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Home > Archive > Lupus Support > December 2004 > I need a friends
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| cheryl blount 2004-12-16, 9:24 am |
| Hi ,
How is all.....Iam new to this and also to webtv. So I have got lot's to
learn. I also have lupus since 1979 and all I can say is that I hurt
right now and can't sleep. It is 6:32 a.m. Boy I wish I could just
sleep and be at peace. Iam a care giver of two now and with myself
three. The best thing to have happen for me is a grandbaby born
11-2-2004. To my only son. People Iam just so tired of being sick and
useless at times. It is like my family just don't understand what Iam
going through, an that hurt's. Each year is a blessing and joy just to
wake up each day knowing that Iam still hear. Ive got a birthday this
month the 23 an that in itself is great because I clould not have been
hear to make it this far,.
Well I just wanted to say love to all and I hope to be able to join in
the group
Cheryl
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| Shelagh 2004-12-16, 9:24 am |
| Welcome to the group Cheryl and please post whenever you need to rant, rave,
question or just to talk!
This group is very supportive and understanding and I can hear that you are
having a rough go of it with your lupus and your life generally.... it can
be a tough row to hoe and I wish you all the best especially over this
holiday season coming up... I think Christmas is one of the worst times for
all of us cause of the pressures of society to 'socialize' and 'entertain'
and the shopping and cooking etc.! My best advice is to lie low and let
someone else take the reins for a while! Sleep is so all important when you
are sick... you do most of your healing while asleep so do try to get more
time alone so you can lie down and at the very least just close your eyes
and rest!
The world won't stop cause you are resting and I guarantee you everyone will
get by just fine and still be waiting for you at the end of the season!!
Just take one day (or one moment) at a time and don't let anyone talk you
into doing more than you are comfortable with!!
I will send you 'well wishes' and a happy holiday wish to you and your
family!
Take good care of 'you' first and then focus on the others!
hugs from Shelagh
"cheryl blount" wrote in message
> Hi ,
> How is all.....Iam new to this and also to webtv. So I have got lot's to
> learn. I also have lupus since 1979 and all I can say is that I hurt
> right now and can't sleep. It is 6:32 a.m. Boy I wish I could just
> sleep and be at peace. Iam a care giver of two now and with myself
> three. The best thing to have happen for me is a grandbaby born
> 11-2-2004. To my only son. People Iam just so tired of being sick and
> useless at times. It is like my family just don't understand what Iam
> going through, an that hurt's. Each year is a blessing and joy just to
> wake up each day knowing that Iam still hear. Ive got a birthday this
> month the 23 an that in itself is great because I clould not have been
> hear to make it this far,.
> Well I just wanted to say love to all and I hope to be able to join in
> the group
> Cheryl
| |
| Lassy Lass 2004-12-16, 9:24 am |
| Hi Cheryl,
Welcome to the group. There are a lot of wonderful people here. Very
supportive and informative.
I think we can all relate to the being sick and tired of being tired. I
agree with Shelagh, I think you need to rest especially when your body
is so tired.
I was dx with lupus when I was 22 or 23. I am now 29. I have learned
to try and rest when I can, and notice that when I try and push myself
by not resting usually gets me more tired and my joints hurt a lot more.
This is a wonderful group. Welcome Cheryl ((((((((hugs))))))) Melody
| |
| maria Pinder 2004-12-16, 9:24 am |
| Hi cheryl,
welcome to the group. Like you I've lupus for a long time now. I got really
bad after the birth of my dAUGHTER, 21 YEARS ago now, but it wasn't
diagnosed till about 8(?) years ago, by then most of the damaged was done.
And I live now from day to day and hope for the best. I'm suffering from
several infections at the moment, thank God it hasn,t gone to my lungs yet,
just broncial. Next week I'm going abroad where the weather is less cold
(Cyprus) and I should pick up then. Isuffer from Hasimoto's aswel and I'm
lucky enough to be able to go, I take a carer with me and stay for 3 months.
Sleep and pain are most draining, but I've been given a new lease of life by
being put on morphine. The difference it makes is amazing, i'm taking it for
2 years now, I may not be any better according to the fam. and friends, but
i certainly feel it.
I'm sorry, didn't mean to go on so much, but i'm not erasing it. I wish you
all the best with your coping, love to you, Maria
"cheryl blount" <csugar49@webtv.net> wrote in message
news:8251-41B596B5-277@storefull-3178.bay.webtv.net...
> Hi ,
> How is all.....Iam new to this and also to webtv. So I have got lot's to
> learn. I also have lupus since 1979 and all I can say is that I hurt
> right now and can't sleep. It is 6:32 a.m. Boy I wish I could just
> sleep and be at peace. Iam a care giver of two now and with myself
> three. The best thing to have happen for me is a grandbaby born
> 11-2-2004. To my only son. People Iam just so tired of being sick and
> useless at times. It is like my family just don't understand what Iam
> going through, an that hurt's. Each year is a blessing and joy just to
> wake up each day knowing that Iam still hear. Ive got a birthday this
> month the 23 an that in itself is great because I clould not have been
> hear to make it this far,.
