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Home > Archive > Lupus Support > December 2004 > My rheumy wanted me to take imuran
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My rheumy wanted me to take imuran
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| I had stopped taking it for awhile when I got really sick. I told him
about it but he figured it might have been food poisoning. Now I'm not
so sure. I took it with food and no other meds to make sure whatever
happened I could pin down. Looks like imuran might be out for me. I was
got really sick again. When I called him he said to stop it and just
take my other two (plaquenil and pred). He wanted me to use the imuran
to get me off pred. Funny. My rheumy in Missouri (I live in New Jersey
now) had me taking the plaquenil to get me off pred.
I called the pharmacy to make sure it was the med and not possibly a bad
lot. Nope, the pharmacist said it can cause the reaction I got.
Nell
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| Hi Nell,
Sorry to hear that the Imuran is not going to work out for you. I have been
on it for quite a while now and it certainly has helped me. I am off pred,
and have only had to take it again for brief intervals. Perhaps there is
another option that will agree with you. I wish you luck finding something.
BJ-Sk. Canada
"Nell" <mildredskidnospam_atall@comcast.net> wrote in message
news:CcCdnefZ0oayhFjcRVn-ug@comcast.com...
> I had stopped taking it for awhile when I got really sick. I told him
> about it but he figured it might have been food poisoning. Now I'm not
> so sure. I took it with food and no other meds to make sure whatever
> happened I could pin down. Looks like imuran might be out for me. I was
> got really sick again. When I called him he said to stop it and just
> take my other two (plaquenil and pred). He wanted me to use the imuran
> to get me off pred. Funny. My rheumy in Missouri (I live in New Jersey
> now) had me taking the plaquenil to get me off pred.
>
> I called the pharmacy to make sure it was the med and not possibly a bad
> lot. Nope, the pharmacist said it can cause the reaction I got.
>
> Nell
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| Had you tried Methotrexate yet? Often I have heard that it is second
choice.
As far as the prednisone, I can thank it for my diverticulosis and my
osteoporosis. At least I know I won't develop these issues when I take
prednisone in the future.
How long have you been on the Plaquenil? What amount are you taking? It
took almost full nine months to work on me. After three years on the
Plaquenil, my stomach went crazy and had to come off.
Have been on the Methotrexate for over a year now and it's been the most
successful for treating my symptoms, of which I have TOO MANY!
When you say you got really sick, in what way? Is your pain medication
adequate?
The rheumy in Missouri makes more sense to me then the one in NJ but all
doctors are different as turkeys are to chickens. They all have feathers
but.
Hopes this post finds you feeling better!
Always,
...· ´¨¨)) -:¦:-
¸.·´ .·´¨¨))
((¸¸.·´ ..·´ cloud -:¦:-
-:¦:- ((¸¸.·´*
>I had stopped taking it for awhile when I got really sick. I told him about
>it but he figured it might have been food poisoning. Now I'm not so sure. I
>took it with food and no other meds to make sure whatever happened I could
>pin down. Looks like imuran might be out for me. I was got really sick
>again. When I called him he said to stop it and just take my other two
>(plaquenil and pred). He wanted me to use the imuran to get me off pred.
>Funny. My rheumy in Missouri (I live in New Jersey now) had me taking the
>plaquenil to get me off pred.
>
> I called the pharmacy to make sure it was the med and not possibly a bad
> lot. Nope, the pharmacist said it can cause the reaction I got.
>
> Nell
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| Michael Roeper 2004-12-21, 7:11 pm |
| I don't mean to discourage you but......I'm under the impression that
osteoporosis can be caused (or made worse) by Prednisone. I didn't have
osteoporosis until I started on large doses (60mg/day) of Prednisone. I have
to take Forteo injections for the Osteo. There are other med's to take for
the osteo. too but I understand Pred. to be a cause of the osteo.
As far as the chemo goes. I took Imuran last year and am on Cytoxan now.
Don't be afraid of em. I haven't lost my hair with either and other than a
little nausea and low energy, they're not so bad. I also haven't had a flar
that put me in the hospital since I started taking the Cytoxan.
Just my 2 cents worth.
Michael
"cloud" <pjasper@cfl.rr.com> wrote in message
news:snvxd.164885$Oc.56630@tornado.tampabay.rr.com...
