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HELP! Just married - Now I have lupus
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|
|
| Hi there, I don't know who to turn to. I can't talk to family because
they'll get worried and nosey!
I just got married last December and a couple months later I was
diagnosed with Lupus. It's been a very very difficult year, a military
move across the country, no friends in our new residence hard time
finding a steady good job. Traffic here is crazy and very different
from our previous slow paced ocean residence. We had a death in the
family too. It's been over 40 degrees celcius for the past 3 months and
I haven't been able to do much.
Now my husband mentioned he's not happy and this marriage isn't what he
had expected and he doesn't want to have kids with me because of my
fatigue. He's tired of me needing rest breaks every 4 hours and the
fact that I have to plan outings so that I have enough rest and food to
keep me awake through the day. I've lost my strength - I used to be a
marathon runner 2 years ago when we met and my joints hurt so much now
I'm in pain every time even when we just get intimate. I'm covered in
bruises all the time and just weak. It hurts to talk and I faint so
easily when I get stressed.
I keep telling him it will change it's just been a hard year and
naturally for many reasons I am probably depressed.
I put on a smile and laugh and make jokes but it's hard especially when
I know inside that he's considering leaving me. I try so hard to
pretend I'm not tired and take him on exciting weekend adventures...
but I can't plan my life, future. He's supportive but I know he's not
happy and it's not my fault!
Are all husbands like this right after marriage. I know the first year
is hardest especially since we've had a very eventful first year. I
need advice, I'm exhausted and don't want to be depressed. I'm going to
go on medication I think and see if the energy level increases. But I'm
mad inside and hurt....if we knew I had Lupus before getting married
would he have even married me!? Darn him I can perfectly well have kids
with a supportive husband! grrr... so confused.
Thank you, JQ
| |
| Nicole H 2005-08-02, 8:58 am |
| JQ
First, no not all husbands are like that.
Marriage is hard and I doubt it ever measures up to our expectations.
Before you even consider having children, make sure your marriage is the
rock that you need. Children won't save a marriage.... if anything, they
definitely challenge it. The illness alone is enough of a challenge.
Sounds like you need to find some good drs to help you. You don't need to
be in pain all the time, constantly tired, etc. There are many helpful
medications out there. My pain dr not only treats my pain but has me taking
supplements that help. He's practicing a lot of anti aging medicine and so
much of that can help chronic illness.
Lupus is a nasty blow to most of us. I was married 2 weeks when I got
pregnant and my pregnancy is what caused the lupus to flare. My husband was
also in the army so he was gone a lot. I got pregnant again when my son was
11 months old and was officially diagnosed while pregnant w/my 2nd.
It's been incredibly hot here also... we're on our 22nd day of triple
digits.... makes it very difficult to function.
Take care
Nicole
"JQ" <jpotvin77@hotmail.com> wrote in message
news:1122945190.914232.152520@o13g2000cwo.googlegroups.com...
> Hi there, I don't know who to turn to. I can't talk to family because
> they'll get worried and nosey!
> I just got married last December and a couple months later I was
> diagnosed with Lupus. It's been a very very difficult year, a military
> move across the country, no friends in our new residence hard time
> finding a steady good job. Traffic here is crazy and very different
> from our previous slow paced ocean residence. We had a death in the
> family too. It's been over 40 degrees celcius for the past 3 months and
> I haven't been able to do much.
> Now my husband mentioned he's not happy and this marriage isn't what he
> had expected and he doesn't want to have kids with me because of my
> fatigue. He's tired of me needing rest breaks every 4 hours and the
> fact that I have to plan outings so that I have enough rest and food to
> keep me awake through the day. I've lost my strength - I used to be a
> marathon runner 2 years ago when we met and my joints hurt so much now
> I'm in pain every time even when we just get intimate. I'm covered in
> bruises all the time and just weak. It hurts to talk and I faint so
> easily when I get stressed.
> I keep telling him it will change it's just been a hard year and
> naturally for many reasons I am probably depressed.
>
> I put on a smile and laugh and make jokes but it's hard especially when
> I know inside that he's considering leaving me. I try so hard to
> pretend I'm not tired and take him on exciting weekend adventures...
