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Home > Archive > Lupus Support > March 2005 > Re: autoimmune, allergy, immune/Jay
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Re: autoimmune, allergy, immune/Jay
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| Diane Fblooms wrote:
> Long story short I had a doctor that I just fired. It took me awhile
> because I had to have another doctor first. Even though I had a positive
> ANA this doc, his name is John, actually told me I didn't have Lupus at
> one point even when the test clearly say I have it.
>
> I had the Antinuclear Ab test done. The high reading was 15. (Test
> done in 1997) No test done since. It had a speckled pattern and was
> Homogeneous as well.
> At first John tried me on some Lupus medications, I don't remember just
> what it was and the other drug was a cortisone type drug. Cortisone
> drugs I have never been able to take but he couldn't just take my word
> on that of course. When he told me I didn't have Lupus, I didn't
> realize he wasn't being straight with me.
>
> I recently started seeing my gastro more often and learned I have GP and
> may of been born with it. I than remembered the positive ANA test; when
> I showed the labs he said, I have Lupus. I also got a new GP recently
> who knows about Lyme and strongly believes in Naturopaths as the first
> course of action when ever possible.
>
> Basically all I'm doing is homeopathic treatments (for Lyme/digestive
> problems and in the mix it lists treatment for heart, liver and
> kidneys). I have never had labs finding any organ involvement but my ND
> sees a need for these helps.
>
> My gastro is now putting me on medications for the GP. I'm on Zelnorm
> and Metoclopramide right now. So far no bad reactions to these
> medications but so far I see no benefits either. I told my gastro I
> have Lyme, that I had the bulls eye rash as my proof. He ran the labs
> for this both times when my other doctor was told when I first started
> going to him about that rash and he never tested me. I told my gastro
> that I didn't see a need to keep getting tested until it came out
> positive, that the rash is all the proof I need plus I am getting the
> homeopathic treatment for that and I will not be changing my treatment.
> I asked him if he thought I should get tested again at some point for
> the Lupus and he said no the treatment would be the same as I'm doing
> now. Note: he has a copy of the lab report of the medication that was
> first tried for Lupus that says I was not able to take the medication.
> I got the information on the LDN, that I don't have the energy to
> research more about at this time, that I can give my gastro saying I
> heard of it but don't know if it has merit or not and see what he says.
Hello Diane, thanks for explaining the situation.
Save this http://www.clinicaltrials.gov/
At any time, you can type in a word (such as Lupus) and see what clinical
trials are listed there.
Good luck with your efforts.
Talk to us anytime.
I'm here mostly reading.
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