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So quiet - Roll Call
|
|
|
| I wonder what's happening to this newsgroup?
Are you all too tired? (I understand).
Having hand/finger pains (I understand).
Tell us what's up... why you're not posting...?
I'm watching this newsgroup to make sure nobody cause you trouble.
If any of you wish to update us, or give us a good rant /vent or CGT, or
reason for not posting.
I'm reading, listening and caring, even if my arm/hand won't always
co-operate.
Hugs to all of you, from
J
| |
| Aishae 2005-01-04, 11:09 am |
| Hi J,
I was wondering the same thing , but I thought maybe I just wasn't getting
the posts for some reason. . .I am guilty of NOT posting as well though. .
..My Anemia is kicking up in full force these days and my increase in Pred
and the addition of MTX has been an awful adjustment for me. . . today seems
to be my best day of the week since I don't take my MTX dose till tomorrow.
.. . lol. . .go figure. . .so I try to make the best of Tuesdays. . .I also
think that now that the holidays are over everyone will get more rest and be
back to posting soon. . . .Hopefully even I will be better soon. .
..sometimes I am sleeping (zzzzzzzzz) by 6p.m. but I am up all times of
the night on and off. . .Pred increase has always messed my sleep up. . .
but my fingers and shoulders (burning) sometimes slows me down as far as
sitting here typing very much. . .but I am doing it today so hopefully the
Pred/MTX combo will help with my joints soon. . .Hope you had wonderful
Holidays. . . ~Hugs~Aimee
--
'Be who you are and say what you feel, because those who mind don't matter,
and those who matter don't mind' - Dr. Suess
-:¦:-
:¦:-Dream as if you'll live forever; Live as if you'll die today. -
James Dean
-:¦:- ~HUGS~Aim~
"J" <faked...@emailaddress.com> wrote in message
news:41DA8D07.8AED0D4F@execulink.com...
>I wonder what's happening to this newsgroup?
> Are you all too tired? (I understand).
> Having hand/finger pains (I understand).
> Tell us what's up... why you're not posting...?
> I'm watching this newsgroup to make sure nobody cause you trouble.
>
> If any of you wish to update us, or give us a good rant /vent or CGT, or
> reason for not posting.
> I'm reading, listening and caring, even if my arm/hand won't always
> co-operate.
> Hugs to all of you, from
> J
>
| |
| Stephanie Townsend 2005-01-04, 11:09 am |
| Hi J,
I have wondered the same -- I am guilty as well. I have been reading posts
from time to time, but have been running around without much time to post. I
just got a new job last month! My body has finally gotten well enough to
work full-time and I am really enjoying it. I am doing some work in public
policy related to mental health -- I think I will go back to clinical work
eventually, but I needed a rest. And, so far, my body is keeping up! Amazing
:-) The plaquenil has really been helping and my pain is less than it has
been in a few years and the best part - NO FEVERS! I still get pretty
exhausted after a work day and am sore -- but I can manage with those
symptoms. Haven't had any funny rashes or mouth sores for a few months now.
Thought I would let everyone know the good news -- as you have all been a
great support on those days when I was feeling lousy. So -- my new posting
isn't because of poor health -- but a new job and running around having some
fun (I forgot what it felt like to feel half-way decent). I will try to post
more. Now I am off to Las Vegas for a convention! (rough life, I know)
Hang in there everyone,
Stephanie
"J" <faked...@emailaddress.com> wrote in message
news:41DA8D07.8AED0D4F@execulink.com...
>I wonder what's happening to this newsgroup?
> Are you all too tired? (I understand).
> Having hand/finger pains (I understand).
> Tell us what's up... why you're not posting...?
> I'm watching this newsgroup to make sure nobody cause you trouble.
>
> If any of you wish to update us, or give us a good rant /vent or CGT, or
> reason for not posting.
> I'm reading, listening and caring, even if my arm/hand won't always
> co-operate.
> Hugs to all of you, from
> J
>
| |
| Beverley 2005-01-04, 11:09 am |
| I'm here. Hubby goes back to work tomorrow has a routine Dr appt. today. I
guess tomorrow I will find out what it will be like to be all alone in the
house. Yippee!!!!
I need one more book to purchase for school - $55. ouch! Classes start next
week.
Still doing the after Xmas stuff.
Really having problems sleeping at night. Not sleeping well for some reason.
Last night I was too cold, put the quilt on the bed and was too hot. Stupid
stuff like that interfering with my sleep. I think once the schedule settles
down my sleeping pattern will change and I'll do better.
Would someone please reach around behind me and pull the knot out of my back
right next to the shoulder blade. It's killing me! (Actually I can think of
worse pains in worse areas. LOL!)
Bev
"J" <faked...@emailaddress.com> wrote in message
news:41DA8D07.8AED0D4F@execulink.com...
> I wonder what's happening to this newsgroup?
> Are you all too tired? (I understand).
> Having hand/finger pains (I understand).
> Tell us what's up... why you're not posting...?
> I'm watching this newsgroup to make sure nobody cause you trouble.
>
> If any of you wish to update us, or give us a good rant /vent or CGT, or
> reason for not posting.
> I'm reading, listening and caring, even if my arm/hand won't always
> co-operate.
> Hugs to all of you, from
> J
>
| |
|
| Just suffered a computer crash and had to get new computer (borrowed) and
just now mananged to find the group again.
But I'm back and will be reading again.
Hugs,
Sherry
| |
|
| In article <vFyCd.33947$h.23633@trnddc04>, Beverley
<beverly.brown28@verizon.net> wrote
[]
>Really having problems sleeping at night. Not sleeping well for some reason.
>Last night I was too cold, put the quilt on the bed and was too hot. Stupid
>stuff like that interfering with my sleep. I think once the schedule settles
>down my sleeping pattern will change and I'll do better.
>
What you need is a cup of tea...
(I can't send emails to Verison for some reason)
--
Andy Taylor [Chair, N E Lupus Group]
See http://www.northeastlupus.org.uk for more!
| |
| Andrea Twitty 2005-01-04, 7:12 pm |
| I'm here...I have been out of it. I have going through a "funk". I have
been reading the posting, but not replying. I am just fighting my way out
of this dark place. I am still flaring. I have been in pain daily for the
past 4 months. My lupus is out of control and all my doctors' efforts seem
to be fruitless. They just can't figure it out. Anyway, I'm still here and
fighting
Andrea
"J" <faked...@emailaddress.com> wrote in message
news:41DA8D07.8AED0D4F@execulink.com...
>I wonder what's happening to this newsgroup?
> Are you all too tired? (I understand).
> Having hand/finger pains (I understand).
> Tell us what's up... why you're not posting...?
> I'm watching this newsgroup to make sure nobody cause you trouble.
>
> If any of you wish to update us, or give us a good rant /vent or CGT, or
> reason for not posting.
> I'm reading, listening and caring, even if my arm/hand won't always
> co-operate.
> Hugs to all of you, from
> J
>
| |
| Snake Lady 2005-01-04, 7:12 pm |
| I'm still here reading, had a bad time the last few months, just got back
from christmas at my mothers, not a good experience!! My eldest son has now
been admitted to hospital, early hours of this morning (severe hip pain on
his aputated leg side), so no sleep and hes 250 miles away, so I can only
check on him by phone!! He has had an MRI scan today, but no results until
tomorrow, so another night of no sleep, such is a mothers lot!! Sorry for
the whine, Happy new year to everyone else.
Janet
Andrea Twitty wrote:[vbcol=seagreen]
> I'm here...I have been out of it. I have going through a "funk". I
> have been reading the posting, but not replying. I am just fighting
> my way out of this dark place. I am still flaring. I have been in
> pain daily for the past 4 months. My lupus is out of control and all
> my doctors' efforts seem to be fruitless. They just can't figure it
> out. Anyway, I'm still here and fighting
> Andrea
> "J" <faked...@emailaddress.com> wrote in message
> news:41DA8D07.8AED0D4F@execulink.com...
| |
| Shelagh 2005-01-04, 7:12 pm |
|
"Andy" wrote in message
> What you need is a cup of tea...
