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Home > Archive > Lupus Support > June 2005 > WHINING
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| Ruth Tay 2005-06-02, 10:58 pm |
| here it is another beautiful day and the sun is bright and lethal
for me. I want and need to go outside. The solumbra clothes, hat and
sunblock are not working anymore and even 40 minutes in a car with
windows that have UV preventable film on them gave me 5 days in bed.
Now that summer has arrived and the UV is extra high what do the rest
of you do? Kicking my little pomeranion is not an option.
Help!!!!!! ruth
| |
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| I mostly go out after 4 pm.
No, don't kick the doggie. ;-)
Judy
======
"Ruth Tay" <ruthtay@mcn.org> wrote in message
news:ruthtay-0888B3.11263202062005@cnews.newsguy.com...
> here it is another beautiful day and the sun is bright and lethal
> for me. I want and need to go outside. The solumbra clothes, hat and
> sunblock are not working anymore and even 40 minutes in a car with
> windows that have UV preventable film on them gave me 5 days in bed.
>
> Now that summer has arrived and the UV is extra high what do the rest
> of you do? Kicking my little pomeranion is not an option.
> Help!!!!!! ruth
| |
| janers 2005-06-02, 10:58 pm |
| Ruthie, so darn nice to see you posting, whine or not? you got cheese with
that whine??? I will join ya for sure but has to be NON alcholic wine
cause Methotrexate time for me LOL
I am sorry the sun gives you such a mess. Are you using 65 or better
sunblock? Did you get some of the newest type sunblock on the market?
I am talking about getting at www.dermadoctor.com
order some of the Total block that is 65 for sunblock. there is total
block clear too. It is awesome and works. I hope this helps you. Please
try it, you might find it works better than what you got. Even if you wear
those sun product clothes you need to get your face and your arms an legs
and chest all covered with sunblock. been there done that...
Maybe your medications need adjusted and some of your meds might be
sunsensitive in themselves.
Hubby and I are doing ok, thinking of going to Tennessee again, so
beautiful there too.
HMMM now where is my private email lady.
They also have COTZ SPF sun block of 58. this will help you a lot
with your problem.
At least you are not kicking Paul now are you??
love you
janers
| |
| Ruth Tay 2005-06-02, 10:58 pm |
| In article <a_CdnVFDgaQ9yALfRVn-pA@comcast.com>,
"Judy" <jmont55@comcast.net> wrote:
> I mostly go out after 4 pm.
> No, don't kick the doggie. ;-)
> Judy
> ======
>
> "Ruth Tay" <ruthtay@mcn.org> wrote in message
> news:ruthtay-0888B3.11263202062005@cnews.newsguy.com...
>
>
Thank you Judy. Do you go out at 4:00 suntime or daylight saving
time. Maybe that hour would make a difference ruth
| |
|
| We are on daylight savings........
Judy
---------
>
> Thank you Judy. Do you go out at 4:00 suntime or daylight saving
> time. Maybe that hour would make a difference ruth
| |
|
| Ruth Tay wrote:
> here it is another beautiful day and the sun is bright and lethal
> for me. I want and need to go outside. The solumbra clothes, hat and
> sunblock are not working anymore and even 40 minutes in a car with
> windows that have UV preventable film on them gave me 5 days in bed.
>
> Now that summer has arrived and the UV is extra high what do the rest
> of you do? Kicking my little pomeranion is not an option.
> Help!!!!!! ruth
Hello Ruth (and everyone).
Ultraviolet radiation also increases nearer the equator, in the mountains
or anywhere one is physically closer to the sun.
http://www.mtio.com/lupus/bro16.htm
Also I think that light colours reflect sun and UV, so a car that's a
lighter colour probably reflects more light & UV into the windows and the
darker the car may less so. Also the shinier the car, probably relects
more UV in through the windows, so maybe we should all be driving cars
with only dark primer and no chrome. I'm just putting this out as
potential contribution factor for what is happening to you.
If you want to see how close you are to the equator, look at the line
straight across this map.
That's the equator.
http://www.sci.mus.mn.us/sln/tf/e/equator/equator.html
BJ and Shelagh and I and Bruce are further away from the equator. We're
further north from you.
So is Janers.
