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Home > Archive > Lupus Support > December 2004 > Need the electronic shoulder to lean on...
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Need the electronic shoulder to lean on...
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| Daniel Antonson 2004-12-16, 9:24 am |
| Hi BJ, and Wes, and Everyone Else,
First, my apologies for not having written in awhile, but again I need the
electronic shoulder to lean on...
Kelley has been struggling in her ongoing battle with lupus. She contracted
pneumonia again six weeks ago which her doctors have been treating with the
strongest oral antibiotics available. She has also developed nine more
spots on her legs and those already on face and arms are flaring again.
This all started when my parents gave us a hard time regarding how we were
raising our daughter, Kelsey - who will be 4 on 23Jan05. Mom and Dad use my
sister's kids as a measuring stick, but very selectively. My sister and
brother-in-law drink like fish just as my parents use to, and I witnessed
first-hand their drinking and driving in May05. A couple of weeks ago, I
also learned that while Kelsey stayed with them from Dec03-May04 (because
Kelley suffered a stroke, kidney & bowel shutdown and pneumonia), my mom
directed my sister to have an Autism test run on Kelsey because she had
speech issues. We are addressing Kelsey's speech issues with ChildFind's
help. The conflict got so bad after we brought Kelsey home in June04, that
this past weekend I had to sever our relationship with my parents and my
sister's family because the stress was causing unending lupus flares for
Kelley. Kelley and I are both very nervous as she nearly died on 20Dec03
from the aforementioned issues coupled with the fact that her health began
to decline again when the weather started turning cold.
Sorry to rant so much, Daniel
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| RhondaM 2004-12-16, 9:24 am |
| OH my I am so sorry you are having to deal with this. sounds like you have a
"Full Plate" . I am sure you are doing everything for your wife that you can
do.. You are a good supportive husband to her keep it up. Now if I can put
my two cents in on the Grandparents and sister..I would say that sounds like
they have over stepped their bounds on that one. That's not what you need
right now. I have a son who is ADHD and he is 8 and he did have speech
problems but that doesn't sound like autism. Has her hearing been checked? I
know my sons hearing went unnoticed until he was 4. From that he was behind
in school and his speaking was off too. He was never thought of Autistic. On
top of that he has ADHD, and a learning disability that he is handling quite
well. Do not let them bully you into thinking that. Talk to your family
doctor and go from there, that is what I did. I had a hard time with my
family criticizing me and I still do, but God gives us parents instinct and
you should go by your gut feeling on that one. Take care and keep us
informed ok?
I will say a prayer for you, Kelly and family.
RhondaM
"Daniel Antonson" <AntonsonDJ@comcast.net> wrote in message
news:OtmdnaRJnM2aYSncRVn-ig@comcast.com...
> Hi BJ, and Wes, and Everyone Else,
>
> First, my apologies for not having written in awhile, but again I need the
> electronic shoulder to lean on...
>
> Kelley has been struggling in her ongoing battle with lupus. She
> contracted
> pneumonia again six weeks ago which her doctors have been treating with
> the
> strongest oral antibiotics available. She has also developed nine more
> spots on her legs and those already on face and arms are flaring again.
>
> This all started when my parents gave us a hard time regarding how we were
> raising our daughter, Kelsey - who will be 4 on 23Jan05. Mom and Dad use
> my
> sister's kids as a measuring stick, but very selectively. My sister and
> brother-in-law drink like fish just as my parents use to, and I witnessed
> first-hand their drinking and driving in May05. A couple of weeks ago, I
> also learned that while Kelsey stayed with them from Dec03-May04 (because
> Kelley suffered a stroke, kidney & bowel shutdown and pneumonia), my mom
> directed my sister to have an Autism test run on Kelsey because she had
> speech issues. We are addressing Kelsey's speech issues with ChildFind's
> help. The conflict got so bad after we brought Kelsey home in June04,
> that
> this past weekend I had to sever our relationship with my parents and my
> sister's family because the stress was causing unending lupus flares for
> Kelley. Kelley and I are both very nervous as she nearly died on 20Dec03
> from the aforementioned issues coupled with the fact that her health began
> to decline again when the weather started turning cold.
>
> Sorry to rant so much, Daniel
>
>
>
>
| |
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| Daniel Antonson wrote:
> We are addressing Kelsey's speech issues with ChildFind's
> help. The conflict got so bad after we brought Kelsey home in June04, that
> this past weekend I had to sever our relationship with my parents and my
> sister's family because the stress was causing unending lupus flares for
> Kelley. Kelley and I are both very nervous as she nearly died on 20Dec03
> from the aforementioned issues coupled with the fact that her health began
> to decline again when the weather started turning cold.
Sounds like a break is a good idea, while you get your daughter's troubles
sorted out and Kelley recovers.
You take care of you too. Christmas time can be a very stressful time for many.
Blessings to you and your family,
J
| |
| Muirenn 2004-12-16, 9:24 am |
|
"Daniel Antonson" <AntonsonDJ@comcast.net> wrote in message
news:OtmdnaRJnM2aYSncRVn-ig@comcast.com...
> Hi BJ, and Wes, and Everyone Else,
>
> First, my apologies for not having written in awhile, but again I need the
> electronic shoulder to lean on...
>
>
Hi,
I don't post much but wanted you to know I will say a prayer for your family
and one for you. I have lupus and I cant tell you how much a supportive
husband makes things easier. I have 3 kids one with ADHD and Autism. Life
is not easy but we manage.
