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Home > Archive > Hepatitis disease > October 2006 > Advice needed (LONG READ)
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Advice needed (LONG READ)
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| My name is Eugene and I'm a 29 year old male. never had any history of
sexual diseases. I do however have depression linked with anxiety and
was treated for it during the past 3 years. (Currently taking
Escitalopram (lexapro) 15mg and Valium 10mg at nite to sleep)
This whole ordeal has been going on for so long I dont even know where
to start. I had two anal polyps removed in Dec '05. (After the op I
did notice my bladder was sensitive, but thought it was due to the
anesthesia and the operation) They turned out to be inflammatory
polyps and the doctor assured me that they were not malignant in any
way. He said I should come back in six weeks for a colonoscopy just to
make sure everything is ok in my colon. I was healing great for that
six weeks and went in for the colonoscopy. The problem is that during
that six weeks before the scope I was very anxious and I was convinced
that I had colon cancer or that they were going to find more polyps.
This resulted in several trips to the ER for a spastic colon that had
to be treated. Needless to say, when the doc did my colonoscopy and
said all was ok, I was very relieved.
Then the problems started. Two days after my scope, I started getting
muscle twitches and burning sensations overy my body. A few days later
I got severe muscle pains. My joints also started to hurt, (esp my
hands) and I got "electric" shock like sensations in different parts of
my body. I went to my GP with this and he said we should not take any
chances and did a whole range of tests on me (Full blood count, ESR,
C-reactive proteine,Thyroid, Diabetes, Muscle enzyme, Vit B12, Iron,
Kidneys function, EKG,Epstein barr virus, Brucella virus, HIV,
Cytomagella, Paul Bunnel test) He even sent me for a brain CT scan.
My symptoms got worse and almost all my joints were hurting and muslces
too. I started getting headaches and eye pain. All my tests came back
normal and my GP was stumped. He had no idea as to what could be
wrong. So he referred me to a specialist physician for his opinion.
The SP looked at my tests and did a full physical and said that he
suspects I suffered from trauma/stress. He did refer me to a
Neurologist for the pins/needles feelings I got in my hands and feet.
The Neurologist did tests and concurred that this was most probably
related to anxiety. Needless to say at this stage I was getting really
worried and even had to take a month's leave from work just to keep my
sanity. My GP sent my back to my Psychiatrist and the Pdoc upped my
lexapro and gave me some valium to relax.
My symptoms started improving a bit and I got back to work at least
coping. Then I started getting testicle pain (right one) and went to
my GP. He referred my to a Urologist. They Uro did an ultrasound of
the testicles, bladder and kidneys as well as a urine flow test and
urine analysis. He also did a rectal exam. He said this was most
probably a infection in my epididimus and gave my ciprofloxacin to take
for 14 days. It did clear up a bit and I actually started feeling
better. (muscle and joint pain even got better). About a week or two
after the cipro treatment I got rectal pain again (I thought this might
be polyps coming back). So I went to my GP...he did a rectal exam and
a rectal scope and said he could not find anything wrong (no tears,
tumors, polyps). He said it was probably a fungal infection/proctitis
and gave me some suppositories and cream. It didn't work. The
testicle pain came back, but not as bad as the first time and then went
away again.
Rectal pain stayed there and I thought it would be best to see a gastro
doc. He didn't even to a rectal exam. Just pressed on my abdomen and
said I had an obvious case of IBS and Proctalgia Fugax. Rectal pain
didn't get better and I started taking sleeping tablets just to sleep.
The rectal pain continued and I started getting the testicle pain
again. This time accompanied by penis pain and bladder pain..It also
burned when I urinated. I got another prescription of antibiotics and
cortisone tablets. This took the pain away immediately and I was
feeling great for about a month. Got an attack of shingles (which the
doctor suspects was due to the cortisone). Got acyclovir for that and
it resolved itself. Then I started getting skin burning sensations all
over my body. Almost like someone was throwing hot water over me. Doc
suspected inflammation/interaction of medication and gave me some
shots....got better and it is gone now. Muscle and joint pain also
went away for about two months! But my bladder/rectal and testicle
pain still remains. I went back to my urologist and he did the same
exam as the first time and said it was prostatitis ad gave me
antibiotics AGAIN. Got a little better, but not much. Now it's back
again. Together with the muslce and joint pain. I also notice
tenderness under my armpits although there is not swelling of any
nodes. I'm starting to get lower abdominal pain too (intermittently).
I really don't know what to do anymore. I went to so many doctors and
got so many different treatments that did not seem to help much. At
one stage I thought I might be dying of cancer. I'm really depressed
and cannot see any reason for going on like this. I'm even thinking
about suicide. Really guys, I'm desparate...I don't know what to do
anymore. (Luckily I'm on a medical aid which is excellent and I didn't
have to pay a cent out of my own pocket. And I can choose my doctors).