> but I can't plan my life, future. He's supportive but I know he's not
> happy and it's not my fault!
>
> Are all husbands like this right after marriage. I know the first year
> is hardest especially since we've had a very eventful first year. I
> need advice, I'm exhausted and don't want to be depressed. I'm going to
> go on medication I think and see if the energy level increases. But I'm
> mad inside and hurt....if we knew I had Lupus before getting married
> would he have even married me!? Darn him I can perfectly well have kids
> with a supportive husband! grrr... so confused.
>
> Thank you, JQ
>
| |
| pellmellwillynilly@hotmail.com 2005-08-02, 8:58 am |
| JQ wrote:
> Hi there, I don't know who to turn to. I can't talk to family because
> they'll get worried and nosey!
> I just got married last December and a couple months later I was
> diagnosed with Lupus. It's been a very very difficult year, a military
> move across the country, no friends in our new residence hard time
> finding a steady good job. Traffic here is crazy and very different
> from our previous slow paced ocean residence. We had a death in the
> family too. It's been over 40 degrees celcius for the past 3 months and
> I haven't been able to do much.
> Now my husband mentioned he's not happy and this marriage isn't what he
> had expected and he doesn't want to have kids with me because of my
> fatigue. He's tired of me needing rest breaks every 4 hours and the
> fact that I have to plan outings so that I have enough rest and food to
> keep me awake through the day. I've lost my strength - I used to be a
> marathon runner 2 years ago when we met and my joints hurt so much now
> I'm in pain every time even when we just get intimate. I'm covered in
> bruises all the time and just weak. It hurts to talk and I faint so
> easily when I get stressed.
> I keep telling him it will change it's just been a hard year and
> naturally for many reasons I am probably depressed.
>
> I put on a smile and laugh and make jokes but it's hard especially when
> I know inside that he's considering leaving me. I try so hard to
> pretend I'm not tired and take him on exciting weekend adventures...
> but I can't plan my life, future. He's supportive but I know he's not
> happy and it's not my fault!
>
> Are all husbands like this right after marriage. I know the first year
> is hardest especially since we've had a very eventful first year. I
> need advice, I'm exhausted and don't want to be depressed. I'm going to
> go on medication I think and see if the energy level increases. But I'm
> mad inside and hurt....if we knew I had Lupus before getting married
> would he have even married me!? Darn him I can perfectly well have kids
> with a supportive husband! grrr... so confused.
>
> Thank you, JQ
Welcome, J!
I can't speak to many of the issues you've brought up, but I can tell
you that Plaquenil made a big difference in my energy level. As mild as
my lupus has been, I had been medicated for depression (Paxil) partly
because I slept so much. I had to nap in the car between errands,
usually for 1 - 1 1/2 hours. After as little as a month of Plaquenil, I
quit having to do that, with rare exceptions.
This newsgroup is an unusually supportive one for a public location.
You'll get good help here. (Just ignore the occasional trolls and
"medical" posts.) You might also try finding lupus support groups where
you are.
Meanwhile, are you absolutely positive that there's no one in your
family or group of long-distance friends who can be trusted to listen
and maintain confidence about your current concerns? If not, would you
consider individual or couple counseling? You shouldn't have to go
through the difficulties you're having without someone to process your
feelings with.
Pell
| |
| William R Thompson 2005-08-02, 8:58 am |
| "JQ" <jpotvin77@hotmail.com> wrote:
> Hi there, I don't know who to turn to. I can't talk to family because
> they'll get worried and nosey!
> I just got married last December and a couple months later I was
> diagnosed with Lupus. It's been a very very difficult year, a military
> move across the country,
If you or your husband are in the military, your base should
have someone who can help--doctors, counselors, chaplains and
family support groups.
--Bill Thompson
| |
|
| Hi JQ.
I admit to being overwhelmed by the struggles in your post. No, not all
husbands (spouses/SOs) go through that. But it certainly isn't uncommon for
someone to kind of "freak out" when faced with something they simply didn't
anticipate.
You can always talk to us and there is a lot of support here not only as a
group but you can make good connections with very good folks here. But i
agree with others who recommend you having someone available in "real life"
as well. I am blessed with a man who has been very understanding if a bit
overprotective at times. And with having made some good friends here.