>
> (I can't send emails to Verison for some reason)
> --
> Andy Taylor [Chair, N E Lupus Group]
> See http://www.northeastlupus.org.uk for more!
possibly cause it is 'veriZon' and not verison??
hugs, shelagh
| |
|
| In article <IBDCd.691812$Pl.240920@pd7tw1no>, Shelagh <noyb@myob.bc.ca>
wrote
>
>"Andy" wrote in message
>
>possibly cause it is 'veriZon' and not verison??
>hugs, shelagh
>
>
True... but that don't work either!
--
Andy Taylor [Chair, N E Lupus Group]
See http://www.northeastlupus.org.uk for more!
| |
|
| So you started a roll call, J. You are clever. What a good way to draw us
all out of hiding. I am still here. Haven't been posting much. I guess I
didn't realize how tired the holiday preparations and celebrations made me
feel. I refuse to go to bed before everyone else does. I don't want to miss
anything, you know. <g> The miserably bitter weather here is getting me down
too, I think. Spring seems so far away now. I am doing okay otherwise
though, so I should not complain. I just did, didn't I.
BJ-Sk. Canada
"J" <faked...@emailaddress.com> wrote in message
news:41DA8D07.8AED0D4F@execulink.com...
> I wonder what's happening to this newsgroup?
> Are you all too tired? (I understand).
> Having hand/finger pains (I understand).
> Tell us what's up... why you're not posting...?
> I'm watching this newsgroup to make sure nobody cause you trouble.
>
> If any of you wish to update us, or give us a good rant /vent or CGT, or
> reason for not posting.
> I'm reading, listening and caring, even if my arm/hand won't always
> co-operate.
> Hugs to all of you, from
> J
>
| |
|
| Hi Andrea,
I am sorry to hear that things are not going well. How is your lupus
affecting you? Would you care to talk about it? I sure don't like to hear
that things are out of control. Take care. We are here if you need us.
BJ-Sk. Canada
"Andrea Twitty" <dre2luv@comcast.net> wrote in message
news:n1CCd.326787$HA.136426@attbi_s01...
> I'm here...I have been out of it. I have going through a "funk". I have
> been reading the posting, but not replying. I am just fighting my way out
> of this dark place. I am still flaring. I have been in pain daily for
the
> past 4 months. My lupus is out of control and all my doctors' efforts
seem
> to be fruitless. They just can't figure it out. Anyway, I'm still here
and
> fighting
> Andrea
> "J" <faked...@emailaddress.com> wrote in message
> news:41DA8D07.8AED0D4F@execulink.com...
>
>
| |
|
| Hi Janet,
Things sound tough for you right now. I hope the news about your son's MRI
will be good. Let us know if you feel up to it. We do worry so about our
kids. I wish you the best.
BJ-Sk. Canada
"Snake Lady" <janetandsam@beeteeinternet.com> wrote in message
news:340bgtF45a68hU1@individual.net...
> I'm still here reading, had a bad time the last few months, just got back
> from christmas at my mothers, not a good experience!! My eldest son has
now
> been admitted to hospital, early hours of this morning (severe hip pain on
> his aputated leg side), so no sleep and hes 250 miles away, so I can only
> check on him by phone!! He has had an MRI scan today, but no results
until
> tomorrow, so another night of no sleep, such is a mothers lot!! Sorry for
> the whine, Happy new year to everyone else.
> Janet
>
> Andrea Twitty wrote:
>
>
>
| |
| Snake Lady 2005-01-04, 7:12 pm |
| Thanks BJ, I will try and check in tomorrow.
janet
BJ wrote:[vbcol=seagreen]
> Hi Janet,
> Things sound tough for you right now. I hope the news about your
> son's MRI will be good. Let us know if you feel up to it. We do worry
> so about our kids. I wish you the best.
> BJ-Sk. Canada
> "Snake Lady" <janetandsam@beeteeinternet.com> wrote in message
> news:340bgtF45a68hU1@individual.net...
| |
| Michael Roeper 2005-01-04, 7:12 pm |
| I'm still around. Spent the holiday's by myself. My youngest, "favorite
person in the world" son has been sick since before Christmas so I haven't
seen him at all. I'm really lonesome to see him. I had a friend up from Reno
who insisted that I get out more so I've been getting out a lot more since
New Years but I'm paying a big price for it. Since I was ab;le to drop the
Pred. to 8 or 9mg/day the arthritis symptoms have come back with a vengence.
It's hard to get around. I have managed however to see some people this past
week I haven't seen in several years and that's been good. A good friend is
going through a seperation (they were to be married next month) and he's in
rough shape. Like me, he's preferring at this point to be miserable instead
of doing something about it. Hope he snaps out of that soon. I wouldn't want
him to be as miserable as I've been for the past 3 years.
Thought I had a "chance at love," but didn't have the energy to persue it. I
don't quite know how to feel about that. The chemo has worked since last
April but it's kisking my rear end energy-wise.
I haven't really lost any of the extra 60 pounds though. And I really need
to. Maybe the Pred. causes the weight to go on but I need to use the "old
fashioned way" of getting it off. I can't do much exercise but if it get's
a little warmer I might try walking a little. It's been cold here (Portland,
Oregon).
Otherwise it's biz as usual.
Hope all are well.
Michael
"J" <faked...@emailaddress.com> wrote in message
news:41DA8D07.8AED0D4F@execulink.com...
> I wonder what's happening to this newsgroup?
> Are you all too tired? (I understand).
> Having hand/finger pains (I understand).
> Tell us what's up... why you're not posting...?
> I'm watching this newsgroup to make sure nobody cause you trouble.
>
> If any of you wish to update us, or give us a good rant /vent or CGT, or
> reason for not posting.
> I'm reading, listening and caring, even if my arm/hand won't always
> co-operate.
> Hugs to all of you, from
> J
>
| |
| Ruth Tay 2005-01-04, 10:08 pm |
| In article <41DA8D07.8AED0D4F@execulink.com>,
J <faked...@emailaddress.com> wrote:
> I wonder what's happening to this newsgroup?
> Are you all too tired? (I understand).
> Having hand/finger pains (I understand).
> Tell us what's up... why you're not posting...?
> I'm watching this newsgroup to make sure nobody cause you trouble.
>
> If any of you wish to update us, or give us a good rant /vent or CGT, or
> reason for not posting.
> I'm reading, listening and caring, even if my arm/hand won't always
> co-operate.
> Hugs to all of you, from
> J
>
HI to all,
It has been ages but here goes. After about 20 years of prednisone
every day I have gone into remission. Lost almost 30 pounds and that
ugly hump below the neck has disappeared also. Wish Vioxx wasn't off
the market but it will work out. It is a great way to start the
year. Wishing you all remission and good health this year ruth
| |
| RhondaM 2005-01-04, 10:08 pm |
| I am here. Just lurking a bit. The holidays have kept me busy and so has the
kids. I Am doing pretty much ok a little heart palpitations and shortness of
breath. I have had two episodes since 5 pm tonight. I guess I am excited
about the OU usc game.. which now I am beginning to loose interest because
my Sooners can't keep their feet from slipping all over the place.. I am
thinking if I have another episode tonight I am going to the ER.
RhondaM
"J" <faked...@emailaddress.com> wrote in message
news:41DA8D07.8AED0D4F@execulink.com...
>I wonder what's happening to this newsgroup?
> Are you all too tired? (I understand).
> Having hand/finger pains (I understand).
> Tell us what's up... why you're not posting...?
> I'm watching this newsgroup to make sure nobody cause you trouble.
>
> If any of you wish to update us, or give us a good rant /vent or CGT, or
> reason for not posting.
> I'm reading, listening and caring, even if my arm/hand won't always
> co-operate.
> Hugs to all of you, from
> J
>
| |
|
| BJ wrote:
> So you started a roll call, J. You are clever.
