|
Home > Archive > Als diseases > December 2004 > New ALS Info Website...Canadian People living with ALS
You are viewing an archived Text-only version of the thread.
To view this thread in it's original format and/or if you want to reply to
this thread please [click here]
| Author |
New ALS Info Website...Canadian People living with ALS
|
|
| CdnPALS Mike 2004-12-16, 9:08 am |
| It is a website created by a Canadian living with ALS for Everyone
living with ALS.
http://www.cdnpals.ca
The main goal is to create a common gathering place for people who
have been affected by this dreadful disease.
It will be a place to:
Inspire
Help Others
Share Knowledge
Chat
Find some humour when you're feeling down
Find some common ground with others in similar circumstances
It is a place for:
PALS
Family / Friends
Care Givers
Anyone (not just Canadians) who has been affected by ALS.
http://www.cdnpals.ca
| |
| Jerry Story 2004-12-16, 9:08 am |
| >http://www.cdnpals.ca
1. What does this offer that sci.med.diseases.als does not offer?
2. No mention of -causes- of ALS.
>Inspire
To do what?
>Help Others
To do what?
>Share Knowledge
That's what I've been trying to do here. But who is interested?
>Chat
To what end? Is chatting its own purpose?
>Find some humour when you're feeling down
I have ALS and it does not make me feel down. ALS is -not- a
mental/emotional disorder. It is a -physical- disability.
>Find some common ground with others in similar
>circumstances
Do you mean a pity party? That would be worse than useless. I'm
interested in -practical- things, such as identifying the causes of ALS.
| |
| mjshirl@shaw.ca 2004-12-16, 9:08 am |
| Jerry,
I can only assume you won't be signing up for the CdnPALS Forum to
share your opinion(s)... ;^)
Everyone is entitled to his/her opinions...and you are entitled to
yours.
I was diagnosed with ALS in July 02 and know (firsthand) that it is a
"physical" disability and not an emotional/mental one.
But what about the emotional/mental toll on PALS and the people
surrounding them?
For some people, having the ability to share their story can be very
therapeutic.
For others...reading about another's experience and knowing they aren't
alone is their therapy.
Some people like to get online, make friends, and Chat.
Having a bad day??? Sometimes a good laugh will turn your day around.
Just because CdnPALS.ca doesn't offer You ANYTHING useful, doesn't mean
others won't find something useful.
You give me the strong impression that "Finding a Cure" is your main
goal. And you know what???
That's cool...if that's your mission/passion in life and is the reason
you get outta bed in the morning.
The sci.med.diseases.als newsgroup is not the only source for
information on ALS on the internet.
To imply one source (of info) is worse than another and belittle it, is
simply absurd.
To criticize and pass judgement on someone's hard work(especially in a
public forum like this) without a possible solution to what you believe
is wrong with
the site ( I do have a Feedback/Comments page), leads me to believe
that ALS may not be the only thing that ails you.
Jerry...A mind is like a parachute - it doesn't work properly, unless
it's open.
CdnPALS Mike
| |
| CdnPALS Mike 2004-12-16, 9:08 am |
| Jerry,
I can only assume you won't be signing up for the CdnPALS Forum to
share your opinion(s)... ;^)
Everyone is entitled to his/her opinions...and you are entitled to
yours.
I was diagnosed with ALS in July 02 and know (firsthand) that it is a
"physical" disability and not an emotional/mental one.
But what about the emotional/mental toll on PALS and the people
surrounding them?
For some people, having the ability to share their story can be very
therapeutic.
For others...reading about another's experience and knowing they aren't
alone is their therapy.
Some people like to get online, make friends, and Chat.
Having a bad day??? Sometimes a good laugh will turn your day around.
It's not about self pity!!!
It's about being part of a community where others know how you feel and
can relate to what we go through on a daily basis.
Just because CdnPALS.ca doesn't offer You ANYTHING, doesn't mean others
won't find something useful.
You give me the strong impression that "Finding the Cause and a Cure"
is your main goal. And you know what???
That's cool...if that's your mission/passion in life and is the reason
you get outta bed in the morning.
Save your snide and cynical remarks for the the spammers that
contiinually post free porn offers to this newsgroup.
The sci.med.diseases.als newsgroup is not the only source for
information on ALS on the internet.
