Als diseases - ALS Walk, Macon, GA

Author

ALS Walk, Macon, GA

courtney76@gmail.com

2005-06-16, 5:54 pm

If you knew me, you'd know I'm the last person to ask for help or
money. If I didn't think this was so important I wouldn't be
putting myself out there. Last April my grandmother died of ALS (Lou
Gehrig's disease). I was very close to her, and her death has
impacted me in ways I can't even describe. The disease can work very
fast, and is very debilitating. Thousands of people are fighting this
disease, most much younger than my grandmother. My grandmother was one
of the most giving people I've ever met. She always had a smile on
her face. To honor her spirit, my family is walking in the September
ALS walk sponsored by the ALS Association of Georgia. All the money we
raise goes towards helping other families who are struggling with this
disease.

I want to help as many as I can and to do so I need help. If you
can't donate, I understand, please just send positive thoughts to
those who are struggling with this disease. If you are able to donate,
please click below for more information both about donating as well as
info on the disease and the walk. All donations are tax deductible, and
every little bit helps.

For more info:
https://www.kintera.org/faf/donorRe...&supId=84988908

Thank you in advance for your thoughts and time.

Jerry Story

2005-06-18, 6:22 pm

Do you want to stop this disease? Or do you just want to throw money
at it? Maybe exploit the disease?

If you really want to stop this disease, learn what causes it or makes
it worse.
Read "Excitotoxins: The Taste That Kills" by Blaylock
http://curezone.com/books/best/book.asp?ID=621

This book is a must-read for any person who has ALS or is interested in
ALS. Get it! Read it!

courtney76@gmail.com

2005-06-18, 6:22 pm

I'm sorry you feel this way. I watched my grandmother slowly deteoriate
in front me. She went from a vibrant woman to someone who could not
walk and finally not breathe. ALS Association of GA helped to provide
items that were critical for my grandmothers comfort and mobility (i.e.
lifts, wheelchairs, etc..). I want to help others with those needs.

I'm not exploiting anything or anyone. I'm simply trying to give back,
where we once used. Please just disreguard my email if you feel
otherwise.

courtney76@gmail.com

2005-06-18, 6:22 pm

I'm sorry you feel this way. I watched my grandmother slowly deteoriate
in front me. She went from a vibrant woman to someone who could not
walk and finally not breathe. ALS Association of GA helps to provide
items that were critical for my grandmother's comfort and mobility
(i.e. lifts, wheelchairs, etc..). I want to help others with those
needs.

I'm not exploiting anything or anyone. I'm simply trying to give back,
where we once used. No one is obligated...I am just guilty of wanting
to raise as much as I possibly can for a cause that I think is a good
one.

Jerry Story

2005-06-18, 6:22 pm

courtney76@gmail.com wrote:
> I'm sorry you feel this way. I watched my grandmother slowly deteoriate
> in front me. She went from a vibrant woman to someone who could not
> walk and finally not breathe. ALS Association of GA helped to provide
> items that were critical for my grandmothers comfort and mobility (i.e.
> lifts, wheelchairs, etc..). I want to help others with those needs.
>
> I'm not exploiting anything or anyone. I'm simply trying to give back,
> where we once used. Please just disreguard my email if you feel
> otherwise.

I'm not talking about feelings. I'm talking about knowledge. Why are
you (and others) opposed to knowledge? With knowledge, your
grandmother's deterioration could have been stopped.

Which is more important to you? Political correctness? Or knowledge
that would help people? You can't have it both ways. Do you want to
protect the guilty because they are powerful? Or do you want to help
people?

courtney76@gmail.com

2005-06-18, 6:22 pm

She sought help from some of the best doctors in the United States.
Including the ALS folks at Emory university - on the cutting edge of
medicine. The disease is fatal, at least what was attacking my
grandmother was fatal. That is fact. That is the knowledge that I'm
aware of everytime my family gets together and I see the empty seat at
the end of the table.

I'm not attempting to be politically correct. I'm not even eager to
debate this issue with you. I want to give back, what was given to me.
It really is that simple. Whether this seems "correct" to you or not,
is really little concern to me.

Jerry Story

2005-06-18, 6:22 pm

courtney76@gmail.com wrote:
> She sought help from some of the best doctors in the United States.
> Including the ALS folks at Emory university - on the cutting edge of
> medicine.

Did she quit MSG?

courtney76@gmail.com

2005-06-18, 6:22 pm

If I'm not mistaken, again, I never claimed to be the expert...

There has been some research suggesting that MSG may lead to lesions in
the brain and nerve tissue, which may lead to ALS. Just as the dangers
of MSG were emerging so to was the disease.

I was not directly responsible for her care, but am aware of various
clinical research programs she was involved with in hope of
eliminatiing the disease or at the very least prolonging her life. She
was very determined to fight this disease.

Impart your knowledge. As far as the rest of the world is concerned
there is no cure for ALS. Thus why many die from the disease every day.
ALS Assoc is dedicated to working towards a cure as well,
unfortunately, the cure is yet to be discovered.

courtney76@gmail.com

2005-06-18, 6:22 pm

To read your message a bit differently, if you were implying if she
quit MSG the disease would just disappear my response:

1. Prior to having the disease, she rarely if ever consumed MSG.
2. I would contend that once she was diagnosed with ALS, stopping
consumption of MSG (which was never an issue for her) would have had no
impact on her ultimate outcome.

