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Home > Archive > Lupus Support > November 2004 > Research
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| Hi. I'm new to this forum and... well, google groups in general.
Essentially what I'm posting about is a scholarship I'm going for.
It's a research project for the next "epidemic." Many women in my area
have been diagnosed with lupus but doctors and other health officials
don't give the disease much credence. My job is to essentially draw up
a hypothesis about why lupus is occuring more and more often in women,
why it's so hard to diagnose, and what can be done to prevent it. Any
information anyone can give me would be helpful from the level of
pollution that people have been exposed to, to an era of birth, to
what other diagnoses have been given. A list of symptoms and
socio-psycho effects would also be helpful. My mother was diagnosed
with SLE several years ago but each doctor she sees provides a new
diagnosis so this particular case is very close to my heart. Any help
that can be given would be appreciated. Thanks.
~E
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| herbwormwood 2004-11-03, 4:07 am |
| have you looked in medline?
http://omni.ac.uk/medline/
On Wed, 3 Nov 2004 01:24:48 +0000, Em wrote
(in article <72c5ac1b.0411021724.62dcba5a@posting.google.com> ):
[vbcol=seagreen]
> Hi. I'm new to this forum and... well, google groups in general.
> Essentially what I'm posting about is a scholarship I'm going for.
> It's a research project for the next "epidemic." Many women in my area
> have been diagnosed with lupus but doctors and other health officials
> don't give the disease much credence. My job is to essentially draw up
> a hypothesis about why lupus is occuring more and more often in women,
> why it's so hard to diagnose, and what can be done to prevent it. Any
> information anyone can give me would be helpful from the level of
> pollution that people have been exposed to, to an era of birth, to
> what other diagnoses have been given. A list of symptoms and
> socio-psycho effects would also be helpful. My mother was diagnosed
> with SLE several years ago but each doctor she sees provides a new
> diagnosis so this particular case is very close to my heart. Any help
> that can be given would be appreciated. Thanks.
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| IMO, you need to write up a survey. create a webpage for it (assuming you
have that capability) and provide the URL here and in other fora. it isn't
"scientific" but then neither are the random replies you might get with only
bits and pieces of the puzzle you are trying to construct. demographics
that are important: age, race, gender, societal standing. There is probably
under-diagnosis for people at or near poverty level due to the fact that
this group doesn't have the "luxury" of medical care that the average
citizen does. How you ask that one diplomatically, I can't say for sure.
something to realize - diagnosis increases may in great part be due to
better recognition of the disease due to better testing methods. Years ago,
diagnosis was usually made in severe disease only when the body began to
malfunction on a very destructive level. That's just part of the equation
but needs to be taken into consideration in your research. Your work would
have to account for a certain percentage of this before drawing conclusions
about other factors.
--
---
KCat
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"Em" <notquitecraziyet@aol.com> wrote in message
news:72c5ac1b.0411021724.62dcba5a@posting.google.com...
> Hi. I'm new to this forum and... well, google groups in general.
> Essentially what I'm posting about is a scholarship I'm going for.
> It's a research project for the next "epidemic." Many women in my area
> have been diagnosed with lupus but doctors and other health officials
> don't give the disease much credence. My job is to essentially draw up
> a hypothesis about why lupus is occuring more and more often in women,
> why it's so hard to diagnose, and what can be done to prevent it. Any
> information anyone can give me would be helpful from the level of
> pollution that people have been exposed to, to an era of birth, to
> what other diagnoses have been given. A list of symptoms and
> socio-psycho effects would also be helpful. My mother was diagnosed
> with SLE several years ago but each doctor she sees provides a new
> diagnosis so this particular case is very close to my heart. Any help
> that can be given would be appreciated. Thanks.
> ~E
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