|
Home > Archive > Multiple sclerosis support > March 2005 > hello
You are viewing an archived Text-only version of the thread.
To view this thread in it's original format and/or if you want to reply to
this thread please [click here]
|
|
|
| Hi,
I am new here so I taught it would be nice to introduce myself  . My
name is Kasia, i am 26 y. old and I was recently diagnosed with MS.
Right now i am ok - i just had optic neuritis - but this was my second
"neurological incident" (few years ago I had a numbness in the right
part of my face). My MRI shows some laisons, I have rather typical
symptoms (like fatigue, pins-and-needles in my right hand etc.; plus
my mother has MS). I'm also waiting for the results from my spinal tap
and then my dr will probably start some treatment (I'm sure I will
write then to ask about drugs). I was still hoping that maybe if my
spinal fluid was fine I would not have MS but my dr said that I had it
anyway.
So now I am trying to get used to the thought that I am sick and I
need to go on somehow .
I hope i can post any silly questions in this group - it is really
helpful to have a "place" where one can ask/say anything
Thanks for your support,
Kasia
Ps. Sorry if my English is sometimes wierd (it is my second language)
| |
|
| Hi Kasia!
So glad you found your way here. Feel free to asking any questions
you might have, you will probably find what you need here. There
are a lot of great people here that know what you are going through.
Silly questions...there is no such thing, any goes!!!
English is your second language, what is your first? I couldn't tell!!
Smiles & Best Wishes!
Kami
"godot" <godot@wp.pl> wrote in message
news:35835b92.0503220844.4b5584c3@posting.google.com...
> Hi,
> I am new here so I taught it would be nice to introduce myself . My
> name is Kasia, i am 26 y. old and I was recently diagnosed with MS.
> Right now i am ok - i just had optic neuritis - but this was my second
> "neurological incident" (few years ago I had a numbness in the right
> part of my face). My MRI shows some laisons, I have rather typical
> symptoms (like fatigue, pins-and-needles in my right hand etc.; plus
> my mother has MS). I'm also waiting for the results from my spinal tap
> and then my dr will probably start some treatment (I'm sure I will
> write then to ask about drugs). I was still hoping that maybe if my
> spinal fluid was fine I would not have MS but my dr said that I had it
> anyway.
> So now I am trying to get used to the thought that I am sick and I
> need to go on somehow .
> I hope i can post any silly questions in this group - it is really
> helpful to have a "place" where one can ask/say anything
> Thanks for your support,
> Kasia
>
> Ps. Sorry if my English is sometimes wierd (it is my second language)
| |
| godot@wp.pl 2005-03-23, 5:35 pm |
| Thanks for a warm welcome . It is still somehow unreal for me - still
can't belive it... Probably normal reaction. On the other hand it is
kind of relief - I seriously started to believe I was hypochondric (and
for sure everybody else thought so...). And now everything is somehow
in place - all my "weird" symptoms etc.
Just a question to start :D - what is the relation between MS and
cigarettes or alkohol. I am not smoking or drinking to much, but
sometimes I do go with friends for a "beer" and I am not going to
resign from it. I know that dr will tell me that cigarettes/alkohol
are bad - well... I know it already . I was just wondering if there
is any direct relation between these and MS. Anybody knows anythinhg
about it??
bobbyD wrote:
> "godot" <godot@wp.pl> wrote in message
> news:35835b92.0503220844.4b5584c3@posting.google.com...
My[vbcol=seagreen]
>
> hi Kasia ,, welcome here,, you can ask anything you want we wont
bite,, ,,
> well unless thats what you need?,, we try to be very silly, so if you
like
> being silly , you will fit right in,,, there is alot of sillyness
here,,
>
>
>
>
> (I'm sure I will
>
> sure we love drugs, here,, most smoke pot,, alot of us love good
drinks,,
> shooterz,, wine,,
>
> or maybe you meant medications,,,?? cause we dont have a clue bout
them???
> lots of info on marijuana!!!
>
> yes i am kiddin,!!!! such sillyyynessssss
>
> , most of us know as much about any meds for MS as our
Neurologists,,, in
> fact most of us know more about what is being tested and being
released,,,
> for us to use,,,
>
> every -drug treatment procedure medication ointment therapy regime
diet
> supplement herb excersize additive
>
> you name it, someone here tried it,
>
> i am sorry that you had to find us,, but glad you found the best
place to[vbcol=seagreen]
> start learning bout MS,,,
>
> peace
> bobbyD
>
>
language)
| |
|
| g...@wp.pl wrote:
> Just a question to start :D - what is the relation between MS and
> cigarettes or alkohol. I am not smoking or drinking to much, but
> sometimes I do go with friends for a "beer" and I am not going to
> resign from it. I know that dr will tell me that cigarettes/alkohol
> are bad - well... I know it already . I was just wondering if there
> is any direct relation between these and MS. Anybody knows anythinhg
> about it??