I wish you well and pray for you and your family.
God Bless
MUIRENN
| |
|
| Hi Daniel,
I am so glad to hear from you. I am sorry that your situation is so bad.
Family issues are difficult enough on their own, let alone when someone is
as ill as Kelley. I don't really know what to say. Severing ties with your
family sounds like the best thing right now, although that in itself is
stressful for you and Kelley. I hope the antibiotics knock the pneumonia out
as quickly as possible. Please keep us posted. We are here whenever you need
us.
Fond Regards.
BJ-Sk. Canada
"Daniel Antonson" <AntonsonDJ@comcast.net> wrote in message
news:OtmdnaRJnM2aYSncRVn-ig@comcast.com...
> Hi BJ, and Wes, and Everyone Else,
>
> First, my apologies for not having written in awhile, but again I need the
> electronic shoulder to lean on...
>
> Kelley has been struggling in her ongoing battle with lupus. She
contracted
> pneumonia again six weeks ago which her doctors have been treating with
the
> strongest oral antibiotics available. She has also developed nine more
> spots on her legs and those already on face and arms are flaring again.
>
> This all started when my parents gave us a hard time regarding how we were
> raising our daughter, Kelsey - who will be 4 on 23Jan05. Mom and Dad use
my
> sister's kids as a measuring stick, but very selectively. My sister and
> brother-in-law drink like fish just as my parents use to, and I witnessed
> first-hand their drinking and driving in May05. A couple of weeks ago, I
> also learned that while Kelsey stayed with them from Dec03-May04 (because
> Kelley suffered a stroke, kidney & bowel shutdown and pneumonia), my mom
> directed my sister to have an Autism test run on Kelsey because she had
> speech issues. We are addressing Kelsey's speech issues with ChildFind's
> help. The conflict got so bad after we brought Kelsey home in June04,
that
> this past weekend I had to sever our relationship with my parents and my
> sister's family because the stress was causing unending lupus flares for
> Kelley. Kelley and I are both very nervous as she nearly died on 20Dec03
> from the aforementioned issues coupled with the fact that her health began
> to decline again when the weather started turning cold.
>
> Sorry to rant so much, Daniel
>
>
>
>
| |
| Tim Paige 2004-12-16, 9:24 am |
| Hello Daniel,
We wish you, Kelly and Kelsey the best.
You and Kelly were forced with a tough decision but you must do what is
best for all. Familys are great but sometimes.... I know they feel
they are acting in everyone's best interest and, hopefully, some day,
they will come to understand your situation and your decision.
I am new to this news group, and Lupus kind of; my wife, Maggie, was
diagnosed several years ago.
We have been fortunate the symptoms have been somewhat mild over the
past several years but recently she was diagnosed with mild neuropothy.
Prednizone has helped greatly and she is nearly back to normal, only
minimal numbness, lightheadedness, complete fatigue....
Thank you for relaying your story.
We will also keep you folks in our prayers.
Tim
Daniel Antonson wrote:
> Hi BJ, and Wes, and Everyone Else,
>
> First, my apologies for not having written in awhile, but again I need the
> electronic shoulder to lean on...
>
> Kelley has been struggling in her ongoing battle with lupus. She contracted
> pneumonia again six weeks ago which her doctors have been treating with the
> strongest oral antibiotics available. She has also developed nine more
> spots on her legs and those already on face and arms are flaring again.
>
> This all started when my parents gave us a hard time regarding how we were
> raising our daughter, Kelsey - who will be 4 on 23Jan05. Mom and Dad use my
> sister's kids as a measuring stick, but very selectively. My sister and
> brother-in-law drink like fish just as my parents use to, and I witnessed
> first-hand their drinking and driving in May05. A couple of weeks ago, I
> also learned that while Kelsey stayed with them from Dec03-May04 (because
> Kelley suffered a stroke, kidney & bowel shutdown and pneumonia), my mom
> directed my sister to have an Autism test run on Kelsey because she had
> speech issues. We are addressing Kelsey's speech issues with ChildFind's
> help. The conflict got so bad after we brought Kelsey home in June04, that
> this past weekend I had to sever our relationship with my parents and my
> sister's family because the stress was causing unending lupus flares for
> Kelley. Kelley and I are both very nervous as she nearly died on 20Dec03
> from the aforementioned issues coupled with the fact that her health began
> to decline again when the weather started turning cold.
>
> Sorry to rant so much, Daniel
>
>
>
>
| |
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| Daniel
I wish you and yours the comfort and joy of the season we should all
experience and better healthier days ahead. I feel terrible for all you
3 have had to endure. Families as we all know can be a source of
amazing love and support and then at times a source of added stress and
hardship.
Some people who have never been truly ill outside of the flu and such
can just not get their brains wrapped around the kind of challenges you
and your family face daily.
You have all of my best wishes and prayers for Kelley's speedy recovery
pheumonia and improvement in her daily pain and challenges. Stick
together, your little family - for they are the source of true and pure
joy. Lots of love, and prayers for you three.
Warmly,
Nic (nicole c)
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| PS
I so support you doing what is best for your immediate family by
stepping back from other family. My family experienced a similiar
situation with our family last year and in the long run it was a good
thing. We now enjoy full support from our extended family and I wish
you the same resolution.
I was as a side note, so moved, at my husband's position with our
family when we were not offered appropriate loving support and concern.
My hero
Nic (nicole c)
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