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Home > Archive > Lupus Support > December 2005 > Roll Call to alt.support.lupus - November/05
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Roll Call to alt.support.lupus - November/05
|
|
|
| Hello All,
I've been reading your posts and caring.
How are y'all doing?
I know some of you are busy with education (Bev?), wedding (Sharon?),
house-cleaning (BJ?),
moving (KC?) and where's the rest of you ?
Before things get very busy with your Thanksgiving and loading up on gifts
for Christmas, how about a roll call.
Please come check in and let us know how you're doing.
Hugs to all,
J
| |
| Jenn L 2005-11-13, 6:02 pm |
| | |
| Jenn L 2005-11-13, 6:02 pm |
| oops.i overlooked the sig on my post
| |
| Sherry 2005-11-13, 6:02 pm |
| J,
I am reading daily and just haven't had much to say. But I'm here!
Hugs,
sherry
| |
| JPPatti@webtv.net 2005-11-14, 12:59 am |
| I appreciate all I read here. At present I am having severe knee
pain...? lupus imitating arthritis. I've got to get back to my rhemie
tomorrow. So grateful for this group.
Patti
| |
|
| JPPatti@webtv.net wrote:
> I appreciate all I read here. At present I am having severe knee
> pain...? lupus imitating arthritis. I've got to get back to my rhemie
> tomorrow. So grateful for this group.
> Patti
Hello and welcome, Patti,
Let us know how it goes with the rheumie.
I have knee pain too, but it's shifting kneecaps. They're shifty <wink>
Hugs
J
| |
|
| Sherry wrote:
> I am reading daily and just haven't had much to say. But I'm here!
Hi Sherry, This newsgroup is sure gone quiet.
Guess nobody else has anything to say or they're back-channel emailing
each other.
In other words, this roll call seems to be "bombing".
Thanks for your reply and being here and hugs to you from
me-J
| |
|
| In article <4378D0DF.8456F7F4@execulink.com>, J <sniffles@anon.inv>
wrote
>Sherry wrote:
>
>
>Hi Sherry, This newsgroup is sure gone quiet.
{font = 100} BOO! {reset}
--
Andy Taylor [Chair, N E Lupus Group]
See http://www.northeastlupus.org.uk for more!
| |
| Sherry 2005-11-14, 5:58 pm |
| Andy,
I reset my font size and made sure that it says plain text for newsgroups.
Hope that this is right now.
>
> {font = 100} BOO! {reset}
> --
> Andy Taylor [Chair, N E Lupus Group]
> See http://www.northeastlupus.org.uk for more!
| |
|
| Jenn L wrote:
> newbie checking in...Does anyone here
> suffer discoid?
> I would appreciate your support and input.
> Thank You,
> Jenn
>
Hello Jenn,
I hope you hear from someone soon.
hugs
J
| |
|
| Sherry wrote:
> Andy,
> I reset my font size and made sure that it says plain text for newsgroups.
> Hope that this is right now.
I think he was saying BOO because it's a ghostown here.<g> or he was answering
the rollcall.
I saw nothing wrong with your settings.
Hugs
J
> Andy > {font = 100} BOO! {reset}
| |
| Ruth Tay 2005-11-15, 1:02 am |
| In article <4378D076.94F15DD3@execulink.com>, J <sniffles@anon.inv>
wrote:
> JPPatti@webtv.net wrote:
>
>
> Hello and welcome, Patti,
> Let us know how it goes with the rheumie.
> I have knee pain too, but it's shifting kneecaps. They're shifty <wink>
> Hugs
> J
I'm here too. Thought about 10 months ago that my lupus was under
control and then all hell broke loose in May and am still in a flare.
Do appreciate reading the comments. Does anyone know how Grace is
doing? How about BJ ? ruth
| |
|
| Ruth Tay wrote:
> I'm here too. Thought about 10 months ago that my lupus was under
> control and then all hell broke loose in May and am still in a flare.
> Do appreciate reading the comments. Does anyone know how Grace is
> doing? How about BJ ? ruth
Hello Ruth,
I'm sorry to read about your flare.
Last I heard about Grace was maybe lung transplant, but haven't heard more
for a while now.
Bi's probably tired - her hubby retired.
Maybe when she comes here she'll tell a very funny story about a cake.
Hugs
J
| |
| Janers 2005-11-15, 1:02 am |
| I am here just been busy. Daughter moved out of old home, into new all in
two weeks time. Believe that? It was so fast I am still trying to figure
out how they did it 
I am doing ok just will find out if Hubby's biopsy was ok. That will be
tomorrow. Pray folks on this one.
thanks again
janers
| |
| Snake Lady 2005-11-15, 10:59 am |
|
I am still here reading, sorry I have nothing to post. I would only be
moaning so best not to say anything.
Janet aka Snake Lady
J wrote:[vbcol=seagreen]
> Sherry wrote:
>
>
> I think he was saying BOO because it's a ghostown here.<g> or he was
> answering the rollcall.
> I saw nothing wrong with your settings.
> Hugs
> J
>
| |
|
| In article <W_8ef.16673$q%.9066@newssvr12.news.prodigy.com>, Sherry
<hurst1st@sbcglobal.nospam> wrote
>Andy,
>I reset my font size and made sure that it says plain text for newsgroups.
>Hope that this is right now.
>
No problems here with any of your posts - nor indeed with anybody's as
my reader simply ignores all size, shape, and color details and presents
the text as plain and unadulterated.