You may also be closer to water. It absorbs some UV, but I think it also
reflects same. I always got sunburned more on or in (or near) water.
If you read that first web site, there are other factors that are specific
to one poster, that may not be to another.
So it's very hard to compare to others here, unless you know the specifics
of each of them.
My competer's too slow to read the solumbra catalogue.
I wonder if you went out a few hours later, but use a wide brimmed hat,
leaning downwards over your face.
But first sew the beach coverup to the brim of the hat, so that it covers
your body while you're in the car?
Just an idea. Each person has to adjust to their particular circumstance.
Hugs Ruth
J
| |
|
| In article <42A1CEA9.4A89AA6F@execulink.com>, J <tropical@invalid.anon>
wrote
[]
>Ultraviolet radiation also increases nearer the equator, in the mountains
>or anywhere one is physically closer to the sun.
It's not closeness-to-sun (the difference is negligible) but thickness
of air above your head. Also absorption thereof; in mountains etc
there's less pollution hence even less absorption of UV
[
>You may also be closer to water. It absorbs some UV, but I think it also
>reflects same. I always got sunburned more on or in (or near) water.
>
Yup, it reflects it. So does snow. And clouds sometimes absorb visible
light (so it seems darker) but not UV (so it burns you just the same 
--
Andy Taylor [Chair, N E Lupus Group]
See http://www.northeastlupus.org.uk for more!
| |
| William R Thompson 2005-06-05, 8:53 am |
| "J" <tropical@invalid.anon> wrote:
> Hello Ruth (and everyone).
> Ultraviolet radiation also increases nearer the equator, in the mountains
> or anywhere one is physically closer to the sun.
> http://www.mtio.com/lupus/bro16.htm
> Also I think that light colours reflect sun and UV, so a car that's a
> lighter colour probably reflects more light & UV into the windows and the
> darker the car may less so. Also the shinier the car, probably relects
> more UV in through the windows, so maybe we should all be driving cars
> with only dark primer and no chrome. I'm just putting this out as
> potential contribution factor for what is happening to you.
You can also get UV-filtering plastic for car windows at auto
supply stores, although different states/countries probably
have laws governing tinted windows.
> You may also be closer to water. It absorbs some UV, but I think it also
> reflects same. I always got sunburned more on or in (or near) water.
Snow also reflects UV very well. I think beach sand is another
good UV refector, but I'm not certain of that.
About the 10:00 AM to 4:00 PM rule, time zones, altitude and all that--
There's a great website,
http://www.srrb.noaa.gov/highlights/sunrise/gen.html
which gives you two calculators. One will tell you sunrise and sunset
times for your location, for any day of the year; the second will tell you
the sun's elevation at any moment on any given day.
The sun's elevation above the horizon varies with the seasons as well
as the time of day, thanks to the tilt of the earth's axis. The sun is much
higher at noon on a summer day than at noon on a winter day. Also,
when it's twelve o'clock in the afternoon by your clock, the sun may
not be at its greatest elevation. A time zone is about fifteen degrees
wide, so it can be "noon" at one edge of the zone, while at the other
edge a sundial would tell you it's really eleven in the morning.
Here in northern Utah, the NOAA site tells me that the sun's greatest
elevation on June 5 will be 71 degrees at 1:27 PM., DST. A sun dial
would call that noon. When a clock says it's noon today, the sun will be
only 64 degrees above the horizon. At 4:00 PM, the sun will be 53
degrees above the horizon (although I won't go out to check.)
Six months later, on December 5, the sun will only reach a maximum
elevation of 26 degrees at mid-day (which will be 12:18 PM, standard
time). That's only half the elevation the sun will have at four in the
afternoon on June 5; on June 5, the sun won't get that low until
6:24 PM. And at 4:00 PM on December 5, the sun will only be eight
degrees above the horizon. That's quite a variation in elevations.
