you must know that it isn't gonna =
come seeping out your pores? bad joke by the doc! not even funny!!
CHF is not a joke and nor are renal issues of any type!!! BTDT on all =
counts!!
Just keep pushing your docs and don't take NO for an answer!! ok?
hugs (((nicole))),
Shelagh
http://clik.to/lupus
"Nicole" <me@hotmail.com> wrote in message =
news:76fig.385$MF6.180@tornado.socal.rr.com...
> As you know, I've been having water retention problems.... pain =
management=20
> doctor blew it off, saying it was the opioids. I wasn't satisfied =
w/this=20
> answer. Said no diuretic would be rx'd until water was weeping from =
my=20
> pores. HOLY COW!
>=20
> See my primary doc and he's not happy. He's limited my sodium intake =
to=20
> 2000mg/day, put me on a diuretic and we're waiting for blood work.
> Happy happy joy joy.
>=20
> Let you know what I find out
> Nicole=20
>=20
>
| |
| Beverley 2006-06-09, 9:25 pm |
| I'm with Shelagh on this - get another doc!!
2000 mg/day for sodium isn't hard to do but that is not going to do much for
you unless you are a heavy salt user!
Bev
"Shelagh" <valleylupus@hotmail.com> wrote in message
news:pThig.1364$IK3.964@pd7tw1no...
Nicole get yourself to another doc! or something!
I just went through all that too, well last xmass but it has lasted till
now; and still i am on the diuretic and 3 cardiac pills... it wasn't a fun
episode and my bp was zooming along with tachycardia going on and very short
of breath.... it may not be your heart... but it may be your renal system
and that is just as crucial ... and if not that then it just may be meds and
joints from the illness you are living with... regardless it should be
treated!!... all that fluid.. (I had over 12 pounds and more come off with
the pills and I still have about 7 pounds to go by the looks of it!)... my
cardiac function is much better since seeing the specialist, undergoing all
his testing and onto the new meds and I am not short of breath now.. BUT i
am still on the diuretic with a watchful PCP on my bp and my retention as
well as lab values like sodium and all... i am also on a sodium restrictive
diet and h2O restricted intake! these things do matter and you must know
that it isn't gonna come seeping out your pores? bad joke by the doc! not
even funny!!
CHF is not a joke and nor are renal issues of any type!!! BTDT on all
counts!!
Just keep pushing your docs and don't take NO for an answer!! ok?
hugs (((nicole))),
Shelagh
http://clik.to/lupus
"Nicole" <me@hotmail.com> wrote in message
news:76fig.385$MF6.180@tornado.socal.rr.com...
> As you know, I've been having water retention problems.... pain management
> doctor blew it off, saying it was the opioids. I wasn't satisfied w/this
> answer. Said no diuretic would be rx'd until water was weeping from my
> pores. HOLY COW!
>
> See my primary doc and he's not happy. He's limited my sodium intake to
> 2000mg/day, put me on a diuretic and we're waiting for blood work.
> Happy happy joy joy.
>
> Let you know what I find out
> Nicole
>
>
| |
| Nicole 2006-06-10, 4:27 pm |
| Why would I need another dr?
Right now, I'm completely satisfied w/the care I'm receiving.
My pcp ran a bunch of blood work, gave me a diuretic and is seeing me next
week.
He said the average person consumes over 7000 grams of sodium/day... so
limiting it, will help since sodium causes water retention despite what's
going on. Even if it's heart or kidney, sodium still needs to be limited in
most cases.
I have low to average blood pressure right now. On meds (for years now for
the tachycardia). I know I don't have CHF. Have no symptoms (but have had
2 dogs w/it and the symptoms and meds are the same)
Actually, did you know the fluid really will seep out your pores? Pain doc
said there's been many patients in this month with oozing. Eww. He really
pissed me off tho acting like my "minor" swelling wasn't a big deal despite
the pain it was causes (considering it causes pain itself then causes the
joints to hurt more).
I do appreciate the concern and understand where you're coming from.... if
I'm not satisfied w/my next appt, I will find someone else.
I'll be happy when my clothes fit again.... do you know how depressing it is
when your "fat" clothes don't fit????
Ugh
Nicole
"Beverley" <beverly.brown28@verizon.net> wrote in message
news:%Rpig.6001$Bj6.4569@trnddc08...
> I'm with Shelagh on this - get another doc!!
>
> 2000 mg/day for sodium isn't hard to do but that is not going to do much
> for
> you unless you are a heavy salt user!
> Bev
>
>
> "Shelagh" <valleylupus@hotmail.com> wrote in message
> news:pThig.1364$IK3.964@pd7tw1no...
> Nicole get yourself to another doc! or something!
> I just went through all that too, well last xmass but it has lasted till
> now; and still i am on the diuretic and 3 cardiac pills... it wasn't a fun
> episode and my bp was zooming along with tachycardia going on and very
> short
> of breath.... it may not be your heart... but it may be your renal system
> and that is just as crucial ... and if not that then it just may be meds
> and
> joints from the illness you are living with... regardless it should be
> treated!!... all that fluid.. (I had over 12 pounds and more come off with
> the pills and I still have about 7 pounds to go by the looks of it!)... my
> cardiac function is much better since seeing the specialist, undergoing
> all
> his testing and onto the new meds and I am not short of breath now.. BUT i
> am still on the diuretic with a watchful PCP on my bp and my retention as
> well as lab values like sodium and all... i am also on a sodium
> restrictive
> diet and h2O restricted intake! these things do matter and you must know
> that it isn't gonna come seeping out your pores? bad joke by the doc! not
> even funny!!
> CHF is not a joke and nor are renal issues of any type!!! BTDT on all
> counts!!
> Just keep pushing your docs and don't take NO for an answer!! ok?
> hugs (((nicole))),
> Shelagh
> http://clik.to/lupus
>
> "Nicole" <me@hotmail.com> wrote in message
> news:76fig.385$MF6.180@tornado.socal.rr.com...
>
>
| |
|
| In article <gOzig.10941$uy3.4361@tornado.socal.rr.com>, Nicole
<me@hotmail.com> wrote
>Why would I need another dr?
>Right now, I'm completely satisfied w/the care I'm receiving.
>My pcp ran a bunch of blood work, gave me a diuretic and is seeing me next
>week.
>
>He said the average person consumes over 7000 grams of sodium/day...
Somehow I doubt this... that would be over 15 pounds. I suspect he meant
7000 milligrams, ie 7 grams.
--
Andy Taylor [Chair, N E Lupus Group]
See http://www.northeastlupus.org.uk for more!
| |
| Nicole 2006-06-11, 9:26 pm |
| Sorry, I did mean to type milligrams
"Andy" <andy@kitzbuhel.demon.co.uk> wrote in message
news:zefzgyETFuiEFw9O@kitzbuhel.demon.co.uk...
> In article <gOzig.10941$uy3.4361@tornado.socal.rr.com>, Nicole
> <me@hotmail.com> wrote
>
> Somehow I doubt this... that would be over 15 pounds. I suspect he meant
> 7000 milligrams, ie 7 grams.
> --
> Andy Taylor [Chair, N E Lupus Group]
> See http://www.northeastlupus.org.uk for more!
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