PS. I'm updating this as I recently went back to my specialist
physician for the bladder/testicle/rectal/muscle/joint/skin burning
pain. He wanted to start me on Topamax and see how it goes. I
insisted on a liver and kidney function test and to my
surprise.....everything was normal except my ALT and GGT levels. ALT
was 56 and GGT 80. I refused the topamax and he said it was most
probably due to all the medication I took. I went back to him two
weeks later and asked him to give the Topamax as I was in terrible
pain. He agreed, but said he wanted to test my liver function
again...This time is was WAY off. My ALT was 140 and my GGT was
260!!!!! It was more or less the same time that my testicle and
bladder/stomach pains got real bad.. He immediately sent me for a liver
ultrasound...got the results back today...all looking fine, excepts for
a fatty infiltration of the liver in the gallbladder are.no gallstones
or anything abnormal detected. .but I haven't heard anything from the
doctor yet....this is nerve wrecking.....
PLEASE HELP!
| |
| Robert1 2006-10-17, 4:27 pm |
|
Keen wrote:
> My name is Eugene and I'm a 29 year old male. never had any history of
> sexual diseases. I do however have depression linked with anxiety and
> was treated for it during the past 3 years. (Currently taking
> Escitalopram (lexapro) 15mg and Valium 10mg at nite to sleep)
>
> This whole ordeal has been going on for so long I dont even know where
> to start. I had two anal polyps removed in Dec '05. (After the op I
> did notice my bladder was sensitive, but thought it was due to the
> anesthesia and the operation) They turned out to be inflammatory
> polyps and the doctor assured me that they were not malignant in any
> way. He said I should come back in six weeks for a colonoscopy just to
> make sure everything is ok in my colon. I was healing great for that
> six weeks and went in for the colonoscopy. The problem is that during
> that six weeks before the scope I was very anxious and I was convinced
> that I had colon cancer or that they were going to find more polyps.
> This resulted in several trips to the ER for a spastic colon that had
> to be treated. Needless to say, when the doc did my colonoscopy and
> said all was ok, I was very relieved.
>
> Then the problems started. Two days after my scope, I started getting
> muscle twitches and burning sensations overy my body. A few days later
> I got severe muscle pains. My joints also started to hurt, (esp my
> hands) and I got "electric" shock like sensations in different parts of
> my body. I went to my GP with this and he said we should not take any
> chances and did a whole range of tests on me (Full blood count, ESR,
> C-reactive proteine,Thyroid, Diabetes, Muscle enzyme, Vit B12, Iron,
> Kidneys function, EKG,Epstein barr virus, Brucella virus, HIV,
> Cytomagella, Paul Bunnel test) He even sent me for a brain CT scan.
> My symptoms got worse and almost all my joints were hurting and muslces
> too. I started getting headaches and eye pain. All my tests came back
> normal and my GP was stumped. He had no idea as to what could be
> wrong. So he referred me to a specialist physician for his opinion.
> The SP looked at my tests and did a full physical and said that he
> suspects I suffered from trauma/stress. He did refer me to a
> Neurologist for the pins/needles feelings I got in my hands and feet.
> The Neurologist did tests and concurred that this was most probably
> related to anxiety. Needless to say at this stage I was getting really
> worried and even had to take a month's leave from work just to keep my
> sanity. My GP sent my back to my Psychiatrist and the Pdoc upped my
> lexapro and gave me some valium to relax.
>
> My symptoms started improving a bit and I got back to work at least
> coping. Then I started getting testicle pain (right one) and went to
> my GP. He referred my to a Urologist. They Uro did an ultrasound of
> the testicles, bladder and kidneys as well as a urine flow test and
> urine analysis. He also did a rectal exam. He said this was most
> probably a infection in my epididimus and gave my ciprofloxacin to take
> for 14 days. It did clear up a bit and I actually started feeling
> better. (muscle and joint pain even got better). About a week or two
> after the cipro treatment I got rectal pain again (I thought this might
> be polyps coming back). So I went to my GP...he did a rectal exam and
> a rectal scope and said he could not find anything wrong (no tears,
> tumors, polyps). He said it was probably a fungal infection/proctitis
> and gave me some suppositories and cream. It didn't work. The
> testicle pain came back, but not as bad as the first time and then went
> away again.
>
> Rectal pain stayed there and I thought it would be best to see a gastro
> doc. He didn't even to a rectal exam. Just pressed on my abdomen and
> said I had an obvious case of IBS and Proctalgia Fugax. Rectal pain
> didn't get better and I started taking sleeping tablets just to sleep.
