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| Welcome to the ALS Registry
http://www.patientslikeme.com/registry
in such a short time patientslikeme has grown to 250 pals from 21
different countries.
This is the registry for Amyotrophic Lateral Sclerosis (Lou Gehrig's
Disease, or ALS) patients. I originally started it as a mailing list
and it is now being maintained on the PatientsLikeMe site. If you are a
Person with ALS (PALS), you can add your name by signing up for a
PatientsLikeMe account and filling out your profile.
I am excited about what we can do with the ALS/MND Registry at the new
PatientsLikeMe .
it will be more then just a registry for pals, you can have you own
detailed profile page.
If you have any questions email PatientsLikeMe at
support@patientslikeme.com.
I think this is going to be great. It is a registry that has
detailed information from the patients who want to share it. Plus
you can come back as often as you want and update your info, so it
is as current as possible, plus see what other pals are doing and how
they are doing it, what they are taking.
more then 105.000 people are diagnosed world-wide every year with
als/mnd.
You can help by passing this info on to other PALS.
http://www.patientslikeme.com/registry
Thanks,
Bobby Brannigan (PALS, diagnosed 1994)
robertb@mitchell.main.nc.us
ALS IS NOT PREJUDICE
WHERE EVER, WHEN EVER, WHO EVER
PatientsLikeMe
A new system of medical care by patients, for patients
a.. Discover better ways to manage your disease.
b.. Benefit and learn from shared experiences.
c.. Connect to those making a difference in your disease.
d.. http://www.patientslikeme.com/
e.. over 220 pals
http://www.patientslikeme.com/registry
- People don't get ALS... Families get ALS!
Welcome to the ALS Registry
http://www.patientslikeme.com/registry
hello, first let me thank you for signing the als registry.
i started it for awareness for a cure, hoping pals from around the
world will sign on to raise awareness.
i need your help. if you know of pals that have not signed on yet
would you please pass the registry website info on to them asking them
to join with us in raising awareness for a cure.
we need pals to sign on and let the world know we are still here and
waiting for a cure.
so please take this info to your support group, clinic, doctors, post
the link on your websites , forums , where ever pals are or might be.
cals can sign there pals on.
There are 140 PALS in the registry!
in two weeks from 17+ countries
You can help by passing this info on to other PALS.
Welcome to the ALS Registry
http://www.patientslikeme.com/registry
Thanks,
Bobby Brannigan (PALS, diagnosed 1994)
robertb@mitchell.main.nc.us
ALS IS NOT PREJUDICE
WHERE EVER, WHEN EVER, WHO EVER
and please sign onto
PatientsLikeMe
A new system of medical care by patients, for patients
a.. Discover better ways to manage your disease.
b.. Benefit and learn from shared experiences.
c.. Connect to those making a difference in your disease.
d.. http://www.patientslikeme.com/
Did you Know...
- The US Government spends an average of only $400 per ALS patient
per year.
not much is it ?
how much does your goverment spend on pals and research ?
please let me know.
Thanks,
Bobby Brannigan (PALS, diagnosed 1994)
robertb@mitchell.main.nc.us
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