Getting married is one of those things in life that of course is a wonderful
event - but extremely stressful. it's highly possible that the stress of
the lifestyle change triggered symptoms. Of course, add all those other
stressors in and it's no wonder you're having such a time with symptoms.
with treatment and learning your limits, things can indeed get better. I
don't know what if any meds you are on but as others pointed out, there are
relatively mild drugs that can help a great deal. I too have greatly
benefitted from Plaquenil.
it always astounds me how many patients relate that they used to be very
athletic or the like. People on the outside tend to think we are lazy or
malingering or whatever, they seem to forget the level of activity and
energy we had before we got sick. No one wants to lose that.
Re: the exciting weekend activities - you may be able to hold off on those
for a few weeks - long enough to get your immune system back under control
and get through this flare, then find that you have enough energy after that
rest period to go back to a more active lifestyle. Pushing now will only
make it worse. I was at a point of not being able to work at my job in '97.
just getting to a weekend was a struggle and on the weekends I slept slept
slept. my time spent after I quit my job - healing, resting, staying out of
the sun, made a huge difference as well. I still have limitations but i
have also been able to do things like repaint my house (by myself!) and take
on various indoor projects that have tired me but not wiped me out or made
me sick. I credit both plaquenil and learning my limitations over time.
But it does take time. right now you are grieving and i imagine he is as
well. This sort of grief is just as strong as any grief over a loss and i
really think you need someone to guide you through it.
re: the depression. lupus causes depression two ways - both indirectly as a
result of the frustration of fatigue, pain, rashes, bruises, meds, etc. and
directly by impacting our brain chemistry. All the more reason to seek
proper treatment for both sides of the coin.
I hope he takes the time to learn about what you're going through - of
course he's tired of you being tired. But how does he think you feel? And
he does need support as well. my hubby has never really acknowledged his
need for that support but he's a different kinda person - the kind of person
who would take care of me if I were bedridden for life and never complain.
I must say - we found each other rather late and that maturity has a great
deal to do with his ability to handle this kind of disease. still, i think
he needed more support than he acknowledged and I imagine at times he did
confide in his best friend. I get that feeling when I'm around them - that
his friend is very supportive of him and of me yet the words have never
really been said.
i don't know if I'm helping or not but I really think you and your husband
can not do this alone. And that he needs to be educated about the disease
so he can see that with time you will probably experience long stretches of
mild pain and more activity, but while you are in a flare, you need to go
easier on yourself. I know I said it above but I want to emphasize that a
flare will not get better by trying to "beat it" and pushing yourself. the
sooner you can rest and work with your body instead of against it, the
sooner you can get better. otherwise, you're basically having a relapse
every time you try to "pretend you're not tired." none of this means just
lying around all day, but it does mean that when your body screams "REST"
you must listen to it.
if you haven't gotten The lupus Book, you should. It's a great resource
for patients and for their families in understanding the disease.
of course, any questions you have please feel free to post them. And any
time you need a shoulder, there are many here.
I think, when we are younger, we can't imagine aging and illness if we
haven't been there. One of the benefits of getting married a little later
in my life (after I'd been married once and had one child) was that i didn't
have this illusion that hubby and I and would always be youthful and
healthy. unlike Hollywood folks, we can't all just go out and get a face
lift or a tummy tuck or hire personal trainers. When we marry, we rarely
take that "in sickness and health" stuff seriously these days it seems. But
were the shoe on the other foot, if he were the one who was sick, what would
he expect of you? Would he expect you to stay by his side or even take care
of him as needed? Or would he understand if you just decided to leave?
I'm not suggesting you ask him that as I don't know him or you and that is
probably a topic best handled with the supervision of a counselor/therapist.
But it is something he will have to consider at some point.
well... that's all I know to say at this point - it's a lot and probably
pretty scatterbrained but i hope that it helps at least a little.