> Had you tried Methotrexate yet? Often I have heard that it is second
> choice.
>
> As far as the prednisone, I can thank it for my diverticulosis and my
> osteoporosis. At least I know I won't develop these issues when I take
> prednisone in the future.
>
> How long have you been on the Plaquenil? What amount are you taking? It
> took almost full nine months to work on me. After three years on the
> Plaquenil, my stomach went crazy and had to come off.
>
> Have been on the Methotrexate for over a year now and it's been the most
> successful for treating my symptoms, of which I have TOO MANY!
>
> When you say you got really sick, in what way? Is your pain medication
> adequate?
>
> The rheumy in Missouri makes more sense to me then the one in NJ but all
> doctors are different as turkeys are to chickens. They all have feathers
> but.
>
> Hopes this post finds you feeling better!
>
> Always,
> ..· ´¨¨)) -:¦:-
> ¸.·´ .·´¨¨))
> ((¸¸.·´ ..·´ cloud -:¦:-
> -:¦:- ((¸¸.·´*
>
about[vbcol=seagreen]
I[vbcol=seagreen]
could[vbcol=seagreen]
>
>
| |
| herbwormwood 2004-12-23, 7:11 pm |
| On Tue, 21 Dec 2004 20:05:34 +0000, Michael Roeper wrote
(in article <im%xd.540420$wV.467720@attbi_s54> ):
> I don't mean to discourage you but......I'm under the impression that
> osteoporosis can be caused (or made worse) by Prednisone. I didn't have
> osteoporosis until I started on large doses (60mg/day) of Prednisone. I have
May I say, without judgement, that it is indeed the case that prednisolone
use can cause osteoporosis. This is a well documented fact and not
scaremongering.
Size of dose and length of treatment will have an effect, as will the
presence of other risk factors. The longer you are on it and the higher the
dose, the more likely you are to develop prednisolone induced osteoporosis.
I think age will have an effect too as bone density develops in youth and
childhood and declines with age.
I have heard that short IV pulses of prednisolone do not carry the same risk
for osteoporosis as tablets but I don't know if this is true.
> to take Forteo injections for the Osteo. There are other med's to take for
> the osteo. too but I understand Pred. to be a cause of the osteo.
>
> As far as the chemo goes. I took Imuran last year and am on Cytoxan now.
> Don't be afraid of em. I haven't lost my hair with either and other than a
> little nausea and low energy, they're not so bad. I also haven't had a flar
> that put me in the hospital since I started taking the Cytoxan.
>
> Just my 2 cents worth.
>
> Michael
| |
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| herbwormwood wrote:
> On Tue, 21 Dec 2004 20:05:34 +0000, Michael Roeper wrote
> (in article <im%xd.540420$wV.467720@attbi_s54> ):
>
>
>
>
> May I say, without judgement, that it is indeed the case that prednisolone
> use can cause osteoporosis. This is a well documented fact and not
> scaremongering.
> Size of dose and length of treatment will have an effect, as will the
> presence of other risk factors. The longer you are on it and the higher the
> dose, the more likely you are to develop prednisolone induced osteoporosis.
> I think age will have an effect too as bone density develops in youth and
> childhood and declines with age.
> I have heard that short IV pulses of prednisolone do not carry the same risk
> for osteoporosis as tablets but I don't know if this is true.
>
>
>
>
>
>
My PCP put me on Fosomax since I am pre osteoporosis (can't think of the
term right now).
Nell
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| herbwormwood 2004-12-27, 11:09 am |
| On Fri, 24 Dec 2004 16:53:28 +0000, Nell wrote
(in article <POmdne7X9_CP1FHcRVn-tg@comcast.com> ):
> herbwormwood wrote:
>
> My PCP put me on Fosomax since I am pre osteoporosis (can't think of the
> term right now).
>
> Nell
Hi Nell,
Would that be osteopenia?
Bones are thinner than they should be but not enough to qualify as
osteoporosis?
I was prescribed fosomax too but it gave me acid indegestion and diarhoeea.
My docs agreed with me I was at too high a risk for GI bleeding to tolerate
these side effects. I am on warfarin and aspirin too. I am now taking IV
pamidronate for the osteoorosis. Next one January 6.