--
Andy Taylor [Chair, N E Lupus Group]
See http://www.northeastlupus.org.uk for more!
| |
|
| In article <4379283C.86B7C3C8@execulink.com>, J <sniffles@anon.inv>
wrote
>Sherry wrote:
>
>
>I think he was saying BOO because it's a ghostown here.<g>
Whooo-hooo!
--
Andy Taylor [Chair, N E Lupus Group]
See http://www.northeastlupus.org.uk for more!
| |
| Cindy 2005-11-15, 10:59 am |
| Well things here are about the same...I've been battling a killer headache
since Aug...Been to the Neurologist, had MRI...Waiting till the 21st for my
follow up...They put me on Topomax...I can't afford it...So I took all I
had...
Mike will be having surgery on Hernias again...Don't know exactly when..The
doctor wanted him to lose weight and give time for the infection he had in
there to heal...He wants to wait till Feb...but that ain't gonna happen...He
has been sick and with all the coughing..Well he has 4 hernias and they are
getting bigger....
Down to keeping the kids just 2 days a week...That is good for me...
I do lurk here, but yes it has been quiet...
I have been praying for all those in need...
Also been making more purses to sell and getting ready for the holidays...
Hugs Cindy
"J" <sniffles@anon.inv> wrote in message
news:437729A4.274FDC11@execulink.com...
> Hello All,
> I've been reading your posts and caring.
> How are y'all doing?
> I know some of you are busy with education (Bev?), wedding (Sharon?),
> house-cleaning (BJ?),
> moving (KC?) and where's the rest of you ?
>
> Before things get very busy with your Thanksgiving and loading up on gifts
> for Christmas, how about a roll call.
> Please come check in and let us know how you're doing.
> Hugs to all,
> J
>
>
| |
| Shelagh 2005-11-15, 5:59 pm |
| Hello everyone!
I am here, just lurking and also sending 'well wishes' and prayers when
needed!
Having a bad time right now.... dx at this point is chloroquin toxicity
(with significant central vision loss) while awaiting a ctscan to rule out
regrowth of my prolactinoma.
I am attempting to remain optimistic and am hoping for the best outcome....
and I wish the same for all of you and your significant others!
~Shelagh
| |
| Diane S. Keagy 2005-11-15, 5:59 pm |
| Hi Jenn,
Yes, I have discoid lupus and have had major outbreak in the last year. Rash on back and chest - not getting any better.
How are you doing>
Diane S. Keagy
"Jenn L" <prayn4rain@webtv.net> wrote in message news:2675-43772F95-295@storefull-3175.bay.webtv.net...
newbie checking in...Does anyone here
suffer discoid?
I would appreciate your support and input.
Thank You,
Jenn
------------------------------------------------------------------------------
| |
| Sherry 2005-11-15, 5:59 pm |
| Shelagh,
Keeping you in my thoughts and prayers! When do you have the ctscan? Keep
us posted!
Hugs,
Sherry
| |
|
| Shelagh wrote:
> I am here, just lurking and also sending 'well wishes' and prayers when
> needed!
>
> Having a bad time right now.... dx at this point is chloroquin toxicity
> (with significant central vision loss) while awaiting a ctscan to rule out
> regrowth of my prolactinoma.
>
> I am attempting to remain optimistic and am hoping for the best outcome....
> and I wish the same for all of you and your significant others!
Hello there Shelagh,
Whatever's causing it, I hope is correctible.
Hugs from me,
J
| |
|
| Snake Lady wrote:
> I am still here reading, sorry I have nothing to post. I would only be
> moaning so best not to say anything.
> Janet aka Snake Lady
Hello Janet,
It's always good to hear from you.
Maybe I know what you mean.
If we've posted about it before and it's not "fixable", what's the point
repeating, eh?
Hugs
J
| |
|
| Cindy wrote:
> Well things here are about the same...I've been battling a killer headache
> since Aug...Been to the Neurologist, had MRI...Waiting till the 21st for my
> follow up...They put me on Topomax...I can't afford it...So I took all I
> had...
> Mike will be having surgery on Hernias again...Don't know exactly when..The
> doctor wanted him to lose weight and give time for the infection he had in
> there to heal...He wants to wait till Feb...but that ain't gonna happen...He
> has been sick and with all the coughing..Well he has 4 hernias and they are
> getting bigger....
> Down to keeping the kids just 2 days a week...That is good for me...
> I do lurk here, but yes it has been quiet...
> I have been praying for all those in need...
>
> Also been making more purses to sell and getting ready for the holidays...
> Hugs Cindy
Gosh, lots happening with you.
Good luck to Mike with the surgery.
Sorry about the headaches and topomax, Cindy.
I lurk on fibro newsgroup and the other day, some ppl had suggestions for help
with meds costs,
Have you checked here http://www.needymeds.com/
Hugs
J
| |
|
| Cindy wrote:
> Well things here are about the same...I've been battling a killer headache
> since Aug...Been to the Neurologist, had MRI...Waiting till the 21st for my
> follow up...They put me on Topomax...I can't afford it...So I took all I
> had...
I looked under (generic) on that needymeds.com webpage
There are 3 programs. Scroll down to see them all.
Pharmaceutical Company Janssen Pharmaceuticals, Ortho McNeil, McNeill &
Vistakon
Program Name Senior Patient Assistance Program
Program Address PO Box 221009
Charlotte, NC 28222-1009
Phone Number
888-294-2400
Fax Number 888-770-7266
Medications on Program topiramate Tablets (Topamax)
topiramate Sprinkle Capsules 15 mg (Topamax)
topiramate Sprinkle Capsules 25 mg (Topamax)
Application Forms Contact the program for an application.
