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Home > Archive > Multiple sclerosis support > March 2005 > Hi all
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| Vodkee 2005-03-23, 5:34 pm |
| I stumbled on this group while browsing the internet. I'm 24 and I was
diagnosed with MS November of '03. I've been on Avonex, copaxone,
Avonex twice a week, Betaseron, and now I'm gonna start on Rebif. I
was lucky enough to get one dose of Tysabri. Before the Tysabri, I was
having exacerbations on a monthly basis, now it's been 2 months since
the last one. It's too bad that greed superceded their goals with this
awsome new drug. Anyway, it's nice to be among other people like me.
-Lucy
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| Hi Lucy!
Glad you found this newsgroup. It is really nice to be around people
(all be it over the internet) that have the same experiences as you!
I felt pretty alone with my disease until I dropped in here, thanks to
my husband. I was just working on getting the Tysabri when they
pulled it...very sad! I took Avonex of 5 years and am now heading to
Copaxone. I am not looking forward to the daily shot but at least it
isn't am IM like Avonex was!!
You were diagnosed young like I was, I was diagnosed at 20 after
having my first baby (now that is birth control for you!!!). But I did
have another baby and did great after that one. All I can say is life
goes on, MS is my grounding force(some times literally!!).
Smiles!
Kami
"Vodkee" <vodkee@gmail.com> wrote in message
news:1111372163.836191.286620@g14g2000cwa.googlegroups.com...
>I stumbled on this group while browsing the internet. I'm 24 and I was
> diagnosed with MS November of '03. I've been on Avonex, copaxone,
> Avonex twice a week, Betaseron, and now I'm gonna start on Rebif. I
> was lucky enough to get one dose of Tysabri. Before the Tysabri, I was
> having exacerbations on a monthly basis, now it's been 2 months since
> the last one. It's too bad that greed superceded their goals with this
> awsome new drug. Anyway, it's nice to be among other people like me.
>
> -Lucy
>
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| hi lucy, i'ts nice to 'meet' you!
i'm rose, 41, diagnosed in 1990 with RRMS, switcheroo to secondary
progressive came in 2000. i was 26 and my daughter was 7 when i was
diagnosed -- now i'm much 'wiser' ;-> and she's all grown up, just a
couple years younger than you are.
this is a great newsgroup. you can get all kinds of good info about the
latest research, suggestions for problems others have had and what's
helped them, a place to let off some steam when it all gets to be too
much, and a place to meet other folks who have M.S., all ages, both
genders, many countries, differing states of disease progression,
different abilities and interests.
welcome to the 'global village!' :->
rose
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| Cropsey 2005-03-23, 5:35 pm |
| Hey Lucy,
welcome to out world. Good luck. As diseases go, this is not the
worst to get stuck with. LIFE IS GOOD. Find reasons every day to be
happy.
Eric
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| Welcome Lucy, I too go my DX in November of 2003 (RRMS). Have only
had a few exacerbations since then but the one in '03 left my hands
almost useless most of the time.
Hang in there...
John
On Sun, 20 Mar 2005 18:29:23 -0800, Vodkee wrote:
> I stumbled on this group while browsing the internet. I'm 24 and I was
> diagnosed with MS November of '03. I've been on Avonex, copaxone,
> Avonex twice a week, Betaseron, and now I'm gonna start on Rebif. I
> was lucky enough to get one dose of Tysabri. Before the Tysabri, I was
> having exacerbations on a monthly basis, now it's been 2 months since
> the last one. It's too bad that greed superceded their goals with this
> awsome new drug. Anyway, it's nice to be among other people like me.
>
> -Lucy
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| Vodkee 2005-03-23, 5:35 pm |
| Thanks, that's what keeps me going, knowing that things could be worse!
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| Cropsey 2005-03-29, 7:15 pm |
| Hey Lucy,
welcome to out world. Good luck. As diseases go, this is not the
worst to get stuck with. LIFE IS GOOD. Find reasons every day to be
happy.
Eric
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| Vodkee 2005-03-29, 7:15 pm |
| Thanks, that's what keeps me going, knowing that things could be worse!
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