--
KCat
For Pen Talk, Images, Trading and Reviews: The Fountain Pen Network
http://pagesperso.laposte.net/fpnet
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http://www.ghg.net/schwerpt/ASLFAQ/
| |
|
| Hello, Thank u all so much for your support. It's very difficult at
times. I'm going to start Plaquenil I think - it's worth a try. And
you're definately right no babies until the marriage and Lupus is solid
stable. I sure hope it gets easier. First year of marriage is never
easy never mind the onset of an illness. I never even thought of it as
grieving but you're right. I am definately grieving the loss of my
energetic previous life, sore joints, constant fatigue. Huge changes!!
Huge move across the country and this complex disease, so frustrating.
I just quit my full time job as a first step. I could barely stay away
to drive home and I am sick every single weekend! After reading your
posts I made an appointment with a counsellor, we defiinately could use
a mediator in aiding this discussion. I don't think he realizes how I
feel and that I am trying the best I can. Everyone thinks it's in your
head and I'm just complaining. But it's not! My entire body hurts of
exhaustion all the time! Perhaps once I learn more about lupus and
accept the fact that I have it and learn how to live with it that will
change, I'm sure a lot of it is grieving and depression. The fact that
I have no one to confide in doesn't help. I thought I could confide in
him but apparently it's pushing him away and turning him off of our
marriage. Not what he had anticipated. I sure hope the counsellor can
help us out tomorrow. Just married and already this complex - I'm sure
worried!
Thank you, Jacquie
| |
| dropbear1@gmail.com 2005-08-03, 10:57 pm |
| Definitely start the plaquenil. It has very few side effects as long as
you stay under 400mg/day. Also, there are other meds you can take that
can control the underlying disease, such as imuran. I've found that
people who have never been seriously or chronically ill have a hard
time what it is like to have a medical condition that impacts all areas
of your life. I've learned to rely on myself, my family, and doctor, in
that order. I also avoid telling people I know that I have lupus.
| |
|
| "JQ" <jpotvin77@hotmail.com> wrote in message
news:1123011789.713011.31810@g49g2000cwa.googlegroups.com...
> Hello, Thank u all so much for your support. It's very difficult at
> times. I'm going to start Plaquenil I think - it's worth a try.
yup - IMO it's a very safe trial run. It will take a few weeks for most
people to notice a difference. I got relief after about 3 weeks. Then at 6
months it dawned on me that I wasn't in constant pain every day. at one
year i realized I wasn't waking up with every joint in stiff and achy.
you do need to take it with a small amount of food. For me, a few crackers
or a half a bottle of Ensure or 3 or 4 ounces of milk is plenty.
> stable. I sure hope it gets easier. First year of marriage is never
> easy never mind the onset of an illness. I never even thought of it as
> grieving but you're right.
yeah - i talked to hubby last night. Our first year was very tough despite
our age and deep love. He had to adjust to being a dad right away (this is
my second (final!)marriage) and I had to adjust to him wanting to "fix" me
all the time.  It's a natural response. At the time we had no idea i was
getting physically ill but i had depression and PMDD. the PMDD was the real
kicker. My ob-gyn has talked about taking me off the pill but i'm terrified
of going back to those near-psychotic episodes.
> I just quit my full time job as a first step. I could barely stay away
> to drive home and I am sick every single weekend!
sounds very familiar. I still have to believe God was watching over me for
my last 6 or 8 months of full-time work. *every* morning I was dozing off
at the wheel. That uncontrollable head-nodding thing. In Houston traffic,
this is not a good thing! Every night I drove home bloated, hurting, and
usually so depressed by the pain that I thought about not making it home -
just driving into a guardrail at the top of an overpass. My luck though, i
would have survived but hurt someone else.
> feel and that I am trying the best I can. Everyone thinks it's in your
> head and I'm just complaining. But it's not!
we understand, believe me. "if you just got more exercise." "if you just
didn't stress out over everything." "If you ate/slept better." on and
on... or worse yet "you just want attention." That last one only came to me
from a sibling and bless his heart he really had no idea what I was going
through yet he was going through the same basic problems for different
reasons.