Application On-line Forms No on-line application available at this time
Web Site No link available.
Eligibility Guidelines and Notes
The patient must meet insurance and financial guidelines that are not disclosed.
This program will be closed as of Dec 31, 2005. These medications are also
available through the Johnson & Johnson Patient Assistance Program.
Application Process
The patient must call for a prescreening. The application is sent to the
patient?s home. The completed application can be faxed or mailed back.
Application Requirements
Not applicable.
Program Details
The patient is sent a pharmacy card to be used once a month. Every year a new
application is needed.
Last Updated October 05, 2005
Pharmaceutical Company Johnson & Johnson Health Care Systems, Inc
Program Name Johnson & Johnson Hospital Access Patient Assistance Program
Program Address PO Box 220455
Charlotte, NC 28222-0455
Phone Number
800-652-6227,opt 7
Fax Number 800-521-2437
Medications on Program topiramate Tablets 100 mg (Topamax)
topiramate Sprinkle Capsules 15mg (Topmax)
topiramate Sprinkle Capsules 15mg (Topmax)
topiramate Tablets 200 mg (Topamax)
topiramate Tablets 25 mg (Topamax)
topiramate Tablets 50 mg (Topamax)
Application Forms Contact the program for an application.
Application On-line Forms No on-line application available at this time
Web Site No link available.
Eligibility Guidelines and Notes
This is a program for hospitals with DSH status and 340B Pricing Program
status.
Application Process
Someone from the hospital must call for an application. The application will be
faxed out. The completed application must be faxed back.
Application Requirements
Someone from the hospital must fill out a product request form for each
replacement.
Program Details
The amount requested is sent to the hospital. A new application is needed for
each refill.
Last Updated September 02, 2005
Pharmaceutical Company Johnson & Johnson Health Care Systems, Inc
Program Name Johnson & Johnson Patient Assistance Program
Program Address PO Box 221857
Charlotte, NC
28222-1857
Phone Number
800-652-6227
Fax Number 888-526-5168
Medications on Program topiramate Sprinkle Capsules (Topamax)
topiramate Tablets 100 mg (Topamax)
topiramate Tablets 200 mg (Topamax)
topiramate Tablets 25 mg (Topamax)
topiramate Tablets 50 mg (Topamax)
Application Forms Johnson & Johnson Patient Assistance Program
Application On-line Forms No on-line application available at this time
Web Site No link available.
Eligibility Guidelines and Notes
The patient must have no prescription coverage for the medication and meet
income guidelines that are not disclosed. The patient must also be a US
resident.
Starting Jan1, 2006, if a patient is eligible for Medicare Part D, then the
patient is not eligible for this program. But if the patient cannot afford Part
D, they have to apply for a Social Securty program, and if they don't qualify
for that then the patient can stay on (or apply to) this program
Application Process
Anyone concerned, with the patient?s permission, can call for an application.
The application will be faxed out. The completed application can be faxed or
mailed back.
Application Requirements
The doctor must fill out a section and sign the application.
The patient must fill out a section, sign the application and attach proof of
income.
Program Details
The medications are either sent to the doctor?s office or the patient is sent a
pharmacy card. The company automatically sends out refills. Once a year a new
application with documentation is needed.
Last Updated October 26, 2005
| |
|
| Hi J,
I am here, but have been very ill. This is the first time in a while that I
have even read anything on the ng. Unfortunately, there were a number of
events that had to be attended. It was hard under the circumstances. I see
you brought a number of people out of hiding with your roll call request.
Good for you for getting us all talking again.
BJ-Sk. Canada
"J" <sniffles@anon.inv> wrote in message
news:437729A4.274FDC11@execulink.com...
> Hello All,
> I've been reading your posts and caring.
> How are y'all doing?
> I know some of you are busy with education (Bev?), wedding (Sharon?),
> house-cleaning (BJ?),
> moving (KC?) and where's the rest of you ?
>
> Before things get very busy with your Thanksgiving and loading up on gifts
> for Christmas, how about a roll call.
> Please come check in and let us know how you're doing.
> Hugs to all,
> J
>
| |
|
| Hi Jenn,
I see you had a question about discoid. I am sorry that I can't help you
with that. I have been late in welcoming you. I wanted to do that today. I
hope someone will be able to give you advice and some information. Talk to
us anytime. It is good to see you here.
BJ-Sk. Canada
"Jenn L" <prayn4rain@webtv.net> wrote in message
news:2675-43772FCE-296@storefull-3175.bay.webtv.net...
> oops.i overlooked the sig on my post
>
| |
| Sherry 2005-11-16, 1:16 pm |
| Cindy, I must have missed your post! Good luck with your hubby's surgery.
Will keep him in our prayers too! Hope that you have found some relief from
your headache. I can relate as I don't know what life is without my head
pounding nearly daily! Have you tried ice? It seems to help some.
Hugs,
Sherry
| |
| Sherry 2005-11-16, 1:16 pm |
| BJ, good to see your post! So sorry that you have been very ill! You are
in my thoughts and prayers.
Hugs,
Sherry
| |
| candi bowen 2005-11-16, 5:58 pm |
| Hi everyone, I'm still lurking but not posting much. Still taking care of
the horses, cats, dogs, chicken, etc. & the wildlife (this is including the
grandkids - they're pretty wild). Doc says they're all keeping me alive. I
can't die! Who would take care of them?! We got a big 3 room temt last
summer & me & the girls spent a lot of time out there when it was hot. It
was way cool. Seriously, no big problems lately other than joint pain &
fevers & I heard when menopause starts, sometimes lupus goes into remission.