> The rectal pain continued and I started getting the testicle pain
> again. This time accompanied by penis pain and bladder pain..It also
> burned when I urinated. I got another prescription of antibiotics and
> cortisone tablets. This took the pain away immediately and I was
> feeling great for about a month. Got an attack of shingles (which the
> doctor suspects was due to the cortisone). Got acyclovir for that and
> it resolved itself. Then I started getting skin burning sensations all
> over my body. Almost like someone was throwing hot water over me. Doc
> suspected inflammation/interaction of medication and gave me some
> shots....got better and it is gone now. Muscle and joint pain also
> went away for about two months! But my bladder/rectal and testicle
> pain still remains. I went back to my urologist and he did the same
> exam as the first time and said it was prostatitis ad gave me
> antibiotics AGAIN. Got a little better, but not much. Now it's back
> again. Together with the muslce and joint pain. I also notice
> tenderness under my armpits although there is not swelling of any
> nodes. I'm starting to get lower abdominal pain too (intermittently).
> I really don't know what to do anymore. I went to so many doctors and
> got so many different treatments that did not seem to help much. At
> one stage I thought I might be dying of cancer. I'm really depressed
> and cannot see any reason for going on like this. I'm even thinking
> about suicide. Really guys, I'm desparate...I don't know what to do
> anymore. (Luckily I'm on a medical aid which is excellent and I didn't
> have to pay a cent out of my own pocket. And I can choose my doctors).
>
> PS. I'm updating this as I recently went back to my specialist
> physician for the bladder/testicle/rectal/muscle/joint/skin burning
> pain. He wanted to start me on Topamax and see how it goes. I
> insisted on a liver and kidney function test and to my
> surprise.....everything was normal except my ALT and GGT levels. ALT
> was 56 and GGT 80. I refused the topamax and he said it was most
> probably due to all the medication I took. I went back to him two
> weeks later and asked him to give the Topamax as I was in terrible
> pain. He agreed, but said he wanted to test my liver function
> again...This time is was WAY off. My ALT was 140 and my GGT was
> 260!!!!! It was more or less the same time that my testicle and
> bladder/stomach pains got real bad.. He immediately sent me for a liver
> ultrasound...got the results back today...all looking fine, excepts for
> a fatty infiltration of the liver in the gallbladder are.no gallstones
> or anything abnormal detected. .but I haven't heard anything from the
> doctor yet....this is nerve wrecking.....
>
> PLEASE HELP!
Not a doctor here but a diagnosis of prostatitis is consistent with
most of the rectal pain, burning with urination and negative cultures
etc. There is an NG for prostate problems and suggest you post there.
CPPS, is a pain syndrome that can be very challenging so try everything
you can and see what relieves it the most. Avoid certain foods, try
certain supplements, try physical therapy for muscle relaxation and try
different meds, alpha blockers and maybe pain meds like neurotin. Take
it one day at a time as it will get better with time although it may
take awhile depending on what will work for you.
Good luck
| |
| Jason Johnson 2006-10-17, 9:33 pm |
| In article <1161117551.843399.284330@m73g2000cwd.googlegroups.com>, "Keen"
<ejcronje@bluebottle.com> wrote:
My name is Eugene and I'm a 29 year old male. never had any history of
sexual diseases. I do however have depression linked with anxiety and
was treated for it during the past 3 years. (Currently taking
Escitalopram (lexapro) 15mg and Valium 10mg at nite to sleep)
This whole ordeal has been going on for so long I dont even know where
to start. I had two anal polyps removed in Dec '05. (After the op I
did notice my bladder was sensitive, but thought it was due to the
anesthesia and the operation) They turned out to be inflammatory
polyps and the doctor assured me that they were not malignant in any
way. He said I should come back in six weeks for a colonoscopy just to
make sure everything is ok in my colon. I was healing great for that
six weeks and went in for the colonoscopy. The problem is that during
that six weeks before the scope I was very anxious and I was convinced
that I had colon cancer or that they were going to find more polyps.
This resulted in several trips to the ER for a spastic colon that had
to be treated. Needless to say, when the doc did my colonoscopy and
said all was ok, I was very relieved.
Then the problems started. Two days after my scope, I started getting
muscle twitches and burning sensations overy my body. A few days later
I got severe muscle pains. My joints also started to hurt, (esp my
hands) and I got "electric" shock like sensations in different parts of
my body. I went to my GP with this and he said we should not take any
chances and did a whole range of tests on me (Full blood count, ESR,
C-reactive proteine,Thyroid, Diabetes, Muscle enzyme, Vit B12, Iron,
Kidneys function, EKG,Epstein barr virus, Brucella virus, HIV,
Cytomagella, Paul Bunnel test) He even sent me for a brain CT scan.