Oh I thought you'd call me a little stinker. I love it when you whisper sweet
nuthings in my ear. :-)
> What a good way to draw us
> all out of hiding. I am still here. Haven't been posting much. I guess I
> didn't realize how tired the holiday preparations and celebrations made me
> feel. I refuse to go to bed before everyone else does. I don't want to miss
> anything, you know. <g>
If you mean the holidays, I understand, otherwise anyone wants something they
can leave a message. I sleep when I sleep.
> The miserably bitter weather here is getting me down
> too, I think. Spring seems so far away now. I am doing okay
Glad you're doing okay, now get some rest ! <smile>
J
| |
|
| BJ wrote:
> Hi Janet,
> Things sound tough for you right now. I hope the news about your son's MRI
> will be good. Let us know if you feel up to it. We do worry so about our
> kids. I wish you the best.
Echoing BJ's concerns and sentiments.
Hugs to you both,
J
| |
|
| Ruth Tay wrote:
> It has been ages but here goes. After about 20 years of prednisone
> every day I have gone into remission. Lost almost 30 pounds and that
> ugly hump below the neck has disappeared also. Wish Vioxx wasn't off
> the market but it will work out. It is a great way to start the
> year.
Remission, what a wonderful word to hear.
Good to hear from you, Ruth,
Hugs
J
| |
|
| RhondaM wrote:
> I am here. Just lurking a bit. The holidays have kept me busy and so has the
> kids. I Am doing pretty much ok a little heart palpitations and shortness of
> breath. I have had two episodes since 5 pm tonight. I guess I am excited
> about the OU usc game.. which now I am beginning to loose interest because
> my Sooners can't keep their feet from slipping all over the place.. I am
> thinking if I have another episode tonight I am going to the ER.
Hugs Rhonda, Hope you're okay.
Glad you came out and talked with us.
Hugs
J
| |
|
| Michael Roeper wrote:
> I'm still around. Spent the holiday's by myself. My youngest, "favorite
> person in the world" son has been sick since before Christmas so I haven't
> seen him at all. I'm really lonesome to see him. I had a friend up from Reno
> who insisted that I get out more so I've been getting out a lot more since
> New Years but I'm paying a big price for it. Since I was ab;le to drop the
> Pred. to 8 or 9mg/day the arthritis symptoms have come back with a vengence.
> It's hard to get around. I have managed however to see some people this past
> week I haven't seen in several years and that's been good. A good friend is
> going through a seperation (they were to be married next month) and he's in
> rough shape. Like me, he's preferring at this point to be miserable instead
> of doing something about it. Hope he snaps out of that soon. I wouldn't want
> him to be as miserable as I've been for the past 3 years.
>
> Thought I had a "chance at love," but didn't have the energy to persue it. I
> don't quite know how to feel about that. The chemo has worked since last
> April but it's kisking my rear end energy-wise.
>
> I haven't really lost any of the extra 60 pounds though. And I really need
> to. Maybe the Pred. causes the weight to go on but I need to use the "old
> fashioned way" of getting it off. I can't do much exercise but if it get's
> a little warmer I might try walking a little. It's been cold here (Portland,
Let's hope for a better year this year, eh Michael?
I'm so sorry you were unable to see your son. Hopefully he'll be better soon.
J
| |
|
| Andrea Twitty wrote:
> I'm here...I have been out of it. I have going through a "funk". I have
> been reading the posting, but not replying. I am just fighting my way out
> of this dark place. I am still flaring. I have been in pain daily for the
> past 4 months. My lupus is out of control and all my doctors' efforts seem
> to be fruitless. They just can't figure it out. Anyway, I'm still here and
> fighting
> Andrea
( ( ( Andrea ) ) ) gentle hugs to you from
J
| |
|
| hurst1st@sbcglobal.net wrote:
> Just suffered a computer crash and had to get new computer (borrowed) and
> just now mananged to find the group again.
>
> But I'm back and will be reading again.
Welcome back, Sherry.
I see you got the screen name figured out.
Hugs to you from
J
| |
|
| Beverley wrote:
> I'm here. Hubby goes back to work tomorrow has a routine Dr appt. today. I
> guess tomorrow I will find out what it will be like to be all alone in the
> house. Yippee!!!!
>
> I need one more book to purchase for school - $55. ouch! Classes start next
> week.
>
> Still doing the after Xmas stuff.
>
> Really having problems sleeping at night. Not sleeping well for some reason.
> Last night I was too cold, put the quilt on the bed and was too hot. Stupid
> stuff like that interfering with my sleep. I think once the schedule settles
> down my sleeping pattern will change and I'll do better.
>
> Would someone please reach around behind me and pull the knot out of my back
> right next to the shoulder blade. It's killing me! (Actually I can think of
> worse pains in worse areas. LOL!)
> Bev
Yay Bev, go Bev, stay with your dream and stay well,
Hugs from J
| |
|
| Hi Ruth,
Yes, it has been ages. So good to see you, especially when you drop by with
such great news. I am so pleased to hear that you are in remission.
Wonderful!!!
BJ-Sk. Canada
"Ruth Tay" <ruthtay@mcn.org> wrote in message
news:ruthtay-797A3B.17304004012005@cnews.newsguy.com...
> In article <41DA8D07.8AED0D4F@execulink.com>,
> J <faked...@emailaddress.com> wrote:
>
>
> HI to all,
>
> It has been ages but here goes. After about 20 years of prednisone
> every day I have gone into remission. Lost almost 30 pounds and that
> ugly hump below the neck has disappeared also. Wish Vioxx wasn't off
> the market but it will work out. It is a great way to start the
> year. Wishing you all remission and good health this year ruth
| |
| Sherry 2005-01-05, 11:08 am |
| Great news Ruth! So glad that you dropped in and shared it with us.
I imagine you have been having as much of this rain and storm as we have.
Hope that the rain isn't bringing flooding problems to your neck of the
woods.
Hugs,
Sherry
| |
|
| J wrote:
> I wonder what's happening to this newsgroup?
> Are you all too tired? (I understand).
> Having hand/finger pains (I understand).
> Tell us what's up... why you're not posting...?
> I'm watching this newsgroup to make sure nobody cause you trouble.
>
> If any of you wish to update us, or give us a good rant /vent or CGT, or
> reason for not posting.
> I'm reading, listening and caring, even if my arm/hand won't always
> co-operate.
> Hugs to all of you, from
> J
>
Adrenaline can take one only so far. I finally crashed. My 20 month old
granddaughter got her new heart on New Year's Eve. Her wait had been
just shy of a year (January 9th would have been a year). All the tubes
are out and she's doing great! She was off the vent in less than 24
hours. :-)
My prayers are with her continued recovery and prayers of gratitude for
the donor family.
The docs said the old heart was in such bad condition that she probably
wouldn't have lasted more than a few months into 2005. She was
definitely living on borrowed time.
Great to hear about the safety of the student in Thailand!
Nell
| |
| Sherry 2005-01-05, 11:08 am |
| Thanks J!
Hugs,
Sherry
| |
| Sherry 2005-01-05, 11:08 am |
| Great news about your granddaughter. Our prayers are with her and all of
you and of course with the donor family!
Hugs,
Sherry
| |
| herbwormwood 2005-01-05, 7:12 pm |
| I have been a lot on a yahoo group for hughes syndrome APLS.
http://health.groups.yahoo.com/group/APLSUK/
Theres often more going on there for me.
Not feeling too bad but tomorrow am in hospital for pamidronate infusion.
Swallowed my pride and told MOTH I didn't want to be there on my own, so he's
coming over tonight so we can go together. I like to be independent but this
one in hospital makes me nervous. Had a quiet festive season and do not
really celebrate it anyway.
My arm is full of twitches and popping, feels like a can of pop in there
fizzing away. Have reduced prednisolone another half mg, now down to 2 mg.
Doc wants me in for a medication review sometime soon. May mention fizzing
sensation when I go. Pamidronate people only deal with pamidronate and will
not want to be sidetracked.
On Tue, 4 Jan 2005 12:33:11 +0000, J wrote
(in article <41DA8D07.8AED0D4F@execulink.com> ):
> I wonder what's happening to this newsgroup?
