Home > Archive > Lupus Support > June 2005 > Re: I forget your names, but I don't forget you - Roll Call to alt.support.lupus





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Author Re: I forget your names, but I don't forget you - Roll Call to alt.support.lupus
Shelagh

2005-06-12, 5:53 pm

Welcome Victor!
good to see another 'fellow' on line here in this newsgroup!
hope you keep up with posts and join in at any point! we are all supportive
and anything goes with questions and/or just fun things you've done lately
that might appeal to the rest of us or just cheer some of us up when we read
them!
someone here named the 'fun events' in our lives 'cheesey good things' or
CGTs... so if you should see a post with the heading as CGT, read it!!
Cause it might give you a warm fuzzy or a laugh to start your day! we get
enough 'cold pricklies' living every day with lupus! congrats on your
'course' and i hope you gain from it in every way, specially your support
group! i used to co-ordinate one and now i just sit back and 'belong' to one
locally! my job is to make and send condolence cards to those who are sick
at home or in the hospital each month; helps me to reach out to others and
to keep in touch socially too; we meet once a month for luncheons out in a
local restaurant and it can be really enjoyable with a good group of people!
Good luck and my hugs to you,
Shelagh

"TuxInSpring" <victor@escobar.ws> wrote in message
news:FlEqe.2551$751.1795@newssvr30.news.prodigy.com...
>
> I am just shy, that's all. :">
> I am Victor, from Spring, this is the first group to which I can really
> rrelate. I started going to a support group recently and last week began a
> course (http://lupustexas.org/html/flyer.htm) that concentrates on
> learning
> how to live with lupus, including the emotional, social, financial and
> interpersonal consequences . I always felt out of place because all the
> people that I know that have lupus are women. Not any more, I met a couple
> of very nice gentlemen and their spouses at the class last week.
>
> I check the postings regularly but I normally only speak when spoken to.
>
> I went from having a very active life to being diagnosed, after years of
> mis-diagnoses, to retirement in a very short time and I am having a hard
> time adjusting. I am fortunate to have a very loving and supportive wife
> (38
> years an counting).
>
> Wow, that is more than usual ranting for me.
>
> Nice to meet you all, I am glad to be here.
>
> V



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