I'm 49 so maybe it's true. Time will tell.
Anyone heard from Grace?
Candi
| |
| Sherry 2005-11-17, 12:59 am |
| Candi,
Good to see you post. Your summer sounded like fun. I also hope that
menapause helps and you are one of the sometimes!
I think J or someone else posted the other day that they hadn't heard from
Grace in a while and last they heard it looked like lung transplant time.
Sherry
| |
| Jenn L 2005-11-17, 12:59 am |
| hello Diane thanks for the response.....I guess i'm fortunate to have
only DLE with
some minor symptoms of lupus......I have discoid on my face, neck and
scalp.
It's annoying as hell and ugly... i am frustrated..... I hope to see
results with
cellcept.....have you ever had a lesion heal fully?
| |
|
| candi bowen wrote:
> Hi everyone, I'm still lurking but not posting much. Still taking care of
> the horses, cats, dogs, chicken, etc. & the wildlife (this is including the
> grandkids - they're pretty wild). Doc says they're all keeping me alive. I
> can't die! Who would take care of them?! We got a big 3 room temt last
> summer & me & the girls spent a lot of time out there when it was hot. It
> was way cool. Seriously, no big problems lately other than joint pain &
> fevers & I heard when menopause starts, sometimes lupus goes into remission.
> I'm 49 so maybe it's true. Time will tell.
>
> Anyone heard from Grace?
>
> Candi
Hi Candi,
Glad to see you here. It seems like a long time since you last posted.
No wonder with that menagerie.
I would have pitched a tent too this summer, it;s such a good idea.
Oh, it was Pell who updated us about Grace in September.
copied from the archives
"I've corresponded with Grace in the last month. She had a week of tests
to see if she can get on the list for a lung transplant. Last I heard,
she didn't know if she'd be added to the list and was not wanting to
think about the issue for a while. She was happy with a review her
newly published book got this summer and wanted to focus more on that
than health issues. "
So we don't know what's currently happening with Grace.
Hugs Candi,
J
| |
|
| BJ wrote:
> I am here, but have been very ill. This is the first time in a while that I
> have even read anything on the ng. Unfortunately, there were a number of
> events that had to be attended. It was hard under the circumstances. I see
> you brought a number of people out of hiding with your roll call request.
> Good for you for getting us all talking again.
It's so good to hear from everybody, even if it's not always good news.
I'm sorry to read that you've been ill, BJ.
I hear it's been cold and maybe snowy too?
Sounds like a good time to curl up in front of that fireplace with some hot
soup.
Rest, my friend, rest.
Hugs
J
| |
| Cynthia Ward 2005-11-17, 10:58 am |
| Cindy W. here I too have been reading but not daily. Been fighting
another respiratory battle. And new med. The Kadian is fine the Pamalor
not so good. anyway all of you are in my thoughts daily. I just can't
believe it is the Holidays already Yikes...
Cindy
J wrote:
>Hello All,
>I've been reading your posts and caring.
>How are y'all doing?
>I know some of you are busy with education (Bev?), wedding (Sharon?),
>house-cleaning (BJ?),
>moving (KC?) and where's the rest of you ?
>
>Before things get very busy with your Thanksgiving and loading up on gifts
>for Christmas, how about a roll call.
>Please come check in and let us know how you're doing.
>Hugs to all,
>J
>
>
>
| |
| Cindy 2005-11-17, 10:58 am |
| Thank you J...Yes I have gotten an application and the Drs office has filled
it out and mailed it...She said it would take about 30 days before I would
hear anything...I am thinking of calling them today...
Thanks for all the prayers and good thoughts.
Hugs Cindy
"J" <sniffles@anon.inv> wrote in message
news:437AEB58.F5CD0189@execulink.com...
> Cindy wrote:
>
>
> I looked under (generic) on that needymeds.com webpage
> There are 3 programs. Scroll down to see them all.
>
> Pharmaceutical Company Janssen Pharmaceuticals, Ortho McNeil, McNeill &
> Vistakon
> Program Name Senior Patient Assistance Program
> Program Address PO Box 221009
> Charlotte, NC 28222-1009
> Phone Number
>
> 888-294-2400
>
> Fax Number 888-770-7266
> Medications on Program topiramate Tablets (Topamax)
> topiramate Sprinkle Capsules 15 mg (Topamax)
> topiramate Sprinkle Capsules 25 mg (Topamax)
> Application Forms Contact the program for an application.
> Application On-line Forms No on-line application available at this time
> Web Site No link available.
> Eligibility Guidelines and Notes
>
> The patient must meet insurance and financial guidelines that are not
> disclosed.
>
> This program will be closed as of Dec 31, 2005. These medications are also
> available through the Johnson & Johnson Patient Assistance Program.
> Application Process
>
> The patient must call for a prescreening. The application is sent to the
> patient?s home. The completed application can be faxed or mailed back.
> Application Requirements
>
> Not applicable.
> Program Details
>
> The patient is sent a pharmacy card to be used once a month. Every year a
> new
> application is needed.