Jerry Story

2005-06-18, 6:22 pm

courtney76@gmail.com wrote:
> If I'm not mistaken, again, I never claimed to be the expert...
>
> There has been some research suggesting that MSG may lead to lesions in
> the brain and nerve tissue, which may lead to ALS. Just as the dangers
> of MSG were emerging so to was the disease.
>
> I was not directly responsible for her care, but am aware of various
> clinical research programs she was involved with in hope of
> eliminatiing the disease or at the very least prolonging her life. She
> was very determined to fight this disease.
>
> Impart your knowledge. As far as the rest of the world is concerned
> there is no cure for ALS. Thus why many die from the disease every day.
> ALS Assoc is dedicated to working towards a cure as well,
> unfortunately, the cure is yet to be discovered.

The word "cure" means restoration to health without removing or
changing causes. I don't believe in cures. I believe in causes. If
someone offered a cure I would reject it.

With knowledge of causes it is possible to prevent ALS (for those who
don't have it) and it is possible to stop or slow down the progression
of ALS (for those who have it). I believe the progression of ALS can be
stopped. And perhaps even reverse the disease.

I have difficulty imagining how any person who has ALS or any person
who is interested in ALS would not want to know the causes of ALS. How
could a person who has ALS not want to know what causes ALS? Insanity?
Phenomenal stupidity? That has me beat. Maybe someone on this NG will
tell me.

I have been trying to impart "my knowledge" on this NG for a long time.
The knowledge is not from me. Do a search on Google for Blaylock +
excitotoxins and take it from there.

I can point to knowledge but I can't make people do their homework. You
can lead a horse to the water but you can't make him drink. Blaylock's
book, "Excitotoxins: The Taste That Kills" is a good book to start
with. You can go on from there.

The "respectable", politically correct researchers don't do research to
find causes. They do research to find drugs. Finding causes would be
easy if they would make the effort. Drugs don't remove causes. Their
research will go on forever. But fortunately there are
"unrespectable", politically incorrect researchers who have already
discovered knowledge of great value to people with ALS. The fact that
the world does not accept this knowledge does not mean that people with
ALS can't accept it.

Jerry Story

2005-06-18, 6:22 pm

courtney76@gmail.com wrote:
> To read your message a bit differently, if you were implying if she
> quit MSG the disease would just disappear my response:
>
> 1. Prior to having the disease, she rarely if ever consumed MSG.
> 2. I would contend that once she was diagnosed with ALS, stopping
> consumption of MSG (which was never an issue for her) would have had no
> impact on her ultimate outcome.

Obviously you know nothing about MSG and nothing about the relationship
between MSG and ALS and you know nothing about the nature of ALS.

First, ALS is not an entity. It is not a thing. It is a condition or a
process, but not a thing.

ALS means motor neurons die. The question is: what causes motor neurons
to die? The answer is motor neurons die because of a combination of low
motor neuron energy and excess concentration of glutamic acid. Not one
or the other, but both together. Read about this in Blaylock's book.
Stop the causes (including the causes of the causes) and the process of
motor neuron death stops. It's as simple as that. Go back to the
causes and the process of motor neuron death continues.

> 1. Prior to having the disease, she rarely if ever consumed MSG.

If so, then she ate an extremely unusual diet. Almost everyone consumes
MSG in large quantities. In order to avoid MSG she would have had to
avoid all foods that contain any one of dozens of ingredients that
contain MSG. That means almost all foods in all stores.

Therefore I don't believe she rarely if ever consumed MSG unless you
give me more information about her diet to support that.

> 2. I would contend that once she was diagnosed with ALS, stopping
> consumption of MSG (which was never an issue for her) would have had no
> impact on her ultimate outcome.

Wrong!

It would have slowed down the progression of ALS, perhaps to the point
of stopping it. Other things must be done also. Quit aspartame, which
is just as bad for ALS as MSG is. And many more things, more than what
can be discussed briefly.

Do all these things and the process of motor neuron death has no choice
but to stop, because there is nothing to cause it. Stop the causes,
stop the death process. Restart the causes, restart the death process.
Surviving ALS requires a strict lifestyle for the rest of one's life.

BTW, her ALS did not start at diagnosis. 80% or more of the motor
neurons in a given areas must die before clinical symptom appear. How
long did those 80% take to die? Almost certainly years, maybe decades.

courtney76@gmail.com

2005-06-19, 11:51 am

Its amazing to me that you have really diverted the topic. Do you find
harm in providing services to those with ALS (which was my original
point in walking). Again, if the ALS assoc of GA provided my
grandmother (and I can fwd her obit to you if you doubt if she died
from ALS) with a wheel chair, lift etc...to make her more mobile and
comfortable as possible, is there HARM in me walking in the ALS walk,
to raise money to provide these SAME services to others? You obviously
have a lot to say, and it appears, that you are arguing something, that
perhaps I don't even disagree with. As I've said in earlier post, I DO
NOT have an amazing level of knowledge of ALS -- I apologize if this is
not up to your standards. All I know is, it killed my grandmother.
Before she died she got help from an organization. I want to help that
organization so it can help others.

You make it seem like I have some sort of malicious intentions. Seems
odd if you ask me.

Stop attacking. For God sake, I've been through hell the last few
months. I'm not here to argue the causes, symptoms, cures of ALS with
you. I just wanted to ask those that were interested to send good
vibes/thoughts/donations if possible to my family as we try to raise
money for the September walk.

Jerry Story

2005-06-19, 5:53 pm

I have nothing against wheelchairs and stuff. In addition to
wheelchairs, stop the disease. I don't see any ALS organization making
any effort to learn the known causes of ALS or to tell people the known
causes of ALS. This knowledge would help people with ALS. On the one
hand they give ALS people wheelchairs (which is good); on the other
hand they withhold and even oppose valuable information (which is
either insane or malicious).