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Home > Archive > Multiple sclerosis support > March 2005 > tysabri question
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| Noelle 2005-03-19, 5:16 pm |
| does anyone know if they have pulled Tysabri world wide or just in the US?
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| good question, I assumed it was worldwide but now I don't know but maybe
somebody does.
Joyce
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| Marcel 2005-03-19, 5:16 pm |
|
"Jim Carter" <spamfree@teranews.com> wrote in message
news:1110397038.ce50d67ee364db231a61c4a836a1e0ec@teranews...
> On Wed, 9 Mar 2005 11:29:21 -0600, "Noelle" <froggy-76@Comcast.net> wrote:
>
>
> I thought it was available only in the US.
That's right.
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| bobbyD wrote:
> "Marcel" <marcel@nomail.spam> wrote in message
> news:422f6711$0$44110$5fc3050@dreader2.news.tiscali.nl...
>
>
>
> in Canada i am sure they have stopped the Fast Track it was on,, and sent
> that train back home!!!!!
>
>
> and pot still needs further testing to see if it has any side effects?? come
> on a few thousands years of testing and use is long enough is it not,, that
> is one slow approval process????
>
> this process for approval was being tssed about ni government when
> Betaseron made me sick before it was rolled over into pharmacare and i was
> paying it myself,,
>
> now this deadlt tysibri is fast tracked and golly,, its released before the
> study participants finished a foillow up??? or a long enough time on the
> drug to find if they would have anything like ohhh death as a side
> effect!!!!!!
>
> i am disgusted that it is taking year after year,, and all they do is waste
> more time,, violating my rights to have access to a medical tool that can
> alleviate my suffering - which in Canada is my charter right!!!! to have
> anything that is known or thought to help alleviate my suyffering made
> available without delay!!!
>
> coming up on 10 years since i took betaseron!!!! still they are dickin
> around with marijuana doing absolutely bullshit nothing,,,, about it but
> making things more confusing and screwed up,, in their bullshit MMAR
> program.
>
> they are not helping me access medical marijuana,, the stuff they provided
> is 5-7% THC and powdered garbage with seeds stalks etc all ground up dried
> out and grosdsssss
>
> my last batch of NL#1 tested at 24% THC,,, kinda low for my likes,,, since
> my buddy got it to over 30% thc , using different nutrients,, but either
> way its 4X the medication of the government shit,,,plus it has the best
> flavour aroma etc,, just awesome,, as a medicine for me,,,
>
> bobbyD
>
>
I may have misread this but i thought the decision to pull the drug was
the manufacturers so it would be worldwide. or it sounded worldwide..
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| Marcel 2005-03-23, 5:34 pm |
|
"Noelle" <froggy-76@Comcast.net> wrote in message
news:V6Kdnf277oPjpK7fRVn-2g@comcast.com...
>
> I'm still obviously missing something. how is it that 1 death has
> triggered
> this? especially since he died of such a rare disease and there are so
> many
> drugs out there that have a much higher risk of death and have caused many
> more deaths!
>
> noelle
>
>
It's not one but two deaths in a very short time, plus the trial period of
the drug was only half on it's way (1 year out of 2).
Marcel
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| Marcel wrote:
> It's not one but two deaths in a very short time, plus the trial period of
> the drug was only half on it's way (1 year out of 2).
>
> Marcel
>
>
I'm pretty sure only one of the patients that developed PML has died.
Still not good.
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| Kevin wrote:
> Marcel wrote:
period of[vbcol=seagreen]
>
> I'm pretty sure only one of the patients that developed PML has died.
>
> Still not good.
kevin, yahoo news ran an article on 3/4/05, stating that the second
patient who used banned M.S. drug had died.
it's the only report i've read stating that both patients had died --
i've never seen a retraction, but everything i've read since then
indicates that one patient died, and one is still hanging in there.
not sure which is correct, but like marcel, i also saw the news that
two had died from PML.
rose
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| Jim Carter 2005-03-23, 5:35 pm |
| On Mon, 21 Mar 2005 06:38:22 -0600, Kevin
<bigtallbike@netscape.net> wrote in alt.support.mult-sclerosis:
>I'm pretty sure only one of the patients that developed PML has died.
>
>Still not good.
These patients were part of the initial trials so had been on the
drug the longest. It is probable that more would have died as
they reached the same point in time on the drug.