> Last Updated October 05, 2005
>
>
>
> Pharmaceutical Company Johnson & Johnson Health Care Systems, Inc
> Program Name Johnson & Johnson Hospital Access Patient Assistance Program
> Program Address PO Box 220455
> Charlotte, NC 28222-0455
> Phone Number
>
> 800-652-6227,opt 7
>
> Fax Number 800-521-2437
> Medications on Program topiramate Tablets 100 mg (Topamax)
> topiramate Sprinkle Capsules 15mg (Topmax)
> topiramate Sprinkle Capsules 15mg (Topmax)
> topiramate Tablets 200 mg (Topamax)
> topiramate Tablets 25 mg (Topamax)
> topiramate Tablets 50 mg (Topamax)
> Application Forms Contact the program for an application.
> Application On-line Forms No on-line application available at this time
> Web Site No link available.
> Eligibility Guidelines and Notes
>
> This is a program for hospitals with DSH status and 340B Pricing Program
> status.
> Application Process
>
> Someone from the hospital must call for an application. The application
> will be
> faxed out. The completed application must be faxed back.
> Application Requirements
>
> Someone from the hospital must fill out a product request form for each
> replacement.
>
> Program Details
>
> The amount requested is sent to the hospital. A new application is needed
> for
> each refill.
> Last Updated September 02, 2005
>
>
>
> Pharmaceutical Company Johnson & Johnson Health Care Systems, Inc
> Program Name Johnson & Johnson Patient Assistance Program
> Program Address PO Box 221857
> Charlotte, NC
> 28222-1857
> Phone Number
>
> 800-652-6227
>
> Fax Number 888-526-5168
> Medications on Program topiramate Sprinkle Capsules (Topamax)
> topiramate Tablets 100 mg (Topamax)
> topiramate Tablets 200 mg (Topamax)
> topiramate Tablets 25 mg (Topamax)
> topiramate Tablets 50 mg (Topamax)
> Application Forms Johnson & Johnson Patient Assistance Program
> Application On-line Forms No on-line application available at this time
> Web Site No link available.
> Eligibility Guidelines and Notes
>
> The patient must have no prescription coverage for the medication and meet
> income guidelines that are not disclosed. The patient must also be a US
> resident.
>
> Starting Jan1, 2006, if a patient is eligible for Medicare Part D, then
> the
> patient is not eligible for this program. But if the patient cannot afford
> Part
> D, they have to apply for a Social Securty program, and if they don't
> qualify
> for that then the patient can stay on (or apply to) this program
> Application Process
>
> Anyone concerned, with the patient?s permission, can call for an
> application.
> The application will be faxed out. The completed application can be faxed
> or
> mailed back.
> Application Requirements
>
> The doctor must fill out a section and sign the application.
>
> The patient must fill out a section, sign the application and attach proof
> of
> income.
>
>
> Program Details
>
> The medications are either sent to the doctor?s office or the patient is
> sent a
> pharmacy card. The company automatically sends out refills. Once a year a
> new
> application with documentation is needed.
> Last Updated October 26, 2005
>
| |
|
| Hi, Deb here sorry its took so long, having a few probs, keep reading but
not really replying recently; waiting for endoscopy / colonoscopy
appointment at present so my heads a bit all over the place at the moment.
Keep writing, i'll keep reading and i'll let you know whats happening with
me when i do? until then bear with me please!
Deb
xx
"J" <sniffles@anon.inv> wrote in message
news:437729A4.274FDC11@execulink.com...
> Hello All,
> I've been reading your posts and caring.
> How are y'all doing?
> I know some of you are busy with education (Bev?), wedding (Sharon?),
> house-cleaning (BJ?),
> moving (KC?) and where's the rest of you ?
>
> Before things get very busy with your Thanksgiving and loading up on gifts
> for Christmas, how about a roll call.
> Please come check in and let us know how you're doing.
> Hugs to all,
> J
>
| |
|
| Debi wrote:
> Hi, Deb here sorry its took so long, having a few probs, keep reading but
> not really replying recently; waiting for endoscopy / colonoscopy
> appointment at present so my heads a bit all over the place at the moment.
> Keep writing, i'll keep reading and i'll let you know whats happening with
> me when i do? until then bear with me please!
> Deb
> xx
Hello Deb,
Good luck with the gastro test.
Before you know it, they'll be over and done with.
Be sure someone goes to get you, after the test.
I'll be thinking of you.
Thanks for answering the roll call.
Hugs
J
| |
|
| Cindy wrote:
> Thank you J...Yes I have gotten an application and the Drs office has filled
> it out and mailed it...She said it would take about 30 days before I would
> hear anything...I am thinking of calling them today...
> Thanks for all the prayers and good thoughts.
> Hugs Cindy
Glad to hear the ball's rolling for the medication, Cindy.
Hope it comes through for you and soon !
Many hugs
J
| |
|
| Cynthia Ward wrote:
> Cindy W. here I too have been reading but not daily. Been fighting
> another respiratory battle. And new med. The Kadian is fine the Pamalor
> not so good. anyway all of you are in my thoughts daily. I just can't
> believe it is the Holidays already Yikes...
> Cindy
Hello Cindy,
I'm sorry you've been having respiratory battle.
Take care of you and hope you feel better soon.
Got to be in good shape for Christmas, yes?
Take care,
Hugs
J
| |
| Cynthia Ward 2005-11-18, 12:55 pm |
| Thanks J Our weather has been up and down and the changes really affect
me and my daughter. But I will be fine. My daughter has all next week
off we are looking forward to it. We are going to do a little shopping
and just what ever we want to do . I love to have the time with her.
I hope everyone has a great thanksgiving. We are spending the day with
John's brother . His wife's oldest son and wife had their first baby
Sept. 16 a girl Carmen, she is first girl in her Grama's family since
she was born!!! So this is a special holiday season. Baby's make
things so special.
