Lupus Support - question

Author

question

2005-12-18, 6:06 pm

Hello,
Had a strange occurance this weekend and thought perhaps some of you could
provide some insight. Im a 32yo female and was dx'ed with selective IgA
deficiency when I was about 6. It hasn't affected me a whole lot as an
adult (as a kid, I was sick all the time with every respiratory problem,
colds, flus - you name it) - sore throats and colds more often than most
now.... if there's a bug floating around, I'm the first to get it. However,
I was also given a heads up on a few things to watch for because I was more
susceptible. One of them was lupus. I never really gave it much thought
until about 7 or 8 yrs ago when I started developing a rash on my face. My
dermatologist dx'ed it as rosacea but said I should get checked for lupus
just in case because sometimes the two mimic eachother. I didn't really
care, I guess.....I didn't have any other symptoms so I never saw my doctor.
Since that time, I've changed my eating habits entirely and maintain a
fairly constant exercise routine. My face is 98% clear and the days that it
isn't, it's very mild and makeup does the trick - I also take a few
different supplements which promote skin health. Anyway, in the past weeks
I have had some dull pain arising in my joints. Mainly my hips and knees.
I rarely drink and when I do, it's a glass of wine or maybe ONE beer.
However, friday night I went out with some friends and went to the extreme.
I was fine all night until I came home and went to bed. Both of my hip
joints were just SCREAMING and I couldn't get comfortable enough to fall
asleep for some time because they hurt so bad. Eventually, the alcohol took
over, though, and I zonked out. It's sunday night, though, and I'm still in
pain. I've also been feeling feverish on and off. I read that people with
lupus shouldn't consume alcohol but for the life of me, I can't find a
website or a newsgroup entry that explains why. Does it make the pain
worse? I'm definitely making an appointment to see my doctor this week.
Whatever I'm experiencing doesn't feel normal at all.... Anyone's input is
appreciated. TIA.

~V

dropbear1@gmail.com

2005-12-19, 1:04 am

I had a few martini's last night and they had no effect on me. So far,
alchohol doesn't seem to make a difference in my lupus. Maybe the
warning has more to do with the interactions with the meds than with
your immune system.

William R Thompson

2005-12-19, 11:02 am

"VS" wrote :

> I rarely drink and when I do, it's a glass of wine or maybe ONE beer.
> However, friday night I went out with some friends and went to the
> extreme. I was fine all night until I came home and went to bed. Both of
> my hip joints were just SCREAMING and I couldn't get comfortable enough to
> fall asleep for some time because they hurt so bad. Eventually, the
> alcohol took over, though, and I zonked out. It's sunday night, though,
> and I'm still in pain. I've also been feeling feverish on and off. I
> read that people with lupus shouldn't consume alcohol but for the life of
> me, I can't find a website or a newsgroup entry that explains why. Does
> it make the pain worse? I'm definitely making an appointment to see my
> doctor this week. Whatever I'm experiencing doesn't feel normal at all....
> Anyone's input is appreciated. TIA.

I hope the pain clears out soon.

Yes, alcohol can be a problem. Why? Unfortunately, lupus can do whatever
it wants to do. Most of the time it wants to dress up like a Puritan and
say
"I forbid thee to enjoy thyself!"

The last time I had one drink, it flattened me. I woke up with a nosebleed,
which was more disturbing than being mildly stiff and sore over the next few
days. This definitely wasn't a hangover (back in college it took several
drinks
to do that to me).