> marriage. Not what he had anticipated. I sure hope the counsellor can
> help us out tomorrow. Just married and already this complex - I'm sure
> worried!
well... if you work together than it can certainly get better. I'd say
hubby and I are better friends and better matched now than we ever were. In
the last oh - 3 or 4 years (hmm... since daughter left home..<G> ) we have
really gelled even beyond what was already a great relationship. A lot of
our early insecurities are gone. He's learned not to try to fix everything
just 'cause I whine about it. I've learned to not go ballistic when he
forgets and does try to fix something. He's learned not to be afraid -
one thing your husband may be experiencing is fear of hurting you
physically. this can result in him pushing you away. with counseling,
hopefully some of his fears and frustrations will be dealt with openly and
that will help.
I don't know if you said but I'm assuming ya'll are fairly young. Any
marriage is tough but I think it's even harder on the young folks today
because of so many pressures on them to have "careers" and kids and a house
and nice cars and... but the income just isn't there when your young and
that adds another layer of stress of course. That was a biggie in my first
marriage - he handled money poorly and for the first 5 years, we had very
little. :P
take care and keep us up to date.
KCat
| |
| Nicole H 2005-08-06, 9:08 am |
| KCAT,
have you ever been given the SLE diagnosis yet?
From what I remember, you are being treated like you have SLE, but no
official dx.
"KCat" <kcattx@sbcglobal.net> wrote in message
news:xqrIe.1340$sW1.878@newssvr23.news.prodigy.net...
> "JQ" <jpotvin77@hotmail.com> wrote in message
> news:1123011789.713011.31810@g49g2000cwa.googlegroups.com...
>
> yup - IMO it's a very safe trial run. It will take a few weeks for most
> people to notice a difference. I got relief after about 3 weeks. Then at
> 6
> months it dawned on me that I wasn't in constant pain every day. at one
> year i realized I wasn't waking up with every joint in stiff and achy.
>
> you do need to take it with a small amount of food. For me, a few
> crackers
> or a half a bottle of Ensure or 3 or 4 ounces of milk is plenty.
>
>
> yeah - i talked to hubby last night. Our first year was very tough
> despite
> our age and deep love. He had to adjust to being a dad right away (this
> is
> my second (final!)marriage) and I had to adjust to him wanting to "fix" me
> all the time. It's a natural response. At the time we had no idea i
> was
> getting physically ill but i had depression and PMDD. the PMDD was the
> real
> kicker. My ob-gyn has talked about taking me off the pill but i'm
> terrified
> of going back to those near-psychotic episodes.
>
>
> sounds very familiar. I still have to believe God was watching over me
> for
> my last 6 or 8 months of full-time work. *every* morning I was dozing off
> at the wheel. That uncontrollable head-nodding thing. In Houston
> traffic,
> this is not a good thing! Every night I drove home bloated, hurting, and
> usually so depressed by the pain that I thought about not making it home -
> just driving into a guardrail at the top of an overpass. My luck though,
> i
> would have survived but hurt someone else.
>
>
> we understand, believe me. "if you just got more exercise." "if you just
> didn't stress out over everything." "If you ate/slept better." on and
> on... or worse yet "you just want attention." That last one only came to
> me
> from a sibling and bless his heart he really had no idea what I was going
> through yet he was going through the same basic problems for different
> reasons.
>
>
> well... if you work together than it can certainly get better. I'd say
> hubby and I are better friends and better matched now than we ever were.
> In
> the last oh - 3 or 4 years (hmm... since daughter left home..<G> ) we have
> really gelled even beyond what was already a great relationship. A lot
> of
> our early insecurities are gone. He's learned not to try to fix everything
> just 'cause I whine about it. I've learned to not go ballistic when he
> forgets and does try to fix something. He's learned not to be afraid -
> one thing your husband may be experiencing is fear of hurting you
> physically. this can result in him pushing you away. with counseling,
> hopefully some of his fears and frustrations will be dealt with openly and
> that will help.
>
> I don't know if you said but I'm assuming ya'll are fairly young. Any
> marriage is tough but I think it's even harder on the young folks today
> because of so many pressures on them to have "careers" and kids and a
> house
> and nice cars and... but the income just isn't there when your young and
> that adds another layer of stress of course. That was a biggie in my
> first
> marriage - he handled money poorly and for the first 5 years, we had very
> little. :P
>
> take care and keep us up to date.
> KCat
>
>
| |
|
| "Nicole H" <crimsonshedemonREMOVE@hotmail.com> wrote in message
news:bTXIe.34369$aA5.15494@tornado.socal.rr.com...