--Bill Thompson
| |
| William R Thompson 2005-06-05, 8:53 am |
| "Andy" <andy@kitzbuhel.demon.co.uk> wrote:
> J <tropical@invalid.anon> wrote:
[vbcol=seagreen]
> It's not closeness-to-sun (the difference is negligible) but thickness of
> air above your head. Also absorption thereof; in mountains etc there's
> less pollution hence even less absorption of UV
Good point. A US government site,
www.ofcm.gov/jagti/11-03_mtg/long_uviI_jag-it.ppt
says that there's a 3% increase in UV levels for every 1 kilometer
increase in altitude. And, to return to a point I was babbling about
in an earlier post, the same site reports that sand reflects over 30%
of UV light, while snow reflects 30% to 90% of UV light.
--Bill Thompson
| |
|
| In article <Iozoe.14078$M36.5977@newsread1.news.atl.earthlink.net>,
William R Thompson <wrthomps@ix.netcom.com> wrote
[
>There's a great website,
>
>http://www.srrb.noaa.gov/highlights/sunrise/gen.html
>
>which gives you two calculators. One will tell you sunrise and sunset
>times for your location, for any day of the year; the second will tell you
>the sun's elevation at any moment on any given day.
>
(Looks out window at typical British summer weather) What is this "sun"
of which you speak?
--
Andy Taylor [Chair, N E Lupus Group]
See http://www.northeastlupus.org.uk for more!
| |
| Shelagh 2005-06-05, 11:51 am |
| "Andy" <andy@kitzbuhel.demon.co.uk> wrote in message
> (Looks out window at typical British summer weather) What is this "sun" of
> which you speak?
> --
> Andy Taylor [Chair, N E Lupus Group]
> See http://www.northeastlupus.org.uk for more!
LOL.... that is what I hear from my friend in Scotland.... you all in the UK
are pretty much 'socked in' a goodly portion of the time?!
hugs, Shelagh
| |
| ironjustice@aol.com 2005-06-05, 5:54 pm |
| http://www.nutrition.org/cgi/conten...ract/131/5/1449
(Journal of Nutrition. 2001;131:1449-1451.)
=A9 2001 The American Society for Nutritional Sciences
---------------------------------------------------------------------------=
-----
Research Communication
Dietary Tomato Paste Protects against Ultraviolet Light=96Induced
Erythema in Humans1
Wilhelm Stahl2, Ulrike Heinrich*, Sheila Wiseman, Olaf Eichler, Helmut
Sies and Hagen Tronnier*
Institut f=FCr Physiologische Chemie I and Biologisch-Medizinisches
Forschungszentrum, Heinrich-Heine-Universit=E4t D=FCsseldorf, D-40001
D=FCsseldorf, Germany; * Institut f=FCr Experimentelle Dermatologie,
Universit=E4t Witten-Herdecke, D-58455 Witten, Germany; and Unilever
Health Institute, Unilever Research Vlaardingen, The Netherlands
2To whom correspondence should be addressed. E-mail:
wilhelm.stahl@uni-duesseldorf.de.
Carotenoids are efficient antioxidants capable of scavenging reactive
oxygen species generated under conditions of photooxidative stress. It
has been shown that supplementation with high doses of =DF-carotene
protects skin against UV-induced erythema. This study was designed to
investigate whether intervention with a natural dietary source rich in
lycopene protects against UV-induced erythema in humans. Tomato paste
(40 g), providing 16 mg/d of lycopene, was ingested with 10 g of olive
oil over a period of 10 wk by 9 volunteers. Controls (n =3D 10) received
olive oil only. Erythema was induced by illumination of dorsal skin
(scapular region) with a solar simulator at the beginning of the study,
after 4 wk and after 10 wk. Intensity of erythema was measured by
chromatometry; the a-value was determined directly before and 24 h
after irradiation. Serum carotenoid levels were measured by HPLC. At
the beginning of the study, carotenoid levels did not differ between
the two groups. Serum levels of lycopene increased in supplemented
subjects; the other carotenoids did not change significantly, and no
change in serum carotenoids was observed in the control group. At wk
10, dorsal erythema formation was 40% lower in the group that consumed
tomato paste compared with controls (P =3D 0.02; Wilcoxon-Mann-Whitney
test). No significant difference between groups was found at wk 4 of
treatment. The data demonstrate that it is feasible to achieve
protection against UV light=96induced erythema by ingestion of a commonly
consumed dietary source of lycopene.
---------------------------------------------------------------------------=
-----
KEY WORDS: =95 lycopene =95 sunburn =95 skin carotenoids =95 erythema =95 h=
umans
Who loves ya.
