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Author Immuran versus Cellcept
dropbear1@gmail.com

2005-07-05, 10:55 pm

I had been on immuran for the last two years with mixed results. So my
doc and I decided to switch to Cellcept. Since then, my symptoms have
worsened, and I have just developed Shingles, which has left me totally
debilitated and popping a Vicodin every 4 hours for the pain. Has
anybody else has a similar experience, or an experience with Shingles
at all? I know that Shingles and immunosupressive therapy is a bad
combination, so now I am on Acyclovir.

J

2005-07-06, 8:56 am

"dropbear1@gmail.com" wrote:

> I had been on immuran for the last two years with mixed results. So my
> doc and I decided to switch to Cellcept. Since then, my symptoms have
> worsened, and I have just developed Shingles, which has left me totally
> debilitated and popping a Vicodin every 4 hours for the pain. Has
> anybody else has a similar experience, or an experience with Shingles
> at all? I know that Shingles and immunosupressive therapy is a bad
> combination, so now I am on Acyclovir.


Hello,
BJ's been on Imuran for years. Last year, she got shingles.
I forget which pain medications she took for that.
It took quite a while for that to go away.
As I recall, she was holding a soft pillow under one arm, while she
continued her daily routine.
That was because the arm or clothing brushing against the shingles flared
the pain worse.
She has since cut back on her dose of Imuran (for other reasons).

She's been very busy lately. I'm not sure when she'll be posting.

Meantime, you could save us some time by rereading previous posts about
that and which medications helped or didn't.
http://groups-beta.google.com/advanced_search?q=&\
type shingles
type alt.support.lupus
sort by date
Start in July (2nd page) and read each thread through September.
That mgiht give you some tips and websites to read.
Hope this helps and you feel better soon,
J

john

2005-07-09, 12:17 pm


<dropbear1@gmail.com> wrote in message
news:1120612965.354557.228460@g49g2000cwa.googlegroups.com...
>I had been on immuran for the last two years with mixed results. So my
> doc and I decided to switch to Cellcept. Since then, my symptoms have
> worsened, and I have just developed Shingles, which has left me totally
> debilitated and popping a Vicodin every 4 hours for the pain. Has
> anybody else has a similar experience, or an experience with Shingles
> at all? I know that Shingles and immunosupressive therapy is a bad
> combination, so now I am on Acyclovir.
>


I haven't posted hear for a long time, I came back to ask a question and
thought I maybe could answer yours.

I had a similar experience. I was on plaquenil and methotrexate and 40 mg
of pred, I switched to 2000mg a day of cellcept and was able to taper the
pred down to 5mg and 10mg on alternate days. I got shingles after about 3
months, it not fun, not at all. I started acyclovir too late too help, I
took vicodin for the pain and then neurontin for quite a while. The whole
thing lasted several months before I could put it on the back burner. I
never stopped cellcept, I've been on the same regimen for 3 or 4 years now
with no more shingles and no more bad flares. I'm a happy camper with the
cellcept. Wish I could get the pred down further but can't seem to. Good
luck, it will get better.

I'm going to start a new thread with my question.

john



dropbear1@gmail.com

2005-07-09, 5:53 pm

Thanks for all the responses. I managed to get most of my rash in the
groin area, which means I can't sit down, drive, or walk very far (or
work). I'm not sure if I'm going to dump the cellcept (2000mg/day) and
go back to immuran (I'm also taking 10mg prednisone and 400 mg
plaquenil). Perhaps the cellcept is working "too well." I really dont
mind taking 10 mg of prednisone since i don't have a weight
problem--I'm 6 foot one and 150 lbs., but my doc is worried about
osteoporosis in the long run since i'm only 28 years old and i'll
probably be on these drugs most of my life.

BJ

2005-07-20, 2:11 pm

I had shingles last summer. I am on Imuran. I believe that is why it took
months for the lesions to heal. I still have discomfort occasionally, even
after all this time. I had just returned from a holiday which involved days
of driving. I was overtired from that and was a bit run down. I think that
is why I got shingles at that particular time.
BJ-Sk. Canada
<dropbear1@gmail.com> wrote in message
news:1120612965.354557.228460@g49g2000cwa.googlegroups.com...
> I had been on immuran for the last two years with mixed results. So my
> doc and I decided to switch to Cellcept. Since then, my symptoms have
> worsened, and I have just developed Shingles, which has left me totally
> debilitated and popping a Vicodin every 4 hours for the pain. Has
> anybody else has a similar experience, or an experience with Shingles
> at all? I know that Shingles and immunosupressive therapy is a bad
> combination, so now I am on Acyclovir.
>



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