| Maggie 2006-06-04, 9:30 am |
| I.teach.K@gmail.com wrote:
> My friend is just about going crazy because a dermatologist (at Kaiser)
> has diagnosed her daughter with possible Discoid Lupus. (She's 2 years
> old.) Doctor seems to think it's no big deal, and that she should just
> use sunblock. My friend then did some research on the internet, saw
> some of the pictures of scarring and hairloss, and read that she could
> later develop Systemic Lupus; Thus the freaking out. She tested
> negative for systemic, but they didn't want to do a biopsy of the welts
> because they were all on
> her little face. The pediatricians she has seen have diagnosed various
> things. (Food allergies, eczema, etc.) If you have any advice on
> steps she should take, she would greatly appreciate it.
>
> The rash on her face has been appearing on and off for quite a few
> months. There is absolutely no scarring when they go away. The last
> outbreak occurred right after applying a different sunblock than usual
> (Coppertone). Her other outbreaks have occurred out of the blue. She
> practically had to beg to get the dermatologist to schedule a chemical
> allergy test. Food allergy tests all came out negative. Are there any
> specific places she could go to get reliable information? Thank you in
> advance for any advice you can give.
>
> Tia Rubio
> i dot teach dot k @ gmail dot com
Tia,
I don't really know much about this, but it seems to me that the first
step is getting a doctor that cares about this child. If the mother is
frustrated with this physician and is able to, financially...check out
the childrens hospital maybe?? Childrens hospitals often have outside
financial support also, so they may be more apt to do tests when some
doctors balk because of insurance or money issues.
I hope someone here can help you.
Maggie
|