|
Home > Archive > Lupus Support > February 2006 > Cellcept/...
You are viewing an archived Text-only version of the thread.
To view this thread in it's original format and/or if you want to reply to
this thread please [click here]
|
|
| Jenn L 2006-02-25, 9:43 pm |
| I have improvment with cellcept <yea!>
I know that I'm still fairly new to this group
and wish all well .....Please respond if you have discoid. ..kinda need
a sounding board ....the real me does this ...,dot,... thing so bear
with me ((squeezez))
| |
| Mary Rawle 2006-02-25, 9:43 pm |
|
"Jenn L" <prayn4rain@webtv.net> wrote in message
news:20925-43CA8CC4-313@storefull-3174.bay.webtv.net...
>I have improvment with cellcept <yea!>
> I know that I'm still fairly new to this group
> and wish all well .....Please respond if you have discoid. ..kinda need
> a sounding board ....the real me does this ...,dot,... thing so bear
> with me ((squeezez))
>
HI Jenn, and welcome to our group. Feel free to "dot" all you want. I am a
major "dotter," and I have been here for... has it been a century yet?
I do not have discoid lupus, but I have suffered with Systemic Lupus since I
was in my teens, which means almost thirty years ago. I have never had a
real remission... only good control by using lots of medications. Even
under control, I tire easily, and if I push it, I am a wreck the following
few days. I have to listen to my body... but of course sometimes I don't
because I really want to do something and am willing to suffer the
consequences.
Does any of this sound like you?
This newsgroup is a very friendly group of people.
I hope that you will continue to come here and share.
I am glad you are feeling some improvement with the Cellcept, and hopefully
one of our friends here can be a better "sounding board" than I am.
But I just wanted to say "welcome"
Mary
| |
| Jenn L 2006-02-25, 9:43 pm |
| Thank you,Mary... Hey i am bugged because my doctor has told me I test
for mixed connective tissue disorder
what does ne1 know about that...
I feel BLAH raise your hand if you feel BLAH
Jenn
| |
| Mary Rawle 2006-02-25, 9:43 pm |
| Yeah, mixed connective tissue dissorder, MCTD, is what a lot of folks on
this group have. It means you have symptoms indicative of several different
disorders. "Connective Tissue Disorder" is an outdated term. It is now
called "autoimmune disorder" and so everything is covered under that term.
Myself, for example: I have a positive ANA, a negative DNA. I have
autoimmune thyroid dissorder (which, by itself would be called Hashimoto's
disease), I have Sjogren's Syndrome, which is autoimmunitly to the exocrine
glands of the body...such as those that lubricate the eyes, nose, mouth,
lungs etc. I have joint and muscle pain and I am sensitive to sunlight. Do
I have lupus? Do I have MCTD. As my doctor says "we simply treat the
symptoms as they occur."
Wait !Wait! fatigued? did sometone say fatigued? I musta dozed off there.
Yeah, I have that in copious quantites...
Is this of help to you? I only wish to help, and to let you know that this
happens to other people too.
Mary
Disclaimer: I aint a doctor with a degree, so nothing that I say in my
letters should be accounted for as real science. Duh.
"Jenn L" <prayn4rain@webtv.net> wrote in message
news:16154-43CAA080-436@storefull-3177.bay.webtv.net...
> Thank you,Mary... Hey i am bugged because my doctor has told me I test
> for mixed connective tissue disorder
> what does ne1 know about that...
> I feel BLAH raise your hand if you feel BLAH
> Jenn
>
| |
|
| One of my favorite terms is UMCTD with SLE (Systemic Lupus Er)
features!(undifferentiated mixed connective tissue disease) and positive ANA
with collagen vascular disease. Give me a break. I am waving both hands
because I feel like double blah! I have been in bed all day. Wende
"Mary Rawle" <nobody@nowhere.net> wrote in message
news:Z_Ayf.9635$or4.6374@newssvr12.news.prodigy.com...
> Yeah, mixed connective tissue dissorder, MCTD, is what a lot of folks on
> this group have. It means you have symptoms indicative of several
> different disorders. "Connective Tissue Disorder" is an outdated term.
> It is now called "autoimmune disorder" and so everything is covered under
> that term. Myself, for example: I have a positive ANA, a negative DNA. I
> have autoimmune thyroid dissorder (which, by itself would be called
> Hashimoto's disease), I have Sjogren's Syndrome, which is autoimmunitly
> to the exocrine glands of the body...such as those that lubricate the
> eyes, nose, mouth, lungs etc. I have joint and muscle pain and I am
> sensitive to sunlight. Do I have lupus? Do I have MCTD. As my doctor
> says "we simply treat the symptoms as they occur."
>
> Wait !Wait! fatigued? did sometone say fatigued? I musta dozed off
> there. Yeah, I have that in copious quantites...
>
> Is this of help to you? I only wish to help, and to let you know that
> this happens to other people too.
>
> Mary
>
> Disclaimer: I aint a doctor with a degree, so nothing that I say in my
> letters should be accounted for as real science. Duh.
>
> "Jenn L" <prayn4rain@webtv.net> wrote in message
> news:16154-43CAA080-436@storefull-3177.bay.webtv.net...
>
>
| |
| Jenn L 2006-02-25, 9:43 pm |
| Happy to say with Hubbys help we got the house close to perfect
today....all we like is the kids bedrooms and they are going
to do the majority of that.....thank you for your advice as for hardwood
floors we just signed another lease with our complex..I will look for
the book at the library and look into the air purifiiers...I really
need to quit smoking.... neways....
Jenn
| |
| GAIL'S 2 ANGELS 2006-02-25, 9:44 pm |
|
Jenn L wrote:
> I have improvment with cellcept <yea!>
> I know that I'm still fairly new to this group
> and wish all well .....Please respond if you have discoid. ..kinda need
> a sounding board ....the real me does this ...,dot,... thing so bear
> with me ((squeezez))
jenn
glad to hear cellcept is working for you i tried it for 5 months with
no results. have tried so many in last year and half! started with
metrotrexate and worked my way to cellcept. now on chloroquin 250mg
dailyand mirapex .25mg on raising doseage each week now up tp 5 a day
dont know how high doseage has to be to start helping right now feel
like in full blown flare with fm and lupus everyday!
|
| |
|
|