> Are you all too tired? (I understand).
> Having hand/finger pains (I understand).
> Tell us what's up... why you're not posting...?
> I'm watching this newsgroup to make sure nobody cause you trouble.
>
> If any of you wish to update us, or give us a good rant /vent or CGT, or
> reason for not posting.
> I'm reading, listening and caring, even if my arm/hand won't always
> co-operate.
> Hugs to all of you, from
> J
>
| |
| Michael Roeper 2005-01-05, 7:12 pm |
| What's the pamidronate infusion treatment for?????
Michael
"herbwormwood" <herbwormwood@lycos.co.uk> wrote in message
news:0001HW.BE01D21F0019B1F7F04075B0@News.Individual.NET...
> I have been a lot on a yahoo group for hughes syndrome APLS.
> http://health.groups.yahoo.com/group/APLSUK/
> Theres often more going on there for me.
>
> Not feeling too bad but tomorrow am in hospital for pamidronate infusion.
> Swallowed my pride and told MOTH I didn't want to be there on my own, so
he's
> coming over tonight so we can go together. I like to be independent but
this
> one in hospital makes me nervous. Had a quiet festive season and do not
> really celebrate it anyway.
> My arm is full of twitches and popping, feels like a can of pop in there
> fizzing away. Have reduced prednisolone another half mg, now down to 2 mg.
> Doc wants me in for a medication review sometime soon. May mention fizzing
> sensation when I go. Pamidronate people only deal with pamidronate and
will
> not want to be sidetracked.
>
>
> On Tue, 4 Jan 2005 12:33:11 +0000, J wrote
> (in article <41DA8D07.8AED0D4F@execulink.com> ):
>
>
>
| |
|
| Hi J,
I am here, but have been sick with some sort of virus. Just no energy at
all, so the doc took me off methotrexate temporarily... darn it! I was
looking forward to feeling better. I know the question lurks: is the sick
feeling a result of the methotrex? Well, it seems not, since I have been
off it for about a month. But will discuss it with doc. I go to see my
rheumie tomorrow.
My love to you all,
Mair
"J" <faked...@emailaddress.com> wrote in message
news:41DA8D07.8AED0D4F@execulink.com...
>I wonder what's happening to this newsgroup?
> Are you all too tired? (I understand).
> Having hand/finger pains (I understand).
> Tell us what's up... why you're not posting...?
> I'm watching this newsgroup to make sure nobody cause you trouble.
>
> If any of you wish to update us, or give us a good rant /vent or CGT, or
> reason for not posting.
> I'm reading, listening and caring, even if my arm/hand won't always
> co-operate.
> Hugs to all of you, from
> J
>
| |
|
| Just between the FM, OA and Grandkids....I lurk alot, but just don't post
much...but looks like I am not the only one...It has been quiet around
here...
Also Mike was in the Hospital in Dec with another hernia operation...They
used pig skin instead of the other mesh this time as his body was rejecting
that and we had to go in twice and take it out...Things got scarey as his
kidneys shut down and then his heart did some funny things while we were in
ICU...They had to give him 3 units of blood.So he is better now...Going in
on Friday for a stress test and another echocardiogram of the
heart...Tomorrow he sees a urologist as he has had some problems
urinating... There was some red blood cells in his urine..No white ones so
they say it is probably not an infection. Hoping it has nothing to do with
his kidneys...
Then we had Christmas....
CGT... Got new clothes..Pants size 8 
Today we had an ice storm and freezing to death temperatures....
Praying for all those in need...
Hugs Cindy
"J" <faked...@emailaddress.com> wrote in message
news:41DA8D07.8AED0D4F@execulink.com...
>I wonder what's happening to this newsgroup?
> Are you all too tired? (I understand).
> Having hand/finger pains (I understand).
> Tell us what's up... why you're not posting...?
> I'm watching this newsgroup to make sure nobody cause you trouble.
>
> If any of you wish to update us, or give us a good rant /vent or CGT, or
> reason for not posting.
> I'm reading, listening and caring, even if my arm/hand won't always
> co-operate.
> Hugs to all of you, from
> J
>
| |
|
| Nell That is wonderful news...Praying that God keeps it beating and she
continues to heal...
Hugs Cindy
"Nell" <mildredskidnospam_atall@comcast.net> wrote in message
news:oq-dnYWBKOLvkkHcRVn-uw@comcast.com...
>J wrote:
>
> Adrenaline can take one only so far. I finally crashed. My 20 month old
> granddaughter got her new heart on New Year's Eve. Her wait had been just
> shy of a year (January 9th would have been a year). All the tubes are out
> and she's doing great! She was off the vent in less than 24 hours. :-)
>
> My prayers are with her continued recovery and prayers of gratitude for
> the donor family.
>
> The docs said the old heart was in such bad condition that she probably
> wouldn't have lasted more than a few months into 2005. She was definitely
> living on borrowed time.
>
> Great to hear about the safety of the student in Thailand!
>
> Nell
| |
|
| Mair,
Hoping you are getting better...Hope my nephew had a great holiday...Would
like to hear all about it when you are up to it...
Hugs Cindy
"Mair" <legion@many.net> wrote in message
news:yQWCd.6868$wZ2.3243@newssvr13.news.prodigy.com...
> Hi J,
>
> I am here, but have been sick with some sort of virus. Just no energy at
> all, so the doc took me off methotrexate temporarily... darn it! I was
> looking forward to feeling better. I know the question lurks: is the sick
> feeling a result of the methotrex? Well, it seems not, since I have been
> off it for about a month. But will discuss it with doc. I go to see my
> rheumie tomorrow.
>
> My love to you all,
>
> Mair
>
> "J" <faked...@emailaddress.com> wrote in message
> news:41DA8D07.8AED0D4F@execulink.com...
>
>
| |
|
| ((( J )))
Sometimes we need to pulled up by our boot straps ))
Time of year , holidays , extended family has made me sleep alot when in
stress mode.
Marcia has been having a lot of gloom of late . Tomorrow she is off to our
dr.'s. His wife is Marcia's best friend so we ganged up on Marty to make her
go.
We have a lot of snow , but of late the hug girl above has been sending me
freezing rain like tonight .
OK Jean , i'm on line , enough already ! )
Bruce On. " Two sisters from our town are missing and a couple from a farm
town down the road a bit on thier first retirement trip are two of the lost
souls in Asia. We are each others supporter as this thought family knows. "
"J" <faked...@emailaddress.com> wrote in message
news:41DA8D07.8AED0D4F@execulink.com...
> I wonder what's happening to this newsgroup?
> Are you all too tired? (I understand).
> Having hand/finger pains (I understand).
> Tell us what's up... why you're not posting...?
> I'm watching this newsgroup to make sure nobody cause you trouble.
>
> If any of you wish to update us, or give us a good rant /vent or CGT, or
> reason for not posting.
> I'm reading, listening and caring, even if my arm/hand won't always
> co-operate.
> Hugs to all of you, from
> J
>
| |
| Snake Lady 2005-01-05, 7:12 pm |
| Hi all, my sons MRI did not show anything of concern, the docs are now
saying it is probably muscular, he is still in considerable pain though, so
is staying in hospital until at least tomorrow!! Thanks for your caring
attitudes all, I am off to try and rest now.
Janet
J wrote:
> BJ wrote:
>
>
> Echoing BJ's concerns and sentiments.
> Hugs to you both,
> J
| |
| Ruth Tay 2005-01-05, 7:12 pm |
| In article <41DBB9B1.EED53AC4@execulink.com>, J <example@example.net>
wrote:
> Ruth Tay wrote:
>
>
> Remission, what a wonderful word to hear.
> Good to hear from you, Ruth,
> Hugs
> J
>
THANKS to all. Tried to keep in touch but lazy just reading all about
everyone. Does anyone know how Grace Casselman is ? We had to close
our book store but we were selling her books and making re orders
Her book called 'A Hole in the Hedge' was marvelous for any teen
ager that was faced by a death in the family or in the neighborhood.