--Bill Thompson

lehill1

2005-12-19, 11:02 am

"VS" <noemail@myserver.com> wrote in message
news:tPmpf.11810$Dk.4810@tornado.rdc-kc.rr.com...
> Hello,
> Had a strange occurance this weekend and thought perhaps some of you could
> provide some insight. Im a 32yo female and was dx'ed with selective IgA
> deficiency when I was about 6. It hasn't affected me a whole lot as an
> adult (as a kid, I was sick all the time with every respiratory problem,
> colds, flus - you name it) - sore throats and colds more often than most
> now.... if there's a bug floating around, I'm the first to get it.
> However, I was also given a heads up on a few things to watch for because
> I was more susceptible. One of them was lupus. I never really gave it
> much thought until about 7 or 8 yrs ago when I started developing a rash
> on my face. My dermatologist dx'ed it as rosacea but said I should get
> checked for lupus just in case because sometimes the two mimic eachother.
> I didn't really care, I guess.....I didn't have any other symptoms so I
> never saw my doctor. Since that time, I've changed my eating habits
> entirely and maintain a fairly constant exercise routine. My face is 98%
> clear and the days that it isn't, it's very mild and makeup does the
> trick - I also take a few different supplements which promote skin health.
> Anyway, in the past weeks I have had some dull pain arising in my joints.
> Mainly my hips and knees. I rarely drink and when I do, it's a glass of
> wine or maybe ONE beer. However, friday night I went out with some friends
> and went to the extreme. I was fine all night until I came home and went
> to bed. Both of my hip joints were just SCREAMING and I couldn't get
> comfortable enough to fall asleep for some time because they hurt so bad.
> Eventually, the alcohol took over, though, and I zonked out. It's sunday
> night, though, and I'm still in pain. I've also been feeling feverish on
> and off. I read that people with lupus shouldn't consume alcohol but for
> the life of me, I can't find a website or a newsgroup entry that explains
> why. Does it make the pain worse? I'm definitely making an appointment
> to see my doctor this week. Whatever I'm experiencing doesn't feel normal
> at all.... Anyone's input is appreciated. TIA.
>
> ~V
>

lehill1

2005-12-19, 11:02 am

Alcohol does not bother me, unless it is on days that I take methotrexate.
I have never heard that lupus patients shouldn't drink. Maybe it is because
of all the medications. They say we shouldn't go in the sun...and that
doesn't bother me, either. Really - I think you have to find out what works
for you and what doesn't!

I hope you feel better!

"VS" <noemail@myserver.com> wrote in message
news:tPmpf.11810$Dk.4810@tornado.rdc-kc.rr.com...
> Hello,
> Had a strange occurance this weekend and thought perhaps some of you could
> provide some insight. Im a 32yo female and was dx'ed with selective IgA
> deficiency when I was about 6. It hasn't affected me a whole lot as an
> adult (as a kid, I was sick all the time with every respiratory problem,
> colds, flus - you name it) - sore throats and colds more often than most
> now.... if there's a bug floating around, I'm the first to get it.
> However, I was also given a heads up on a few things to watch for because
> I was more susceptible. One of them was lupus. I never really gave it
> much thought until about 7 or 8 yrs ago when I started developing a rash
> on my face. My dermatologist dx'ed it as rosacea but said I should get
> checked for lupus just in case because sometimes the two mimic eachother.
> I didn't really care, I guess.....I didn't have any other symptoms so I
> never saw my doctor. Since that time, I've changed my eating habits
> entirely and maintain a fairly constant exercise routine. My face is 98%
> clear and the days that it isn't, it's very mild and makeup does the
> trick - I also take a few different supplements which promote skin health.
> Anyway, in the past weeks I have had some dull pain arising in my joints.
> Mainly my hips and knees. I rarely drink and when I do, it's a glass of
> wine or maybe ONE beer. However, friday night I went out with some friends
> and went to the extreme. I was fine all night until I came home and went
> to bed. Both of my hip joints were just SCREAMING and I couldn't get
> comfortable enough to fall asleep for some time because they hurt so bad.
> Eventually, the alcohol took over, though, and I zonked out. It's sunday
> night, though, and I'm still in pain. I've also been feeling feverish on
> and off. I read that people with lupus shouldn't consume alcohol but for
> the life of me, I can't find a website or a newsgroup entry that explains
> why. Does it make the pain worse? I'm definitely making an appointment
> to see my doctor this week. Whatever I'm experiencing doesn't feel normal
> at all.... Anyone's input is appreciated. TIA.
>
> ~V
>