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| Jenn L wrote:
> they tell me i have discoid lupus..which i thought would mainly affect
> the skin...but sometimes I just feel dead...they gave me 1 of those 6
> day predisone packs(at last visit) ...I felt alive on the 5th day but
> then back to fatigue...I get mad at myself for being a messy
> housekeeper.....this summer I came down with asthma for the first
> time.....I was even hospitalized over the night... feel like this all
> fits in together and some of the mctd info i read sounds like it could.
> I don't have arthritis but a lot of stiffness
> in my shoulders and sometimes pretty bad in my knees....I think i need
> more tests
> and to be put on predisone regularly or something similar again....They
> debated
> putting me on methotrexate but then decided on cellcept....which BTW may
> cause drowsiness as well...now that I'm through whining I remember how
> lucky
> I am to not have major organ involvement......and my heart goes out to
> all who do
cellcept won't help messy housekeeping.
Pace yourself but have a list of things to do each day - schedule a rest
time each day and some fun time, so it's not all drudge. 
If you feel less well one day, skip the less important things and do a bit
more on a better day.
my friend's had your same symptoms for over 30 years.
She uses an inhaler for the asthma and avoids things that flare that up. -
she has an air cleaner (2 actually) - one in the bedroom and one in the
living area. Make your home easy to care for. Carpets are awful for dust
mites and asthma. Same for clutter. And requre a vacuum cleaner which is
harder for people with stiff jjoints. Bare flooring is easier to keep clean
of dirt and dust bunnies with only the occasional vacuuming.
Like me, she probably got away with taking some NSAIDs (from time to time)
for the stiffness.
If heat helps the stiffness, relax in a bath each day, while you're reading
"The Lupus Book" by Dr. Daniel Wallace to see how he would treat your
variation of Lupus. I think Cellcept's for Lupus Nephritis.
See what his most recent book says he would use it for...and how he would
treat discoid.
If cool helps, use icepacks, while you're reading.
Hugs
J
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