Tom
Jesus Was A Vegetarian!
http://jesuswasavegetarian.7h.com
Man Is A Herbivore!
http://pages.ivillage.com/ironjustice/manisaherbivore DEAD
PEOPLE WALKING
http://pages.ivillage.com/ironjustice/deadpeoplewalking
| |
| William R Thompson 2005-06-06, 8:57 am |
| "Andy" <andy@kitzbuhel.demon.co.uk> wrote:
> William R Thompson <wrthomps@ix.netcom.com> wrote:
[vbcol=seagreen]
[vbcol=seagreen]
[vbcol=seagreen]
> (Looks out window at typical British summer weather) What is this "sun" of
> which you speak?
It's a huge chariot with great flaming wheels, pulled by a team of white
horses
and driven across the skies by the Greek god Apollo. The sky, incidentally,
is blue.
(Maybe I'm kidding, but how will anyone who lives in the British Isles prove
it?)
--Bill Thompson
| |
| Ruth Tay 2005-06-07, 5:55 pm |
| In article <42A1CEA9.4A89AA6F@execulink.com>, J <tropical@invalid.anon>
wrote:
HI J,
Never thought about being close to the ocean. We live on a little hill
about 1/8 a mile from the ocean. When we do go away we try to stay
close to the ocean and the last flare came from a suddenly sunny day
and we had to drive about 40 miles right next to the ocean. The
reason we picked Mendocino is that it is usually foggy most of the
year and it also rains alot.... Wonder too about the plaquinil [that
have taken for the last 20 years] Took a powerful antibiotic for a
week before the overnight trip. Also carry a huge umbrella when walking
on the beach. Maybe the umbrella reflects the UV from the sa
J thanks a lot. Your ideas will give new avenues of research ruth
..
> Ruth Tay wrote:
>
>
> Hello Ruth (and everyone).
> Ultraviolet radiation also increases nearer the equator, in the mountains
> or anywhere one is physically closer to the sun.
> http://www.mtio.com/lupus/bro16.htm
> Also I think that light colours reflect sun and UV, so a car that's a
> lighter colour probably reflects more light & UV into the windows and the
> darker the car may less so. Also the shinier the car, probably relects
> more UV in through the windows, so maybe we should all be driving cars
> with only dark primer and no chrome. I'm just putting this out as
> potential contribution factor for what is happening to you.
>
> If you want to see how close you are to the equator, look at the line
> straight across this map.
> That's the equator.
> http://www.sci.mus.mn.us/sln/tf/e/equator/equator.html
> BJ and Shelagh and I and Bruce are further away from the equator. We're
> further north from you.
> So is Janers.
> You may also be closer to water. It absorbs some UV, but I think it also
> reflects same. I always got sunburned more on or in (or near) water.
>
> If you read that first web site, there are other factors that are specific
> to one poster, that may not be to another.
> So it's very hard to compare to others here, unless you know the specifics
> of each of them.
>
> My competer's too slow to read the solumbra catalogue.
> I wonder if you went out a few hours later, but use a wide brimmed hat,
> leaning downwards over your face.
> But first sew the beach coverup to the brim of the hat, so that it covers
> your body while you're in the car?
>
> Just an idea. Each person has to adjust to their particular circumstance.
> Hugs Ruth
> J
>
| |
| Ruth Tay 2005-06-07, 5:55 pm |
| In article <T2QkqEEYksoCFwzM@kitzbuhel.demon.co.uk>,
Andy <andy@kitzbuhel.demon.co.uk> wrote:
Thanks Andy for your weather reminder of England. We spent 3 weeks there
in March about ten years ago. Never saw the sun Never has a lupus
flare either. Great place to live ruth
> In article <Iozoe.14078$M36.5977@newsread1.news.atl.earthlink.net>,
> William R Thompson <wrthomps@ix.netcom.com> wrote
> [
> (Looks out window at typical British summer weather) What is this "sun"
> of which you speak?
| |
|
| Ruth Tay wrote:
> Never thought about being close to the ocean. We live on a little hill
> about 1/8 a mile from the ocean. When we do go away we try to stay
> close to the ocean and the last flare came from a suddenly sunny day
> and we had to drive about 40 miles right next to the ocean. The
> reason we picked Mendocino is that it is usually foggy most of the
> year and it also rains alot.... Wonder too about the plaquinil [that
> have taken for the last 20 years] Took a powerful antibiotic for a
> week before the overnight trip. Also carry a huge umbrella when walking
> on the beach. Maybe the umbrella reflects the UV from the sa
>
> J thanks a lot. Your ideas will give new avenues of research ruth
Hi ruth, sounds like you picked right as to where to live.