hi kasia, dobry dzien i powitanie! (I don't really speak polish, just
collect little phrases in languages other than english and use them
when the opportunity presents itself.) ;->
there have been some studies done showing that cigarette smoking is
connected with M.S. -- the one i recall was somthing about non-smokers
with risk factors for M.S. actually being diagnosed with it was lower
than that of smokers. and, of course, it's bad for one's health
generally.
i've never heard anything about alcohol being detrimental, at least not
in moderation! :-> i don't think your doctor will tell you that
alcohol is bad, other than if you have problems with coordination,
gait, and such, being tipsy will tend to increase those problems. many
doctors recommend moderate drinking for it's general health benefits.
seems likely the doc would be anti-tobacco, as many of them are, but as
long as you're not two-fisting yourself into oblivion on a regular
bsis, it seems very doubtful that the doc would recommend giving up
alcohol altogether.
have a beer for me next time you go out with your friends. ;->
rose
| |
|
| Hey Kasia, Rose is right. The only time any of my doctors have told
me to stay away from alcohol is when I am on a medication that
indicates "Do Not Drink". I have a drink from time to time and
I just don't smoke for personal reasons (family history of cancer, a lot
of cancer. Why rock the boat! After all I already have MS, can't
handle another disease, not that it still can't happen just because I
don't smoke!).
All I can say is we have MS, we are not dead!! Live and have fun, just
be smart while you are having that fun...you know all the motherly
warnings, I don't need to lecture you!!! Sorry, I am getting prepared,
my oldest daughter is a year away from High School! SCARY!!!!!
Smiles!
Kami
"rose" <rosedawn_scott@yahoo.com> wrote in message
news:1111596686.046678.312270@g14g2000cwa.googlegroups.com...
> g...@wp.pl wrote:
>
> hi kasia, dobry dzien i powitanie! (I don't really speak polish, just
> collect little phrases in languages other than english and use them
> when the opportunity presents itself.) ;->
>
> there have been some studies done showing that cigarette smoking is
> connected with M.S. -- the one i recall was somthing about non-smokers
> with risk factors for M.S. actually being diagnosed with it was lower
> than that of smokers. and, of course, it's bad for one's health
> generally.
>
> i've never heard anything about alcohol being detrimental, at least not
> in moderation! :-> i don't think your doctor will tell you that
> alcohol is bad, other than if you have problems with coordination,
> gait, and such, being tipsy will tend to increase those problems. many
> doctors recommend moderate drinking for it's general health benefits.
>
> seems likely the doc would be anti-tobacco, as many of them are, but as
> long as you're not two-fisting yourself into oblivion on a regular
> bsis, it seems very doubtful that the doc would recommend giving up
> alcohol altogether.
>
> have a beer for me next time you go out with your friends. ;->
>
> rose
>
| |
|
| That's exactly what I thought! Anyway - I am not dead yet, and I am
still planning to have a lot of fun in my life . I will probably have
to change some of my habits but not all for sure. i just wanted to ask
you about it because there are many deifferent opinions on waht one can
and cannot do having MS.
So now I know I am right
Thanks!
Kasia
| |
| Michael 2005-03-23, 5:35 pm |
| godot wrote:
> That's exactly what I thought! Anyway - I am not dead yet, and I am
> still planning to have a lot of fun in my life .
If it's a lot of fun you're really after, then may I recommend naked bungy
jumping? :-)
> I will probably
> have to change some of my habits but not all for sure. i just wanted
> to ask you about it because there are many deifferent opinions on
> waht one can and cannot do having MS.
One can bungy jump naked. I know: I did it myself just last month, and
this week marks 10 years since my MS diagnosis.
http://qcislands.ca/muirhead/MichaelBungyJumps
> So now I know I am right
> Thanks!
> Kasia
| |
|
| bungy jumping is one of the things that I always wanted to do.
unfortunately i am too scared to do it. but it is still in my plans -
something like "if i do this there will be nothing i can't do"
ps. congratulations - it was brave....
| |
| Dangerous 2005-03-24, 12:26 pm |
| My husband just bought me a Harley Sportster 1200C. I also know of another
gal with MS who also rides.
You can do anything your limits will handle.
--
Dora
Dangerous with Attitude
I do it cause I can
"godot" <godot@wp.pl> wrote in message
news:1111607075.422801.181570@z14g2000cwz.googlegroups.com...
> That's exactly what I thought! Anyway - I am not dead yet, and I am
> still planning to have a lot of fun in my life . I will probably have
> to change some of my habits but not all for sure. i just wanted to ask
> you about it because there are many deifferent opinions on waht one can
> and cannot do having MS.
> So now I know I am right
> Thanks!
> Kasia
>
| |
| Dangerous 2005-03-24, 12:26 pm |
| Michael,
If I told you that I captures a few shots from your bungee jump and
intermixed them with my bungee jump video....would you believe me?
Not..but I could I have the know how and technology.
--
Dora
Dangerous with Attitude
I do it cause I can
"Michael" <muirhead@haidagwaii.net> wrote in message
news:hpGdnfnIVvBYVNzfRVn-vQ@qcislands.net...