My symptoms got worse and almost all my joints were hurting and muslces
too. I started getting headaches and eye pain. All my tests came back
normal and my GP was stumped. He had no idea as to what could be
wrong. So he referred me to a specialist physician for his opinion.
The SP looked at my tests and did a full physical and said that he
suspects I suffered from trauma/stress. He did refer me to a
Neurologist for the pins/needles feelings I got in my hands and feet.
The Neurologist did tests and concurred that this was most probably
related to anxiety. Needless to say at this stage I was getting really
worried and even had to take a month's leave from work just to keep my
sanity. My GP sent my back to my Psychiatrist and the Pdoc upped my
lexapro and gave me some valium to relax.
My symptoms started improving a bit and I got back to work at least
coping. Then I started getting testicle pain (right one) and went to
my GP. He referred my to a Urologist. They Uro did an ultrasound of
the testicles, bladder and kidneys as well as a urine flow test and
urine analysis. He also did a rectal exam. He said this was most
probably a infection in my epididimus and gave my ciprofloxacin to take
for 14 days. It did clear up a bit and I actually started feeling
better. (muscle and joint pain even got better). About a week or two
after the cipro treatment I got rectal pain again (I thought this might
be polyps coming back). So I went to my GP...he did a rectal exam and
a rectal scope and said he could not find anything wrong (no tears,
tumors, polyps). He said it was probably a fungal infection/proctitis
and gave me some suppositories and cream. It didn't work. The
testicle pain came back, but not as bad as the first time and then went
away again.
Rectal pain stayed there and I thought it would be best to see a gastro
doc. He didn't even to a rectal exam. Just pressed on my abdomen and
said I had an obvious case of IBS and Proctalgia Fugax. Rectal pain
didn't get better and I started taking sleeping tablets just to sleep.
The rectal pain continued and I started getting the testicle pain
again. This time accompanied by penis pain and bladder pain..It also
burned when I urinated. I got another prescription of antibiotics and
cortisone tablets. This took the pain away immediately and I was
feeling great for about a month. Got an attack of shingles (which the
doctor suspects was due to the cortisone). Got acyclovir for that and
it resolved itself. Then I started getting skin burning sensations all
over my body. Almost like someone was throwing hot water over me. Doc
suspected inflammation/interaction of medication and gave me some
shots....got better and it is gone now. Muscle and joint pain also
went away for about two months! But my bladder/rectal and testicle
pain still remains. I went back to my urologist and he did the same
exam as the first time and said it was prostatitis ad gave me
antibiotics AGAIN. Got a little better, but not much. Now it's back
again. Together with the muslce and joint pain. I also notice
tenderness under my armpits although there is not swelling of any
nodes. I'm starting to get lower abdominal pain too (intermittently).
I really don't know what to do anymore. I went to so many doctors and
got so many different treatments that did not seem to help much. At
one stage I thought I might be dying of cancer. I'm really depressed
and cannot see any reason for going on like this. I'm even thinking
about suicide. Really guys, I'm desparate...I don't know what to do
anymore. (Luckily I'm on a medical aid which is excellent and I didn't
have to pay a cent out of my own pocket. And I can choose my doctors).
PS. I'm updating this as I recently went back to my specialist
physician for the bladder/testicle/rectal/muscle/joint/skin burning
pain. He wanted to start me on Topamax and see how it goes. I
insisted on a liver and kidney function test and to my
surprise.....everything was normal except my ALT and GGT levels. ALT
was 56 and GGT 80. I refused the topamax and he said it was most
probably due to all the medication I took. I went back to him two
weeks later and asked him to give the Topamax as I was in terrible
pain. He agreed, but said he wanted to test my liver function
again...This time is was WAY off. My ALT was 140 and my GGT was
260!!!!! It was more or less the same time that my testicle and
bladder/stomach pains got real bad.. He immediately sent me for a liver
ultrasound...got the results back today...all looking fine, excepts for
a fatty infiltration of the liver in the gallbladder are.no gallstones
or anything abnormal detected. .but I haven't heard anything from the
doctor yet....this is nerve wrecking.....
PLEASE HELP!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Keen,
I am NOT a doctor. You indicated in your post that you felt much better
after you were given antibiotics. It's my GUESS that most of your problems
were the result of infections. It's possible that the infections came back
after you quit taking the antibiotics. You may want to ask your doctor to
make sure the infection has gone away before you stop taking the
antibiotics. One of the problems is that many people stop taking
antibiotics after they start feeling better. You should NOT do that.
Discuss this subject with your doctor.
Jason
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
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