Happy Holiday All
Cindy W.
J wrote:
>Cynthia Ward wrote:
>
>
>
>
>Hello Cindy,
>I'm sorry you've been having respiratory battle.
>Take care of you and hope you feel better soon.
>Got to be in good shape for Christmas, yes?
>Take care,
>Hugs
>J
>
>
>
| |
| Norman or Wende 2005-11-18, 5:59 pm |
| We have a new grandson. He is very cool! Checking in and lurking out. Wende
"J" <sniffles@anon.inv> wrote in message
news:437729A4.274FDC11@execulink.com...
> Hello All,
> I've been reading your posts and caring.
> How are y'all doing?
> I know some of you are busy with education (Bev?), wedding (Sharon?),
> house-cleaning (BJ?),
> moving (KC?) and where's the rest of you ?
>
> Before things get very busy with your Thanksgiving and loading up on gifts
> for Christmas, how about a roll call.
> Please come check in and let us know how you're doing.
> Hugs to all,
> J
>
| |
| Sherry 2005-11-18, 5:59 pm |
| Congradulations on the new bundle of joy!
Hugs,
Sherry
| |
| Stephanie Townsend 2005-11-19, 1:02 am |
| Cindy -
I was switched from Topomax to Nortryptiline when I couldn't tolerate the
Topomax (the meds were for headaches - same as you). The Nortryptiline
worked great and was much cheaper. Maybe something to look into...
Hope you are able to get relief!
I am still around... lurking myself. Everything status quo. I'll contribute
when I think I can be of help!
Steph
"Cindy" <cindyl57@sbcglobal.net> wrote in message
news:QMmef.14793$D13.10198@newssvr11.news.prodigy.com...
> Well things here are about the same...I've been battling a killer headache
> since Aug...Been to the Neurologist, had MRI...Waiting till the 21st for
> my follow up...They put me on Topomax...I can't afford it...So I took all
> I had...
> Mike will be having surgery on Hernias again...Don't know exactly
> when..The doctor wanted him to lose weight and give time for the infection
> he had in there to heal...He wants to wait till Feb...but that ain't gonna
> happen...He has been sick and with all the coughing..Well he has 4 hernias
> and they are getting bigger....
> Down to keeping the kids just 2 days a week...That is good for me...
> I do lurk here, but yes it has been quiet...
> I have been praying for all those in need...
>
> Also been making more purses to sell and getting ready for the holidays...
> Hugs Cindy
>
>
> "J" <sniffles@anon.inv> wrote in message
> news:437729A4.274FDC11@execulink.com...
>
>
| |
|
| Norman or Wende wrote:
> We have a new grandson. He is very cool! Checking in and lurking out. Wende
:-) It'll be a happy Thanksgiving this year eh?
Hugs
J
| |
|
| Stephanie Townsend wrote:
> I am still around... lurking myself. Everything status quo. I'll contribute
> when I think I can be of help!
>
> Steph
Good to hear from you, Steph
Hugs
J
| |
| Norman or Wende 2005-11-19, 12:56 pm |
| you bet!
"J" <sniffles@anon.inv> wrote in message
news:437EE915.FC8B636D@execulink.com...
> Norman or Wende wrote:
>
>
> :-) It'll be a happy Thanksgiving this year eh?
> Hugs
> J
>
>
| |
| pellmellwillynilly@hotmail.com 2005-11-19, 12:56 pm |
| Pell here, still rattling in the chest but able to breathe and make it
to work. I didn't make it out of my school district last year, so I'm
back with little germ machines again. I'm going to look into
educational publishers over Christmas break. There are a fair number in
my area. Now that I have about 10 years of teaching under my belt, I
might be useful to them as something besides a proofreader.
J wrote:
> Hello All,
> I've been reading your posts and caring.
> How are y'all doing?
> I know some of you are busy with education (Bev?), wedding (Sharon?),
> house-cleaning (BJ?),
> moving (KC?) and where's the rest of you ?
>
> Before things get very busy with your Thanksgiving and loading up on gifts
> for Christmas, how about a roll call.
> Please come check in and let us know how you're doing.
> Hugs to all,
> J
| |
| llamamama 2005-11-21, 1:00 am |
| Gretchen checking in after a long absence. I lost all my bookmarks,
and just found this group again tonight! It's good to still see some
familiar names, although I doubt anyone recognizes mine. So sorry to
hear that BJ and Grace are so sick.
| |
|
| pellmellwillynilly@hotmail.com wrote:
> Pell here, still rattling in the chest but able to breathe and make it
> to work. I didn't make it out of my school district last year, so I'm
> back with little germ machines again. I'm going to look into
> educational publishers over Christmas break. There are a fair number in
> my area. Now that I have about 10 years of teaching under my belt, I
> might be useful to them as something besides a proofreader.
There's an idea. Good luck with your goal !
And hope your breathing gets better soon.
Hugs from
J
| |
|
| llamamama wrote:
> Gretchen checking in after a long absence. I lost all my bookmarks,
> and just found this group again tonight! It's good to still see some
> familiar names, although I doubt anyone recognizes mine. So sorry to
> hear that BJ and Grace are so sick.
Hello Gretchen,
When we say "don't be a stranger" that sure applies to you.
You've been MIA for over a year.
Gosh, you've been missed.
I hope we hear from you more often now that you've found us again.
How come you're using Google to post?
I see earthlink info here http://news.earthlink.net/ on how to access
newsgroups .
