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Home > Archive > Vision > November 2004 > Visudyne for pts. without macular degeneration
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Visudyne for pts. without macular degeneration
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| Hi All,
I'm interested in reading if anyone has had Visudyne photodynamic
treaments when they do not have macular degeneration. What was your
condition and what was the outcome? I am 41, non-diabetic, and have
an "idiopathic" subretinal neovascularization that is bleeding
(subfovial as of now). I have loss sight in the left side of my left
eye - completely blurry. I am scheduled to have Visudyne treatment
soon and am looking for other younger patients who have had a similar
condition. My only other choice is laser surgery and I have chosen
Visudyne as it appears to be less damaging to the retina . Any
feedback appreciated.
TIA,
-Lyn
(idontmind (at) hotmail (dot) com is my real address - the onein the
header is bad.)
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| CarlosWA 2004-10-31, 7:08 am |
| What is WRT ARMD?
Carlos
On 30 Oct 2004 16:51:20 -0700, usenetlyn@yahoo.com (-L.  wrote:
>CarlosWA <carmin.nnoospam@ca.inter.net> wrote in message news:<uj37o0tm5ajnsp0mf4gnc2qisn18eqmkto@4ax.com>...
>
>Thanks, Carols. I already had the angiogram and it was worse than we
>expected, but it still appears to be operable. I will be having PDT
>Tuesday. Will let you know how it goes.
>
>I was told I may need a total of 2-3 surgeries before the blood
>vessels are sealed completely. And even then, there is no guarantee,
>of course. ;)
>
>Please keep me posted as to how your treatments go. Most of the data
>I have read are WRT ARMD, and since that isn't what I have, I am a bit
>wary of the treatment plan. I have two medical opinions so far, and
>one report due this week, so am going ahead with the PDT.
>
>Thanks for your input - it's nice to know I'm not alone.
>-L.
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| -L. : 2004-10-31, 11:08 am |
| CarlosWA <carmin.nnoospam@ca.inter.net> wrote in message news:<f8k9o01ts9shkihksabk8spj4rv0g1oqof@4ax.com>...
> What is WRT ARMD?
>
> Carlos
"...with regard to age-related macular degeneration."
Sorry for the acronyms. I was probably tired.
-L.
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| CarlosWA 2004-11-01, 11:09 am |
| I am 60. I had the PDT to remove some fluid from behind the retina.
This was an off-label treatment. The treatment takes about 2 minutes
and is painless. Before the treatment they will likely do an
angiogram.
After the treatment you have to avoid sun, halogen and other strong
lights for 48 hrs.
Your vision may decrease but by the 7th day it comes back to what yo
had before the PDT. The PDT take 2 to 4 weeks to take effect. In my
case my vision inproved in the 4th week. The liquid was removed
(checked b the doctor at 4 weeks). However by the 6th week my vision
was reduced to what it was before the treatment. I had been warned
that repeated treatments may be required. I am schedule to see the
doctor next week 8 weeks after the 1st treatment.
Good luck.
Carlos
On 25 Oct 2004 18:18:57 -0700, usenetlyn@yahoo.com (-L. wrote:
>Hi All,
>
>I'm interested in reading if anyone has had Visudyne photodynamic
>treaments when they do not have macular degeneration. What was your
>condition and what was the outcome? I am 41, non-diabetic, and have
>an "idiopathic" subretinal neovascularization that is bleeding
>(subfovial as of now). I have loss sight in the left side of my left
>eye - completely blurry. I am scheduled to have Visudyne treatment
>soon and am looking for other younger patients who have had a similar
>condition. My only other choice is laser surgery and I have chosen
>Visudyne as it appears to be less damaging to the retina . Any
>feedback appreciated.
>
>TIA,
>-Lyn
>(idontmind (at) hotmail (dot) com is my real address - the onein the
>header is bad.)
| |
| CarlosWA 2004-11-02, 11:13 am |
| What is WRT ARMD?
Carlos
On 30 Oct 2004 16:51:20 -0700, usenetlyn@yahoo.com (-L. wrote:
>CarlosWA <carmin.nnoospam@ca.inter.net> wrote in message news:<uj37o0tm5ajnsp0mf4gnc2qisn18eqmkto@4ax.com>...
>
>Thanks, Carols. I already had the angiogram and it was worse than we
>expected, but it still appears to be operable. I will be having PDT
>Tuesday. Will let you know how it goes.
>
>I was told I may need a total of 2-3 surgeries before the blood
>vessels are sealed completely. And even then, there is no guarantee,
>of course. ;)
>
>Please keep me posted as to how your treatments go. Most of the data
>I have read are WRT ARMD, and since that isn't what I have, I am a bit
>wary of the treatment plan. I have two medical opinions so far, and
>one report due this week, so am going ahead with the PDT.
>
>Thanks for your input - it's nice to know I'm not alone.
>-L.
| |
| -L. : 2004-11-02, 11:13 am |
| CarlosWA <carmin.nnoospam@ca.inter.net> wrote in message news:<f8k9o01ts9shkihksabk8spj4rv0g1oqof@4ax.com>...
> What is WRT ARMD?
>
> Carlos
"...with regard to age-related macular degeneration."
Sorry for the acronyms. I was probably tired.
-L.
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