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Home > Archive > Lupus Support > October 2004 > re - Grace - lengthy
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re - Grace - lengthy
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| Shelagh 2004-10-16, 7:11 pm |
| I spoke to Grace on the phone today and she sounded very cheerful and even
upbeat.We talked about her hospital stay and all she went through, including
the 2 weeks that she didn't remember (but was filled in by various medical
pros as well as her MOTH) due to being on a ventilator and being rendered
unconcious for her own comfort.
Apparently she suffered a small stroke during that time (which she has since
discovered has affected her right eye's field of vision peripherally).
Initially she was admitted for pneumonia and because she was not receiving
enough oxygen into her system they decided a ventilator was a must (though
she remembers none of this) and when she awoke it was to discover a small
scar on her thigh where they had done a skin biopsy that she doesn't recall,
in order to determine why she 'turned red and rashy' while on antibiotics
during the 2 weeks of ICU as well as a few new 'allergies' written on her
hospital bracelet.
She feels very humbled by the whole experience after hearing from many
different nurses who cared for her tell her about conversations she had with
them and nights they spent with her, calming her as she worried about her
small son as well as all the procedures she underwent and all of the doctors
and other medical professionals who worked on her and cared for her, and
still she has no memory of any of it.
She had the ventilator for the most part through a trachea because when they
attempted to remove it to see if she could breathe on her own, she was
unsuccessful in getting enough oxygen and her throat was too swollen to put
the tube back in so instead a tracheostomy was performed. (So her voice does
sound a bit different now while her larynx is healing.)
Her husband has been a huge support to her and fills in her 'gaps of memory
loss' when he can as well as giving her the night feedings and helping with
the chest physio as well as he has given Grace injections when necessary; an
engineer by profession, he is also learning a lot of skills that would help
if he decided to go into nursing lol!
All in all, even though she is still having chest physio and parenteral
feedings through the night (apparently a lot of calories are expended during
her coughing to clear her lungs)
Grace did say that her doctors are happy with her rate of recovery and also
she has put on several pounds since coming home so now weighs in at 85.5
pounds which is about a 6% increase in body weight and to top it all off,
she is sleeping long hours at night.
Of course, needless to say, Grace is frustrated with the amount of time the
recuperation is taking and she would like to be able to look after her son
on her own along with all the rest that goes with being a wife and mother.
But she is not seeing the oncologist anymore and is now seeing a lung
specialist, which is certainly seems to be a step in the right direction as
well.
Grace sends her greetings to all of you ASL members and was thankful to hear
about our prayers being sent out for her.
So may I suggest that we continue to pray for Grace, and her family, with
hopes that all continues to go very well
and some extra prayers for Grace, that she has a healthy and happy future
ahead of her!
Hugs from Shelagh
| |
| Sherry 2004-10-16, 7:11 pm |
| Thank you for the update on Grace. She and her family remain in my prayers.
Hugs,
Sherry
"Shelagh" <tiderington@shaw.ca> wrote in message
news:dzgcd.734535$M95.666601@pd7tw1no...
> I spoke to Grace on the phone today and she sounded very cheerful and even
> upbeat.We talked about her hospital stay and all she went through,
including
> the 2 weeks that she didn't remember (but was filled in by various medical
> pros as well as her MOTH) due to being on a ventilator and being rendered
> unconcious for her own comfort.
> Apparently she suffered a small stroke during that time (which she has
since
> discovered has affected her right eye's field of vision peripherally).
> Initially she was admitted for pneumonia and because she was not receiving
> enough oxygen into her system they decided a ventilator was a must (though
> she remembers none of this) and when she awoke it was to discover a small
> scar on her thigh where they had done a skin biopsy that she doesn't
recall,
> in order to determine why she 'turned red and rashy' while on antibiotics
> during the 2 weeks of ICU as well as a few new 'allergies' written on her
> hospital bracelet.