Hugs
J
| |
| Mermaid 2005-11-21, 10:59 am |
| J,
I am still here. Hard at work on a catalog at work and working on a guitar
solo for church and it has me freaked. I am taking Mobic and found out it
was making my ears ring. Considering that I am deaf in one ear, I have to
make a choice of whether to be in pain or save my ear. Guess I will be in
pain. The pain in my side is still bothering me and recently I have had
twinges in my back. Seems like the only thing that helps me be comfortable
so I can sleep at night is taking a half pill of Loritab. Since the doctor
reduced my thyroid med, my heart has calmed down. I have found a new diet to
go along with me taking thyroid meds. Have lost 7 lbs so far. My clothes at
least don't feel as tight. And I found an exercise DVD that is for people
that have back trouble. My daughter and her husband are doing well. Will not
get to see them this Thanksgiving 
Have talked to Mair. She is having computer problems. Hopefully she will be
back soon. Miss Pigmet.
Sorry to be so late in responding.
Paulette Ethyl Mermaid
| |
| Sherry 2005-11-21, 10:59 am |
| Welcome back Gretchen!
Hugs,
Sherry
| |
| Sherry 2005-11-21, 10:59 am |
| I think I would save my hearing also! There are plenty of other pain meds
out there so get your Doc to RX something else.
Relax, your guitar solo will come together!
Hugs,
sherry
| |
|
| Mermaid wrote:
> I am still here. Hard at work on a catalog at work and working on a guitar
> solo for church and it has me freaked. I am taking Mobic and found out it
> was making my ears ring. Considering that I am deaf in one ear, I have to
> make a choice of whether to be in pain or save my ear. Guess I will be in
> pain. The pain in my side is still bothering me and recently I have had
> twinges in my back. Seems like the only thing that helps me be comfortable
> so I can sleep at night is taking a half pill of Loritab. Since the doctor
> reduced my thyroid med, my heart has calmed down. I have found a new diet to
> go along with me taking thyroid meds. Have lost 7 lbs so far. My clothes at
> least don't feel as tight. And I found an exercise DVD that is for people
> that have back trouble. My daughter and her husband are doing well. Will not
> get to see them this Thanksgiving
>
> Have talked to Mair. She is having computer problems. Hopefully she will be
> back soon. Miss Pigmet.
>
> Sorry to be so late in responding.
>
> Paulette Ethyl Mermaid
aww Paulette,
it's so good to hear from you. :-)
And thanks for telling us about Mair and Pigmet.
I'm so happy to hear that your heart has calmed down with the thyroid med
reduction.
Congrats on losing some weight.
Guitar; I can't live without. A solo sounds lovely. I'm glad the lortab's
helping you.
Thanks for taking the time out of your busy schedule to answer the roll call.
hugs from me,
J
| |
| aishae 2005-11-28, 10:59 am |
| Hello Everyone,
Just thought I would pop in and say hello, as I see "J", would like to know
who is around. . . so "Hello" J. . .I am sorry I haven't checked in in so
long but I have been so very ill for the past year or so, I have barely
taken time to look @ my email on a daily basis. AND For awhile I couldn't
get my News, through Outlook, but did receive a daily update through the web
in my other email. I see allot of familiar names but also many NEW ones. So
most of those people won't remember my name. . .But I would like to say
"Hello" to them as well. . . I have been feeling much more like myself,
after so many med changes and quite a rocky road since last Dec.I will try
to "Catch Up" to see what you have all been up to, but WOW I have almost a
year of POSTS here. . . lol. . .The only thing I can tell you about me is
that My "Blood" is about the only thing that has behaved itself since last
Dec. My prayers are with all of you who are going through such a bad stretch
right now. . .and continued prayers for everyone (Knock wood) who are doing
alright right now with there diesease. . .
Hugs to all ~Aimee~
(aishae)
| |
| Sherry 2005-11-28, 10:59 am |
| Aimee,
Welcome back! So sorry that you have been so ill! Catching up with a years
worth of posts would be impossible for me <g> I have trouble catching up if
I haven't read the group for more than a week.
Glad that you are feeling much more like yourself and I hope the improvement
in your health continues.
Welcome back!
Hugs,
Sherry
| |
|
| aishae wrote:
> Hello Everyone,
>
> Just thought I would pop in and say hello, as I see "J", would like to know
> who is around. . . so "Hello" J. . .I am sorry I haven't checked in in so
> long but I have been so very ill for the past year or so, I have barely
> taken time to look @ my email on a daily basis. AND For awhile I couldn't
> get my News, through Outlook, but did receive a daily update through the web
> in my other email. I see allot of familiar names but also many NEW ones. So
> most of those people won't remember my name. . .But I would like to say
> "Hello" to them as well. . . I have been feeling much more like myself,
> after so many med changes and quite a rocky road since last Dec.I will try
> to "Catch Up" to see what you have all been up to, but WOW I have almost a
> year of POSTS here. . . lol. . .The only thing I can tell you about me is
> that My "Blood" is about the only thing that has behaved itself since last
> Dec. My prayers are with all of you who are going through such a bad stretch
> right now. . .and continued prayers for everyone (Knock wood) who are doing
> alright right now with there diesease. . .
> Hugs to all ~Aimee~
> (aishae)
Aimee, Aimee, so good to hear from you again.
I'm so pleased to see that you've found us again and that you're doing better.
Many hugs to you.
