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Home > Archive > Lupus Support > May 2006 > help!
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| David.Campfield 2006-04-30, 6:29 pm |
| I am actually a Multiple Sclerosis sufferer and have a friend who was told
she also had MS around a year ago and was about to start Beta Interferon
treatment. However, last week she was told that it may be MS that she has
but Lupus cannot be ruled out although a final diagnosis has yet to be made.
Whilst I am fairly up on MS Info, Lupus is new to me and although I/we have
found much on the web there doesn't seem to be much info as to whether Lupus
can be potentially as physically disabling as MS can. Also, is there any
support for Lupus in the UK like there is for MS in the form of the MS
Society?
Any feedback gratefully appreciated
Dave
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| Sherry 2006-05-01, 1:25 am |
| Welcome to the group. Weekends are usually pretty qiet but the UK members
of the group will be posting an answer to your questions soon.
There is a really good book about Lupus written by Daniel J Wallace, MD (
The Lupus Book get the 2nd or 3rd Edition) who is a leading authority on the
disease. I imagine you can check a copy out at your local library or the
purchase price is around $20.00. It truly is a helpful and informative
book.
If you see a post on the board by Andy....read his post and click on his
links. That should get you UK info.
Once again welcome to the group and hang around and join in. This is really
a great group of people and having Lupus or a diagnosis of Lupus is not
needed to hang out and find support for your autoimmune and other illnesses.
Sherry
"David.Campfield" <david.campfield@btinternet.com> wrote in message
news:X-CdnWKtEeT9iMjZRVnyrQ@bt.com...
>I am actually a Multiple Sclerosis sufferer and have a friend who was told
>she also had MS around a year ago and was about to start Beta Interferon
>treatment. However, last week she was told that it may be MS that she has
>but Lupus cannot be ruled out although a final diagnosis has yet to be
>made.
>
> Whilst I am fairly up on MS Info, Lupus is new to me and although I/we
> have found much on the web there doesn't seem to be much info as to
> whether Lupus can be potentially as physically disabling as MS can. Also,
> is there any support for Lupus in the UK like there is for MS in the form
> of the MS Society?
>
> Any feedback gratefully appreciated
>
> Dave
>
>
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| David.Campfield wrote:
> I am actually a Multiple Sclerosis sufferer and have a friend who was told
> she also had MS around a year ago and was about to start Beta Interferon
> treatment. However, last week she was told that it may be MS that she has
> but Lupus cannot be ruled out although a final diagnosis has yet to be made.
>
> Whilst I am fairly up on MS Info, Lupus is new to me and although I/we have
> found much on the web there doesn't seem to be much info as to whether Lupus
> can be potentially as physically disabling as MS can. Also, is there any
> support for Lupus in the UK like there is for MS in the form of the MS
> Society?
>
> Any feedback gratefully appreciated
>
> Dave
>
>
There is a lot of support here. I also get great support from this
forum that I visit frequently which is based in the UK. There is a
specific board for "not yet diagnosed" that you may be interested in.
All the boards are a great support though.
www.thelupussite.com/forum
Good Luck.
Nutty
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| In article <X-CdnWKtEeT9iMjZRVnyrQ@bt.com>, David.Campfield
<david.campfield@btinternet.com> wrote
>I am actually a Multiple Sclerosis sufferer and have a friend who was told
>she also had MS around a year ago and was about to start Beta Interferon
>treatment. However, last week she was told that it may be MS that she has
>but Lupus cannot be ruled out although a final diagnosis has yet to be made.
>
>Whilst I am fairly up on MS Info, Lupus is new to me and although I/we have
>found much on the web there doesn't seem to be much info as to whether Lupus
>can be potentially as physically disabling as MS can.
Yes, sometimes.
> Also, is there any
>support for Lupus in the UK like there is for MS in the form of the MS
>Society?
>
Hello... ring LupusUK head office on 01708 731251 and they'll tell you
where your nearest group is. (But not today as it's Bank Holiday!) Or
email me.
--
Andy Taylor [Chair, N E Lupus Group]
See http://www.northeastlupus.org.uk for more!
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