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Home > Archive > Lupus Support > October 2004 > Lupus panniculitis/profundus
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Lupus panniculitis/profundus
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| saskie 2004-10-26, 7:28 pm |
| Just home from the Dr. ; I have a lot of subcutaneous wasting, on my face,
top of both arms; this has been gradual and all Dr.s have said it is nerve
involvement of some sort?? Now I find out it is lupus profundus ; at least
now I know what it is and there is treatment; however what has been lost
will never recover. Hopefully it will spare the rest of my face so I do not
look too freakish.
What a nightmare it is to get a diagnosis rather than an opinion; as in ,
hormones, age, hysteria blah , blah. Also have the antiphosphoid deal going
on and will start Coumadin tomorrow.
My husband has Non Hodgkin's Lymphoma so I have been sort of ignoring my
symptoms until I developed small flat lumps in the subcutaneous area that
are very painful. Hubby offered me some of his chemo pills but I took a
pass.
Saskie/Carol
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| Hi Carol,
I looked for some info on panniculitis, but could not find much. I am glad
to know that there is treatment for it. Gad, it is so hard when our
appearance is changed too. I know I struggle with that part a lot. I think
you said you were going to see Dr.Pollack. How did you like him/her ? Why is
it that we seem to have to fight to get a diagnosis of lupus? This
hormones/age/hysteria stuff is heard all too commonly. It is so much easier
once we know what we are facing and get treatment. I hope things will be
better for you now.
BJ-Sk. Canada
"saskie" <saskiehometown64@hotmail.com> wrote in message
news:10nt42o57hc1d49@corp.supernews.com...
> Just home from the Dr. ; I have a lot of subcutaneous wasting, on my face,
> top of both arms; this has been gradual and all Dr.s have said it is nerve
> involvement of some sort?? Now I find out it is lupus profundus ; at
least
> now I know what it is and there is treatment; however what has been lost
> will never recover. Hopefully it will spare the rest of my face so I do
not
> look too freakish.
> What a nightmare it is to get a diagnosis rather than an opinion; as in ,
> hormones, age, hysteria blah , blah. Also have the antiphosphoid deal
going
> on and will start Coumadin tomorrow.
> My husband has Non Hodgkin's Lymphoma so I have been sort of ignoring my
> symptoms until I developed small flat lumps in the subcutaneous area that
> are very painful. Hubby offered me some of his chemo pills but I took a
> pass.
> Saskie/Carol
>
>
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