This group has always been such a blessing and it is so good to have
friends all over the world. ruth
| |
|
| Bruce,
will be sending prayers for your friends...IT must be a terrible thing
waiting to hear about them and thier families must be devestated...
Hugs Cindy
"Bruce" <rothnie2003@hotmail.com> wrote in message
news:Fa6dneult6Sc_EHcRVn-gg@rogers.com...
> ((( J )))
>
> Sometimes we need to pulled up by our boot straps ))
> Time of year , holidays , extended family has made me sleep alot when in
> stress mode.
> Marcia has been having a lot of gloom of late . Tomorrow she is off to our
> dr.'s. His wife is Marcia's best friend so we ganged up on Marty to make
> her
> go.
> We have a lot of snow , but of late the hug girl above has been sending me
> freezing rain like tonight .
> OK Jean , i'm on line , enough already ! )
> Bruce On. " Two sisters from our town are missing and a couple from a farm
> town down the road a bit on thier first retirement trip are two of the
> lost
> souls in Asia. We are each others supporter as this thought family knows.
> "
>
>
> "J" <faked...@emailaddress.com> wrote in message
> news:41DA8D07.8AED0D4F@execulink.com...
>
>
| |
| Shelagh 2005-01-05, 7:12 pm |
| <snip>"Bruce" wrote in message
Marcia has been having a lot of gloom of late .
=> Bruce On. " Two sisters from our town are missing and a couple from a
farm
town down the road a bit on thier first retirement trip are two of the lost
souls in Asia. We are each others supporter as this thought family knows.
"</snip>
I am so sad for you and your town Bruce.... so terrible what happened across
the world! I will pray for their friends and family as well as for them and
hope above all hopes that a miracle will occur and someone will find them
well and fit; we are overdue a miracle in that part of the world....darn
time for one for those poor folk!
Sending some hugs from me to your Marcia and tell her that I hope her gloom
dissipates and spills happiness all over her!
~hugs from Shelagh
| |
|
| Glad to hear the good news. Maybe Mom can get a good sleep tonight.
BJ-Sk. Canada
"Snake Lady" <janetandsam@beeteeinternet.com> wrote in message
news:343ctcF46k2m3U1@individual.net...
> Hi all, my sons MRI did not show anything of concern, the docs are now
> saying it is probably muscular, he is still in considerable pain though,
so
> is staying in hospital until at least tomorrow!! Thanks for your caring
> attitudes all, I am off to try and rest now.
> Janet
> J wrote:
>
>
>
| |
| herbwormwood 2005-01-06, 11:09 am |
| Its for prednisolone- induced osteoporosis.
I have had it now and I feel ok.
On Wed, 5 Jan 2005 17:43:20 +0000, Michael Roeper wrote
(in article <YGVCd.25509$wu4.14038@attbi_s52> ):
> What's the pamidronate infusion treatment for?????
>
> Michael
>
> "herbwormwood" <herbwormwood@lycos.co.uk> wrote in message
> news:0001HW.BE01D21F0019B1F7F04075B0@News.Individual.NET...
> he's
> this
> will
>
>
| |
|
| > "Snake Lady" <janetandsam@beeteeinternet.com> wrote in message[vbcol=seagreen]
> so
Sounds weird for muscle pain. Could it be phantom pain?
Keep in touch, hugs from J
| |
|
| Shelagh wrote:
> <snip>"Bruce" wrote in message
> Marcia has been having a lot of gloom of late .
> => Bruce On. " Two sisters from our town are missing and a couple from a
> farm
> town down the road a bit on thier first retirement trip are two of the lost
> souls in Asia. We are each others supporter as this thought family knows.
> "</snip>
>
> I am so sad for you and your town Bruce....
Seconded, hugs from J
| |
|
| Cindy wrote:
> Just between the FM, OA and Grandkids....I lurk alot, but just don't post
> much...but looks like I am not the only one...It has been quiet around
> here...
>
> Also Mike was in the Hospital in Dec with another hernia operation...They
> used pig skin instead of the other mesh this time as his body was rejecting
> that and we had to go in twice and take it out...Things got scarey as his
> kidneys shut down and then his heart did some funny things while we were in
> ICU...They had to give him 3 units of blood.So he is better now...Going in
> on Friday for a stress test and another echocardiogram of the
> heart...Tomorrow he sees a urologist as he has had some problems
> urinating... There was some red blood cells in his urine..No white ones so
> they say it is probably not an infection. Hoping it has nothing to do with
> his kidneys...
> Then we had Christmas....
> CGT... Got new clothes..Pants size 8
>
> Today we had an ice storm and freezing to death temperatures....
> Praying for all those in need...
Sending good throughts for you and your hubby, Cindy,
Hugs from J
| |
|
| Mair wrote:
> I am here, but have been sick with some sort of virus. Just no energy at
> all, so the doc took me off methotrexate temporarily... darn it! I was
> looking forward to feeling better. I know the question lurks: is the sick
> feeling a result of the methotrex? Well, it seems not, since I have been
> off it for about a month. But will discuss it with doc. I go to see my
> rheumie tomorrow.
Waving friendly arms at seeing Mair posting.
Thinking of you and rheumie today.
Hugs from J
| |
|
| Bruce wrote:
> Sometimes we need to pulled up by our boot straps ))
> Time of year , holidays , extended family has made me sleep alot when in
> stress mode.
> Marcia has been having a lot of gloom of late . Tomorrow she is off to our
> dr.'s. His wife is Marcia's best friend so we ganged up on Marty to make her
> go.
> We have a lot of snow , but of late the hug girl above has been sending me
> freezing rain like tonight .
Sending good thoughts to you and Marcia. Big downer ice storm, I think you're
right, the worst to the north and west of here.
but I didn't send it to you !
They tell us sunny and warmer on Sunday, Monday and tuesday 11 degrees..
I will wiat for it to melt !
J
| |
| Fat Sam 2005-01-06, 7:14 pm |
| J wrote:
>
> Sounds weird for muscle pain. Could it be phantom pain?
> Keep in touch, hugs from J
No phantom pain for at least ten years!! He never really had phantom pain,
tickleishness but not pain, I used to have to pretend to scratch it for
him!! They have done blood work today, but no idea what for, he spoke to me
earlier, sounded a bit better in himself. The pain killers finally seem to
be working. He may be home tomorrow, he didn't get to see a doc today, so
he couldn't come home today. I spent the afternoon at Sandringham (the
queens house and park in Norfolk) with the two dogs and my husband, god
bless my go anywhere scooter, the fresh air did us all good, the dogs are
both flat out now!! LOL I'm about to join them. Thanks for your kind
thoughts all.
Janet
| |
| Snake Lady 2005-01-06, 7:14 pm |
|
Sorry that was me!!
Janet
Fat Sam wrote:
> J wrote:
>
> No phantom pain for at least ten years!! He never really had phantom
> pain, tickleishness but not pain, I used to have to pretend to
> scratch it for him!! They have done blood work today, but no idea
> what for, he spoke to me earlier, sounded a bit better in himself.
> The pain killers finally seem to be working. He may be home
> tomorrow, he didn't get to see a doc today, so he couldn't come home
> today. I spent the afternoon at Sandringham (the queens house and
> park in Norfolk) with the two dogs and my husband, god bless my go
> anywhere scooter, the fresh air did us all good, the dogs are both
> flat out now!! LOL I'm about to join them. Thanks for your kind
> thoughts all.
> Janet
| |
| Sharon 2005-01-07, 10:09 pm |
| Hi all,
At the moment I'm sick with a cold, drugged on Dayquil, so please excuse
any nonsense in this post. :p
I have been lurking when I have a moment, but have been so busy with
work and everything else life entails. My rheumy is trying to get me
off pred, but I can't seem to drop below 7.5mg without symptoms coming
back. We might discuss trying a new med like mtx, but I'm really happy
with the Atabrine, so I hope I don't have to switch, but must get off
pred because it is causing eye problems.
Happy New Year to everyone!