> Well I just wanted to say love to all and I hope to be able to join in
> the group
> Cheryl
>
| |
|
| Hi Cheryl,
Welcome to the group. This is the place to be, if you are looking for
friends. We all understand how hard it can be just to get through the day.
Talk to us anytime.
BJ-Sk. Canada
"cheryl blount" <csugar49@webtv.net> wrote in message
news:8251-41B596B5-277@storefull-3178.bay.webtv.net...
> Hi ,
> How is all.....Iam new to this and also to webtv. So I have got lot's to
> learn. I also have lupus since 1979 and all I can say is that I hurt
> right now and can't sleep. It is 6:32 a.m. Boy I wish I could just
> sleep and be at peace. Iam a care giver of two now and with myself
> three. The best thing to have happen for me is a grandbaby born
> 11-2-2004. To my only son. People Iam just so tired of being sick and
> useless at times. It is like my family just don't understand what Iam
> going through, an that hurt's. Each year is a blessing and joy just to
> wake up each day knowing that Iam still hear. Ive got a birthday this
> month the 23 an that in itself is great because I clould not have been
> hear to make it this far,.
> Well I just wanted to say love to all and I hope to be able to join in
> the group
> Cheryl
>
| |
|
| Hi Cheryl,
You have hit treasure with this group. Most of the folks who post here are
so loving and supportive. Also it seems that whatever symptom you have,
someone here probably has it, too.
It's a bummer to be thinking about your health all the time, isn't it? I
try to get away... usually cyberspace is as far away as I get!
I live in a dark house with the shades drawn. Now and again I peek out at
the parade of life. <sigh> hence my nickname of Boo. But I do like to give
encouragement, so welcome here to this little gold mine of a group.
(((((((((Hugs)))))))))))
Boo!
(did I scare ya?)
"cheryl blount" <csugar49@webtv.net> wrote in message
news:8251-41B596B5-277@storefull-3178.bay.webtv.net...
> Hi ,
> How is all.....Iam new to this and also to webtv. So I have got lot's to
> learn. I also have lupus since 1979 and all I can say is that I hurt
> right now and can't sleep. It is 6:32 a.m. Boy I wish I could just
> sleep and be at peace. Iam a care giver of two now and with myself
> three. The best thing to have happen for me is a grandbaby born
> 11-2-2004. To my only son. People Iam just so tired of being sick and
> useless at times. It is like my family just don't understand what Iam
> going through, an that hurt's. Each year is a blessing and joy just to
> wake up each day knowing that Iam still hear. Ive got a birthday this
> month the 23 an that in itself is great because I clould not have been
> hear to make it this far,.
> Well I just wanted to say love to all and I hope to be able to join in
> the group
> Cheryl
>
| |
|
| How's it going Cheryl?
Had of posted sooner but I was back in the medical gauntlet of things with a
weekend stay in the cardiac ward. Now i am trying to get me a nebulizer so
i do not have to run across town for a breathing treatment. My lungs are
doing their thing and it is amazing how bad they do not like me after I eat
something. I ate a sub sandwich last night and my stomach crunched down on
my lungs and said, "Okay baby, that's enough air for you!"
Okay, so maybe it was not quite like that but where my health trails off, my
imagination has picked up.
How do you like your new webtv? I am sending you a CC of this incase you
have trouble getting back to the newsgroup. I have no idea how about's you
get to the usenet groups via webtv so you are one up on me. All I know is
via the MS Outlook.
Is there a website?
ANd happy belated birthday and may there be many more to follow. We won't
count the numbers; just the memories, okay?
I am trying to get me a nebulizer now because I do not feel like sleeping
like the elephant man tonight. Also, I have grown quite fond of breathing.
All someone has to do is teach me how to use one of them suckers but wanna
know something, I have a very good idea!
Breathe in - Breathe out! Wax on.. Wax off!
Happy Blessed Holidays!
Always,
...· ´¨¨)) -:¦:-
¸.·´ .·´¨¨))
((¸¸.·´ ..·´ cloud -:¦:-
-:¦:- ((¸¸.·´*
> Hi ,
> How is all.....Iam new to this and also to webtv. So I have got lot's to
> learn. I also have lupus since 1979 and all I can say is that I hurt
> right now and can't sleep. It is 6:32 a.m. Boy I wish I could just
> sleep and be at peace. Iam a care giver of two now and with myself
> three. The best thing to have happen for me is a grandbaby born
> 11-2-2004. To my only son. People Iam just so tired of being sick and
> useless at times. It is like my family just don't understand what Iam
> going through, an that hurt's. Each year is a blessing and joy just to
> wake up each day knowing that Iam still hear. Ive got a birthday this
> month the 23 an that in itself is great because I clould not have been
> hear to make it this far,.
> Well I just wanted to say love to all and I hope to be able to join in
> the group
> Cheryl
>
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