> KCAT,
> have you ever been given the SLE diagnosis yet?
> From what I remember, you are being treated like you have SLE, but no
> official dx.
my official dx is UCTD - with leukopenia, neutropenia, eosinophilia,
cognitive dysfunction, neurogenic bladder, and eleavated (but not high) ANA.
so yeah, we treat it like lupus. Of course I'm not listing the
non-blood or nervous system symptoms like joint pain, fever, weight loss...
blah blah blah.
the only thing that really distinguishes me from the "full-blown lupus" as
the doc calls it is that she doesn't like to give that diagnosis unless
there is major organ threatening disease. thus far I've only had a couple
of kidney scares where I was dumping proteins - these seem to have been
random. lungs, heart, etc. all healthy. and most of my antibody counts are
normal or only slightly elevated.
just to simplify things when talking to people, I leave it at "Lupus". I
have a good friend who has CNS Lupus and even after having a couple of
psychotic episodes they kept calling it UCTD. (different doc). All because
her blood counts were normal.
isn't this fun!
drifting OT - i had gotten 3 lupus bands - well, i had no idea who the third
one was for - then i got a call from a young woman in my city who has just
been diagnosed and is scared and getting a lot of humming and hawwing about
her prognosis - made her day by sending her that lupus band and a copy of
The Lupus Book. So, in an indirect way, you made an impact on a person new
to the disease and in need of support. Thanks!
| |
| pellmellwillynilly@hotmail.com 2005-08-06, 5:55 pm |
| dropbear1@gmail.com wrote:
<snip>
> I also avoid telling people I know that I have lupus.
Hi, dropbear.
Would you share your reasons for not telling people that you have lupus?
| |
| dropbear1@gmail.com 2005-08-06, 10:55 pm |
| There are a few reasons. I want people to know me as "David," not
"David with Lupus." Most people have no idea what lupus is, and once
they find out about it, people who have it are automatically
stigmatized. This is especially true in American culture, which values
health and being physically capable (especially for males). I also got
tired of people asking me how I'm doing. I just say I'm doing fine,
regardless of how I'm feeling. I happen to be a single male, and women
have actually started to avoid me once I told them I had lupus, even
though I am quite capable of holding a job, supporting myself, and
finishing a masters degree at Columbia University. I did tell my boss
at work, but only because I had to take three weeks off to recover from
a shingles outbreak. Fortunately I work around understanding people
(clinical psychologists, psychiatrists, and social workers).
pellmellwillynilly@hotmail.com wrote:
> dropbear1@gmail.com wrote:
>
> <snip>
>
>
> Hi, dropbear.
>
> Would you share your reasons for not telling people that you have lupus?
| |
|
| On paper my doctor calls it "Collagen Vasular Disease". On annual paper
work for my workplace where I've requested medical accommodations (per
ADA) he writes "autoimmune disease". But verbally he has called it
Lupus and is treating it like Lupus. I, too, have not had major organ
involvement though there is some suggestion of CNS involvement :-(. I
believe our doctors are trying to protect us as a Lupus diagnosis can
cause problems when trying to get insurance coverage, etc.
cp
KCat wrote:
> "Nicole H" <crimsonshedemonREMOVE@hotmail.com> wrote in message
> news:bTXIe.34369$aA5.15494@tornado.socal.rr.com...
>
>
>
> my official dx is UCTD - with leukopenia, neutropenia, eosinophilia,
> cognitive dysfunction, neurogenic bladder, and eleavated (but not high) ANA.
> so yeah, we treat it like lupus. Of course I'm not listing the
> non-blood or nervous system symptoms like joint pain, fever, weight loss...
> blah blah blah.
>
> the only thing that really distinguishes me from the "full-blown lupus" as
> the doc calls it is that she doesn't like to give that diagnosis unless
> there is major organ threatening disease. thus far I've only had a couple
> of kidney scares where I was dumping proteins - these seem to have been
> random. lungs, heart, etc. all healthy. and most of my antibody counts are
> normal or only slightly elevated.