> She feels very humbled by the whole experience after hearing from many
> different nurses who cared for her tell her about conversations she had
with
> them and nights they spent with her, calming her as she worried about her
> small son as well as all the procedures she underwent and all of the
doctors
> and other medical professionals who worked on her and cared for her, and
> still she has no memory of any of it.
> She had the ventilator for the most part through a trachea because when
they
> attempted to remove it to see if she could breathe on her own, she was
> unsuccessful in getting enough oxygen and her throat was too swollen to
put
> the tube back in so instead a tracheostomy was performed. (So her voice
does
> sound a bit different now while her larynx is healing.)
> Her husband has been a huge support to her and fills in her 'gaps of
memory
> loss' when he can as well as giving her the night feedings and helping
with
> the chest physio as well as he has given Grace injections when necessary;
an
> engineer by profession, he is also learning a lot of skills that would
help
> if he decided to go into nursing lol!
> All in all, even though she is still having chest physio and parenteral
> feedings through the night (apparently a lot of calories are expended
during
> her coughing to clear her lungs)
> Grace did say that her doctors are happy with her rate of recovery and
also
> she has put on several pounds since coming home so now weighs in at 85.5
> pounds which is about a 6% increase in body weight and to top it all off,
> she is sleeping long hours at night.
> Of course, needless to say, Grace is frustrated with the amount of time
the
> recuperation is taking and she would like to be able to look after her
son
> on her own along with all the rest that goes with being a wife and mother.
> But she is not seeing the oncologist anymore and is now seeing a lung
> specialist, which is certainly seems to be a step in the right direction
as
> well.
> Grace sends her greetings to all of you ASL members and was thankful to
hear
> about our prayers being sent out for her.
> So may I suggest that we continue to pray for Grace, and her family, with
> hopes that all continues to go very well
> and some extra prayers for Grace, that she has a healthy and happy future
> ahead of her!
> Hugs from Shelagh
>
>
| |
| Beverley 2004-10-17, 11:08 am |
| Thanks, Shelagh!!
Bev
"Shelagh" <tiderington@shaw.ca> wrote in message
news:dzgcd.734535$M95.666601@pd7tw1no...
> I spoke to Grace on the phone today and she sounded very cheerful and even
> upbeat.We talked about her hospital stay and all she went through,
including
> the 2 weeks that she didn't remember (but was filled in by various medical
> pros as well as her MOTH) due to being on a ventilator and being rendered
> unconcious for her own comfort.
> Apparently she suffered a small stroke during that time (which she has
since
> discovered has affected her right eye's field of vision peripherally).
> Initially she was admitted for pneumonia and because she was not receiving
> enough oxygen into her system they decided a ventilator was a must (though
> she remembers none of this) and when she awoke it was to discover a small
> scar on her thigh where they had done a skin biopsy that she doesn't
recall,
> in order to determine why she 'turned red and rashy' while on antibiotics
> during the 2 weeks of ICU as well as a few new 'allergies' written on her
> hospital bracelet.
> She feels very humbled by the whole experience after hearing from many
> different nurses who cared for her tell her about conversations she had
with
> them and nights they spent with her, calming her as she worried about her
> small son as well as all the procedures she underwent and all of the
doctors
> and other medical professionals who worked on her and cared for her, and
> still she has no memory of any of it.
> She had the ventilator for the most part through a trachea because when
they
> attempted to remove it to see if she could breathe on her own, she was
> unsuccessful in getting enough oxygen and her throat was too swollen to
put
> the tube back in so instead a tracheostomy was performed. (So her voice
does
> sound a bit different now while her larynx is healing.)
> Her husband has been a huge support to her and fills in her 'gaps of
memory
> loss' when he can as well as giving her the night feedings and helping
with
> the chest physio as well as he has given Grace injections when necessary;
an
> engineer by profession, he is also learning a lot of skills that would
help
> if he decided to go into nursing lol!