Keep in touch,
J
| |
| aishae 2005-11-29, 10:59 am |
| Thanks Sherry,
I think U R right. . . (about the Posts. . .lol) seems like a mighty task. .
..I have just been browsing them and I will probably skip around, just to get
a general idea of what has been going on with everyone. . .then I will have
to delete most of them , just so it doesn't take 5 min to scroll to the
current days. . .lol. . .I will just have to do the best i can I guess. . .
Thanks for "Welcoming me back". . .I have missed feeling up to sitting @ the
'puter. . .it feels good to "be up to it" again, and to be back here. . .and
actually might even feel like I can contribute to the group again. . .
Great to see evryone still here along with soooo many new posters as well. .
..~Hugs & Prayers to All~Aimee
| |
| aishae 2005-11-29, 10:59 am |
| J wrote;
> Aimee, Aimee, so good to hear from you again.
> I'm so pleased to see that you've found us again and that you're doing
> better.
> Many hugs to you.
> Keep in touch,
> J
>
Well Thank You J ,
I am feeling allot better actually. . .I will eventually post some of what
has been going on here. . .but for now, I will just say it has been a long
year and I am just glad to see everyone here again. . .~Hugs & Blessings to
U as well~Aimee
| |
| Beverley 2005-12-01, 1:01 am |
| Ok, I'm here checking in 2 weeks late. I'm alive with a squished finger. I
shut in the dryer door. Owie!!!! Makes typing interesting.
Bev
"J" <sniffles@anon.inv> wrote in message
news:437729A4.274FDC11@execulink.com...
> Hello All,
> I've been reading your posts and caring.
> How are y'all doing?
> I know some of you are busy with education (Bev?), wedding (Sharon?),
> house-cleaning (BJ?),
> moving (KC?) and where's the rest of you ?
>
> Before things get very busy with your Thanksgiving and loading up on gifts
> for Christmas, how about a roll call.
> Please come check in and let us know how you're doing.
> Hugs to all,
> J
>
| |
| Sherry 2005-12-01, 12:56 pm |
| That made my finger hurt just reading the post! Sure hope it heals quickly!
Also thanks for e-mailing Mair!
Hugs,
Sher
PS I leave the 3rd of Dec for my mom's and will be back in CA on the 7th of
Jan. Christmas in Texas! I'm so excited but this will also be the first
Christmas away from hubby and son.
| |
|
| Beverley wrote:
> Ok, I'm here checking in 2 weeks late. I'm alive with a squished finger. I
> shut in the dryer door. Owie!!!! Makes typing interesting.
> Bev
Sorry to hear that Bev, Hope it feels better soon.
Hugs
J
| |
|
| Sherry wrote:
> That made my finger hurt just reading the post! Sure hope it heals quickly!
>
> Also thanks for e-mailing Mair!
>
> Hugs,
> Sher
>
> PS I leave the 3rd of Dec for my mom's and will be back in CA on the 7th of
> Jan. Christmas in Texas! I'm so excited but this will also be the first
> Christmas away from hubby and son.
Gee, christmas away from hubby and son.
That'll be different for sure.
Hope you have a good one Sher,
You can call them and swap Christmas greetings and events.
Don't worry about the lady about Sacramento,
We'll get her the info, if we get it from Mair.
I just posted a list of local support groups to her, as well.
We'll miss you Sherry,
Have a good Christmas and a Happy New year's celeb..
Hugs
J
| |
| Sherry 2005-12-02, 1:02 am |
| I just have this need to be home with my mom. Each year as I get older so
does she and I don't want to be sooooo long between our visits.
Hubby and son will do just fine by themselves and we have our phones. Will
just seem strange not being withthem for the holidays but it will be
wonderful to be "home". Texas will always be my home even tho I have been
in CA for 35 yrs.
Hope you have a good Christmas.
I'll check in from my mom's computer if the group is still on it. So if you
see posts from Eleanor you'll know I'm still in touch.
Hugs,
sher
| |
| aishae 2005-12-03, 11:16 am |
| Hi BJ,
I am so sorry to hear you have been so ill. . . I can relate, Belive Me!!! I
am just happy to be able to read the NG too, so I am right there with ya, as
it sure has been awhile! I am sending prayers your way my friend, I think it
is Great too, the way "J" brings everyone out !. . . Hugs to you~Aimee~
"BJ" <Babs@sk.nojunk.ca> wrote in message
news:11nmg8ld2h98bc3@corp.supernews.com...
> Hi J,
> I am here, but have been very ill. This is the first time in a while that
> I
> have even read anything on the ng. Unfortunately, there were a number of
> events that had to be attended. It was hard under the circumstances. I see
> you brought a number of people out of hiding with your roll call request.
> Good for you for getting us all talking again.
> BJ-Sk. Canada
> "J" <sniffles@anon.inv> wrote in message
> news:437729A4.274FDC11@execulink.com...
>
>
| |
|
| Sherry wrote:
> I just have this need to be home with my mom. Each year as I get older so
> does she and I don't want to be sooooo long between our visits.
>
> Hubby and son will do just fine by themselves and we have our phones. Will
> just seem strange not being withthem for the holidays but it will be
> wonderful to be "home". Texas will always be my home even tho I have been
> in CA for 35 yrs.
>
> Hope you have a good Christmas.
>
> I'll check in from my mom's computer if the group is still on it. So if you
> see posts from Eleanor you'll know I'm still in touch.
>
> Hugs,
> sher
okey, dokey, we'll watch for Eleanor.
It's so nice to be "home" for Christmas.
Hugs
J
|
| |
|
|