-Sharon
J wrote:
> I wonder what's happening to this newsgroup?
> Are you all too tired? (I understand).
> Having hand/finger pains (I understand).
> Tell us what's up... why you're not posting...?
> I'm watching this newsgroup to make sure nobody cause you trouble.
>
> If any of you wish to update us, or give us a good rant /vent or CGT, or
> reason for not posting.
> I'm reading, listening and caring, even if my arm/hand won't always
> co-operate.
> Hugs to all of you, from
> J
>
| |
| herbwormwood 2005-01-08, 7:08 am |
| On Sat, 8 Jan 2005 01:46:27 +0000, Sharon wrote
(in article <348sbbF487281U1@individual.net> ):
[vbcol=seagreen]
> Hi all,
>
> At the moment I'm sick with a cold, drugged on Dayquil, so please excuse
> any nonsense in this post. :p
>
> I have been lurking when I have a moment, but have been so busy with
> work and everything else life entails. My rheumy is trying to get me
> off pred, but I can't seem to drop below 7.5mg without symptoms coming
> back. We might discuss trying a new med like mtx, but I'm really happy
> with the Atabrine, so I hope I don't have to switch, but must get off
> pred because it is causing eye problems.
>
> Happy New Year to everyone!
>
> -Sharon
>
> J wrote:
Hi Sharon,
Maybe you know I also have been trying to get off prednisolone.
I had a adrenal function test before I reduced below 7.5. A couple of years
back maybe.Did you know 7.5 mg is about how much prednisolone (well actually
cortisol, the hormone which prednisolone mimics) our bodies naturally
produce? Maybe I am telling you what you already know?
I think that is why a lot of people get stuck at around 7 milligrammes.
When I was about that dose I had an adrenal function test to see if my body
could still produce enough.
It came back ok so I tried to reduce more. I reduced by a half milligramme
every few weeks or months depending on my health. I had some withdrawal pain
but no severe symptoms., now I am down to 2 milligrammes on alternate days.
It is important not to attempt a reduction while you are unwell.
Have you talked to your doctor about the adrenal test? I think it is called
synactther test or something similar. Medic types here will know its proper
name!
My doctor said take more imuran while I was reducing. So I am now on 75 mg
imuran (azathioprine) instead of 50.
Prednisolone tablets can be obtained in 5 mg, 2.5 mg, ad 1 mg strengths,
allowing for a half milligramme reduction right down to 2 milligrammes. I
think I will have to get a pill cutter now I am on 2 milligrammes, as I want
to continue with the half milligrame reduction.
Good luck with it and let us know how you get on!
| |
|
| Recovering from a week of "bad back" ... only able to work part of one
day last week and sit at the computer for 20 minutes at a stretch
(working from home as possible). Actually, up and down my spine has
felt inflamed for 2-3 weeks. I was "wonderful" (not!) company on
Christmas Day. Much improved at this point. This type of back problem
was common until about 5 years ago so I had a nice long break from it.
Family life has been complicated recently, too. Sigh ... all is fine,
just complicated.
Enjoy reading everyone's news.
cp
> "J" <faked...@emailaddress.com> wrote in message
> news:41DA8D07.8AED0D4F@execulink.com...
>
>
>
>
| |
|
| Hi CP,
I am glad to hear that your back is getting better. I live with constant
back problems too. It gets really bad from time to time, so I know how much
fun you are having. Take it slow and easy. Good to see you, by the way.
BJ-Sk. Canada
"CP" <cp@something.com> wrote in message news:lhVDd.773$hc7.464@trnddc08...
> Recovering from a week of "bad back" ... only able to work part of one
> day last week and sit at the computer for 20 minutes at a stretch
> (working from home as possible). Actually, up and down my spine has
> felt inflamed for 2-3 weeks. I was "wonderful" (not!) company on
> Christmas Day. Much improved at this point. This type of back problem
> was common until about 5 years ago so I had a nice long break from it.
>
> Family life has been complicated recently, too. Sigh ... all is fine,
> just complicated.
>
> Enjoy reading everyone's news.
>
> cp
>
>
| |
|
| Hi Lynne,
I have a question for you about Imuran. Is 50mgs considered a maintenance
dosage? I have been on 150mgs for a long time now. The doctors wanted me to
stay on 10-15mgs of pred too, because they did not think my platelets would
stay up in safe range, if I went off it. I went off it on my own(very
gradually) and I am fine without it. That makes me wonder if I could do the
same with the Imuran. I won't know until I try, right? Sometimes I wonder if
doctors want me to stay on drugs because that don't want to deal with a
crisis, so they err on the side of caution. I would certainly like to at
least lower the amount of Imuran. Any thoughts on this?
BJ-Sk. Canada
"herbwormwood" <herbwormwood@lycos.co.uk> wrote in message
news:0001HW.BE0578E8003406B1F04075B0@News.Individual.NET...
> On Sat, 8 Jan 2005 01:46:27 +0000, Sharon wrote
> (in article <348sbbF487281U1@individual.net> ):
>
or[vbcol=seagreen]
>
> Hi Sharon,
> Maybe you know I also have been trying to get off prednisolone.
> I had a adrenal function test before I reduced below 7.5. A couple of
years
> back maybe.Did you know 7.5 mg is about how much prednisolone (well
actually
> cortisol, the hormone which prednisolone mimics) our bodies naturally
> produce? Maybe I am telling you what you already know?
> I think that is why a lot of people get stuck at around 7 milligrammes.
>
> When I was about that dose I had an adrenal function test to see if my
body
> could still produce enough.
> It came back ok so I tried to reduce more. I reduced by a half milligramme
> every few weeks or months depending on my health. I had some withdrawal
pain
> but no severe symptoms., now I am down to 2 milligrammes on alternate
days.
> It is important not to attempt a reduction while you are unwell.
> Have you talked to your doctor about the adrenal test? I think it is
called
> synactther test or something similar. Medic types here will know its
proper
> name!
> My doctor said take more imuran while I was reducing. So I am now on 75 mg
> imuran (azathioprine) instead of 50.
>
> Prednisolone tablets can be obtained in 5 mg, 2.5 mg, ad 1 mg strengths,
> allowing for a half milligramme reduction right down to 2 milligrammes. I
> think I will have to get a pill cutter now I am on 2 milligrammes, as I
want
> to continue with the half milligrame reduction.
> Good luck with it and let us know how you get on!
>
>
>
| |
| BJ's doc 2005-01-08, 10:08 pm |
| BJ wrote:
> I have a question for you about Imuran. Is 50mgs considered a maintenance
> dosage? I have been on 150mgs for a long time now. The doctors wanted me to
> stay on 10-15mgs of pred too, because they did not think my platelets would
> stay up in safe range, if I went off it. I went off it on my own(very
> gradually) and I am fine without it. That makes me wonder if I could do the
> same with the Imuran. I won't know until I try, right? Sometimes I wonder if
> doctors want me to stay on drugs because that don't want to deal with a
> crisis, so they err on the side of caution. I would certainly like to at
> least lower the amount of Imuran. Any thoughts on this?
Hello BJ,
Last March or April we discussed the possibility if we get three good (monthly)
blood tests in a row.
We've recently made a different change and it is not always wise to make more
than one change at a time, but I would be pleased to review your bloodwork with
you, if you would like to make an appointment with my office and we can discuss
this matter then.
Regards,
| |
|
| My blood work is never really good. I don't think I can go by that. I think
maybe I would have to try lowering the Imuran to see if the blood problems
get worse. I may go ahead on my own and reduce to 100mgs. If nothing big
happens I could then go down to 50mgs. Is 50mg about as low as one can go
and still have the Imuran be affective?
BJ-Sk. Canada
"BJ's doc" <nospam@nospam.nospam> wrote in message
news:41E08F12.1CB3C2C5@execulink.com...
> BJ wrote:
>
maintenance[vbcol=seagreen]
to[vbcol=seagreen]
would[vbcol=seagreen]
the[vbcol=seagreen]
wonder if[vbcol=seagreen]
>
> Hello BJ,
> Last March or April we discussed the possibility if we get three good
(monthly)
> blood tests in a row.