> All in all, even though she is still having chest physio and parenteral
> feedings through the night (apparently a lot of calories are expended
during
> her coughing to clear her lungs)
> Grace did say that her doctors are happy with her rate of recovery and
also
> she has put on several pounds since coming home so now weighs in at 85.5
> pounds which is about a 6% increase in body weight and to top it all off,
> she is sleeping long hours at night.
> Of course, needless to say, Grace is frustrated with the amount of time
the
> recuperation is taking and she would like to be able to look after her
son
> on her own along with all the rest that goes with being a wife and mother.
> But she is not seeing the oncologist anymore and is now seeing a lung
> specialist, which is certainly seems to be a step in the right direction
as
> well.
> Grace sends her greetings to all of you ASL members and was thankful to
hear
> about our prayers being sent out for her.
> So may I suggest that we continue to pray for Grace, and her family, with
> hopes that all continues to go very well
> and some extra prayers for Grace, that she has a healthy and happy future
> ahead of her!
> Hugs from Shelagh
>
>
| |
|
| Thank you Shelagh. Tell Grace that we miss her and look forward to having
her well enough to post again. She is so courageous.
BJ-Sk. Canada
"Shelagh" <tiderington@shaw.ca> wrote in message
news:dzgcd.734535$M95.666601@pd7tw1no...
> I spoke to Grace on the phone today and she sounded very cheerful and even
> upbeat.We talked about her hospital stay and all she went through,
including
> the 2 weeks that she didn't remember (but was filled in by various medical
> pros as well as her MOTH) due to being on a ventilator and being rendered
> unconcious for her own comfort.
> Apparently she suffered a small stroke during that time (which she has
since
> discovered has affected her right eye's field of vision peripherally).
> Initially she was admitted for pneumonia and because she was not receiving
> enough oxygen into her system they decided a ventilator was a must (though
> she remembers none of this) and when she awoke it was to discover a small
> scar on her thigh where they had done a skin biopsy that she doesn't
recall,
> in order to determine why she 'turned red and rashy' while on antibiotics
> during the 2 weeks of ICU as well as a few new 'allergies' written on her
> hospital bracelet.
> She feels very humbled by the whole experience after hearing from many
> different nurses who cared for her tell her about conversations she had
with
> them and nights they spent with her, calming her as she worried about her
> small son as well as all the procedures she underwent and all of the
doctors
> and other medical professionals who worked on her and cared for her, and
> still she has no memory of any of it.
> She had the ventilator for the most part through a trachea because when
they
> attempted to remove it to see if she could breathe on her own, she was
> unsuccessful in getting enough oxygen and her throat was too swollen to
put
> the tube back in so instead a tracheostomy was performed. (So her voice
does
> sound a bit different now while her larynx is healing.)
> Her husband has been a huge support to her and fills in her 'gaps of
memory
> loss' when he can as well as giving her the night feedings and helping
with
> the chest physio as well as he has given Grace injections when necessary;
an
> engineer by profession, he is also learning a lot of skills that would
help
> if he decided to go into nursing lol!
> All in all, even though she is still having chest physio and parenteral
> feedings through the night (apparently a lot of calories are expended
during
> her coughing to clear her lungs)
> Grace did say that her doctors are happy with her rate of recovery and
also
> she has put on several pounds since coming home so now weighs in at 85.5
> pounds which is about a 6% increase in body weight and to top it all off,
> she is sleeping long hours at night.
> Of course, needless to say, Grace is frustrated with the amount of time
the
> recuperation is taking and she would like to be able to look after her
son
> on her own along with all the rest that goes with being a wife and mother.
> But she is not seeing the oncologist anymore and is now seeing a lung
> specialist, which is certainly seems to be a step in the right direction
as
> well.
> Grace sends her greetings to all of you ASL members and was thankful to
hear
> about our prayers being sent out for her.
> So may I suggest that we continue to pray for Grace, and her family, with
> hopes that all continues to go very well
> and some extra prayers for Grace, that she has a healthy and happy future
> ahead of her!