That pesky sun just peeked out at the wrong time .
Could you use the umbrella in the car, when that happens?
I would need the name of the antibiotic.
Seems to me I've seen some that have warnings on them about sun sensitivity.
How's Ruth's animal kingdom doing?
We've got a red fox out here. I'm not telling anyone because they might hunt it
down and shoot it.
Many hugs to ruth from J
| |
|
| The only good thing about living in the UK with Lupus is the glorious lack
of sunshine, sorry your having such a hard time,
DEB.
"Ruth Tay" <ruthtay@mcn.org> wrote in message
news:ruthtay-0888B3.11263202062005@cnews.newsguy.com...
> here it is another beautiful day and the sun is bright and lethal
> for me. I want and need to go outside. The solumbra clothes, hat and
> sunblock are not working anymore and even 40 minutes in a car with
> windows that have UV preventable film on them gave me 5 days in bed.
>
> Now that summer has arrived and the UV is extra high what do the rest
> of you do? Kicking my little pomeranion is not an option.
> Help!!!!!! ruth
| |
|
| I mostly say "screwm it"! But seriously, here in Florida hurricane season
has encroached upon us. Makes for plenty of fairweather days, just like the
Brits like. Except in Britain, less we not forget all the smog and
pollution in the city. That thick air likes to bog all the smog down just
so's everyone can get sick and suck in lung fulls.
Always,
...· ´¨¨)) -:¦:-
¸.·´ .·´¨¨))
((¸¸.·´ ..·´ cloud -:¦:-
-:¦:- ((¸¸.·´*
"Ruth Tay" <ruthtay@mcn.org> wrote in message
news:ruthtay-0888B3.11263202062005@cnews.newsguy.com...
> here it is another beautiful day and the sun is bright and lethal
> for me. I want and need to go outside. The solumbra clothes, hat and
> sunblock are not working anymore and even 40 minutes in a car with
> windows that have UV preventable film on them gave me 5 days in bed.
>
> Now that summer has arrived and the UV is extra high what do the rest
> of you do? Kicking my little pomeranion is not an option.
> Help!!!!!! ruth
| |
| nonone 2005-06-16, 8:55 am |
| Try tight woven blue denim clothing which has up to an SPF 1000 rating. Hold
the fabric up to a light, the less light it lets through the better. Cover
up everything possible. I wear long sleeve denim shirts and jeans, hat,
collar turned up for more protection, wrap around sunglasses, gloves if I
can get by with it.
One of the gals with solar urticaria in our group is so sensitive her eyes
swell shut without sunglasses. She said that UV sunglasses which blocks the
sun from the sides of your eyes helps a lot. I found some of the wraparound
sunglasses at Walmart and they fit over glasses.
Like you, I used to get whacked by only 40 minutes in the sun.
I have solar urticaria, and I cannot wear Total Block. I tried Cotz and it
doesn't work on me. I have found that I am sensitive to visible light while
most people are only sensitive to UVA and UVB light. I am now making my own
sunscreen . With my homemade sunscreen and other sun protection measures, I
can make 2 or 3 hour trips to the store without getting whacked.
noone
"Ruth Tay" <ruthtay@mcn.org> wrote in message
news:ruthtay-0888B3.11263202062005@cnews.newsguy.com...
> here it is another beautiful day and the sun is bright and lethal
> for me. I want and need to go outside. The solumbra clothes, hat and
> sunblock are not working anymore and even 40 minutes in a car with
> windows that have UV preventable film on them gave me 5 days in bed.
>
> Now that summer has arrived and the UV is extra high what do the rest
> of you do? Kicking my little pomeranion is not an option.
> Help!!!!!! ruth
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