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Home > Archive > Lupus Support > October 2004 > been lurking
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| freedom1@netscape.ca 2004-10-16, 7:11 pm |
| Hi, my name is Deb and I'm from Ontario,Canada. I posted a few
questions about a year ago. It has been a long and difficult year
since. I am having difficulty getting a firm dx. Since last year I
have had a tentative dx of lupus (from my family dr.),a dx of
psoriatic arthritis (from a rheumy). Monday I am travelling to see a
neurologist.I would like to ask the group if anyone has visual
problems. Sometimes my vision is more blurry than others and when I go
outside I get a problem with depth perception. This also happens if I
walk on carpet with a very busy pattern.
I am finding this group a very reassuring place to visit because at
times, with all the odd symptoms, I wonder if I'm just losing it!
btw I had an Aunt, and I have a sister and cousin with lupus.
Sorry for the lengthy read everyone.
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| Beverley 2004-10-17, 11:08 am |
| I have no idea if vision problems have much to do with lupus. I'm sure
someone else more knowledgeable will answer that for you. I do know I can't
handle strobe lighting. I also have a terrible problem with some patterns of
wall paper and even did as a child. When I was a kid it was fun to watch the
pattern "pull apart" but as an adult it makes me nauseated. But I also deal
with a form of dyslexia so I have no idea. Often I can look for something
but not "see" it but I think that is more of a brain thing than a vision
thing.
Bev
<freedom1@netscape.ca> wrote in message
news:m613n05v822eoom8si7ldo8tus1p0kdlhn@4ax.com...
> Hi, my name is Deb and I'm from Ontario,Canada. I posted a few
> questions about a year ago. It has been a long and difficult year
> since. I am having difficulty getting a firm dx. Since last year I
> have had a tentative dx of lupus (from my family dr.),a dx of
> psoriatic arthritis (from a rheumy). Monday I am travelling to see a
> neurologist.I would like to ask the group if anyone has visual
> problems. Sometimes my vision is more blurry than others and when I go
> outside I get a problem with depth perception. This also happens if I
> walk on carpet with a very busy pattern.
> I am finding this group a very reassuring place to visit because at
> times, with all the odd symptoms, I wonder if I'm just losing it!
> btw I had an Aunt, and I have a sister and cousin with lupus.
> Sorry for the lengthy read everyone.
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freedom1@netscape.ca wrote:
> Hi, my name is Deb and I'm from Ontario,Canada. I posted a few
> questions about a year ago. It has been a long and difficult year
> since. I am having difficulty getting a firm dx. Since last year I
> have had a tentative dx of lupus (from my family dr.),a dx of
> psoriatic arthritis (from a rheumy). Monday I am travelling to see a
> neurologist.I would like to ask the group if anyone has visual
> problems. Sometimes my vision is more blurry than others and when I go
> outside I get a problem with depth perception. This also happens if I
> walk on carpet with a very busy pattern.
> I am finding this group a very reassuring place to visit because at
> times, with all the odd symptoms, I wonder if I'm just losing it!
> btw I had an Aunt, and I have a sister and cousin with lupus.
> Sorry for the lengthy read everyone.
Hi Deb and welcome back.
http://www.ghg.net/schwerpt/ASLFAQ/symptoms.htm
See "eye conditions in Lupus" section.
I'm glad you're also seeing a neurologist just in case there's something
else happening.
Let us know how it's going and how you're doing.
Best,
J
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| Hi Deb,
Sorry, but I missed your post for some reason. Being in diagnosis limbo is
so difficult. I do hope things get straightened out for you soon. I do get
blurred vision and light sensitivity when I am ill. I don't think depth
perception is ever involved though. Let us know what the neurologist has to
say. I hope you will visit us more often, now that you have posted to us.
Good luck with your appt.
BJ-Sk. Canada
<freedom1@netscape.ca> wrote in message
news:m613n05v822eoom8si7ldo8tus1p0kdlhn@4ax.com...
> Hi, my name is Deb and I'm from Ontario,Canada. I posted a few
> questions about a year ago. It has been a long and difficult year
> since. I am having difficulty getting a firm dx. Since last year I
> have had a tentative dx of lupus (from my family dr.),a dx of
> psoriatic arthritis (from a rheumy). Monday I am travelling to see a
> neurologist.I would like to ask the group if anyone has visual
> problems. Sometimes my vision is more blurry than others and when I go
> outside I get a problem with depth perception. This also happens if I
> walk on carpet with a very busy pattern.
> I am finding this group a very reassuring place to visit because at
> times, with all the odd symptoms, I wonder if I'm just losing it!
> btw I had an Aunt, and I have a sister and cousin with lupus.
> Sorry for the lengthy read everyone.
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| cloud 2004-10-21, 11:09 am |
| Hey Deb,
In regard to the vision problems, good thing you are tested for MS. Is
often one of the first signs. I would say your symptoms are more indicative
to MS. Do you have numb areas or sensations anywhere on the body?
As is said somewhere else, autoimmune disease often seems to occur in
families. My neice was just recently diagnosed with MS. My sister, my
neice's Mom, has Asthma (also autoimmune related) and "had" Hep C. Sis was
one of the rare cases where Hep C was totally flushed from her system after
treatments.
But many symptoms of autoimmune disease can overlap and oven carry the
issues of fatigue, joint swelling and general aches and pains.
I do sometimes have visual problems but who knows why. Mostly it is from
trying to read, my eyes can not keep focus but who knows why. Will find out
eventually, I suppose. At least, might just be a circulation problem.
Oh, and I have what is called, MCTD or Mixed Connective Tissue Disease.
Generally it is an overlapping of Lupus, Scleroderma and Polymyositis. Mine
is mostly Lupus but am also positve RA and too many other stuff to list.
When I was diagnosed, I was willing to settle for a minor health issue - not
dang host to a whole party of them!
Keep happy up there in Polar Bear Country!!
Always,
cloud
> Hi, my name is Deb and I'm from Ontario,Canada. I posted a few
> questions about a year ago. It has been a long and difficult year
> since. I am having difficulty getting a firm dx. Since last year I
> have had a tentative dx of lupus (from my family dr.),a dx of
> psoriatic arthritis (from a rheumy). Monday I am travelling to see a
> neurologist.I would like to ask the group if anyone has visual
> problems. Sometimes my vision is more blurry than others and when I go
> outside I get a problem with depth perception. This also happens if I
> walk on carpet with a very busy pattern.
> I am finding this group a very reassuring place to visit because at
> times, with all the odd symptoms, I wonder if I'm just losing it!
> btw I had an Aunt, and I have a sister and cousin with lupus.
> Sorry for the lengthy read everyone.
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