--
Spelling and grammatical errors are deliberate
to catch copyright violators. ©¿©¬
Perth, Ontario, Canada
| |
| Rob Duncan 2005-03-23, 5:35 pm |
|
"Jim Carter" <spamfree@sentex.ca> wrote in message
news:ev9u315mlrpvfucfghjrupercv2lafhbeo@4ax.com...
> On Mon, 21 Mar 2005 06:38:22 -0600, Kevin
> <bigtallbike@netscape.net> wrote in alt.support.mult-sclerosis:
>
>
> These patients were part of the initial trials so had been on the
> drug the longest. It is probable that more would have died as
> they reached the same point in time on the drug.
> --
> Spelling and grammatical errors are
Not that many people were in the trials, so its remarkable that two people
died from such an obscure disease. I can understand people being upset the
drug turned out to be a killer, but not the desire to go on it, or continue
taking it, as if somehow wishfull thinking would make them the lucky one not
to catch progressive multifocal giantIllkillyourassness. (neural JVC)
Rob
| |
|
| rose wrote:
> Kevin wrote:
>
>
> period of
>
>
>
> kevin, yahoo news ran an article on 3/4/05, stating that the second
> patient who used banned M.S. drug had died.
>
> it's the only report i've read stating that both patients had died --
> i've never seen a retraction, but everything i've read since then
> indicates that one patient died, and one is still hanging in there.
>
> not sure which is correct, but like marcel, i also saw the news that
> two had died from PML.
>
> rose
>
http://www.healthcentral.com/news/N....cfm?id=1505870
| |
| Vodkee 2005-03-23, 5:35 pm |
| Let's not forget that the people who died were on Tysabri and Avonex
combined. I still have huge hopes that Tysabri by itself will come
back, and soon i hope.
| |
| Josie Byzek 2005-03-23, 5:35 pm |
| Right. Also, this is a disease that usually only people with severely
compromised immune systems get, i.e., people with AIDS.
Josie
"Rob Duncan" <robduncan@gbronline.com> wrote in message
news:nbCdnSZZJInS3aLfRVn-tQ@gbronline.com...
>
> "Jim Carter" <spamfree@sentex.ca> wrote in message
> news:ev9u315mlrpvfucfghjrupercv2lafhbeo@4ax.com...
>
> Not that many people were in the trials, so its remarkable that two people
> died from such an obscure disease. I can understand people being upset
the
> drug turned out to be a killer, but not the desire to go on it, or
continue
> taking it, as if somehow wishfull thinking would make them the lucky one
not
> to catch progressive multifocal giantIllkillyourassness. (neural JVC)
>
>
> Rob
>
>
| |
| Rob Duncan 2005-03-26, 10:14 am |
|
"Jim Carter" <spamfree@sentex.ca> wrote in message
news:ev9u315mlrpvfucfghjrupercv2lafhbeo@4ax.com...
> On Mon, 21 Mar 2005 06:38:22 -0600, Kevin
> <bigtallbike@netscape.net> wrote in alt.support.mult-sclerosis:
>
>
> These patients were part of the initial trials so had been on the
> drug the longest. It is probable that more would have died as
> they reached the same point in time on the drug.
> --
> Spelling and grammatical errors are
Not that many people were in the trials, so its remarkable that two people
died from such an obscure disease. I can understand people being upset the
drug turned out to be a killer, but not the desire to go on it, or continue
taking it, as if somehow wishfull thinking would make them the lucky one not
to catch progressive multifocal giantIllkillyourassness. (neural JVC)
Rob
| |
|
| rose wrote:
> Kevin wrote:
>
>
> period of
>
>
>
> kevin, yahoo news ran an article on 3/4/05, stating that the second
> patient who used banned M.S. drug had died.
>
> it's the only report i've read stating that both patients had died --
> i've never seen a retraction, but everything i've read since then
> indicates that one patient died, and one is still hanging in there.
>
> not sure which is correct, but like marcel, i also saw the news that
> two had died from PML.
>
> rose
>
http://www.healthcentral.com/news/N....cfm?id=1505870
| |
| Vodkee 2005-03-29, 7:15 pm |
| Let's not forget that the people who died were on Tysabri and Avonex
combined. I still have huge hopes that Tysabri by itself will come
back, and soon i hope.
|
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