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Home > Archive > Lupus Support > July 2005 > Cellcept
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| BerryOne 2004-10-03, 10:16 pm |
| does anyone have any experience or know anything about treating SLE
with the medication Cellcept?
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| BerryOne wrote:
> does anyone have any experience or know anything about treating SLE
> with the medication Cellcept?
Hello Susanna,
I saw your post on sci.med and wondered why you weren't asking here.
So welcome :-)
So here you are and yes there's several (if not more) on cellcept.
Hopefully you'll get replies on that
Several have just posted recently about that.
What would you like to know? Do you have SLE?
http://www.rheumatology.org/public/...new.asp?aud=pat
More aggressive therapy is required for life-threatening and more serious
manifestations such as kidney inflammation, lung or heart involvement, and
central nervous system symptoms. Treatment in these circumstances might
involve high dose corticosteroids such as prednisone (Deltasone) and other
immunosuppressive drugs such as azathioprine (Imuran), cyclophosphamide
(Cytoxan), and cyclosporine (Neoral, Sandimmune). Recently mycophenolate
mofetil (CellCept) has been used to treat severe lupus kidney disease.
Sometimes several medications must be combined to control the disease and
prevent tissue damage.[end quote]
J
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| BerryOne 2004-10-03, 10:16 pm |
| J <never@example.net> wrote in message news:<4155F925.BF347793@execulink.com>...
> Hello Susanna,
> I saw your post on sci.med and wondered why you weren't asking here.
> So welcome :-)
Thanks J.
> So here you are and yes there's several (if not more) on cellcept.
> Hopefully you'll get replies on that
> Several have just posted recently about that.
I have been reading the thread. Very informative.
> What would you like to know? Do you have SLE?
Yes, I have SLE and recently diagnosed with NP-SLE. I have been
struggling with lupus and all sorts of medications for over 16 yrs
now. I do get some breaks but flares seem to be worse each time.
Last visit to the hospital, my dr decided to switch me over to
Cellcept. That's why I was asking. 
Susana
>
> http://www.rheumatology.org/public/...new.asp?aud=pat
> More aggressive therapy is required for life-threatening and more serious
> manifestations such as kidney inflammation, lung or heart involvement, and
> central nervous system symptoms. Treatment in these circumstances might
> involve high dose corticosteroids such as prednisone (Deltasone) and other
> immunosuppressive drugs such as azathioprine (Imuran), cyclophosphamide
> (Cytoxan), and cyclosporine (Neoral, Sandimmune). Recently mycophenolate
> mofetil (CellCept) has been used to treat severe lupus kidney disease.
> Sometimes several medications must be combined to control the disease and
> prevent tissue damage.[end quote]
> J
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| Timothy Luders 2004-10-03, 10:16 pm |
| On 26 Sep 2004 07:12:07 -0700, BerryOne wrote:
> J <never@example.net> wrote in message news:<4155F925.BF347793@execulink.com>...
>
>
> Thanks J.
>
>
> I have been reading the thread. Very informative.
>
>
> Yes, I have SLE and recently diagnosed with NP-SLE. I have been
> struggling with lupus and all sorts of medications for over 16 yrs
> now. I do get some breaks but flares seem to be worse each time.
>
> Last visit to the hospital, my dr decided to switch me over to
> Cellcept. That's why I was asking.
Linda (my DW) was switched from cytoxan to Cellcept a couple of years ago.
She is now off of both. She had a DNA-antibody test two or three weeks ago
and it came back negative - first time in many years. Other test are also
better than in a long time including the most important test of all; she
feels better. She still is a walking drugstore though (I'm sure you know
what I mean).
HTH and YMMV
Timothy
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| I had exactly the same thing happen.
Dr. said we would try Cellcept to help me get off the Prednisone.
My request because I heard it was so awful.
I was on 10 mg of Pred. at the time with Plaquenil.
I took 500 mg. of Cellcept, twice a day for one month and the next month I
got shingles.
When you get an illness, you have to go off it he said so your immune system
won't be too suppressed, so you can get well.
After the shingles, I got back on it and seemed every other month was sick
with something.
I finally told him to forget it, I'd rather stay on the Prednisone.
Shingles kept me off work for 2 months.
I pray I never get shingles again.
I have been fine since I went off Cellcept and managed to taper to 6-7 mg of
Pred.
I don't think I would take it again unless it was a life threatening
problem.
Judy
=====
> Has
> anybody else has a similar experience, or an experience with Shingles
> at all? I know that Shingles and immunosupressive therapy is a bad
> combination, so now I am on Acyclovir.
>
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