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Home > Archive > Lupus Support > October 2004 > Roll Call - Maggie
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Roll Call - Maggie
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| I sure miss hearing from you and worry because it's been such a long time.
Special hugs to you,
J
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| Yes, Mags, where are you?
Mair and Pigmet
"J" <eaves@example.net> wrote in message
news:415F35DA.D9676B86@execulink.com...
>I sure miss hearing from you and worry because it's been such a long time.
>
> Special hugs to you,
> J
>
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| Maggie 2004-10-07, 2:18 am |
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((((((((((((J & Mair & Pigmet & All))))))))))))
Fatigue ------> .
However, I saw a new doctor today. Young, brilliant *&* gorgeous! And
his nurse: an angel.
Eight years with no dx. Many of those, have I spent mumbling off
symptoms to 2 doctors with befuddlement etched across their faces.
Today, Dr. Can't-Say-It-Can't-Spell-It, told ME my symptoms. He dx'd me
with Psoriatic Arthritis inside of 5 minutes & started the paperwork for
an Enbrel program. I all but begged my doctor to dx me with it 4 months
ago per Nina's suggestion; a dx = free Enbrel. I still have one, maybe
2 dx's to go, but it's a huge start. 
MTX cannot be found in any drug store in my city right now. Possibly
even the country. The company "lost track of stock?" For the time
being, people must switch to the oral dose at over a buck per pill &
each pill...a measley 2.5mg. What's worse is I found out today that the
company stopped putting the preservative in the MTX as well. This means
that a vial will only be good for one day or so. Does this mean my
recent MTX shots could've been dead? The new blisters on the bottom of
me feet could be a testament.
The approval for Enbrel may take 30 days or longer & I will need to go
for weekly shots or give in & buy the pills until then. I will do the
IV every 8 weeks, I think - seems a good way to go. And with this new
dx, I also will qualify for upcoming studies. Thank God as my hope
was fading big time here...
Love & Hugs & Thanks Too,
Maggie
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| Opening arms wide to Maggie - sending gentle hugs.
I've missed you so.
I'm so sad to hear that medication problems still plague you there.
I"ve not heard of problems on other newsgroups (unless they're having health
problems and not realizing why).
Darned shame. Sounds like a "distributor (possibly trucking) problem.
I was going to suggest "call the manufacturer" but one web page says it's
"Non-proprietary" and this one says
http://www.psoriasis.org/treatment/...ethotrexate.php
"Methotrexate is a prescription medication usually sold as a generic."
I sure hope you feel better soon.
Hugs to you
J
Maggie wrote:
> ((((((((((((J & Mair & Pigmet & All))))))))))))
>
> Fatigue ------> .
>
> However, I saw a new doctor today. Young, brilliant *&* gorgeous! And
> his nurse: an angel.
>
> Eight years with no dx. Many of those, have I spent mumbling off
> symptoms to 2 doctors with befuddlement etched across their faces.
> Today, Dr. Can't-Say-It-Can't-Spell-It, told ME my symptoms. He dx'd me
> with Psoriatic Arthritis inside of 5 minutes & started the paperwork for
> an Enbrel program. I all but begged my doctor to dx me with it 4 months
> ago per Nina's suggestion; a dx = free Enbrel. I still have one, maybe
> 2 dx's to go, but it's a huge start.
>
> MTX cannot be found in any drug store in my city right now. Possibly
> even the country. The company "lost track of stock?" For the time
> being, people must switch to the oral dose at over a buck per pill &
> each pill...a measley 2.5mg. What's worse is I found out today that the
> company stopped putting the preservative in the MTX as well. This means
> that a vial will only be good for one day or so. Does this mean my
> recent MTX shots could've been dead? The new blisters on the bottom of
> me feet could be a testament.
>
> The approval for Enbrel may take 30 days or longer & I will need to go
> for weekly shots or give in & buy the pills until then. I will do the
> IV every 8 weeks, I think - seems a good way to go. And with this new
> dx, I also will qualify for upcoming studies. Thank God as my hope
> was fading big time here...
>
> Love & Hugs & Thanks Too,
> Maggie
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