To imply one source (of info) is worse than another and belittle it, is
simply absurd.
To criticize and pass judgement on someone's hard work(especially in a
public forum like this) without a possible solution to what you believe
is wrong with the site ( I do have a Feedback/Comments page), leads me
to believe that ALS may not be the only thing that ails you.
Jerry...A mind is like a parachute - it doesn't work properly, unless
it's open.
CdnPALS Mike
| |
| Jerry Story 2004-12-16, 7:10 pm |
| >http://www.cdnpals.ca
1. What does this offer that sci.med.diseases.als does not offer?
2. No mention of -causes- of ALS.
>Inspire
To do what?
>Help Others
To do what?
>Share Knowledge
That's what I've been trying to do here. But who is interested?
>Chat
To what end? Is chatting its own purpose?
>Find some humour when you're feeling down
I have ALS and it does not make me feel down. ALS is -not- a
mental/emotional disorder. It is a -physical- disability.
>Find some common ground with others in similar
>circumstances
Do you mean a pity party? That would be worse than useless. I'm
interested in -practical- things, such as identifying the causes of ALS.
| |
| mjshirl@shaw.ca 2004-12-17, 7:09 am |
| Jerry,
I can only assume you won't be signing up for the CdnPALS Forum to
share your opinion(s)... ;^)
Everyone is entitled to his/her opinions...and you are entitled to
yours.
I was diagnosed with ALS in July 02 and know (firsthand) that it is a
"physical" disability and not an emotional/mental one.
But what about the emotional/mental toll on PALS and the people
surrounding them?
For some people, having the ability to share their story can be very
therapeutic.
For others...reading about another's experience and knowing they aren't
alone is their therapy.
Some people like to get online, make friends, and Chat.
Having a bad day??? Sometimes a good laugh will turn your day around.
Just because CdnPALS.ca doesn't offer You ANYTHING useful, doesn't mean
others won't find something useful.
You give me the strong impression that "Finding a Cure" is your main
goal. And you know what???
That's cool...if that's your mission/passion in life and is the reason
you get outta bed in the morning.
The sci.med.diseases.als newsgroup is not the only source for
information on ALS on the internet.
To imply one source (of info) is worse than another and belittle it, is
simply absurd.
To criticize and pass judgement on someone's hard work(especially in a
public forum like this) without a possible solution to what you believe
is wrong with
the site ( I do have a Feedback/Comments page), leads me to believe
that ALS may not be the only thing that ails you.
Jerry...A mind is like a parachute - it doesn't work properly, unless
it's open.
CdnPALS Mike
| |
| CdnPALS Mike 2004-12-18, 2:08 am |
| Jerry,
I can only assume you won't be signing up for the CdnPALS Forum to
share your opinion(s)... ;^)
Everyone is entitled to his/her opinions...and you are entitled to
yours.
I was diagnosed with ALS in July 02 and know (firsthand) that it is a
"physical" disability and not an emotional/mental one.
But what about the emotional/mental toll on PALS and the people
surrounding them?
For some people, having the ability to share their story can be very
therapeutic.
For others...reading about another's experience and knowing they aren't
alone is their therapy.
Some people like to get online, make friends, and Chat.
Having a bad day??? Sometimes a good laugh will turn your day around.
It's not about self pity!!!
It's about being part of a community where others know how you feel and
can relate to what we go through on a daily basis.
Just because CdnPALS.ca doesn't offer You ANYTHING, doesn't mean others
won't find something useful.
You give me the strong impression that "Finding the Cause and a Cure"
is your main goal. And you know what???
That's cool...if that's your mission/passion in life and is the reason
you get outta bed in the morning.
Save your snide and cynical remarks for the the spammers that
contiinually post free porn offers to this newsgroup.
The sci.med.diseases.als newsgroup is not the only source for
information on ALS on the internet.
To imply one source (of info) is worse than another and belittle it, is
simply absurd.
To criticize and pass judgement on someone's hard work(especially in a
public forum like this) without a possible solution to what you believe
is wrong with the site ( I do have a Feedback/Comments page), leads me
to believe that ALS may not be the only thing that ails you.
Jerry...A mind is like a parachute - it doesn't work properly, unless
it's open.
CdnPALS Mike
|
| |
|
|