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Home > Archive > Lupus Support > August 2005 > HIVES!!!!!!!!!!
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| ARGHH!!!!!
they just get worse. When I see the doc next I'm going to have to break
down and let her know. I told her about them but only as a "oh, a few bumps
and they itch for about 15 minutes"
Vacuumed the house Saturday and by the time i was finished my thighs were
blanketed in hives - so much so that at first you couldn't see the
individual bumps, it was just a giant, firey red welt. I showed hubby (who
I think had assumed it was just me with my compulsive itching). He was
shocked. It took about an hour for them to go away completely and during
that time it was all I could do not to get a brillo pad and scrub. it isn't
just heat though - a hot shower or bath or jacuzzi doesn't cause them - it's
heating "from the inside" as hubby described it - due to being physically
active. I've read about it and I know it's the underlying autoimmune stuff.
I just thought that when it got really bad a couple of weeks ago it was
because I'd come off my steroid nasal spray for several days. been back on
it and obviously it is just worse than it was 5 months ago. 
just whining.
--
KCat
For Pen Talk, Images, Trading and Reviews: The Fountain Pen Network
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http://www.ghg.net/schwerpt/ASLFAQ/
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| pellmellwillynilly@hotmail.com 2005-08-08, 10:58 pm |
| KCat wrote:
> ARGHH!!!!!
>
> they just get worse. When I see the doc next I'm going to have to break
> down and let her know. I told her about them but only as a "oh, a few bumps
> and they itch for about 15 minutes"
>
> Vacuumed the house Saturday and by the time i was finished my thighs were
> blanketed in hives - so much so that at first you couldn't see the
> individual bumps, it was just a giant, firey red welt. I showed hubby (who
> I think had assumed it was just me with my compulsive itching). He was
> shocked. It took about an hour for them to go away completely and during
> that time it was all I could do not to get a brillo pad and scrub. it isn't
> just heat though - a hot shower or bath or jacuzzi doesn't cause them - it's
> heating "from the inside" as hubby described it - due to being physically
> active. I've read about it and I know it's the underlying autoimmune stuff.
> I just thought that when it got really bad a couple of weeks ago it was
> because I'd come off my steroid nasal spray for several days. been back on
> it and obviously it is just worse than it was 5 months ago.
>
> just whining.
>
> --
>
> KCat
I've had that! I don't think it's been as solid red as yours, but
absolutely from being physically active, on the thighs and itching for
about an hour. Really itching! And you know, I don't think it's
happened often if at all since I've been on Plaquenil. Hm.
Sorry you're going through it.
BTW, do you remember where you might have read that the thigh-exercise
hives are lupus related? I don't remember running into that info in the
books and other materials I've read.
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| Wallace comments on urticaria in general but does not state the different
kinds of urticaria we can experience. Simply that some of us get it and
it's "one of the few lupus rashes that itches."
from Current Medical Treatment and Diagnosis (1993 - i really need to update
it.)
"Finally, some patients demnonstrate autoantibodies directed againast mast
cell epitopes, with histamine-releasing activity."
or in English: Hives might be caused by autoantibodies in some people by
triggering histamine release. To me this translates to: "could be present
in autoimmune disease". From the same paragraph discussing the types of
urticaria: "Cholinergic urticaria, associated with hot showers or a rise in
core body temperatture after exercise, there is often a wheal 2-3 mm in
daimeter with a large surrounding flare."
Essentially I'm drawing the conclusion myself that because the immune system
is whacked out and we know that allergies and allergic-type reactions can be
worse in lupus patients, and urticaria (hives/welts) are varied and not
terribly specific (that is, your hives might not look like mine even if
caused by the same thing) then it's possible that our hive breakouts from
exercise are due to our overactive immune system. I asked my rheumy about
this - she said probably. no way to no for sure. I have had a chronically
high eosinophil count (the major cell type responsible for histamine
release, mast cells are essentially active eosinophils). There's no way to
prove that my high eos is a result of the underlying autoimmune disease or
an unrelated condition. But since that started at around the same time that
my other symptoms started, it's a high probability.
all that comes down to - we don't really know and I don't think the medical
community is really clear on this as it is very hard to separate some of our
symptoms from the disease vs. totally unrelated (well, maybe not "totally")
conditions. The immune system being so complex, I'm hesitant to believe
anything can be "totally" unrelated to the lupus as long as it has to do
with the immune system.
--
KCat
For Pen Talk, Images, Trading and Reviews: The Fountain Pen Network
http://pagesperso.laposte.net/fpnet
For Lupus Support and Info
http://www.ghg.net/schwerpt/ASLFAQ/
<pellmellwillynilly@hotmail.com> wrote in message
news:1123544937.046149.208950@g49g2000cwa.googlegroups.com...
> KCat wrote:
bumps[vbcol=seagreen]
were[vbcol=seagreen]
(who[vbcol=seagreen]
during[vbcol=seagreen]
isn't[vbcol=seagreen]
it's[vbcol=seagreen]
physically[vbcol=seagreen]
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on[vbcol=seagreen]
>
> I've had that! I don't think it's been as solid red as yours, but
> absolutely from being physically active, on the thighs and itching for
> about an hour. Really itching! And you know, I don't think it's
> happened often if at all since I've been on Plaquenil. Hm.
>
> Sorry you're going through it.
>
> BTW, do you remember where you might have read that the thigh-exercise
> hives are lupus related? I don't remember running into that info in the
> books and other materials I've read.
>
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| rojakort 2005-08-08, 10:58 pm |
| I am sorry Kcat about that. I am sure you were going bonkers trying NOT to
itch. Man that is aweful when you do that.
I have rashes a lot and when my immune system is very "out" of whack. I
react easily like that. I get like blotches and then they swell, and get a
little ouchy itchy, if you know what I mean. Thank God I have a supply of
"script" cortisone. It is the only thing that tones it down.
Again take care and Keep gloves on LOL when this happens. Or put on the
oven mitts .
janers
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