| Author |
please post with first name and inital
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| Susan Fornell 2004-10-24, 11:07 am |
| Hi
I am new to the list however have had systemic lupus for for 38 yrs with a
16 yr complete remission.
However, it did come back about 19 yrs ago.
? for the group - has anyone had retinal toxicity from hydroxychloroquine??
Thanks......Sue F
| |
| Boo Radley 2004-10-24, 7:12 pm |
| I have been using plaquenil for 15 years, (400mg per day) and have not had
any toxicity from it. My ophthalmologist says he rarely sees it.
HTH
Boo R
"Susan Fornell" <Shilohnme@earthlink.net> wrote in message
news:EHPed.337$kM.7@newsread3.news.pas.earthlink.net...
> Hi
>
> I am new to the list however have had systemic lupus for for 38 yrs with a
> 16 yr complete remission.
> However, it did come back about 19 yrs ago.
>
> ? for the group - has anyone had retinal toxicity from
> hydroxychloroquine??
>
> Thanks......Sue F
>
| |
|
| Sue,
Newsgroups aren't like "lists".
You post yourself.
Here is how to "munge your email" and change settings in your Outlook,
This helps cut down on spam. If someone asks to email you, you can be on
KC's private list or type your real email in reply to someone who asks:
for example joan@privacy.net should be typed joan at privacy dot net (fix
the obvious) or joandog@dogprivacydog.net (take the dogs out).
Instructions start here:
In Outlook Express 6.
Click on *tools* at the top.
Down to *accounts* and click.
In the box that opens, click on *news* tab at the top.
Now click on the *properties* tab at the right.
Leave the top box alone (this needs to be the server you get your groups
from for real)
Where it says Name: type in whatever you want people to see as your name
(name or screen name).
You will also see where it says Email :
type here whatever you want people to see as your address.
Examples: The part before the @ can be anything you wish.
noname@forspammers.net
noOne@spammers.net
NoName@spammers.net
nospam@forspammers.net
sunny @privacy.net
jellybelly@anon.anon
john4@anon.invalid
heart4u@anon.inv
mypuppy@inv.invalid
nancy@anon.anon
The part after @ should NOT be a valid website unless you own the website
or have permission from them.
Do not change the tab at the top that says server .
This is just seen in your computer to get the newsgroups to pull in .
Click at the bottom *apply* and then "ok" to close the box.
Go ahead and close out all boxes that are still open.
As long as you clicked the "apply" button before "ok", your changes are
held.
If you later upgrade your software (or reinstall), you should recheck to
make sure you are still anonymous - ie follow the instructions above.
So save these instructions.
| |
|
| Hi ya Sue,
Welcome to alt.support.lupus
I hope that you understood my previous message.
I was trying to help you set up your newsreader so your full name didn't show.
Please come back when you can.
Hugs
J
| |
|
| Hi Sue,
I must have missed your post somehow. Sorry that I haven't welcomed you
before now. I can't answer your question, but someone else may be able to
help. Talk to us anytime.
BJ-Sk. Canada
"Susan Fornell" <Shilohnme@earthlink.net> wrote in message
news:EHPed.337$kM.7@newsread3.news.pas.earthlink.net...
> Hi
>
> I am new to the list however have had systemic lupus for for 38 yrs with a
> 16 yr complete remission.
> However, it did come back about 19 yrs ago.
>
> ? for the group - has anyone had retinal toxicity from
hydroxychloroquine??
>
> Thanks......Sue F
>
>
| |
| maria Pinder 2004-10-28, 11:09 am |
| Yes I do. It started after only 1/2 year of taking the tablets.
Maria
"Susan Fornell" <Shilohnme@earthlink.net> wrote in message
news:EHPed.337$kM.7@newsread3.news.pas.earthlink.net...
> Hi
>
> I am new to the list however have had systemic lupus for for 38 yrs with a
> 16 yr complete remission.
> However, it did come back about 19 yrs ago.
>
> ? for the group - has anyone had retinal toxicity from
hydroxychloroquine??
>
> Thanks......Sue F
>
>
| |
|
| I've always had problems with my vision,but worse since starting on
hydroxychloroquine, been on it since January; now having 3 monthly eye
checks. apparently my left eyeball is changing shape, rugby ball instead of
football;optician unsure if its meds or something else, anyone else odd like
me?
Deb
x
"Susan Fornell" <Shilohnme@earthlink.net> wrote in message
news:EHPed.337$kM.7@newsread3.news.pas.earthlink.net...
> Hi
>
> I am new to the list however have had systemic lupus for for 38 yrs with a
> 16 yr complete remission.
> However, it did come back about 19 yrs ago.
>
> ? for the group - has anyone had retinal toxicity from
hydroxychloroquine??
>
> Thanks......Sue F
>
>
| |
| Shelagh 2004-10-30, 10:10 pm |
| "Deb" <debi.ashton@btopenworld.com> wrote in message
> I've always had problems with my vision,but worse since starting on
> hydroxychloroquine, been on it since January; now having 3 monthly eye
> checks. apparently my left eyeball is changing shape, rugby ball instead
> of
> football;optician unsure if its meds or something else, anyone else odd
> like
> me?
> Deb
Not just like you but ... since beginning chloroquin I have gotten many very
large floaters in both eyes that are actually creating havoc with my
vision.... actually getting in the way of letters on the page of whatever I
am reading! And I have been told that I may have to stop driving if they
continue to worsen... (aaack! I can't imagine not having my freedom!) They
are that big and that many! They have gotten worse over time. I see the
specialist every 9 months (he too is watching them) and he says they are
oddly large and numerous.... I don't think he has seen them before with
chloroquin specifically though..... perhaps it isn't related but I go with
my gut on that... and it says 'yes' <g>....
good luck with your eye problems... I pray it doesn't affect your vision and
that it is reversible!
hugs from Shelagh
| |
|
| Shelagh wrote:
> "Deb" <debi.ashton@btopenworld.com> wrote in message
>
>
> Not just like you but ... since beginning chloroquin I have gotten many very
> large floaters in both eyes that are actually creating havoc with my
> vision.... actually getting in the way of letters on the page of whatever I
> am reading! And I have been told that I may have to stop driving if they
> continue to worsen... (aaack! I can't imagine not having my freedom!) They
> are that big and that many! They have gotten worse over time. I see the
> specialist every 9 months (he too is watching them) and he says they are
> oddly large and numerous.... I don't think he has seen them before with
> chloroquin specifically though..... perhaps it isn't related but I go with
> my gut on that... and it says 'yes' <g>....
> good luck with your eye problems... I pray it doesn't affect your vision and
> that it is reversible!
> hugs from Shelagh
>
>
I had terrible floaters before hydroxychloroquine and they don't seem to
have gotten worse. I have an appointment with my opthamologist on Friday
and we'll see how it's going.
Nell
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