> godot wrote:
>
>
> If it's a lot of fun you're really after, then may I recommend naked bungy
> jumping? :-)
>
>
> One can bungy jump naked. I know: I did it myself just last month, and
> this week marks 10 years since my MS diagnosis.
>
> http://qcislands.ca/muirhead/MichaelBungyJumps
>
>
>
>
| |
| Michael 2005-03-24, 12:26 pm |
| I double-dog dare you to do that and show the result to Rick, you naughty
woman, you. :-)
Dangerous wrote:
[vbcol=seagreen]
> Michael,
>
> If I told you that I captures a few shots from your bungee jump and
> intermixed them with my bungee jump video....would you believe me?
> Not..but I could I have the know how and technology.
>
>
>
> I do it cause I can
> "Michael" <muirhead@haidagwaii.net> wrote in message
> news:hpGdnfnIVvBYVNzfRVn-vQ@qcislands.net...
| |
| Dangerous 2005-03-24, 12:26 pm |
| The challenge is on.....LOL
He hasn't seen your bungee jump but I told him about it. Told him about
both movies...the leg strap capture and the
all see capture.
I have already taken my vhs movie and converted it to dvd...
Like i said the challenge is on.
--
Dora
Dangerous with Attitude
I do it cause I can
"Michael" <muirhead@haidagwaii.net> wrote in message
news:hfudnUId2_qMjN_fRVn-vg@qcislands.net...
>I double-dog dare you to do that and show the result to Rick, you naughty
>woman, you. :-)
>
> Dangerous wrote:
>
>
>
| |
| Dangerous 2005-03-24, 12:26 pm |
| Looks like I am going to have to renege on the challenge. My capture
program failed me. I keep trying to capture some snaps from your video and
it will
not let me.
And I cannot grab the movie to put it on my hard drive.
--
Dora
Dangerous with Attitude
I do it cause I can
"Dangerous" <dangerous@telus.net> wrote in message
news:8wp0e.104061$fc4.1107@edtnps89...
> The challenge is on.....LOL
> He hasn't seen your bungee jump but I told him about it. Told him about
> both movies...the leg strap capture and the
> all see capture.
>
> I have already taken my vhs movie and converted it to dvd...
> Like i said the challenge is on.
>
> --
> Dora
> Dangerous with Attitude
>
> I do it cause I can
> "Michael" <muirhead@haidagwaii.net> wrote in message
> news:hfudnUId2_qMjN_fRVn-vg@qcislands.net...
>
>
| |
| Michael 2005-03-24, 12:26 pm |
| Be careful using the words "grab" and "hard", Dora...
Dangerous wrote:
[vbcol=seagreen]
> Looks like I am going to have to renege on the challenge. My capture
> program failed me. I keep trying to capture some snaps from your
> video and it will
> not let me.
> And I cannot grab the movie to put it on my hard drive.
>
>
> I do it cause I can
> "Dangerous" <dangerous@telus.net> wrote in message
> news:8wp0e.104061$fc4.1107@edtnps89...
| |
| Dangerous 2005-03-24, 12:27 pm |
| Did I mention the challenge is back on.....of course now I will be producing
and editing.
And SNIPPING ,RESIZING, ENHANCING and all that other mumbo jumbo.
LOL
--
Dora
Dangerous with Attitude
I do it cause I can
"Michael" <muirhead@haidagwaii.net> wrote in message
news:1PGdnbHoIKh8s9_fRVn-uA@qcislands.net...
> Be careful using the words "grab" and "hard", Dora...
>
> Dangerous wrote:
>
>
>
| |
| bobbyD 2005-03-29, 7:15 pm |
|
"godot" <godot@wp.pl> wrote in message
news:35835b92.0503220844.4b5584c3@posting.google.com...
> Hi,
> I am new here so I taught it would be nice to introduce myself . My
> name is Kasia, i am 26 y. old and I was recently diagnosed with MS.
hi Kasia ,, welcome here,, you can ask anything you want we wont bite,, ,,
well unless thats what you need?,, we try to be very silly, so if you like
being silly , you will fit right in,,, there is alot of sillyness here,,
(I'm sure I will
> write then to ask about drugs).
sure we love drugs, here,, most smoke pot,, alot of us love good drinks,,
shooterz,, wine,,
or maybe you meant medications,,,?? cause we dont have a clue bout them???
lots of info on marijuana!!!
yes i am kiddin,!!!! such sillyyynessssss
, most of us know as much about any meds for MS as our Neurologists,,, in
fact most of us know more about what is being tested and being released,,,
for us to use,,,
every -drug treatment procedure medication ointment therapy regime diet
supplement herb excersize additive
you name it, someone here tried it,
i am sorry that you had to find us,, but glad you found the best place to
start learning bout MS,,,
peace
bobbyD
> So now I am trying to get used to the thought that I am sick and I
> need to go on somehow .
> I hope i can post any silly questions in this group - it is really
> helpful to have a "place" where one can ask/say anything
> Thanks for your support,
> Kasia
>
> Ps. Sorry if my English is sometimes wierd (it is my second language)
|
| |
|
|