> Hugs from Shelagh
>
>
| |
| Shelagh 2004-10-17, 7:11 pm |
| "BJ" wrote in message
> Thank you Shelagh. Tell Grace that we miss her and look forward to having
> her well enough to post again. She is so courageous.
> BJ-Sk. Canada
Yes BJ, I did convey that to her and but for not having access to a computer
right now regularly, she would come online herself and greet us all. So she
is definitly doing better and certainly is one strong 'mama'! Don't know
that all or any of us would be as courageous in her shoes.... I for one know
that I wouldn't want to attempt the trying either!!
I will be calling her again soon and hopefully we will see her online
before that.
~Shelagh
| |
|
| Please let Grace know that I will keep her in my prayers...
She has been through so much....
Sending hugs And prayers
Cindy
"Shelagh" <tiderington@shaw.ca> wrote in message
news:dzgcd.734535$M95.666601@pd7tw1no...
>I spoke to Grace on the phone today and she sounded very cheerful and even
>upbeat.We talked about her hospital stay and all she went through,
>including the 2 weeks that she didn't remember (but was filled in by
>various medical pros as well as her MOTH) due to being on a ventilator and
>being rendered unconcious for her own comfort.
> Apparently she suffered a small stroke during that time (which she has
> since discovered has affected her right eye's field of vision
> peripherally).
> Initially she was admitted for pneumonia and because she was not receiving
> enough oxygen into her system they decided a ventilator was a must (though
> she remembers none of this) and when she awoke it was to discover a small
> scar on her thigh where they had done a skin biopsy that she doesn't
> recall, in order to determine why she 'turned red and rashy' while on
> antibiotics during the 2 weeks of ICU as well as a few new 'allergies'
> written on her hospital bracelet.
> She feels very humbled by the whole experience after hearing from many
> different nurses who cared for her tell her about conversations she had
> with them and nights they spent with her, calming her as she worried about
> her small son as well as all the procedures she underwent and all of the
> doctors and other medical professionals who worked on her and cared for
> her, and still she has no memory of any of it.
> She had the ventilator for the most part through a trachea because when
> they attempted to remove it to see if she could breathe on her own, she
> was unsuccessful in getting enough oxygen and her throat was too swollen
> to put the tube back in so instead a tracheostomy was performed. (So her
> voice does sound a bit different now while her larynx is healing.)
> Her husband has been a huge support to her and fills in her 'gaps of
> memory loss' when he can as well as giving her the night feedings and
> helping with the chest physio as well as he has given Grace injections
> when necessary; an engineer by profession, he is also learning a lot of
> skills that would help if he decided to go into nursing lol!
> All in all, even though she is still having chest physio and parenteral
> feedings through the night (apparently a lot of calories are expended
> during her coughing to clear her lungs)
> Grace did say that her doctors are happy with her rate of recovery and
> also she has put on several pounds since coming home so now weighs in at
> 85.5 pounds which is about a 6% increase in body weight and to top it all
> off, she is sleeping long hours at night.
> Of course, needless to say, Grace is frustrated with the amount of time
> the recuperation is taking and she would like to be able to look after
> her son on her own along with all the rest that goes with being a wife and
> mother. But she is not seeing the oncologist anymore and is now seeing a
> lung specialist, which is certainly seems to be a step in the right
> direction as well.
> Grace sends her greetings to all of you ASL members and was thankful to
> hear about our prayers being sent out for her.
> So may I suggest that we continue to pray for Grace, and her family, with
> hopes that all continues to go very well
> and some extra prayers for Grace, that she has a healthy and happy future
> ahead of her!
> Hugs from Shelagh
>
| |
|
|
Thank you Shelagh for letting us know about Grace's situation. Good
thoughts, hugs and prayers to Grace and her family.
Dawn S
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| Dawn wrote:
> Thank you Shelagh for letting us know about Grace's situation.
Seconded,
Hugs to all,
J
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