> We've recently made a different change and it is not always wise to make
more
> than one change at a time, but I would be pleased to review your bloodwork
with
> you, if you would like to make an appointment with my office and we can
discuss
> this matter then.
> Regards,
>
| |
| Michael Roeper 2005-01-09, 10:10 pm |
| I know that when I was on Imuran last summer, the Doc started me on 50mg and
wanted to go to 100 as soon as he could. I guess you have to approach this
stuff cautiously at first to see how your system reacts to it. The eventual
goal for me was 100mg a day but he (the Doc) got it in his head that I
wasn't tolerating it (I was having NO PROBLEMS with it at all) and took me
off it. I've never been able to convince him to this day that I was OK with
it.
I'm starting to be of the opinion that the Doc's (within reason, of course)
can suggest medical treatments but, at the end of the day, its me that has
to live with the results. I've changed my pain med's to something a lot
milder (and am going to decrease that even more cause I'm getting more
energy) and I dropped the Cytoxan from 150mg/a day to 100 mgs.
My Doc's don't seem to have any interest, it seems like, in any "quality of
life" discussions. His attitude is that if my lung x-rays are good, we're
doing the right thing. I wasn't successful in convincing him that all the
heavy-duty med's were killing my spirit. They may have fixed my body but
I've felt like I was slowly dying for 3 years now. And it's going to take a
lot more energy than I had to get out of this rut I've been in and start
getting out and meeting some people.
I was so sick at the time of my divorce and didn't manage to keep any of our
mutual friends. So now I'm alone almost all of the time unless my son drops
by.
I'm ready to start chasing women again! There's got to be someone out there
that doesn't find an oxygen cylinder all that offensive.
Wish me luck. I like hearing that you're trying to "balance out" your med's
to suit your feelings about your medication and what it's doing for you.
We've been encouraged for so long not to "self-medicate," but I've got to
get off this couch. I can't take another day of it!
Good luck to you. I don't know if anything I've said here has anything to do
with your question but you know how much I like to hear myself talk!
Michael
"BJ" <Babs@sk.nojunk.ca> wrote in message
news:10u0nklqlk4pc66@corp.supernews.com...
> Hi Lynne,
> I have a question for you about Imuran. Is 50mgs considered a maintenance
> dosage? I have been on 150mgs for a long time now. The doctors wanted me
to
> stay on 10-15mgs of pred too, because they did not think my platelets
would
> stay up in safe range, if I went off it. I went off it on my own(very
> gradually) and I am fine without it. That makes me wonder if I could do
the
> same with the Imuran. I won't know until I try, right? Sometimes I wonder
if
> doctors want me to stay on drugs because that don't want to deal with a
> crisis, so they err on the side of caution. I would certainly like to at
> least lower the amount of Imuran. Any thoughts on this?
> BJ-Sk. Canada
> "herbwormwood" <herbwormwood@lycos.co.uk> wrote in message
> news:0001HW.BE0578E8003406B1F04075B0@News.Individual.NET...
excuse[vbcol=seagreen]
happy[vbcol=seagreen]
> or
> years
> actually
> body
milligramme[vbcol=seagreen]
> pain
> days.
> called
> proper
mg[vbcol=seagreen]
I[vbcol=seagreen]
> want
>
>
| |
|
| BJ's doc wrote:
> BJ wrote:
>
>
>
>
> Hello BJ,
> Last March or April we discussed the possibility if we get three good (monthly)
> blood tests in a row.
> We've recently made a different change and it is not always wise to make more
> than one change at a time, but I would be pleased to review your bloodwork with
> you, if you would like to make an appointment with my office and we can discuss
> this matter then.
> Regards,
>
I can't take Imuran. It makes me deathly ill. I feel like I have severe
food poisoning after taking it. Vomiting and diarrhea.
Nell
| |
| Beverley 2005-01-11, 2:08 am |
| Maybe I'm an optimist but I think that most women do not look at a man for
what he has or doesn't have. They look at the man inside. Years ago I knew a
young guy who had lost is leg in a motorcycle accident. He wasn't good
looking, he wasn't ugly just average. He never lacked for a date. He was
just one of those guys who had great personality. He was smart and funny and
he never looked back or at least never openly seemed depressed about his
loss. He'd crack a joke about it once in a while and he could tell some
funny stories about trying to get up and down steps on crutches.
Women don't look at a guy and say "Oh, he has a long nose, I'm not dating
him." Women say "Gee, he's a really nice guy I'm sure I'd enjoy going out
with him." And if a woman is going to say "Uck, he has an oxygen tank" then
you really didn't want her in the first place!
Now go do something with yourself so you meet someone. Do something you
enjoy. There are all sorts of groups out there and surely there is something
near you that you could get into be it bowling, darts, billiards, gemology,
Toast Masters, Lions Club, church group, or volunteer at the local library,
hospital or VA center. Do something you like and you'll find someone who has
a common interest. We can probably skip the ballroom dancing and the adult
soccer league but you could do the youth league and be a coach or record
keeper. Lots of single moms out there.
You're too nice a guy to be holed up in your house and doing nothing.
:-)
Bev
"Michael Roeper" <roeper@comcast.net> wrote in message
news:qdmdnZX4wqVOS3zcRVn-rA@comcast.com...
> I know that when I was on Imuran last summer, the Doc started me on 50mg
and
> wanted to go to 100 as soon as he could. I guess you have to approach this
> stuff cautiously at first to see how your system reacts to it. The
eventual
> goal for me was 100mg a day but he (the Doc) got it in his head that I
> wasn't tolerating it (I was having NO PROBLEMS with it at all) and took me
> off it. I've never been able to convince him to this day that I was OK
with
> it.
>
> I'm starting to be of the opinion that the Doc's (within reason, of
course)
> can suggest medical treatments but, at the end of the day, its me that has
> to live with the results. I've changed my pain med's to something a lot
> milder (and am going to decrease that even more cause I'm getting more
> energy) and I dropped the Cytoxan from 150mg/a day to 100 mgs.
>
> My Doc's don't seem to have any interest, it seems like, in any "quality
of
> life" discussions. His attitude is that if my lung x-rays are good, we're
> doing the right thing. I wasn't successful in convincing him that all the
> heavy-duty med's were killing my spirit. They may have fixed my body but
> I've felt like I was slowly dying for 3 years now. And it's going to take
a
> lot more energy than I had to get out of this rut I've been in and start
> getting out and meeting some people.
>
> I was so sick at the time of my divorce and didn't manage to keep any of
our
> mutual friends. So now I'm alone almost all of the time unless my son
drops
> by.
>
> I'm ready to start chasing women again! There's got to be someone out
there
> that doesn't find an oxygen cylinder all that offensive.
>
> Wish me luck. I like hearing that you're trying to "balance out" your
med's
> to suit your feelings about your medication and what it's doing for you.
> We've been encouraged for so long not to "self-medicate," but I've got to
> get off this couch. I can't take another day of it!
>
> Good luck to you. I don't know if anything I've said here has anything to
do
> with your question but you know how much I like to hear myself talk!
>
> Michael
> "BJ" <Babs@sk.nojunk.ca> wrote in message
> news:10u0nklqlk4pc66@corp.supernews.com...
maintenance[vbcol=seagreen]
> to
> would
> the
wonder[vbcol=seagreen]
> if
> excuse
me[vbcol=seagreen]
coming[vbcol=seagreen]
> happy
off[vbcol=seagreen]
CGT,[vbcol=seagreen]
naturally[vbcol=seagreen]
milligrammes.[vbcol=seagreen]
> milligramme
withdrawal[vbcol=seagreen]
75[vbcol=seagreen]
> mg
strengths,[vbcol=seagreen]
milligrammes.[vbcol=seagreen]
> I
I[vbcol=seagreen]
>
>
| |
|
| Sorry it's been so long, had a really bad xmas and new year;over-worked to
start off with (covering sickness), started with a cold, then chest
infection,then full blown flu on new years eve- in bed for 3 days and just
starting to feel human again now.