I am only 38 so we all want to get my bones as stong as possible before I get
menopause, as post menopause bone density can go way down, which could be
scary when I already have osteoporosis.
| |
| Michael Roeper 2004-12-27, 10:08 pm |
| Get on Forteo ASAP....It's about $700. a month but they have an excellent
PAP plan if your insurance won't pay for it, you can get it free every
month. All you have to pay is a $12.00 service charge to the RX and the
needles themselves cost about 30 bucks (I think) for 100 (3 months). It's a
daily injection using an insulin type pen.
Michael
"herbwormwood" <herbwormwood@lycos.co.uk> wrote in message
news:0001HW.BDF5CCEB003F3EAFF04075B0@News.Individual.NET...
> On Fri, 24 Dec 2004 16:53:28 +0000, Nell wrote
> (in article <POmdne7X9_CP1FHcRVn-tg@comcast.com> ):
>
have[vbcol=seagreen]
I[vbcol=seagreen]
prednisolone[vbcol=seagreen]
the[vbcol=seagreen]
osteoporosis.[vbcol=seagreen]
and[vbcol=seagreen]
for[vbcol=seagreen]
now.[vbcol=seagreen]
than a[vbcol=seagreen]
flar[vbcol=seagreen]
>
> Hi Nell,
> Would that be osteopenia?
> Bones are thinner than they should be but not enough to qualify as
> osteoporosis?
> I was prescribed fosomax too but it gave me acid indegestion and
diarhoeea.
> My docs agreed with me I was at too high a risk for GI bleeding to
tolerate
> these side effects. I am on warfarin and aspirin too. I am now taking IV
> pamidronate for the osteoorosis. Next one January 6.
>
> I am only 38 so we all want to get my bones as stong as possible before I
get
> menopause, as post menopause bone density can go way down, which could be
> scary when I already have osteoporosis.
>
| |
| herbwormwood 2004-12-28, 11:16 am |
| Hi,
What is Forteo? Is it a drug?
I am in the UK, we have our free National Heath Service paid through general
taxation, private doctors and health insurance are too expensive here for
most people, we get what our doctors decide for us and that is that. Very few
people have private health insurance. Those who do will often end up getting
the same doctors and treatment as those who use the National Heath Service.
Most doctors are open to suggestions but usually if they think the budget
can afford it, the budget of the local health authority. It is a completely
different system here to in the states, the advantage being it is free to
almost all ((UK residents) but a lack of choice and control is the
disadvantage, those with a good doctor will be ok but a lot of it depends on
what part of the UK we live in, for example when I lived in Wales my
treatment was very poor, but now I am in a district neat Andy I see an very
good rheumatologist. But we cannot demand to be given a treatment of our
choice. Thank you for the suggestion.
On Tue, 28 Dec 2004 01:52:09 +0000, Michael Roeper wrote
(in article <d%2Ad.713971$mD.161080@attbi_s02> ):
> Get on Forteo ASAP....It's about $700. a month but they have an excellent
> PAP plan if your insurance won't pay for it, you can get it free every
> month. All you have to pay is a $12.00 service charge to the RX and the
> needles themselves cost about 30 bucks (I think) for 100 (3 months). It's a
> daily injection using an insulin type pen.
>
> Michael
>
> "herbwormwood" <herbwormwood@lycos.co.uk> wrote in message
> news:0001HW.BDF5CCEB003F3EAFF04075B0@News.Individual.NET...
> have
> I
> prednisolone
> the
> osteoporosis.
> and
> for
> now.
> than a
> flar
> diarhoeea.
> tolerate
> get
>
>
| |
| Sherry 2004-12-28, 10:08 pm |
| http://health.discovery.com/encyclo....jsp?drug=45568
What is teriparatide? FORTEO
. Teriparatide is a man-made form of the naturally occurring hormone
parathyroid. Teriparatide forms new bone, increases bone mineral density and
bone strength, and as a result, reduces the chance of getting a broken bone.
. Teriparatide is used for men and women with osteoporosis who are at high
risk for bone fractures.
. Teriparatide may also be used for purposes other than those listed in
this medication guide.
If you click on the link it will give you more info on what the drug is.
Sherry
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