>
> just to simplify things when talking to people, I leave it at "Lupus". I
> have a good friend who has CNS Lupus and even after having a couple of
> psychotic episodes they kept calling it UCTD. (different doc). All because
> her blood counts were normal.
>
> isn't this fun!
>
> drifting OT - i had gotten 3 lupus bands - well, i had no idea who the third
> one was for - then i got a call from a young woman in my city who has just
> been diagnosed and is scared and getting a lot of humming and hawwing about
> her prognosis - made her day by sending her that lupus band and a copy of
> The Lupus Book. So, in an indirect way, you made an impact on a person new
> to the disease and in need of support. Thanks!
>
>
| |
|
| "CP" <cp@something.com> wrote in message news:CwoJe.1023$1S.568@trnddc04...
> believe our doctors are trying to protect us as a Lupus diagnosis can
> cause problems when trying to get insurance coverage, etc.
>
> cp
yup. That's what she told me when she diagnosed me. She was even hesitant
to call it UCTD and for the first couple of years merely wrote "rheumatism"
as the insurance code.
i thought she was just humoring me at the time... but as time has gone on, I
understand her and she communicates better with me.
| |
| dropbear1@gmail.com 2005-08-07, 6:04 pm |
| I've been turned down for health insurance, but fortunately in
california we have a high-risk insurance program that is subsidized by
tobacco taxes, so I got insurance that way when I was in-between jobs.
| |
|
| <dropbear1@gmail.com> wrote in message
news:1123437698.079759.33530@g47g2000cwa.googlegroups.com...
> I've been turned down for health insurance, but fortunately in
> california we have a high-risk insurance program that is subsidized by
> tobacco taxes, so I got insurance that way when I was in-between jobs.
interesting - i never knew just what tobacco taxes went into. glad it's
good for something. :P
i do worry about our insurance when hubby retires. If he has enough years
in at NASA it won't be a problem. But if not... And the "not" part is
possible.
ah well... can't worry too much about stuff like that. Right now I'm
thankful that I don't get too sick. Hubby and I were discussing it just a
few minutes ago really. I've been very tired lately and having a bit more
joint pain than usual. Probably because of other stresses going on and a
little bit of depression (okay, a lot) and I find I have to sleep about 2
hours a day in the early part of the day and sometimes another hour in the
afternoon. When I'm awake, I don't feel that horrible fatigue we all know
so well, i just suddenly get overwhelmingly sleepy. Sometimes I wonder if
my thyroid is slightly off - TSH was at the high end of the range last
time - but not above it so nothng was thought o fit.
anyway - his philosophy is that we'll save $ if I take care of myself and
rest when needed rather than pushing it and ending up in the hospital.
Which is true I know. But that doesn't make me feel any less guilty some
days.
And I have a lot of days where I can get up at a reasonable hour (8:30 or
so) and stay up and stay busy without having any problems.
| |
|
| I just found the "code list" laying around from my appointment last
week. Lupus isn't even on his printed code list! My doctor completes a
form on NCR paper and the patient gets one copy. Pretty nice as my
weight and blood pressure are always recorded on this paper.
cp
KCat wrote:
> "CP" <cp@something.com> wrote in message news:CwoJe.1023$1S.568@trnddc04...
>
>
>
> yup. That's what she told me when she diagnosed me. She was even hesitant
> to call it UCTD and for the first couple of years merely wrote "rheumatism"
> as the insurance code.
>
> i thought she was just humoring me at the time... but as time has gone on, I
> understand her and she communicates better with me.
>
>
| |
| Nicole H 2005-08-08, 5:59 pm |
| Thanks for letting me know about the band. That's great!
Guess in your case if it looks like a duck, quacks like a duck, it isn't a
duck. At least you're getting the same treatment, etc.
Take care!
Nicole
| |
|
| heh... well, i think the idea is that it's really a duck - but we're
dressing it up like a Swan.
"Nicole H" <crimsonshedemonREMOVE@hotmail.com> wrote in message
news:vMNJe.34497$aA5.3391@tornado.socal.rr.com...
> Thanks for letting me know about the band. That's great!
>
> Guess in your case if it looks like a duck, quacks like a duck, it isn't a
> duck. At least you're getting the same treatment, etc.
> Take care!
> Nicole
>
>
|
| |
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|