Went to see the doc yesterday for my 4 weekly check, chest clear now thank
god- didn't want to end up with pleurisy again. I was also started on
cipralex just before xmas, can't really say whether they've kicked in yet as
I've felt so poorly with everything else; but then again I don't feel like
I'm totally losing my mind anymore.
Oh well ,things can only get better, so they say; looking forward and trying
to think positive.
Hope everyone else on the NG had a great xmas, and happy new year to one and
all,
DEB (UK)
"Aishae" <furlon@verizon.net> wrote in message
news:MCwCd.10025$PY6.8514@trndny02...
> Hi J,
> I was wondering the same thing , but I thought maybe I just wasn't getting
> the posts for some reason. . .I am guilty of NOT posting as well though. .
> .My Anemia is kicking up in full force these days and my increase in Pred
> and the addition of MTX has been an awful adjustment for me. . . today
seems
> to be my best day of the week since I don't take my MTX dose till
tomorrow.
> . . lol. . .go figure. . .so I try to make the best of Tuesdays. . .I also
> think that now that the holidays are over everyone will get more rest and
be
> back to posting soon. . . .Hopefully even I will be better soon. .
> .sometimes I am sleeping (zzzzzzzzz) by 6p.m. but I am up all times of
> the night on and off. . .Pred increase has always messed my sleep up. . .
> but my fingers and shoulders (burning) sometimes slows me down as far as
> sitting here typing very much. . .but I am doing it today so hopefully the
> Pred/MTX combo will help with my joints soon. . .Hope you had wonderful
> Holidays. . . ~Hugs~Aimee
>
> --
> 'Be who you are and say what you feel, because those who mind don't
matter,
> and those who matter don't mind' - Dr. Suess
> -:¦:-
> :¦:-Dream as if you'll live forever; Live as if you'll die
today. -
> James Dean
> -:¦:- ~HUGS~Aim~
>
> "J" <faked...@emailaddress.com> wrote in message
> news:41DA8D07.8AED0D4F@execulink.com...
>
>
| |
| herbwormwood 2005-01-11, 11:09 am |
| Hi BJ,
Looks like you have already got an answer from your doctor!
I will come back to you with a question:
What do you mean by a maintenance dose of imuran? I don't know if such a
thing exists?
I understand about maintenance doses of prednisolone.
I understand because prednisolone is addictive and mimics a natural hormone,
so some people need a dose of prednisolone just to "maintain" their normal
health. Without it they would become ill. But imuran is not like that. Imuran
does not mimic any hormone or become addictive, It has no use except to treat
disease/prevent organ rejection by damping down the immune system!
I do have CNS lupus and I have had kidney disease twice so I think my doctors
are being careful, I get a long list of blood tests every 3 months to monitor
the effect of the imuran. Based on those results it does not seem to have an
adverse effect on me. Also I don't feel bad taking it. Maybe one day I will
be off it, but not yet. If you are keen to be off it, keep reminding your
doctors that that is your wish.
On Sat, 8 Jan 2005 22:12:48 +0000, BJ wrote
(in article <10u0nklqlk4pc66@corp.supernews.com> ):
> Hi Lynne,
> I have a question for you about Imuran. Is 50mgs considered a maintenance
> dosage? I have been on 150mgs for a long time now. The doctors wanted me to
> stay on 10-15mgs of pred too, because they did not think my platelets would
> stay up in safe range, if I went off it. I went off it on my own(very
> gradually) and I am fine without it. That makes me wonder if I could do the
> same with the Imuran. I won't know until I try, right? Sometimes I wonder if
> doctors want me to stay on drugs because that don't want to deal with a
> crisis, so they err on the side of caution. I would certainly like to at
> least lower the amount of Imuran. Any thoughts on this?
> BJ-Sk. Canada
> "herbwormwood" <herbwormwood@lycos.co.uk> wrote in message
> news:0001HW.BE0578E8003406B1F04075B0@News.Individual.NET...
> or
> years
> actually
> body
> pain
> days.
> called
> proper
> want
>
>
| |
|
| Hi Lynne,
I guess I am thinking of the lowest possible dose of Imuran that would still
do the job for me. I know there is an increased risk of lymphoma with
Imuran. It seems to me that 150mgs may be more than I need. How would I know
for sure, unless I reduced it? I noticed that you are on 50-75mgs. I thought
I would try going down to 100mgs to see what happens. I get blood work every
month, so I could certainly monitor my progress. I could increase if
anything changed dramatically. Maybe 50mgs would be enough to keep my
platelets from bottoming out. Why be on more than is absolutely necessary?
BJ-Sk. Canada
"herbwormwood" <herbwormwood@lycos.co.uk> wrote in message
news:0001HW.BE0984D8004BF029F04075B0@News.Individual.NET...
> Hi BJ,
> Looks like you have already got an answer from your doctor!
> I will come back to you with a question:
> What do you mean by a maintenance dose of imuran? I don't know if such a
> thing exists?
>
>
> I understand about maintenance doses of prednisolone.
> I understand because prednisolone is addictive and mimics a natural
hormone,
> so some people need a dose of prednisolone just to "maintain" their normal
> health. Without it they would become ill. But imuran is not like that.
Imuran
> does not mimic any hormone or become addictive, It has no use except to
treat
> disease/prevent organ rejection by damping down the immune system!
> I do have CNS lupus and I have had kidney disease twice so I think my
doctors
> are being careful, I get a long list of blood tests every 3 months to
monitor
> the effect of the imuran. Based on those results it does not seem to have
an
> adverse effect on me. Also I don't feel bad taking it. Maybe one day I
will
> be off it, but not yet. If you are keen to be off it, keep reminding your
> doctors that that is your wish.
>
> On Sat, 8 Jan 2005 22:12:48 +0000, BJ wrote
> (in article <10u0nklqlk4pc66@corp.supernews.com> ):
>
maintenance[vbcol=seagreen]
to[vbcol=seagreen]
would[vbcol=seagreen]
the[vbcol=seagreen]
wonder if[vbcol=seagreen]
excuse[vbcol=seagreen]
happy[vbcol=seagreen]
milligrammes.[vbcol=seagreen]
milligramme[vbcol=seagreen]
mg[vbcol=seagreen]
strengths,[vbcol=seagreen]
I[vbcol=seagreen]
>
>
| |
| herbwormwood 2005-01-11, 11:09 am |
| On Tue, 11 Jan 2005 14:23:25 +0000, BJ wrote
(in article <10u7oenr3tosh0b@corp.supernews.com> ):
> Hi Lynne,
> I guess I am thinking of the lowest possible dose of Imuran that would still
> do the job for me. I know there is an increased risk of lymphoma with
> Imuran. It seems to me that 150mgs may be more than I need. How would I know
> for sure, unless I reduced it? I noticed that you are on 50-75mgs. I thought
> I would try going down to 100mgs to see what happens. I get blood work every
> month, so I could certainly monitor my progress. I could increase if
> anything changed dramatically. Maybe 50mgs would be enough to keep my
> platelets from bottoming out. Why be on more than is absolutely necessary?
No reason.
You should be on the lowest dose that is safe for you. I suppose the problem
is that lowering the dose might induce a flare. I am on 75 mg at the moment
because I am lowering the prednisolone dose. I hope my results from my blood
tests prove my immune system is not in such a weakened state that I would be
susceptible to lymphoma. If any tests are off I get a phone call straight
away. Hopefully when I have got off prednisolone and I am still stable, I
could lower the imuran to 50 again. Let us know how you get on.
> BJ-Sk. Canada
> "herbwormwood" <herbwormwood@lycos.co.uk> wrote in message
> news:0001HW.BE0984D8004BF029F04075B0@News.Individual.NET...
> hormone,
> Imuran
> treat
> doctors
> monitor
> an
> will
> maintenance
> to
> would
> the
> wonder if
> excuse
> happy
> milligrammes.
> milligramme
> mg
> strengths,
> I
>
>
|
| |
|
|